I have a friend with Epilepsy for 45 years. She's been taking Tegretol for about 30 years. It helps but she still gets 3 to 5 seizures a month. She went to a new Doc who wants her to take Trileptal. I'd like to hear from anyone who has taken Trileptal, whether good or bad experiences?
Hi Thor not getting any answers so far so i thought i would give you a little input from what i know from a Pharmacy Technicin i myself was on tegretol for years for other reason.
But when i was still working the use of tegretol went don't drastickly due to Trileptal and i can't remember one person going back on tegretol partly because after being on it for so many years some people build up a tollerence to it and they have to keep increasing it.Sounds like you have a pretty sharp doctor because even 6 or more seiziures a month is to many over the period of time.These 2 medications are related but Trileptal has a extra twist to it for people that continue to have seizures it is longer acting and stays in the system longer than tegretol which seem to be the big reason it controls people with seizures Tegretol was one of the first antiseizures drugs out But now days these newer medications can hold a blood level much better and keep the short circuts in the head from causing the seizures,Where tegretol has a much shorter blood life in her system which is what causes the seizures,They know so much more on Epilepsy then they did and much better medications.I hope this helps you some another thing to concider is the price unless you have insurance to help But for health reason's i am really supprised the old doctor did not change her medication a long time ago with that amout of seizures a month Hope this well help you some.and both of you have a great holiday season. Chuck 1957 retired pharm.Technician Cpht oregon...
I've been taking Trileptal (Oxcarbazapine is the generic name) for my epilepsy for the past 13 years, and I've never experienced a single negative side-effect. That being said, my epilepsy is a case that isn't as severe, but I'd still think that just a higher dosage would do wonders. Hope this helps!!
I've been on Trileptal for 5 years. It has controlled my seizures but I've had a problem with low sodium. In fact my sodium level has gotten so low on Trileptal that my neurologist is now in the process of changing my medication. We've had to take it slow due to the lower I go on Trileptal, the more my seizures return. My main seizure medication is Topamax. Then the Trileptal was added for break through seizures. Now doctor is adding Keppra as he decreases the Trileptal.
I just spoke to D and got some further information. She hasn't tried the Trileptal yet because she's having problems with her landlord. That has to come 1st because she has to be sure she has a place to live.
I was wrong on the dosages the new Doc wants her on. She leaving her on 800 mg of Tegretol a day. But she's adding 900 mg of Trileptal a day in the form of 450 mg Trileptal taken twice a day. In other words one 300 mg + one 150 mg Trileptal twice a day. To me this sounds like too much at once to start with. Anyone has any thoughts?
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