Has anyone that has ankylosing spondylitis and uses enbrel had any problems with their symptoms coming back after 1 yr?
Prior to using Enbrel I took methotrexate weekly (about 27 mg). I started in 2000 and stopped MTX per my doctor's recommendation. After 9 years I realized that Enbrel had only masked the pain; my right ankle and heel accumulated more "crud", my left MCP and both TMJs likewise.
In 2009 or so I stopped Enbrel, resumed MTX (sub-cu), and tried Humira, Otezla, prednisone, and now Simponi. I would seriously ask you to consider MTX but it has risks. Monthly blood tests help so do NOT ever think of not doing those tests.
Bottom line: IMHO, AS is a life-time job. If you realize the risks with other drugs and weigh a life in pain or any other type of negative effect, you must weigh what really "drives" you and how much time you have to life. I have BEEN EXTREMELY LUCKY, so please don't feel you have to follow my thoughts and recommendations. I am a single guy, no kids, no wife, no mortgage, and no debts other than the monthly credit card. I have led a somewhat risky life (white water kayaking, mountain and road biking). Now, my back and neck are basically "toast". I probably pushed the "envelope" with my doctors but then they have sought to get me the best drugs when available.
- Enbrel Information for Consumers
- Enbrel Information for Healthcare Professionals (includes dosage details)
- Side Effects of Enbrel (detailed)
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