the never-ending months-at-a-time kind??? Mine used to come only for a few days when seasons changed, but this time it's been hanging around since October. We've tried oxygen, verapimil, zonegran (i have epilepsy also, so we increased the dose), two nerve block injections. I'm currently getting weekly UV magnesium treatments. Everything works for a day or two and then the headache comes roaring back. Any suggestions would be greatly appreciated!
Yes, I too have the chronic headaches,. For the most part from what I understand is that the chronic headaches are tension related,. The only thing that has worked for me is the liquid stadol, its a spray that you take and that really wipes it out. Very addicting if you over use it.
I have had chronic cluster headaches since 1978 & have seen many experts. My headaches start as the sudden, excrutiating pain directly behind the eye that lasts only 30-40 minutes (typical of cluster headache), but then the pain carries on for hours in a less intense form called allodynia, which is when your hair and/or scalp are hypersensitized to pain. Researchers are just now beginning to notice that many cluster headache sufferers also experience allodynia, which is why the pain never seems to go away between headaches. For me, best preventative medication is Periactin (cyproheptadine), 8 mg twice a day (makes many people drowsy, but not me). I also have an implanted occipital nerve stimulator (since 2007) which helps a lot. Best abortive for me is Ultram; I take 3 of the 50-mg tablets at a time, although I try to limit myself to 1 or 2 doses per day taken at the times I most need to function effectively.
See if you can get your doctor to prescribe you Imitrex vials then get the smallest thinnest shortest insulin needle you can from your Pharmacy and try the Under the Skin injection I do mind in my shoulder but some people do it in their thigh some people say it causes rebound and I think sometimes it does but as you know when the pain gets that bad for that long and we're fairly certain we're going to get another one later anyway I'll take my relief now thank you with Imitrex though less is more I found the bigger shot and I take the more likely I am to get a rebound not always but more often than not an Imitrex shot somewhere between 20 and 30 units and a 1mL. Syringe will give me some more complete relief within 5 to 10 minutes find out where the next cluster convention will be and do your best to make it there there are literally hundreds of years of personal cluster experienced people sole purpose is to help each other best wishes.
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