the never-ending months-at-a-time kind??? Mine used to come only for a few days when seasons changed, but this time it's been hanging around since October. We've tried oxygen, verapimil, zonegran (i have epilepsy also, so we increased the dose), two nerve block injections. I'm currently getting weekly UV magnesium treatments. Everything works for a day or two and then the headache comes roaring back. Any suggestions would be greatly appreciated!
Yes, I too have the chronic headaches,. For the most part from what I understand is that the chronic headaches are tension related,. The only thing that has worked for me is the liquid stadol, its a spray that you take and that really wipes it out. Very addicting if you over use it.
I have had chronic cluster headaches since 1978 & have seen many experts. My headaches start as the sudden, excrutiating pain directly behind the eye that lasts only 30-40 minutes (typical of cluster headache), but then the pain carries on for hours in a less intense form called allodynia, which is when your hair and/or scalp are hypersensitized to pain. Researchers are just now beginning to notice that many cluster headache sufferers also experience allodynia, which is why the pain never seems to go away between headaches. For me, best preventative medication is Periactin (cyproheptadine), 8 mg twice a day (makes many people drowsy, but not me). I also have an implanted occipital nerve stimulator (since 2007) which helps a lot. Best abortive for me is Ultram; I take 3 of the 50-mg tablets at a time, although I try to limit myself to 1 or 2 doses per day taken at the times I most need to function effectively.
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