I have been having episodes for the past five yeaers that require hospitization at least 5-6 times a year and have tried numerous medications that have not worked .
I live in the UK and we have a Professor Lane based at the Chest Clinic in Birmingham who specialises in Angioedema.
I have have the hereditory angioedema condition and suffered the same as yourself and since being prescribed Danazol 1 100mg tablet twice a day I have been 99% free from the symptoms. If I get some symptoms then I can up the dosage to a maximum of 8 tablets per day. The symptoms usually slows down and stops and it is gone within 24/48hrs.
The main thing that sets off my symptoms is cut flowers especially Lillies and Hiacyinth, although I do not have any plants in the house now to be safe I have all fake plants. It is strange as I can do gardening and have lots of flowers out there, but if I can smell a strong scent from certain flowers I do move away just in case.
Another symptom I have is very bad stomach aches sickness and dia etc this was caused by bread, not the wheat/flour but the strong yeast they use to make bread. I eat as little bread as possible now. I take Magnesium Trisicilate mixture for this. It clears it up within a few hours.
I do hope this information will help you. I am 52 now and have suffered with this condition since I was about 11.
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