I just found this group on a night filled with hopelessness over finding a treatment to help my TD. I am Bipolar and took Geodon for 7 years. I complained of symtoms for over 2 years before I diagnosed myself. My doctor who I had been seeing for eight years was so upset over his failing to diagnose the problem causing it to be permanent that when I would see him he would get so upset that I had to stop seeing him. Now I Feel isolated and alone and the only person who understood me and who I could talk to is gone. Because I am able to go to work and function no one at work knows. I chew gum all day long to cover up the movements of my mouth and no one notices that my feet are clenching nonstop. My children live out of state and don't know how much this had affected me because I don't want to tell them and I don't want them worry. No one understands how exhausting these movements are. I take an MAOI for my depression and lately it doesn't seem to help the depression has returned. My new doctor has tried me on several medications but none have worked or they have made my depression worse. Most of the meds suggested for TD are benzos or can't be taken with an MAOI or worsen depression so Botox had been suggested for the mouth. Thanks for reading my long post and any suggestions.
Hello Dahlia - Botox has been successfully used in the medical field with great results! I had botox injections in my back for a few years. I wish I could have continued with this treatment because the end results lasted for about 5-6 months at a time. It is also widely used by dermatologists and pain management doctors. Have you spoken with an oral surgeon about this? I understand how this can affect you and also the anxiety part of it. I also was on Parnate which is an MAOI - for many years and with excellent results. You didn't mention your medication or the dose you were taking. Perhaps you need a med adjustment? It might be working just fine but for the fact that you are "worrying" yourself to death and maybe you should talk with your family.
I understand you don't want your family to worry but if you give it to them straight and also that you are seeking solutions to your issues then I don't think they would worry... I think they would "support" you!!! I would talk with an oral surgeon about this option... and/or what other options might be available.
I hope you will post more about this so we can support you along the way.
I am sorry that I don't have any answers for you but I do have some questions for you. I also am constantly chewing as if I had a piece of gum in my mouth. My doctor thought it was caused by Seroquel that I was on. I was taking 50 mg of Seroquel the doctor said cut it down to 25 mg, after that he said no more. But I'm still chewing. someone mentioned to me that this is a tick. I'm not sure what it is or how to make it stop. I also try chewing gum all day. I'd love to hear from you.
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