Hi, im trying to trace as many people suffering with the rare disease Behcets so i can compare notes with my daughters, so if you have the illness please mail me. Thank you
Anybody in the UK with Behcets Disease?
- 6 Aug 2011 by tamirra
- 1 November 2012
There are quite a few people with Behcet's in the U.K. You might want to get more information at the Behcet's Syndrome Society (behcets dot org dot uk)
You can also get info at the American Behcet's Disease Association site, at behcets dot com. Written info (books) about BD can be found at behcetsdisease dot com.
All the best.
I am not in the UK, but I do know a few people from there that have Behcets. one can get the group information from Essential Behcets for them and/or Joanne Zeis has a lot information. She is an author on Behcets and knows all the sites for our area. The UK has a great doctor in London for Behcets, Dr. Desmond Kidd. (London) If you do not have any luck I will look up a lady from there and let you know her e-mail address, she post on the Yahoo Behcets Uk Site. Her name is Kathryn B.
You can always contact me, as I have had it 22 years Best of Luck...
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