... for 4 years now. I have been given an epi pen but am not happy at the prospect using it as I have an irregular heartbeat
Yes I'm afraid to say that it does. It’s classed as Laryngeal angioedema I am not meant to have adrenaline administered either as I am sensitive to the carrier in an epi pen. On every occasion I have had angioedema episode it has always effected my throat and tongue and it is not a pleasant experience. I currently have a permanently swollen tongue from a trail on IVIg therapy which for me did not work but sent my system into overload – so it’s liveable but uncomfortable.
These are the methods I use and you must carry all meds with you all of the time.
Keep high dose antihistamines at all times – if your doctor wont prescribe these then carry a few packets of bog standard over the counter ones.
Ask your doctor to prescribe you Prednisolone as a stand by emergency medication and carry it with you at all times.
If you do take an attack and you are taken to the hospital ask the hospital to use IV steroids instead of Adrenaline and state the reason why you are asking for this.
What I have learned is to be very proactive with nurses and doctors – don’t be afraid to say that you recommend they use X and this because of……….
Also remember that you know your own body better than anyone else, I know when an attack is coming long before my heart rate goes up. But you must keep calm at all times. I know that it’s hard but keeping calm really does help the whole situation should you find yourself in one.
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