I am suffering & gettingno joy trying to solve my pudendal nerve issue. Has anyone out there found an answer? I've been given morphone, etc, I'm on opioids now & ive tried a nerve block injection in my piriformis but it only mildly removed the pain . I cannot bend over at all - it causes extreme pain in my right hand stomach and up & down my legs and buttocks. I have had years of trigger point therapy, acupuncture, physio, aromatherapy. I can't sit at all & even laying down I get pain. I lay on on a lounger with hot water bottles to relax as it's the least painful position. If I lie on my back I do not get pain in the buttocks but then I get pains in my stomach at the bottom of my ribs ribs. My physio thinks that it is muscle pain tension. During the day when I am moving around I get moments of no pain at all. If there is anyone it has been in my position and can give me a please please please can you contact me.
I was so glad to see your outcry reaching out for answers and help for this debilitating nerve problem only approx. 2 out of 100 people when asked have heard of pelvic neuralgia aka
PUDENDAL NERVE ENTRAPMENT.
What you have writtten is an
excellent description. I would like to know what you think
caused yours. I had a simple partial hysterectomy and never got well. The nightmare began.
The gyn who performed the surgery wanted to get rid of me fast. She sent me to a back doctor. What a joke he was.
My primary care doctor at the time finally thought she had an answer when she said that sounds like your pudendal nerve. Never heard of that.
She researched it and told me later they briefly touched on it in medical school.
It is such a long story and a very long journey with multiple doctors, specialists, tests and more tests, the Mayo Cllnic many times with more doctors and more tests. I feel your pain. I had to give up a teaching job I dearly loved. Your life is never the same. I have two medical issues stemming from the surgery. I thought every thing going on was all together but the Mayo Clinic said it was two separate issues. IMy outcome with three years in is dealin with a pain management doctor. That has also a nightmare at times.
I just lost some info.
I will add the MAO CLINIC promotes an intensive three week session on dealing with chronic pain. Since none of the procedures worked for me, they gave me information and a tour where it's held in the pain management department.
I would love to talk with you more and find out your experiences with this. It always helps to talk and share stories on our struggles.
I will give you my email address if you let me know or talk here.
I hope you don't run across many errors and can understand everything.
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