... fatigue. Now, the start of the third day, my stomach is burning, as well as my urinary tract worse than ever before even while not urinating. Has this happened to anyone else?
If you have just started Elmiron you will not see the benefits for several weeks. Rapid heartbeat for me was checked by a cardiologist who said were caused by the other drug for bladder Tolterodine. I take a beta blocker to slow it down coz I can't stop the Tolterodine. If you have Interstitial Cystitis then it is very unpredictable and anything and everything could cause a number of different types of flare ups - that is what is so depressing about the disease I'm afraid. I have excess acid which I take Omeporazole for however I put that down to my being stressed a lot. Do you follow the IC diet and avoid all the foods/drinks you should - I follow it religiously and can confirm I am much better and have long periods now where I am comfortable. Good Luck
I have been taking Elmiron for about a year (maybe a little less) and I don't recall having a rapid heart beat. My pulse is normally 90 or so anyway, so I am not sure I would notice that unless it really kicked it up. It is possible that I was fatigued. I take 1 capsule 3 times a day to break up the side effects and to give round-the-clock coverage. It does take time for it to make a difference, and I remember it being about 6 weeks before I was feeling like there was less twitching and convulsing in my bladder. I have been taking Nexium at its maximum dose for several years, so it would have to really make a huge difference in my situation to notice additional stomach acid.
I take Cystex when I am having a flare up because it just calms the whole area down. It isn't a orange-pee sort of medication. It is OTC and has an analgesic and something else that goes to the bladder. It isn't something that numbs the area, but it seems to make the pressure and twitching and burning sensations stop. I haven't found anything like it, so I order it from a pharmacy online (Medco) so I can get bottles of 100 tablets at a time. Walgreens sells it, at least at my stores, but that is the only store I have found it at. They are in boxes of 40 tablets.
Have you taken a UTI test yet? AZO makes some home test strips that test for bacteria and nitrites (I think those are the 2 components). They are kind of pricey (3 strips for $10) but it could save you a trip to the doctor for a test.
I hope that you feel better soon, and feel confident calling your pharmacist and/or doctor about how you are feeling. The condition is bad enough without having a medication that is making it feel worse. I would love to see an update about how you are feeling and what you decide to do. IC is so different for every person that it is difficult to fine tune treatment to help relieve the symptoms. Best of health to you! Terra
it is horrible this interstitial cystits..i cannot sleep at night because of it, i cannot walk properly,bend, stand longer than 15 minutes... the medicines no longer work for me... elmiron when it is installed into the bladder is the only serious relief i get for about 2-3 hours only, thats it... i continue to take it daily because it does help with the bladder spasms some. but when the pain comes it is herendous... the installations is the best way to go as long as you can... along with the other bladder medications... i wish you well..any person dealing with this illness.. its driving me insane... really the level of pain is really bad... elmiron will take some time honey, but get the other meds to go with it to help you... endure it all... god be with you LJAY from vtech10
I've never experienced the rapid heartbeat, but even after 1 year on elmiron I have constant pain and the burning you talk about. I also take cymbalta 60mg and 50mg hydroxyzine (allery med) at night.
I have hydrocodone and lorazapam for pain but the hydro doesn't work and the lorazapam helps some if I take 3-4mg.
Talk with your doctor ASAP as there are many side effects with elmron as with every drug.
Hope you feel better soon! Living in constant pain is sooo difficult!
- Elmiron Information for Consumers
- Elmiron Information for Healthcare Professionals (includes dosage details)
- Side Effects of Elmiron (detailed)
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