I have lost 24,000 hours of sleep over 32 years due to chronic insomnia, pain, restless legs, PTSD and resentments. im living in a fog. I currently take 1-3mg of clonozapam and 900 mg of nurontin daily. I am only able to ask this question today because i took 20mg of adderral. I am so sick of life that i dont care about side effects anymore. my quality of life is so poor that i dont want to live anymore. I have had past diagnosis of PTSD, schizophrenia, scizo-effective, depression and anxiety. I have taken tens of thousands of dollars in prescriptions that have not done anything positive. Trazadone gave me a hangover, seroquel really put me into a fog. the others had little or no effect. I feel like a walking zombie and need MAJOR results, not most doctors pussyfooting around results. any med advice would be appreciated. one last think- im grateful that im sober cause these pills don't work with booze. if you have this problem give Alcoholics Anonymous a shot, it works if you work it.
Hi Jason, I also suffer from insomnia. And can I identify, have had it most of my life. Not certain if you've tried the benzodiazepine, sleeping medications. Dalmane (flurazepam) is one, I took it for several years. It worked well untill my body built up an immunity to it. Theres Halcion(triazolam) Restoril(temazepam) and several others. Then theres the anti-depressants such as Desyrel, Elavil. I'm not sure what you've tried in the past. All of the above will sedate and help make you sleep. All be it a drugged one. Dalmane did that to me. I'd sleep but wake in the morning, tired. as if I never slept and rested. best to you.
Hi Jason! Welcome to Drugs.com!
I'm so very sorry about your pain & present state of health. My husband has severe Restless Legs Syndrome (RLS). In addition to Clonazepam, he also takes Lyrica 300 mgs & Pramipexole 0.50-0.75 mgs at bedtime for his condition. Lyrica can also help with pain. Over the years, his dosages have either increased or been switched to different medications. This is his current RLS combo & he doesn't feel any side effects at present with these pills.
There are some non-medical things that may be helpful for RLS such as limiting caffeine, chocolate & alcohol after supper. Check your iron level.
Some people swear by placing a bar of soap (not Dove) under the bedsheet & keeping it there. We haven't tried that yet though.
I've been ill for over 3 years & use Cymbalta 120 mgs daily for my chronic pain. With chronic pain & insomnia, you won't be refreshed enough to always have energy to fight through your daily battles. Jason, are you feeling overwhelmed right now? What does your doctor say? My hubby has depression & when he tells the doctor about how his prescriptions aren't working, then he'll either get a dosage increase or get to change to something that may work. I'm extremely saddened to hear that you've been suffering for so very long now. :(
Jason, I'd suggest to try Ask a Doctor online which you can access from the search browser or can sometimes find it as an ad banner at the top or side of Drugs.com I'm not recommending this site, just suggesting it. They have medical doctors available online. Please tell them your diagnoses & whatever prescriptions that you can remember trying in the past. Let's see what he/she might suggest as an alternative for you now.
There are some support groups here that you may wish to join such as pain, insomnia or restless legs groups. It's likely that other contributors will be posting some more answers here to you soon, Jason. :)
Jason, you must be such a strong & determined person! I know you may not feel that way now but I personally know how debillitating chronic pain can be. It's so great that you found us here too! The posters here are very empathetic & knowledgable & many have gone through similar instances. Please try to remember: YOU ARE NOT ALONE!!!
We'll be here to try to help you & support you, Jason! If you wish to make me a friend, please do so. The more the merrier, I always say! LOL
Please don't hesitate to email me or ask for any help on this website.
Could you keep us posted with any updates as well please? Thank you!
We truly care about you, Jason. Welcome to your new community! :)
With wishes for better health for you soon, Jason!
from Wendy :)
I am very sorry that you are so horribly miserable and weary. I DO understand most of what's happening to you. For about 10 years, I've had severe restless legs. I won't bother you with the rest of my illnesses, as I want to concentrate on your RLS. This will be long, but I want to help you!
Regarding prescription sleeping meds... I do not believe that they would help you overall. You may get a few hours of sleep, but more than likely, you will be jerking in your sleep, and therefore, not get any restful sleep. You will still wake up feeling drained and in pain! But, most times, any kind of "sleep" we can get is psychologically helpful, if not physically so. Just be aware of the hangover/fog that can be caused by these sleep meds.
With all of the trouble you are having, of course you are depressed. But, I think you should stay away from antidepressants that you take at night, that are supposed to help you sleep. Again, for the same reason as sleeping pills. But, I do believe that an SSRI antidepressant (celexa, wellbutrin, zoloft, etc.) may help your overall outlook. These you take in the morning, and do not leave you feeling like you are in a fog.
Regarding the lavender soap under the sheet - I was so praying that it would work, but did not hold out much hope. It did not work for me. I believe it may work for some people with mild RLS. But, as you know, being desperate, I was trying everything posted on the internet.
I've tried all of the RLS meds out there. I am taking clonopin and neurontin, too. I think I could stop the clonopin. The neurontin does help some and I am very thankful for it. At least my arms are not jerking as much. I had to back off of my neurontin dose, because it made me sleepy, and left me in a fog. And, as you know, one of the worst things is to be very sleepy, but jerking.
There are 3 things that have helped me. They are:
First - a tablespoon of French's mustard. Yep, the kind you put on a hotdog. When my doctor suggested this, I just rolled my eyes. But, it does work for me - sometimes. I take it when the jerks first start, and it will give me half an hour to an hour of relief. I am grateful for any relief, as I know you are!
Second is hydrocodone (vicodin or lortab). You should get the liquid form, which is Hydromet. It works faster, and it does not have tylenol in it, so it won't hurt your liver. It has been a blessing to me. It doesn't always help, but it has kept me from eating a bullet. I hope your doctor will give you this. I think the narcotic pain meds are a last resort, and are for people with severe RLS. The use of narcotic pain meds to control severe RLS is in many reports and studies listed on the internet. Perhaps you could print them out and give them to your doctor.
The third thing is something that has come from years of living with this. I almost never jerk when I am eating and watching TV at the same time. Also, talking on the phone helps them a lot of the time. And, singing out loud and very loud. Last night, when I felt the jerks start, I started singing the song 99 Bottles of Beer on the Wall. I picked this song, because I have to really concentrate while singing it, to keep up with which number is next. That dang feeling would start to distract me, but I just made myself focus completely on the song. By the time I got to 50 bottles, I stopped, and my jerks had left. I was actually able to get a couple hours of sleep before the jerks woke me. As I guess you know, RLS is a neurological disorder. So, it is my theory that if I can involve many senses at one time (sight, sound, taste, etc.), maybe it would distract the jerks. It does work for me sometimes.
There is a new medicine that just came out, named Horizant. It is some form of gabapentin (neurontin), that changes in a different chemical way, when you take it. I have not tried it yet, but since gabapentin has helped me some, I am looking forward to giving it a try.
I know you are in hell Jason, but please don't let this crap beat you!
One last, but critical point I want to tell you is... never start more than one new med at a time! Try one med for a week or so, and if it doesn't work, stop it, and go to the next med. If you start 2 or more at the same time, you will not know which one works, or does not work. This does not apply to the mustard, which you can take at any time.
My very best wishes to you. Please post and let us know how you are!
i can feel the anxiety coming off your post. I really shouldnt recommend anything but seeing as youve tried any and all medication to hit the common market !! i dont see any harm in it. Ask your doc to try one course of valium, not serepax or xanax just plain valium. There is a risk of addiction if u stay on the valium too long but im guessing you are not a stranger to med addiction. Just try it. It work wonders for me. Some doctors will not prescribe it but if you are sensible with it, then there shouldnt be any problem at all. I really hope you find something that will give you peace. All the best, Skins1970
I was diagnosed with PTSD a year ago after thinking I only had Major Depression for 14 years and having every antidepressant med thrown at me. In addition, I have chronic daily headache and migraines, and am also a former alcoholic. (As for AA, I learned a lot but am an atheist so the program didn't fit me and I got sober on my own- which AA says is not possible... )
The only experience I have with RLS was during my pregnancy- but it was very hard to deal with. Insomnia has never been a problem for me either, but here is what I am just going to throw out there- all of your symptoms could be coming from the PTSD. It often comes out in physical symptoms like headaches and pain. It often causes insomnia. It also causes problems with addiction- to numb the pain of the event that traumatized you.
I'm not sure if you are seeing a therapist now, but finding one you connect with and respect is huge, and if you can do that it is better than prescriptions, although many with PTSD need prescriptions long-term because it is such a debilitating illness and hard to overcome. I have kept my med list down to Wellbutrin for depression, Klonopin for the anxiety and panic attacks, and Keppra for the headaches, plus as needed pain meds and migraine abortives. If a med is making you feel like a zombie (as many of them do) talk to your doc and try to get off of it. These meds can often make us feel worse when going through the trial and error that I- and it sounds like you- have to go through to try and find a way to live somewhat peacefully. I hope things get better for you. Push your doctors until you find a med combo that works, and get a good therapist who you connect with- it has helped me a lot. Hugs.
I congratulate you on being sober, and wish you the best. I have almost 2.5 years now without a drink. :)
Hi Jason, I too have suffered from restless legs and insomina since I was a youngster. 15 years ago I began really searching for relief. Sleep studies, test this drug and that drug, meditation, exercise, hot and cold treatments,bathes, stress awareness... etc. Well, I stumbled upon my relief when after dental surgery my dentist gave me a week of Lortab and POOF, at night my legs had a nice calm peace, no jerks, pain, antsy misery!!! I told my neurologist and he prescribed Lortab and Xanax 2mg for my sleep. I cannot tell you the impact being able to sleep peacefully has done for me. Yes a AM addicted... to SLEEP that is. :) good luck diane
p.s. I have ADD also and I just had to quit the adderall. It messed up my sleep and legs too much.
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