I spent many years with increasing problems. I was practically bedridden for 2 years after leading a very physically active life. I saw 7-9 endocrinologists and many other doctors. I was told that I was suffering from menopause, depression, loneliness, lack of self control/discipline, hypochondriac. The most insulting was being told I needed to get a puppy to relieve the loneliness. I've talked to several people locally and they've had similar experiences.
Wow! People can be SO harsh and just do not understand what we're going through! I've gained around 80-90 lbs. and get treated like I eat fried everything all the time and MUST be eating gallons of ice cream everyday. The fact is, I have a very small appetite, I fry NOTHING and am not an ice cream lover. I eat very healthy food. My cholesterol went through the roof too. I finally found a great Endocrynologist who picked up on my symptoms pretty quickly thank God! My insurance would not cover one cent of the Genotropin injections I needed so badly! The starting dose of 0.2 mg. shots of this medicine would have cost me $1050 per month! Pfizer has this program called "The Pfizer Bridge Program" that will take in your yearly income minus everything you pay out per month (even if it's something you pay yearly, you divide by 12 and show it in a monthly form). You just write down every monthly expense, even the smallest trivial things that come out of your pocket. You do not have to have a really low income to qualify either! Pfizer is paying for 100% of my medication and medical supplies that goes with it. I've been taking the Genotropin injections for about 3 weeks now. I had some weird side effects at first! I'm just now finally starting to feel a bit extra energy and have lost about 8-10 lbs. so far. I am praying that my dose will go up and I drop these extra lbs. fast and get all my muscles and energy back ASAP! Anyone know of any support groups in the Houston, TX area? No one in my life understands what I'm going through! I need support! -Robyn✨
Hi it took many years and frustrations for me to be diagnosed. I was required to go through hospital testing. I was wondering, which tests were you required to take for a diagnosis? Did your insurance deny your coverage initially? & then later approve? (This was my experience) by the way I am 76 and been diagnosed for 8 years. I would love to compare our notes.
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