... problems with either y muscles or joints or both. I am on suboxone treatment and noticed it said people with addisons should not take it. I am wondering if anyone knows why?
Since yours is such a rare disease, and so many potential problems, i think you should probably contact Reckitt-Benckiser, the suboxone manufacturere. If you will go to suboxone.com, you should see a toll free telephone number for them, please call it. We are simply patients and a support group for different meds and conditions, and won't truly have a definitive answer for you, you need the professionals. My suspicion is that subs might suppress the thyroid, i know many subs males patients have their testosterone levels bottom ut and i have seen a few people who had thyroid problems while on subs. Your pharmacist also should be able to explain it to you also.
Yes Racey, I agree with patti. I also think that you should discuss this with your physician. I am assuming that you have an endocrinologist if you have Addison's Disease. I am not sure why there would be a contraindication. Addisons is serious as it is a hypocortisol adrenal insufficiency state. Suboxone really doesn't have any adverse effects on the adrenal gland... but again, check this out with your doctor to be absolutely sure.
Stay well... pup
One more thing Racey... have you had electrolytes drawn recently? Addisons particularly has an effect on the mineralocorticoids from your adrenal gland. If your electrolytes are abnormal this would certainly cause muscle pains and cramps... just felt as I should add this... pup
Hello - I definitely would question what has changed since the pain began, and I think another responder is onto something - Addison's by itself can impact testosterone levels, which contrary to popular myth, women need, and long-term opioids reduce it already. Then, you add in any other potential autoimmmune issues, ie thyroid which effect metabolism, and you're looking at another change around the 35 year old mark. Then, add in the possible dropping of estrogen levels, which can increase pain levels, and that can interact with your suboxone dose, etc... please feel free to pm me, and also may I recommend tossing this question around Dusty Hardman's website, as her knowledge base and her regular posters have forgotten more than any doctor I've met in dealing with my own Addison's (primary) and other autoimmune issues... Terca
hi, I am 35 with Addisons and I am leaning as I go with this. But YES my legs hurt so bad, most of the time. My muscles not my joints. It is to the point I can not walk, literally. That is when I may be in what I call a mini crises where I still can function and be coherent, just need more assistance and Cortef of course. I have tried Florinef and it did a number on my system and stopped taking it. I have not gotten any answers if my muscle pain is from the low cortisol or low aldosterone? cant find a doctor to help with that at this time. So I been dealing and taking more Cortef helps, but still an issue. But it is almost constant. I have not heard of sbuoxone, I will look into that.
I am glad to hear I am not crazy with my leg pain, but so sorry to hear of your struggle.
I have also posted a new blog if you would like to see it, maybe that might help as well. thanks for the tip and I will look into it myself and let you know.
- Suboxone Information for Consumers
- Suboxone Information for Healthcare Professionals (includes dosage details)
- Side Effects of Suboxone (detailed)
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