... Myoclonic at about 3yrs. We have tried several meds over the yrs, been on the Ketogenic diet for 5yrs, and got a Vagal Nerve Stimulator last Oct.. Some things seemed to help his seizures and he would have short periods without seizures, but basically had at least one a day lasting for less that 30secs. He started ONFI three weeks ago and we haven't had a seizure since. My question is; has anyone else had such positive results with this med and does it last? We are cautiously optimistic
I know of many whom ONFI have taken with great success. I have Epi, myself. I would suggest that you ask your son's nuero for a rescue med, as well, to keep on hand. My neuro prescribed Diastat for me in the event I had more than one seizure in a day or one that lasted longer than 1 min. It is very rare that I have ever had to use it but it is nice that I have it should I ever need it.
Many neuros do add on another AED (anti epilepsy drug) to help with seizures.With Myoclonic seizures the most common add on drug is Klonopin.
Keep in mind that it normally takes a full six weeks for the body to adjust to any new AED.
Wishing you both the best of luck!
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