... started with a severe headache in the back of my head. I do not tilt or shake - I am just in pain. Had my first botox a few weeks ago - I notice nothing. The baclofen just makes me tired - no results from it. My question - how long did it take for some of you to begin to tilt? What was the progression like for some of you? I have been having a hard time with this diagnosis
anonymous, I have had torticollis for five years now. My husband noticed the tilt in the first year. I never had any issues in my neck . My work area was changed and I was looking up at the computer a week later I started having pain in my neck. I thought that I must have pulled something in my neck. I went through many different treatments. pt 30 visit ,chiropractor- 60 visits, accupunture. massages weekley.I wasted so many years and so much money nothing helped. I have been getting botox for two years now . It will take a few visits before you start to fell some releif they have to find the right dosage and the right muscles. I have little pain with botox neck is still turned. I am still getting botox injection 400 units plus I am taking Kreppa. Give it time... It is very frustrating because alot of doctor don't know much about this illness . I am on my 8th doctor... I send you my best it is a long hard road... But remember too stay positive I feel that is my best medicine... I can no longer drive for the past 2 yrs and 9 months ago my doctors made me stop working. It does get better it just takes time.
Hi, everyone is different. It may not get any worse or it May by a miracle stop. Try Your Best To Relax. Massage Your Neck With A Pain Relief Gel. I Have It Severely. A Pain Med Is All That Helps Me I Have Segmental Dystonia Affecting Several Body Parts. I Have Had It For 15 Years. My Neck Pulls To The Right And Backwards. It Started Right Off With Severe Pain And Pressure In The Back Of My Head And Pulling. Im Very Weak Now From It. It affects my legs too. I hope your condition doesn't get any worse.
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