... started with a severe headache in the back of my head. I do not tilt or shake - I am just in pain. Had my first botox a few weeks ago - I notice nothing. The baclofen just makes me tired - no results from it. My question - how long did it take for some of you to begin to tilt? What was the progression like for some of you? I have been having a hard time with this diagnosis
anonymous, I have had torticollis for five years now. My husband noticed the tilt in the first year. I never had any issues in my neck . My work area was changed and I was looking up at the computer a week later I started having pain in my neck. I thought that I must have pulled something in my neck. I went through many different treatments. pt 30 visit ,chiropractor- 60 visits, accupunture. massages weekley.I wasted so many years and so much money nothing helped. I have been getting botox for two years now . It will take a few visits before you start to fell some releif they have to find the right dosage and the right muscles. I have little pain with botox neck is still turned. I am still getting botox injection 400 units plus I am taking Kreppa. Give it time... It is very frustrating because alot of doctor don't know much about this illness . I am on my 8th doctor... I send you my best it is a long hard road... But remember too stay positive I feel that is my best medicine... I can no longer drive for the past 2 yrs and 9 months ago my doctors made me stop working. It does get better it just takes time.
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