... necrotizing pancreatitis. In the hospital 3 months, lost 50 lbs. Came very close to losing the battle a couple of times but started recovering after the 5th drain was inserted into the pseudocyst. I have been home for 3 weeks and am able to eat as long as I watch the fat. Little nausea since I quit taking the antibiotic. How important is it to take the Creon? I can't say I can tell a difference whether I take it or not. I still have pain in my ribcage, can't take a deep breath without stabbing pain. Dr has me on Norco, which does NOT work! I am very weak most days. Do we ever really get back to what used to be 'normal'?
Hello, hope this finds you well! You and I have almost identical diagnoses. My cyst was drained multiple times as well and I had a pancreatic duct stent placed. I have been in the same boat you are but I haven't had any pain management such as narco. I almost lost my battle in December of 2012 when I was only 20yrs old. I have been in and out of the hospital ever since and have been in debilitating pain just as you. My lower lobes of my lungs are diminished because as you said I can't take full breaths because it hurts so much. Eating is hard because my digestion is terrible. I also now have type 1 diabetes from the dying pancreas. And to end with your question. Do things ever get back to normal? No, but I have good days and bad days and the chronic pain is a battle scar of what you (I) have been through and will continue to go through.
I've been looking for someone to relate to and I'm glad I found this question! Thank you. My name is Will and I'm 21yrs old with Chronic Pancreatitis. :) good luck and everyday is a new one!
The creon is keeping your pancrease from working as hard by putting enzymes in your system that it would normaly have to produce.You should definitely tell your dr. the norco isnt helping.I know doctors try the lowest dose at first,but if they dont want to talk about other options you need another doctor.Most pain management doctors have dealt with this disease before and may offer better help.Your doctor should have no problem referring you.I have had chronic pancreatitis for over 10 years and recently started seeing a pain specialist.I was scared to go at first,friends had told me they only want to lower your dosages.That was not my experience.He really wanted to help and actually put me on stronger meds.I hope this helps.Pray hardest when its hardest to pray.
After a while the pain meds don't work as we do because we become ammune to them. I have had CP for about 22 years now and for some people it does get easier to bear, but for the rest of us it doesn't. It gets more depressing and more painful. I believe it's different for everyone. As for the enzymes, they only cause me to flare again with the CP so I quit taking them. I don't really get hungry anymore, but when I eat it's usually yogurt and fruit. You can message me anytime if you want to talk. God Bless you.
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