... something else. I finally had to seek pain managment and was lucky that I found an established, qualified group that is not a pill mill. I have been on a combination of medications and I find that the percocet is the most effective for breakthrough, they seem a little reluctant on the long-acting but I have been on oxycontin 10 mg bid, it worked for a short time but I became pregnant and during the pregnany I had a substantial decrease in pain and stopped taking everything except the percocet, just decreased my dose. Now the baby is 3 months and I feel like I was hit by a Mack Truck and the pain is 3 times worse than before the baby. They put me back on the Oxycontin but I didn't feel it was working at all. Now I am on MOrphine LA 15 bid. I dont feel any relief from that either . They want to diagnose everyone with fibromyalgia but I am reluctant to accept this Dx. My pain is all over my body, in my joints, especially my hips and shoulders. I have had one MD tell me that he thinks I have a mild case of EDS. My point being is that the docs are always wanting me to try these RX, I have never heard of and they are expensive even with insurance. I am getting to the point, I promise!! I just spent the night in the hospital and the past 2 weeks in pain related to kidney stones, that I thought, was just really bad gas. Gas and constipation, mines well be my middle name, so I never thought it was anything more, until I had to pull over and breath through the pain, like it was a labor pain!! I"d rather have 5 more babies than this pain. I was sent home b/c I have no intentions on staying there until the rest pass, they hold you hostage in the room and won't let you off the floor. So, therefore it's like jail with drugs and TV. For pain they gave me Dilaudid, I am already on percocet for chronic joint pain and when I was having my so-called "gas pain", I was taking 2 10/325 tablets. There is no shame in my game, I refuse to be in pain. They gave me Dilaudid to use instead of my percocets, ummmm... completely ineffective!! I know I am a nurse but I am so confused right now!! I'd rather take a handle of zanaflex and the 2 percocets! I thought the Dilaudid was supposed to be stronger??
I am 35 y.o. I have had some form of pain since I was a child. It always got chaulked up to?
Added 19 Feb 2012:
I also had to take prednisone for 12 years, due to chronic idiopathic uticaria! Does anyone think that the pain I am having could be related to all the years I was on the prednisone?? Jesus, when I am 50, they are going to have to take me to pasture and put me down, like an old horse!!
Hi ashely, my brother takes oxycodone at home a large dose of 30mg several times a day, & 10mg. of oxy for breakthru. That's quite a lot, anyway, he was in the hospital & for quite a bit 12 hours or so they would not give him any pain meds, but he was smart enough to take his with him so he just took his own. When he finally got to see a doctor on the floor, they also gave him dilaudid, which yes in theory is suppose to be stronger, but at the 1mg. every six hours of course it was not helping his pain. You didn't mention the dose they were giving you, but I'd bet it was not very strong. Dilaudid is getting to the top on pain meds. Iike you had pain even as a child growing up & everytime I had a child (3 in three years) (&,of a way different time period) I really thought I was going to die! When I was a kid, even a scratch was so painful I got made fun of for being such a cry baby.
Now I am 65 years old & grew up as a child way back in the fifties, so you can't imagine what I went thru. They believe Fibromyalgia is brought on by a traumatic issue in your life, be it physical or or maybe like mine was abuse, the bad kind. I don't know for sure if that was my trigger, but paper cuts even today feel like I could just die of pain! I was finally diagnosed in 1992 by a rheumatologist with fibromyalgia. By then, the migraine, osteoporosis & arthritis were already racking my body so bad with pain. Plus I had had two failed back surgeries, scoliosis,& several other issues. I was given antidepressant to get me into REM sleep, every 6 weeks, it was changed. I had a rheumatologist from Australia, who made a point of telling me that he wanted to be a doctor, but wanted a 9 to 5 job, is why he picked rheumatololgy. That told me a lot about him right away. He refused to believe me one time that I had osteoporosis so bad (in front of another doc who was just interning)that I demanded an x-ray of me knees because I could hardley walk. Well, after many views, he had to admit he was wrong as they were bone on bone. His face was red as a beet, because he had to admit he was wrong right in front of another doctor.He in my opinion was nothing but a pill pusher, but don't let my experience with a rheumatologist scare you away. Not once did this doctor give me blood test, & I do have to thank him for my 35 years of 24/7 migraines relief. I had a bad one on an appt. day, & he could see I was in agongy. They were so bad I was hospitlaized with shots of demerol for weeks at a time. He gave me a shot, had me lay down, shut off the lights & came back in 15minutes. The headache was gone, & it was the new at the time immitrex shot which worked great but they don't make the shot anymore because it completely takes away migraines. Each shot you got, the less the time in between the migraine, & eventually they stop completely. Well the drug company couldn't afford to lose all that money on that,& lose patients so they made it in pills, not as strong or effective as the shots. but back to your problem, I too believe it sounds like you have fibromyalgia, & pain pills alone are not the answer. Yes, they help you function, but as a nurse I m surprised you have not researched this further. You need to get into a REM sleep at night. Fibro patients as a whole don't do this, so meds have to be given to help in that area. Xanax works great for me. I started the dose of .5mg in 1994, & have had to increase over the years to 3mg now & for the past 4 years. I don't desire it at any other time or anything. Just shuts down my brian at bedtime(Itake it about 30 minutes before bedtime) Most fibro sufferers will tell you (they are type A personalitiy) that is their problem in sleeping they can't stop their thoughts enough to fall off to sleep. A lot of people may disagree in case you have a addictive type of personality. I just got tolerant of the dose. I also take oxycodone 15mg for my pain. But not necessisarily just for fibro pain. I have a multiltude of problem with very very bad arthritis, compression fractures all the time, leg & pack pain from the screwed up surgery in 1973 & 1980. I have Lupus, & many other conditions. Before the pain was from all combined I was taking Darocet N100 & it helped, but ofcourse it was taken off the market, so hydrocodone as needed 5mg500tylenol. You will get to a point were whatever you take you can become tolerant of the dose & have to be moved up in dosage, but you have to set the limit to be able to make good decisions being a nurse & all too. I am old enough, & have been on disability since 1990 because my bones started to crumble, but if you work, I would hate to see you on diludid at a high dose & make mistakes in giving out meds, etc... There are other meds for fibro also that do not interfere with your thinking as much. All drugs have side effects, but Lyrica which I take instantly stopped my fibro pain, Some will say it has too many side effects but as I did lower the dosage. Gabepentin is another used for fibro pain, also cymbalta, altho my pain management doc will not prescribe it do to the side effects, & Savella. I am sure there are others as well. Learn to do yoga streches, it really helps too. A chiroprator can help more than any med or doctor. Mine is great, but can no longer go because of medicare & secondary won't cover the expense. They do PT not just cracking bones, & some advertise "if you have fibromyalgia"& so on. They do massage which really helps, heat & TENS unit parrafin for the hands or feet. etc... This is getting like a book, but I have found a great rheumatologist & agree that you too should see one & they wioll do blood tests to see if you have RA, & a ANA panel for Lupus & other autoimmune diseases too that can causse all you problems. Fibro is a horrible disdeas & is closely related to Chronic Fatigue Syndrom , Lupus, & RA too. You really need these tests. They will confirm your susu[pions fo fibro & treat you accorddingly. You may be referred back to a Paim Management for a narcotic pain pill to help you thru ths symtoms. Most doc today don't write pain scripts, because of the new lawas the FDA/DEA have institutued for writing these scripts. I wilsh you well, & sorry about the book, just wanted to let you know you are not alone, & explain how this goes. You should have been treated after your child was born for your condition. That is why it is so important to have a true diagnosis. Good luck, & we are a great support group too & you can bitch or yell, or ask for help & give your opinions too! It would be greatly appreciated...
Hi. Am curious. What were you taking the prednisone for, what dose, and how did it effect your pain?
I have been on it for seven years and see a direct correlation with dose and pain levels. higher the dose, the less pain. So it can mask what the body is really about. Once off you found your Mack truck. It just took time. And someone needs to look at why you were better during pregnancy.
Anyhow, with the big clinics get yourself sent to their pain management program and get some relief. They are all about chronic pain and it is worth the journey. If they call it fibromyalgia that's fine. Then they got a reason to send you for better help. There is always an up side to these things.
And if anyone does see someone like House I sure need his help, too.
I am so sorry that you are suffering like you are. I do have a thought though, you said that while you were pregnant your pain decreased so have you thought about having your hormone levels tested? Dilaudid is stronger than the other drugs but like previously said it depends on the dosage because while IV dosage is only 2mg max every 2 hours the pills can go up to 8mg every 4 hours or more depending on the doctor. Have you ever tried Fentanyl Patches, and with your tolerance I would ask for 100mcg per hour, since they deliver constant medication to you over 72 hours, although every 48 hours seems to work a little better. Than you can also use another drug called Opana which is stronger than the Dilaudid and it comes in 5 and 10 mg IR pills and they come in 20, 30, & 40 mg ER versions. The Opana would be great for breakthrough pain. I take 75mcg Fentanyl Patches q48 hours and 10 mg Opana every 4-6 hours, 350 mg Soma q8 hours, and 5-10mg of Valium also.
It helps dull the pain for the most part but with as much pain as you are in I don't know if it will help or not. Have you had an MRI of your head? There is a possiblity that there may be something that is making the pain center of your brain go haywire. Are you on any antidepressants that can help bring your seretonin levels up, something like Cymbalta that is used for pain management. Have you asked your pain management doctor to admit you to the hospital to get you stabilized in a controlled enviroment where he can adjust things as you go. I would really ask him about that! Good Luck to you!
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