My 33 year old daughter has stiff person syndrome and the doctors has been suggested rituxan.
It seems to be effective in certain patients. See the links below.
Hi yes my husband has been suffering with SPS since 2007. He did not get diagnosed until 2010. He started a course of rituxan every week for four weeks. He was able to swim 2 miles and run again. It has worked for him and has put him in remission. Unfortunately, the ins co considers this experimental so we did have to pay. Please give me your e mail and we can talk privately about your daughter and my husband.
I have had SPS for 15 years now. IVIG worked the first time when I lived in the UK but I gradually deteriorated and am living in in Canada where I have been prescribed prednisone and cellcept and the IVIG hasn’t worked this time around. I wonder why? I have taken dozens of courses of plasmapheresis and that is still not bringing me back up to the state I used to be. My neurologist is reluctant, (in fact refuses to prescribe Rituxian as apparently it is very expensive). Is it worth paying for ? Are there any other suggestions for help rather than mixing alcohol with my drugs ? I notice that being warm helps. Is this condition now ingrained in my head as I have fallen over so many times ? Are there any natural remedies rather than pumping myself full of medication ?
- Rituxan Information for Consumers
- Rituxan Information for Healthcare Professionals (includes dosage details)
- Side Effects of Rituxan (detailed)
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