I have read medical information but would like to hear for some one with PLMD. My daughter has just come off medication and gone back to her old sleep(less) patterns. She does not settle and seems to have night terrors, wakes up cranky or cries/screams for up to 1hr. I would like to know how she feels to try helping her, what is from the PLMD and what is just bad behavior. Thank you
I've had PLMD since I was a kid too. How was she diagnosed? I was diagnosed in a sleep study when I was in my 20's. For me I didn't know I had it, my husband (at the time) said I was always kicking during the night. I didn't even know I was doing this, they can be quite subtle, like a small flinch. I was always so tired, then found I had RLS too (was not really heard of much back then, 20 years ago). The sleep study recorded me moving my legs and waking up about every 10 seconds or so, they'd never seen anyone kick so much they said! I still suffer from it all to this day but Mirapex lessen my RLS. What medication was your daughter taking? For night terrors, try playing soft music for her, her brain will pick up on this while she's sleeping and may help her not to get into that very deep sleep that causes these. My daughter suffers from constant bad nightmares.
It almost sounds more like RLS if she has trouble settling (harder to tell when they're only 2) what does she say is bothering her & I can tell you if it sounds more like RLS since I have both. RLS is also hereditary, anyone in your family have it? I found out my aunt had it for her whole life, never did anything about it, never even knew it was a condition until I had it and told them about it.
I have had difficulties all my life with this sort of thing too. My mother told me ever since I was born, I used to wake up multiple times in the night crying and wanting a bottle. throughout my childhood and early adulthood, I've always had trouble sleeping and had to wiggle my legs or rock to get to sleep. My legs constantly move, in fact my left leg is jiggling away right now. My mother has this RLS too-we didnt even know it was a "syndrome" until recently. She taught me when I was young to cross my legs and swing the top one slightly to relieve symptoms! My husband states that when I am gone out of town, he cant sleep because the bed is still. He has gotten used to me wiggling my legs and rocking the bed!! I also jerk my arms out at times too.
I keep a plastic water bottle on my nightstand and I cant tell you how many times my arm has shot out and knocked it off the table and I do kick and jerk my legs while asleep too! Since I have been on opioid medications for my low back problems I sleep much better. I've not tried any of the RLS treatments. I used to have bad nightmares as a kid and I have actually taught myself to wake myself up out of a dream state-it really hurts your head to do this but I'd rather that than a nightmare!! I am claustrophobic so I often dream about being closed in or being underwater (especially if I have a cold or stuffy nose-the water dreams!) If I start dreaming something not pleasant I tell myself in the dream to wake and I do but like I said, it is usually accompanied by sharp head pain. My little brother used to have night terrors and used to walk around the house while still asleep and have no memory. He would be inconsolable until he wakened too. It definitely runs in families. My mother is in her early 70's and still wiggles her legs to go to sleep. Since I am now on opioids for pain, I dont wake up as much but some nights I still have trouble. It does make you very tired in the day. My mother said when I was little, I was a bear to deal with if I wasnt in my own bed right at bedtime. They tried to keep a strict bedtime schedule for me. I still dont seem to function well without sleep and it seems I get my best sleep right before morning. I try to be sure not to nap in the day. I cannot drink caffeine before bedtime. I try to keep a bedtime routine which usually includes a hot bath before bedtime-sometimes with Epsom salts or lavender. I think the difference between RLS and PLMD is that RLS is usually while awake and PLMD is movement while asleep and it is a specific movement too. With the RLS, I cant say that my legs "hurt" without movement. I've seen RLS described as people say their legs hurt without movement. I dont seem to have that. As I said as a child "I just get 'wigglies' in my legs" I'm not sure if any of this has helped you but that is my story! lol
Katieee- my son also has plmd and he was born in 2010 so loooks like he's same age as yours. I'm so curious how things have gone for you. My son started the colic crazy crying at 1 week old and was an impossible baby. We didn't get diagnosis til he was 4. He's almost 7 now and things recently have gotten worse. We had him on iron and melatonin for a couple years and all was very much under control. Lately he's developed all these nervous tics that are worse when he doesn't sleep well. He was up so early and sometimes he'll wake at 3am and can't fall back to sleep. I'm wondering what else I can do for him and what you've figured out over the years. Thanks! Amanda
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