... have this condition, or know someone who does. His quality of life is decreasing because of PMD
I'm sure you know the condition is rare and as a result there is limited information available. I was diagnosed 6 months ago but I do not have a complete picture as to what the future holds. There are a few folks (5) on Facebook sharing their experiences. You can find that page by searching "Pellucid Marginal Degeneration" on the Facebook site. I would also recommend setting a "Google Alert" (which is how I spotted your question)... that way each time anything (an article or a new study) is posted online about PMD, you get an e-mail with a link to it. -- Hope this is helpful.
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