He refuses to go back on Prednisone. Sulfasalazine was recommended instead. I am aware of the side effects listed. I am curious which side effects were actually experienced. Thank you for your help.
Ive been on prednisone for 3 months,60mg,now down to 10 mg,but many side effects,blurred vision,very hard to ealk am using a walker,shortness of breath,swollen feet and legs,and moon face,which is swelling of face and neck,evem though ive weaned off to 10 mg side effects habe not left my body.I was on for kidney failure,hope this answers your concerns
Prednisone is very different for different people. Same with the other medication. I need to stay on prednisone and, yes, there are side effects. However, I improve with it. I don't without it and can become gravely ill. There are medications that can be given to lessen the side effects. So one has to weigh the side effects against the disease and the outcome of each. I would be dead without it. So for me, that is how it is. People who are on it briefly like the other writer, does have the usual side effects, but will find that the moon face, etc., will slowly go away and one goes back to normal. Again, it is all about choosing which is worse, the disease or the treatment.
I take something for the anxiety and depression that comes with auto immune diseases. If he can exercise, it will help greatly. And quite frankly it is a medication that separates the tough from those not ready to be tough. Like I said, my disease will kill me. I tolerate the medication effects because the alternative is not good. Lol. A good physician who is willing to work with him and help with side effects makes a huge difference. One does not need to suffer in silence. Though I don't know his disease, autoimmune disease is tough. He can be a fighter if he stays well informed and knows that something can be done to help. I wish him and yourself the ability to become experts in this disease so you won't feel helpless and you can help direct treatment. It helps more than you could know to be ones own advocate. We move from being a victim of a disease to a fighter and helper of others. And there are always others. Good luck with the fight.
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