I'm a 16 year old girl and for the past 2-2 1/2 years now I've been suffering from daily constant headaches and maybe once a month I get a migraine that usually last 4 days and I'm completely disabled to do anything I can't even attend school because of the pain. The most recent migraine I got last for 2-3 weeks and made me miss the last week and half of school of my previous semester. I was in and out of my doctors office and they gave benadryl and vennigan shots in my butt as well as demural and vennigan so I could go to sleep because sleeping is my only escape but even when I wake up I still have them. I had a CT of my head and it was normal I have not yet had a MRI though. I'm on 50 mg of Topomax and for my onset headache I take firocet and for my onset migraine I take Imitrex. None of it helps. I'm beginning to feel hopeless! I have not yet seen a neurologist either because my family doctor just thinks they'll take the same steps. Also 2 years ago I had a rugby accident and was knocked out and almost broke my cheek bone the next day my doctor said I didn't have a concussion but could I have just passed the test even with a concussion? I have other medical problems and if you need that additional information I'm more than happy to let you know. I'm graduating this year and will be moving out of state for college and I'm beginning to become worried I wont be helped and well be on my own with this problem, I'm terrified of moving away and the possibility I wont be diagnosed or helped in any way. I've had neck treatments by my doctor to where he cracked my neck and it didn't help, also I'm a very stressed teen and a huge worry wort if that helps. My dad passed away when I was 3 so I also suffer from depression at times. Also I just had all my wisdom teeth removed 3 days ago do you think maybe in time this will help? Please please give me some answers or suggestions I am only 16 and shouldn't have these problems and am becoming desperate for help. Please if you need any more information I'm willing to communicate. I just want to live a normal pain free life before I leave for college.
I'm a 16 year old girl with daily constant headaches and get severe migraines for days?
Added 6 Jan 2013:
Forgot to add some things that may be important so here it is; I have sinusitis so get sinus infections quite often, my doctors actually thought this is why I had headaches but once it got more constant and the medicine stopped working they crossed that out. I got a hematoma and my bone feels very different from my right one (the left one was injured) and last April as I am very short and everyone in my school seems to be skycrapers I was accidently elbowed in my left cheek, the injured one of course! Just my luck and since then I have gotten migraines too. I have polycystic ovary syndrome so therefore I get bad cramps and all my hormones are higher than the normal numbers should be, the only normal hormone is testosterone the one that causes facial hair growth I believe. I have musculoskeletal too but wasn't informed with any more information on that just was marked in my physical, I also am having major knee surgery on both knees this year but I'm sure that has nothing to do with my headaches (just additional info). I was a rough wild child growing up and have two older brothers that are wrestlers so as you can imagine... lots of fights! Maybe even injuries I can't recall. When I was 5 I got into a head one car accident that put me in a neck brace for about 2 weeks and burnt my neck extremely bad. At the moment this is all I can think of, if I have any more details and information I will post it here.
Added 6 Jan 2013:
Also get sharp pains usually on my left side in one spot, it feels like I'm getting stabbed in the head. It has happened on my right side once. It usually last from 10 seconds to 20 seconds. Very severe and I have to put pressure on the spot and my face looks horrible when it happens.
Hi, someone who could probably help you a lot is 'ukliz'. If you add her to your friends list you can ask her a private question/get in touch with her about your queries? She has suffered with very severe migraines for a long time and has had many various treatments to try to find a solution/cure. I hope she doesn't mind me suggesting this?
Hi tawny brown & welcome to the site. My first inclination is that just maybe this did have something to do with your fall . I believe with all my heart that you should be seen by a neurologist to get a brain scan & pssible an MRI to rule out this possibilibty. If I understand you correctly this didn't start until that bad fall. No doctor can see what is going on in your head without a picture. Therr are many meds for migraines. I used to have them 24/7 for 6 weeks at a times, & they were very debilitating. At one point they thought I may have a tumor. I received Immitrex inthe shot form shich works so much better than the pils. It has almost completely cured me of migraines. I get one once in a whie now, but it is usually stress in my neck & shouldes is how it starts. My daughter has them also & uses Immitrex pills, & they help some, but doesn't make them stay away.
First you need to have any other problem ruled out to make sue this is what you have, Talk to your paents again bout seeeing a neurologist. They can do many tests right in their office to see ifyou have any weakness on one side or the other. It would be good to have one when you go if possible. I really empathize with you my dear. I was reaising 6 small kids when I had mine, & it was not picnic at all, Trying to concentrate on school work with a migriane is almost impossible. I undestand how come you are so leary,but don't let that scare you away from schol as it is so mportant to your education in this world Are they usually one sided? Starting with your forehead, moving to you reye, around your side of the head & into the neck? Avoid chocolate for sure & there are other catalyst of different foods that precipatate migraine too. Google Migraine & you will learn a lot. I wish I hadn't just awoken, & wasn't still a bit fuzzy this morning, but will think ont his & come back with some more info for you. Oh, do you ever get dizzy or black out with these headaches at all? I know I had to stay in a quiet, dark room when I had them to just survive. You are too young to have all thee problems & we will do all we can to try to help you. Do you drink coffee? Sometimes taking a couple of excedrin with a cup of coffee heps too. Now since you are just 16, not too sure you can have the excedrin becaus fo the aspirin causing Reyes syndrome, but ask your doctor first It would be worth a try I believe fioracet ha saspirin in it also. You say you also have other medical problems & that would definately help with helpng you. You sinuses can cause severe headaches too I have lots of allergies, & am always fighting sinus problems. I have idea for that too if you have that problem which can turn a sinus headache into a migraine really fast! let us know by either adding to your question or hitting the comment button below my answer. Would be more than wiling tohalp you. Have greandaughters your age, plus have been there so am anxious about your condition You are just too young to have this going on. Give us a shout ,& bless your heart dear one...
I'm so sorry you're suffering from this so young and the severity of your migraines is definitely an issue. I'm a little confused... did they start after the rugby incident? Are they close to your cycle? I get migraines but won't even compare mine to yours. If they didn't start after the rugby incident is there any other trauma you can think of that happened before they started.
Is the MRI scheduled? You should proceed with that ASAP. You may have what's called a subdural hematoma if it is related to any trauma, like a fall, where blood collects inside your head and puts pressure on your brain causing the pain in your head. But its been a few years correct? so that seems unlikely and CT would have likely shown that but if there's even a remote chance, Talk to your mom about seeing a neurologist. You can do the MRI first then see the neurologist or schedule with the neurologist who will order the MRI as well as some other tests. I'm sorry for the loss of your father.
I can't remember everything you wrote, I'm sorry. Are they getting more frequent and severe? If that's the case and your on medication, you most definitely want to be proactive and encourage your mom to take you to a neurologist as you're suffering too much. I'm so sorry you're going through this again. I thought mine that disable me for two days were bad enough but like I said they don't compare. The treatments about your doctor cracking your neck? Can you tell me more about that? It sounds as if he's acting as a chiropractor and I would definitely not have any more of those treatments nor see a chiropractor. You can ask me a PQ if you want to know why I suggest that but that's neither here nor there.
2) close to your cycle
3) any other trauma besides rugby accident?
4) anything you can think of that is common between the onset
Again, schedule the MRI and convince your mom to take you to a neurologist. This doesn't sound like something you're going to outgrow so I think it's time to move beyond the family doctor. Best of luck and keep me posted! You definitely want this at bay before starting college! How quickly did you say you were moving? It sounded like soon. Seems like you're very educated and articulate. You're too young to suffer through this.
Sending healing thoughts!!! Ill add you so you can answer me via PQ or on this thread.
You poor kid! I started getting migraines in the 4th grade. I would come home from school and throw up from headaches! I used to get them quite frequently too. You should have an MRI to rule any other problems out but dont be surprised if it is normal (and it will be if it is just migraine) Be careful with taking meds like Fioricet on a daily basis because Fioricet is notorious for causing rebound headaches and this can be a viscious cycle. Fioricet doesnt contain aspirin by the way-it is butalbital, acetaminophen and caffeine. Fiorinal contains aspirin but you are too young to take aspirin. One thing that did really help me is taking a beta blocker every day. This is not an immediate fix. I took it for over a year before I really noticed results. If you fractured your cheekbone, it will feel different from the other cheekbone, I wouldnt obsess over that but it could be that you have damaged a facial nerve and this may aggravate your headaches.
If you see a neurologist, he can test your facial nerves. Another thing to do is watch what you eat. Keep a food journal and note when you have headaches and see if there is a pattern of something you eat causing or adding to the headaches. High nitrate foods like hotdogs, sausages, cheeses, smoked foods, processed foods, chocolate and red wines are big ones for causing problems. For me, fresh tomatoes are a causative agent. I can eat canned tomatoes and sauces but fresh tomatoes will set me off for certain as will red wine (and I love a good dry red wine) Often times, it is one of your favorite foods that causes these headaches to exacerbate (get worse) and once you discover which foods set you off you just have to avoid them. Now, I usually only get a bad one once or twice a year and I used to get them 2-3 times a month and be incapacitated for days at a time. I found that chiropractic and neck exercises helps (I was a gymnast and I cannot tell you how many times I have had nasty falls on my neck and back that I pay dearly for now) See if your doc will order a beta blocker and give it at least a year. Watch your diet. Also have your hormones evaluated if they fall in relation to your cycles.
I am so sorry to hear about your headaches/migraines. There is LOT more that could be done to help you. My migraines are also very difficult to treat, but they have improved a lot. If you can see a headache specialist, that would be the best, but they are difficult to find. But instead see a neurologist who does know a lot more than the doctor you are currently seeing. You should be tried on another class of daily preventative migraine medication since the Topomax isn't helping you. And if none of the preventative meds help, then you would most likely be helped by Botox injections which have greatly helped me. Also, can I ask if you have any stiffness in your neck or shoulder area? Especially if you do, then nerve block and trigger point injections could greatly help you as they have with me.
If so, let me know, because the first Botox injections didn't help me because the dose wasn't high enough. And you may need all three of these injections more often given the intensity of your migraines. I need them far more often. Don't worry about the injections. It doesn't take long to get them and the pain is nothing compared to the migraines. Also what most neurologists don't know about is an anti-inflammation gel which calms down most of my headaches, but it is by prescription. Also if all else fails, you could get allergy testing. One last thing, when I was in grade school, then later in my mid-20s, I had constant headaches which turned out to be from mold in the basement. It didn't show, but the basements had been flooded at one time, and the mold was there, because as soon as I moved each time, the headaches went away. So there is a whole lot that can help you!!! And please keep me posted that I can give further suggestions. Wish you the best.
please look into brainwave treatment. my daughter suffered like you for two years post cocussion. we tried brainsave treatment as a last resort and it worked. she was feeling better just a couple treatments In. we live in Pa but there are locations all over. you can check out theevolutionarybrain.com to get an idea of what its all about. 10treatments costs 1500. worth every penny!
Have you done any research on Hemicrania Continua? It is classified under atypical migraines. I was misdiagnosed for several weeks with migraines and cluster headaches. None of the meds did anything for me except the ER drugs that were narcotics that just knocked me out and when I woke ... there it was constant one sided h/a with "attacks"occuring almost at same times daily and nightly. It will likely take a neurologist to diagnose and it is mostly in women and usually in 30's or older. So, you are young. But, I read that hormonal imbalances can be a risk factor.
My 21 year old son has very similar symptoms to yours. When he was 8 he banged his head on a rock while swimming in Hawaii. That was in 2000. He ended up with a headache that has lasted to this day, 13 years later. What appears to be common with yours is the head trauma. We think now that he may have suffered a concussion at the time.
Over the years we have tried every treatment and specialist we could find. Every specialist starts out completely confident that their specialty will provide the miracle cure, but weeks later they concede there is nothing they can do.
Recently Botox showed moderate relief for a couple of weeks, but was short lived.
A chiropractor took a different type of X-ray which looked longitudinally down the body rather from the front or side. This discovered at least one cervical vertebra was out of alignment. After quite a few treatments the neck problem seems to have improved. However, the headache remains.
Recently we have heard of Dr. Ivica Ducic, a plastic surgeon at Medstar Georgetown University Hospital. Apparently he has a procedure which relieves pressure on nerves, and claims good success with it.
We heard about him from this article
and his website is at
We haven't contacted him yet but are thinking about doing so.
Have you had any improvements since your last posting? Hopefully shared information can help us find relief
Honey ... if ur doctor wont send u to a neurologist then find another doctor ... sometimes doctors settle means they dont care ... so find one tht does..sometimes a new doctor finds new things and gives u new answers ok ..wont hurt ubto try tht ..ok ... and u need to go be tested for these few things ... ok ... chairia malformation and lupus . Go to ur pediatrician and ask him to do a mri of ur brain for the first one .. and send it to a neurologist to look at . Then the second one u need to go have a serious set of blood work ran . When u get ur headaches ..if u get blurred vision and weak ... pain n ur neck ... cant hardly walk or stand ... cant stand the light ... this disease chaira malformation it is a one time fix ... .. but it where at ur brain stem its swellen and cosing headaches and all and it comes and gos .. do ur reasearch ok ..
and the other is lupus its and ongoing illness tht u will need to take meds for but just becos u have headaches there not always migraine s ok .. if uve taken imatrex for migraine headaches and u still have them id start testing for other things ok .. cos there cold be other things wrong .. when u have a headache write down all tht ur haven besides ur headache .. ok take tht to the doctor ok .. good luch baby and keep ur head up . God will heal u and help u find comfort .. he has a plan ... we just have to be patient.. bless u and ur family .. sharon tx
I know exactly how you feel exept im 11 and ive been having the same thing for the past 4 years but ive been to a neurologist they did nothing and ive been to about 20 different specialist they've also done nothing also recently ive been having a bad migerain every night and have not been to school for 4 months and I also have a congested nose if anything works for you let me know also im probably going to go to a psychologist soon
As someone who has had chronic headaches since 16 I really do understand some of the things you are going through. I'm 23 now and been to several doctors (neurologists,even psychologists who asked me to go see a neuro) and tried all sorts of medication and I still do get them. I also have hormone imbalances and I really suspect that its contributing the headaches.
The trick I think is to not stop the headaches but to minimize it at least until the world learns more about migraines and chronic pain. The most important thing is to keep fit, this is especially true if you have a hormone imbalance. I also found eating healthy and sticking to proper meal times and getting proper sleep helpful. Of course keep yourself well hydrated drink plenty of water. And if you haven't already started journal try recording triggers and finding out patterns. For the headache cycle itself the only things that really worked for me was accupuncture ( but you need to find a proper practitioner) and botox which gave me temporary relief 2 months tops. Just never give up your headaches and don't ever let it rule your life! I really do hope that you find some relief soon.
I realize that this is a very old posting, but I wanted to reply in case you are still getting messages. My daughter has the exact same situation it seems. She is 16 and has a constant headache which can spike but never goes away completely. We've actually exhausted all the neurologist's treatments, even botox. She has had 2 MRIs (both negative). She also has PCOS (polycystic ovarian syndrome). She has had a headache for over 3 years. She's been hospitalized 3 times for DHE treatments.
I'm wondering how you are doing and if you ever found any relief or a cause. My daughter will not go to school because of the headache. She is now being referred to court for truancy. Her high school is large and noisy. The kids are also mean. She is quite overweight because of the PCOS. She also has thinning hair and facial and body hair growth from the PCOS. Overall, she really suffers from these conditions and none of the doctors have been able to help her.
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