My daughter was diagnosed in february and the biopsy showed minimal change disease. SHe was started on 80 mg of Prednisonse for 2 months, has been reduced down to 40 and if she is protien free at the end of May will be reduced to 20 mg. she has had lots of side effects with the Prednisonse. My quesiton is does anyone else have a teenager with this and if so what kind of information have you been able to obtain about intense exercise. She is wanting to join the cross country team at school, intense training , 3 hours 5 days a week. I am afraid this will trigger a flare up. Any comments?
Hello there, I have suffered NS since aged 4, I am now 37! eek... I have been on constant prednisolone medication on and off for years! I am now on tacrolimus to act as a steroid relieving agent. In response to your question, excercise is a great thing, this helps with the side effect feelings of the steroids and also helps keep up bone density (which long term steroid use can cause osteo problems). I say she will know when she feels tired, to rest as much as she can to allow for more recovery time but not to hold back. I have had 4 babies all healthy girls ,over the past 12 years all whilst on medication, and I completed a swim marathon 2 weekends ago. I hope this has helped. Please feel free to contact me any time if you have any worries.
My son was 13 when diagnosed with Nephrotic Syndrome, he is now 16 1/2 . In the few years we have dealt with this (his current dose is 40mg/10mg on alternating days) situation we have had varying experiences with the prednisone and have had to go up as high as 60mg/every day and we've been as low as 40mg./every other day. My son has had some very negative side effects as well with the drug. This is an awful drug with awful side effects but it seems the only thing that works at this point. One thing I can say is that we strive very hard to keep his "teenage activity" as normal as possible. He likes to be outdoors, loves the hot summer weather, loves to be active. As a parent I have found it to be imperative for his "mental state" to allow him to be involved in whatever activities (utilizing common sense of course) he chooses. It has proven successful thus far. He listens to his body and if he feels he's being worn down by an activity and after a day or two if he doesn't feel better or is feeling worse - he realizes this activity is not something he can do. We have not really seen any "bad" things happen from intense exercise. If your daughter feels excessively rundown by the exercise and can't bounce back, maybe it is too much for her. I say let her try and be on the team, go to the practices etc. but listen to her body and see how she feels. Hope this helps.
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