New Survey Reveals the Effects of Prostate Cancer

New Survey Reveals the Effects of Prostate Cancer Go Beyond the Physical, Leading to Feelings of Loss of Masculinity and Loss of Identity

TORONTO, Sept. 23, 2013 /CNW/ - Prostate cancer can impact quality of  life, affecting patients' day-to-day life and overall well-being.
 According to a new national survey of men who have or have had prostate  cancer, the condition's physical manifestations can also lead to  psychological and social concerns, both of which are more pronounced  for those in the later stages of the disease, when the tumour has  metastasized or spread beyond the prostate.

The most reported physical concern (64 per cent) for all men surveyed is  being unable to maintain an erection; however, for men with advanced  (stages 3 and 4) prostate cancer, the psychological concerns (69 per
 cent) and social concerns (50 per cent) are just as important, and  include feelings of loss of masculinity, loss of dignity and loss of  identity, and missing out on important life events.(1)

"Intuitively, we know quality of life is a concern for men with prostate  cancer, but these survey results are important because they reveal the  burden on quality of life over the course of the disease," says Jackie  Manthorne, President and CEO, Canadian Cancer Survivor Network. "By  acknowledging and understanding the unique challenges and concerns that  men with early and advanced stage prostate cancer face, we can provide  better support throughout all stages of the disease."

The Burden of Prostate Cancer Over the Course of the Disease

More than one-third of all men living with prostate cancer (36 per cent)  say the disease has impacted their ability to participate in daily  activities, such as using the bathroom, being physically active and
 travelling.(2)

Furthermore, the impact the disease has on quality of life is much  greater for those living with advanced prostate cancer than early stage  prostate cancer (stages 1 and 2). In fact, the majority of men with  prostate cancer (70 per cent) in the early stage of the disease report  having an excellent or very good quality of life compared to only 39  per cent of those with advanced prostate cancer.(3) Among those with early stage prostate cancer, sexual dysfunction,  urinary incontinence, and fatigue are the most common physical  challenges experienced; however, the impact is far greater for those  living with advanced prostate cancer.(4)

While 84 per cent of all men surveyed feel they are living their lives  to the fullest,(5) many reported that they are unable to enjoy life,(6) including 50 per cent of men with advanced prostate cancer and 19 per  cent of men with early stage prostate cancer.(7)

"When I was diagnosed with metastatic prostate cancer, the news came  with such a force in my life," says Don Konantz, from Vancouver. "The  emasculating side effects of this disease can be very real. Working  closely with my doctor has helped me navigate the treatments associated  with this complicated and sometimes overwhelming diagnosis and  supported me in living life the best I can."

Working Together for Prostate Cancer Care

Caregivers play an active role in the lives of their loved ones with  prostate cancer. The survey found that caregivers provide approximately
 25 hours of care per week and that the majority of them (69 per cent)  are spouses.(8) Beyond providing encouragement and emotional support, almost  seven-in-ten (65 per cent) attend doctor visits and over half (57 per
 cent) are involved in the treatment decisions of their loved ones.(9) At least monthly, one-third of caregivers keep up-to-date on medication  and treatment options and learn about the disease.(1)

The survey also revealed that more than half of men with prostate cancer
 (56 per cent) and caregivers (57 per cent) wish better treatment  options were available.(11) This figure dramatically increases to 92 per cent for men who identify  themselves as having advanced prostate cancer.(12 )

"Being able to enjoy time with family and friends and create memories is  paramount for men living with prostate cancer, particularly those at  the advanced stages who may not have the benefit of time" says Dr. Alan  So*, research scientist, Prostate Centre at Vancouver General Hospital  and associate professor, Department of Urologic Sciences at the  University of British Columbia. "It's important that men and their  caregivers speak with their doctors about the latest treatment advances  that delay disease progression, but also improve quality of life and  survival time."

About the Prostate Cancer Quality of Life Patient and Caregiver Survey

The survey was conducted between June 21 and July 7, 2013, by Leger  Marketing on behalf of Janssen Inc., and in partnership with the Canadian Cancer Survivor Network (CCSN), a national network working together by taking action to promote the  very best standard of care, support, follow up and quality of life for  cancer patients and survivors, and PROCURE, a Quebec-based group that provides science and humanity with means to  help prevent and cure prostate cancer.

The survey used an online questionnaire to poll 517 Canadian men who  currently have or have had prostate cancer (including 73 men with stage
 1 and 2, 26 men with stage 3 and 4 prostate cancer, and 418 men with no  current evidence of the disease or prefer not to answer) as well as 256  caregivers. A probability sample of prostate cancer patients of the  same size would yield a margin of error of +/- 4.3 per cent, 19 times  out of 20. A probability sample of caregivers of the same size would  yield a margin of error of +/- 6.1 per cent.

About Prostate Cancer in Canada

Prostate cancer is the most common cancer to afflict men in Canada and  approximately 23,600 men are diagnosed with prostate cancer annually.(13) According to the Canadian Cancer Society, prostate cancer is turning up  in men in their 40s and on average, 65 Canadian men are diagnosed with  prostate cancer every day, and 11 men die of prostate cancer every day.(14)  Approximately 10 to 20 per cent of prostate cancer cases will present  with metastatic disease, in which the tumour spreads beyond the
 prostate.(15) Fortunately, death rates have been declining since the mid-1990s.(16)

About Janssen Inc.

At Janssen, we are dedicated to addressing and solving some of the most  important unmet medical needs of our time in oncology, immunology,  neuroscience, infectious diseases and vaccines, metabolic and chronic  diseases and women's health.  Driven by our commitment to patients, we  bring innovative products, services and solutions to people throughout  the world.  Janssen Inc. is a member of the Janssen Pharmaceutical  Companies.  Please visit www.janssen.ca for more information.

*Dr. So was not compensated for any media work. He has been a paid  consultant to Janssen Inc.

References

(_______________________________ )

(1) The "Prostate Cancer - Quality of Life Patient and Caregiver Study" was  conducted through an online survey by Leger Marketing between June 21st  and July 7th, 2013 with 517 Canadian men who currently have or have had  prostate cancer (including 73 men with stage 1 and 2 and 26 men with  stage 3 and 4 prostate cancer) and 256 caregivers. A probability sample  of prostate cancer patients of the same size would yield a margin of  error of +/- 4.3%, 19 times out of 20. A probability sample of  caregivers of the same size would yield a margin of error of +/- 6.1%.

(2) Ibid.

(3) Ibid.

(4) Ibid.

(5) Ibid.

(6) Ibid.

(7) Ibid.

(8) Ibid.

(9) Ibid.

(10 )Ibid.

(11) Ibid.

(12) Ibid.

(13) Canadian Cancer Society.  Prostate Cancer Statistics at a glance.  Available at: http://www.cancer.ca/Canada-wide/About%20cancer/Cancer%20statistics/Stat.... Last accessed August 19, 2013.

(14) Ibid.

(15) Bellmunt J, Charles J, Albanell J. Predictive modelling in  hormone-refractory prostate cancer (HRPC). Clin Transl Oncol. 2009  Feb;11(2):82-5.

(16) Canadian Cancer Society.  Prostate Cancer Statistics at a glance.  Available at: http://www.cancer.ca/Canada-wide/About%20cancer/Cancer%20statistics/Stat.... Last accessed March 13, 2013.

SOURCE  Janssen Inc.

Video with caption: "Video: Three Canadian men living with advanced prostate cancer share their unique stories of hope and inspiration and the impact the condition has on their quality of life.". Video available at:  http://stream1.newswire.ca/cgi-bin/playback.cgi?file=20130923_C9404_VIDE...

Image with caption: "Advanced Prostate Cancer Infographic (CNW Group/Janssen Inc.)". Image available at:  http://photos.newswire.ca/images/download/20130923_C9404_PHOTO_EN_31144.jpg

Janssen Inc.

CONTACT:  Alexandra Fahmey
 Edelman
 (416) 849-1516
alexandra.fahmey@edelman.com Laura Espinoza
 Janssen
 (416) 382-5156
lespino7@ITS.JNJ.com
 

Posted: September 2013


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