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Old 01-20-2006, 02:35 AM
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Join Date: Jan 2006
Location: , , USA.
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Default Undiagnosable leg pain

Hello all,
I have suufered from severe lower leg pain, from just below my knee to just above my ankles, ever since I was about 5 yrs. old. I am now 32 yrs. old and the pain is getting worse, moving into my knees and ankles. I have been to every type of specialist, except a rheumatologist, probably 15 or more. I have had Xrays, epidural blocks, nerve conducton studies, and have tried several non-narcotic medications. The doctors find nothing wrong with me by looking at xrays and my legs, and none of the other treatments have worked. There are two reasons I have decided to try this route for some kind of enlightenment. One being that I would like to know if anyone has ever experienced or heard of such a thing. Second, I am going to school to become an RN with every intention on going all the way to my masters degree, and I have alot of resources right now to try to figure this out. I thought that if anyone else had this problem, if it remains a mystery, that the more data I have would possibly help me figure this out. And, maybe even help others out as well, unless I am the only person in the world with this problem.
Run down of symptoms: pain not nessesarily in the joints, constant aching pain whether active or not, long term, not due to an injury, very minor arthritis in back(typical for age), rubbing, heat/cold, elevated no relief. I would appreciate any feedback.
Thank You,
Frankie

Frankie Patton
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Old 01-24-2006, 07:05 AM
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Join Date: Mar 2005
Location: USA.
Posts: 2,523
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What is your diet like? Do you eat well-balanced meals and take vitamin supplements?

Sometimes leg pain like this can be caused by not having enough Potassium in your body, at a loss for anything else, you might try taking some extra potassium such as a supplement or eating more bananas and seeing if that provides any relief.

Another alternative is a blood disorder called Lupus Anticoagulant. A friend of ours was getting severe leg pain, he could hardly walk, had to start using a cane, they couldn't find anything for the longest time, then his doc finally thought to do some blood tests, turns out he was getting clots all through his legs that were causing this. Have you ever been checked for clots and/or had blood tests done? They did MRI's on him, X-Rays, CT scans, and everything else first but his bones and joints were fine, it wasn't until it dawned on them to do blood tests that they stumbled onto the correct diagnosis.

There are actually several blood disorders that can cause leg pain because they mess with the clotting factors, and since your legs have the lowest blood circulation rate, that is where you end up with the most clots and problems.

If it were me, I would try upping my Potassium first, if that doesn't help after a week or so, I would ask my doc to run the blood tests for various disorders.

verwon@gmail.com

My information is not guaranteed correct. I do not get them right all the time, but I do enjoy the hunt~
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Old 05-22-2007, 03:41 PM
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Join Date: May 2007
Posts: 1
Smile Unexplainable pains

Hey, i don't know if u check these posts regularly, i just typed in severe leg pain into google and it came up with your post thing-which is dated 06! Anyways, i experience the same pain that you do and like you, the doctor doesn't seem to know what it is, it started in my lower leg and now i get it in my knee and ankle too, i've had it for a couple of years now but it just seems to be getting worse and more frequent-no-body else i know has this and i can't really describe the symptoms, but it's very painful-mostly a severe ache that nothing can relieve, which can last for any amount of time and can come on at any time.

I don't know if this is of any help to you-however if you know anything more about this please reply!

Thanks

Jade.
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Old 08-18-2007, 04:25 PM
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Join Date: Aug 2007
Posts: 2
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Quote:
Originally Posted by wearethree1 View Post
Hello all,
I have suufered from severe lower leg pain, from just below my knee to just above my ankles, ever since I was about 5 yrs. old. I am now 32 yrs. old and the pain is getting worse, moving into my knees and ankles. I have been to every type of specialist, except a rheumatologist, probably 15 or more. I have had Xrays, epidural blocks, nerve conducton studies, and have tried several non-narcotic medications. The doctors find nothing wrong with me by looking at xrays and my legs, and none of the other treatments have worked. There are two reasons I have decided to try this route for some kind of enlightenment. One being that I would like to know if anyone has ever experienced or heard of such a thing. Second, I am going to school to become an RN with every intention on going all the way to my masters degree, and I have alot of resources right now to try to figure this out. I thought that if anyone else had this problem, if it remains a mystery, that the more data I have would possibly help me figure this out. And, maybe even help others out as well, unless I am the only person in the world with this problem.
Run down of symptoms: pain not nessesarily in the joints, constant aching pain whether active or not, long term, not due to an injury, very minor arthritis in back(typical for age), rubbing, heat/cold, elevated no relief. I would appreciate any feedback.
Thank You,
Frankie

Frankie Patton
If you are using any diet products or sugar subtitutes that contain "Aspertane", stop using them completely. Read labels for any food that may contain it, (sweet & Low, equal, no sugar syurp). My leg pain was 90% better in 3 or 4 days when I stopped using Aspertane.

Good luck,

Richard
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Old 08-18-2007, 04:28 PM
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Join Date: Aug 2007
Posts: 2
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If you are using any diet products or sugar subtitutes that contain "Aspertane", stop using them completely. Read labels for any food that may contain it, (sweet & Low, equal, no sugar syurp). My leg pain was 90% better in 3 or 4 days when I stopped using Aspertane.

Good luck,

Richard
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