Page 1 of 2 12 LastLast
Results 1 to 30 of 42
Like Tree5Likes
Undiagnosable leg pain
  1. #1
    wearethree1 is offline New Member
    Join Date
    Jan 2006
    Location
    , , USA.
    Posts
    1

    Default Undiagnosable leg pain

    Hello all,
    I have suufered from severe lower leg pain, from just below my knee to just above my ankles, ever since I was about 5 yrs. old. I am now 32 yrs. old and the pain is getting worse, moving into my knees and ankles. I have been to every type of specialist, except a rheumatologist, probably 15 or more. I have had Xrays, epidural blocks, nerve conducton studies, and have tried several non-narcotic medications. The doctors find nothing wrong with me by looking at xrays and my legs, and none of the other treatments have worked. There are two reasons I have decided to try this route for some kind of enlightenment. One being that I would like to know if anyone has ever experienced or heard of such a thing. Second, I am going to school to become an RN with every intention on going all the way to my masters degree, and I have alot of resources right now to try to figure this out. I thought that if anyone else had this problem, if it remains a mystery, that the more data I have would possibly help me figure this out. And, maybe even help others out as well, unless I am the only person in the world with this problem.
    Run down of symptoms: pain not nessesarily in the joints, constant aching pain whether active or not, long term, not due to an injury, very minor arthritis in back(typical for age), rubbing, heat/cold, elevated no relief. I would appreciate any feedback.
    Thank You,
    Frankie

    Frankie Patton
    jesireyes likes this.

  2. #2
    zippysgoddess is offline Platinum Member
    Join Date
    Mar 2005
    Location
    USA.
    Posts
    2,482

    Default

    What is your diet like? Do you eat well-balanced meals and take vitamin supplements?

    Sometimes leg pain like this can be caused by not having enough Potassium in your body, at a loss for anything else, you might try taking some extra potassium such as a supplement or eating more bananas and seeing if that provides any relief.

    Another alternative is a blood disorder called Lupus Anticoagulant. A friend of ours was getting severe leg pain, he could hardly walk, had to start using a cane, they couldn't find anything for the longest time, then his doc finally thought to do some blood tests, turns out he was getting clots all through his legs that were causing this. Have you ever been checked for clots and/or had blood tests done? They did MRI's on him, X-Rays, CT scans, and everything else first but his bones and joints were fine, it wasn't until it dawned on them to do blood tests that they stumbled onto the correct diagnosis.

    There are actually several blood disorders that can cause leg pain because they mess with the clotting factors, and since your legs have the lowest blood circulation rate, that is where you end up with the most clots and problems.

    If it were me, I would try upping my Potassium first, if that doesn't help after a week or so, I would ask my doc to run the blood tests for various disorders.



    My information is not guaranteed correct. I do not get them right all the time, but I do enjoy the hunt~

  3. #3
    chinchilla is offline New Member
    Join Date
    May 2007
    Posts
    1

    Smile Unexplainable pains

    Hey, i don't know if u check these posts regularly, i just typed in severe leg pain into google and it came up with your post thing-which is dated 06! Anyways, i experience the same pain that you do and like you, the doctor doesn't seem to know what it is, it started in my lower leg and now i get it in my knee and ankle too, i've had it for a couple of years now but it just seems to be getting worse and more frequent-no-body else i know has this and i can't really describe the symptoms, but it's very painful-mostly a severe ache that nothing can relieve, which can last for any amount of time and can come on at any time.

    I don't know if this is of any help to you-however if you know anything more about this please reply!

    Thanks

    Jade.

  4. #4
    rmason392 is offline New Member
    Join Date
    Aug 2007
    Posts
    2

    Default

    Quote Originally Posted by wearethree1 View Post
    Hello all,
    I have suufered from severe lower leg pain, from just below my knee to just above my ankles, ever since I was about 5 yrs. old. I am now 32 yrs. old and the pain is getting worse, moving into my knees and ankles. I have been to every type of specialist, except a rheumatologist, probably 15 or more. I have had Xrays, epidural blocks, nerve conducton studies, and have tried several non-narcotic medications. The doctors find nothing wrong with me by looking at xrays and my legs, and none of the other treatments have worked. There are two reasons I have decided to try this route for some kind of enlightenment. One being that I would like to know if anyone has ever experienced or heard of such a thing. Second, I am going to school to become an RN with every intention on going all the way to my masters degree, and I have alot of resources right now to try to figure this out. I thought that if anyone else had this problem, if it remains a mystery, that the more data I have would possibly help me figure this out. And, maybe even help others out as well, unless I am the only person in the world with this problem.
    Run down of symptoms: pain not nessesarily in the joints, constant aching pain whether active or not, long term, not due to an injury, very minor arthritis in back(typical for age), rubbing, heat/cold, elevated no relief. I would appreciate any feedback.
    Thank You,
    Frankie

    Frankie Patton
    If you are using any diet products or sugar subtitutes that contain "Aspertane", stop using them completely. Read labels for any food that may contain it, (sweet & Low, equal, no sugar syurp). My leg pain was 90% better in 3 or 4 days when I stopped using Aspertane.

    Good luck,

    Richard
    CoffeeBeanJean likes this.

  5. #5
    rmason392 is offline New Member
    Join Date
    Aug 2007
    Posts
    2

    Default

    If you are using any diet products or sugar subtitutes that contain "Aspertane", stop using them completely. Read labels for any food that may contain it, (sweet & Low, equal, no sugar syurp). My leg pain was 90% better in 3 or 4 days when I stopped using Aspertane.

    Good luck,

    Richard
    CoffeeBeanJean likes this.

  6. #6
    JessicaLE46 is offline New Member
    Join Date
    Nov 2009
    Posts
    1

    Default Persistent Leg Aches

    From what it sounds like, we might be experiencing the same thing. I get very bad leg cramps that start with seemingly no stimulus. The pain is not related to the amount of physical activity I take part in. I can run 10 miles and not have the aches, but if I walk around in the grocery store, they might start up. The pain is totally sporatic, it moves up and down my legs, and switches legs. The aches might start in my right hip, then they will move to my right knee, and then maybe to my left knee or hip. Every once in a while, I will feel a pain in my left or right wrist, hand, or elbow, and then it will move down to my legs. It feels like my bones are twisting.

    I have been to a neurologist and have had a thorough physical exam, complete blood panel, MRI of the head and neck, and a CT scan with dye. The blood panel checked for electrolyte (inc. potassium) imbalances, auto-immune diseases, arthritis, thyroid disorders, etc. I've been tested for MS, lupus, rheumatoid arthritis, etc. And the result- my doctor says I'm perfectly healthy, which would be a great thing if I weren't experiencing the pain. This is getting frustrating. Hopefully someone can shed some light on this. Thanks.
    jesireyes likes this.

  7. #7
    thumbelina03 is offline New Member
    Join Date
    Dec 2009
    Posts
    1

    Default Confused

    Hi! Your leg pain sounds very similar to mine. I have had it since i was a little girl. I am now 24 years old and the pain has gotten worse. I used to have it once in a while and only evenings particularly when the weather was chaging. The older i got, the worse it got. I now have it in my legs and arms, and also feel it sometimes starting from my lower back down to my feet.

    When its rainy and the weather is chaging or humid, i feel like dying. Its so horrible..it makes me fatigued and sad and cranky. I have 2 children and a husband who loves and supports me very much. This thing is like hell whatever it is. My kids know when mommys legs hurt. My oldest somes and touches one of my legs and tells me "Mommy, i'll pray fo you." They see the pain im in...my husband has bought me every cream he sees for pain, hes talked to pharmacists, natural doctors....

    I have been to a doctor who sent me to an orthopedic, who sent me to a physical therapist. I did physical therapy and the physical therapist told me whatever i have has nothing to do with physical therapy. He mentioned that i might have firbomyalgia. I have tried magnesium, potassium, fish oil, omega, vitamin e...i have a drawer full of all the different over the counter pain medications available...i have tried everything and nothing gives me relief. I have so many creams and homeopathic remedies...ugh.

    Short relief i obtain sometimes through a hot bath..not warm..hot hot. then i get out after at least half an hour in the bathtub and i apply tiger balm, or bengay or icy hot (you get the picture) all over my legs. Then i pull on long socks up to my knees and also put on pants. I live in Arizona where the summers are so hot (115 f on some days) and that is how i walk around my home and try to sleep. its horrible.

    After the physical therapist i went back to my doctor who put me on neurontin and sent me to a neurologist. My doctor also took some blood work and everything came back fine, i was not deficient in anything. He also ordered an mri of my lower back..everything came back normal. I went to the neurologist and he ordered an mri or my neck . He said since my arms were involved in this pain than for sure it had somehting to do with my neck. (i also have daily headaches ever since i was little, i don't know if its tied in with the legs as well).

    the neurologist gave me some requip to try. ( he thought maybe i had some bad rls) i was only on the requip for 2 1/2 weeks before i had to get off because i started to have trouble breathing. scary. ( did no help not even 1 percent while i was on it...and its a very scary drug) He also gave me ome tramadol which helped tremendously..but its a form of narcotics, so i dont want to get addicted or rely on it...

    The Neurontin that my primary doctor gave me did not help... i was on it for 2 and a half months...nothing. I just gained 10 lbs, on it (most common side effect) i also started to have kidney pain on it...ended up going to the ER because i though i was either passing a kidney stone (which i did before) or had a bad UTI... i told them i was on neurontin and that the pills were making my kidneys hurt...they said no it cant be because neurontin helps pain but not causes it...yeah right..if you google neurontin and kidney pain there is so many people who had pain on it, also the manufacturers phamphlet states that it causes kidney pain and kidney failure! anyways....



    Now im going to go see a rheumatologist... i waited 3 months to see him and had my first appt. 6 weeks ago... he examined me, got my history down, ordered some blood work, urine samples to check liver and kidney function, and ordered an mri or my brain (to rule out lupus, and ms among others)....next week i go back to get my results. I am excited in a weird way, scared and also nervous because i for sure thought with every test that they did they would find somehting. i'm so tired of going back and them looking at me weird and telling me :Yo're fine, perfectly healthy..." UGH! its almost as if they don't believe you! The rheumatologist told me that if everything comes back normal then i have fibromyalgia.

    Wish me Luck. I do want everything to come back normal because i want to be healthy. But then i want them to find somehting...because something is causing me this for the last 4 years and just getting worse! I am scared to age because i fear how i am going to feel in another 10 yrs! at this rate i fear to end up in a wheelchair. I am a wife an mommy who needs to take care of my two girls and husband and myself...and somedays i find it so hard to just get out of bed or crawl in a bathtub!

    I'm sorry for this long novel... i have never written on forums before, ever. I tend to be a silent sufferer. Also i do have to appologize for all my misspelings...i tend to type really fast and dont realize how incoherent my sentences sound sometimes.

    Best of luck to all of us! Fee free to write me back...especially if you do know what i might have or if you have gotten any diagnosis yourself!

  8. #8
    dweathington is offline New Member
    Join Date
    May 2010
    Posts
    1

    Default lower leg systoms

    I too, suffer from the exact same systoms. I been to several Dr.'s, and not results. I been told that I suffer with arthritis, and I also been to a rumatholgist, an still nothing. Where do we go from here.


    Quote Originally Posted by wearethree1 View Post
    Hello all,
    I have suufered from severe lower leg pain, from just below my knee to just above my ankles, ever since I was about 5 yrs. old. I am now 32 yrs. old and the pain is getting worse, moving into my knees and ankles. I have been to every type of specialist, except a rheumatologist, probably 15 or more. I have had Xrays, epidural blocks, nerve conducton studies, and have tried several non-narcotic medications. The doctors find nothing wrong with me by looking at xrays and my legs, and none of the other treatments have worked. There are two reasons I have decided to try this route for some kind of enlightenment. One being that I would like to know if anyone has ever experienced or heard of such a thing. Second, I am going to school to become an RN with every intention on going all the way to my masters degree, and I have alot of resources right now to try to figure this out. I thought that if anyone else had this problem, if it remains a mystery, that the more data I have would possibly help me figure this out. And, maybe even help others out as well, unless I am the only person in the world with this problem.
    Run down of symptoms: pain not nessesarily in the joints, constant aching pain whether active or not, long term, not due to an injury, very minor arthritis in back(typical for age), rubbing, heat/cold, elevated no relief. I would appreciate any feedback.
    Thank You,
    Frankie

    Frankie Patton

  9. #9
    maryygane is offline New Member
    Join Date
    Jun 2010
    Posts
    13

    Default

    my friend you have to consult a physical specialist , he can proper check you leg and your leg pain will definitely diagnosed...

  10. #10
    Bebe1 is offline New Member
    Join Date
    Jul 2010
    Posts
    1

    Unhappy Moving Leg Pain

    Ok, I just found this website and I am really feeling weary right now. My husband has had this moving pain in his leg for over a month. It went from being "shin splints" to a "stress fracture" to a "blood clot" to a "bacteria infection". I really hope this is not what everybody on this site is detailing because it sounds like no dr. really knows what this is. My husband is very healthly, eats very healthy and exercises regularly. We thought originally this was shin splints from running.

    My question regarding this on and off again pain is....Does your leg swell anywhere? My husband's ankle swells on and off again just like the pain. No logic to it. He will have a day of no activity and it swells quite a bit...and then a day where he is on his feet 7-8 hours and no swelling.

    He is going to his GP today and I am hoping for a resolution.

  11. #11
    CoffeeBeanJean is offline New Member
    Join Date
    May 2011
    Posts
    1

    Default

    To Frankie Patton..Hello! I am 54 and lived my life with the same problem,,it wasn't in till I had to have surgery on my leg that the Dr noticed I had severe FLAT FEET. Since I now go to a special foot Dr my problem has helped.(had special shoes and inserts made) Also I had borderline Diabetes witch through the years lead to nerve damage in my feet...This is odd because my sugar was never really high.
    Last edited by CoffeeBeanJean; 05-26-2011 at 05:41 PM.

  12. #12
    amy1187 is offline New Member
    Join Date
    Aug 2011
    Posts
    1

    Red face leg pain

    Quote Originally Posted by thumbelina03 View Post
    Hi! Your leg pain sounds very similar to mine. I have had it since i was a little girl. I am now 24 years old and the pain has gotten worse. I used to have it once in a while and only evenings particularly when the weather was chaging. The older i got, the worse it got. I now have it in my legs and arms, and also feel it sometimes starting from my lower back down to my feet.

    When its rainy and the weather is chaging or humid, i feel like dying. Its so horrible..it makes me fatigued and sad and cranky. I have 2 children and a husband who loves and supports me very much. This thing is like hell whatever it is. My kids know when mommys legs hurt. My oldest somes and touches one of my legs and tells me "Mommy, i'll pray fo you." They see the pain im in...my husband has bought me every cream he sees for pain, hes talked to pharmacists, natural doctors....

    I have been to a doctor who sent me to an orthopedic, who sent me to a physical therapist. I did physical therapy and the physical therapist told me whatever i have has nothing to do with physical therapy. He mentioned that i might have firbomyalgia. I have tried magnesium, potassium, fish oil, omega, vitamin e...i have a drawer full of all the different over the counter pain medications available...i have tried everything and nothing gives me relief. I have so many creams and homeopathic remedies...ugh.

    Short relief i obtain sometimes through a hot bath..not warm..hot hot. then i get out after at least half an hour in the bathtub and i apply tiger balm, or bengay or icy hot (you get the picture) all over my legs. Then i pull on long socks up to my knees and also put on pants. I live in Arizona where the summers are so hot (115 f on some days) and that is how i walk around my home and try to sleep. its horrible.

    After the physical therapist i went back to my doctor who put me on neurontin and sent me to a neurologist. My doctor also took some blood work and everything came back fine, i was not deficient in anything. He also ordered an mri of my lower back..everything came back normal. I went to the neurologist and he ordered an mri or my neck . He said since my arms were involved in this pain than for sure it had somehting to do with my neck. (i also have daily headaches ever since i was little, i don't know if its tied in with the legs as well).

    the neurologist gave me some requip to try. ( he thought maybe i had some bad rls) i was only on the requip for 2 1/2 weeks before i had to get off because i started to have trouble breathing. scary. ( did no help not even 1 percent while i was on it...and its a very scary drug) He also gave me ome tramadol which helped tremendously..but its a form of narcotics, so i dont want to get addicted or rely on it...

    The Neurontin that my primary doctor gave me did not help... i was on it for 2 and a half months...nothing. I just gained 10 lbs, on it (most common side effect) i also started to have kidney pain on it...ended up going to the ER because i though i was either passing a kidney stone (which i did before) or had a bad UTI... i told them i was on neurontin and that the pills were making my kidneys hurt...they said no it cant be because neurontin helps pain but not causes it...yeah right..if you google neurontin and kidney pain there is so many people who had pain on it, also the manufacturers phamphlet states that it causes kidney pain and kidney failure! anyways....



    Now im going to go see a rheumatologist... i waited 3 months to see him and had my first appt. 6 weeks ago... he examined me, got my history down, ordered some blood work, urine samples to check liver and kidney function, and ordered an mri or my brain (to rule out lupus, and ms among others)....next week i go back to get my results. I am excited in a weird way, scared and also nervous because i for sure thought with every test that they did they would find somehting. i'm so tired of going back and them looking at me weird and telling me :Yo're fine, perfectly healthy..." UGH! its almost as if they don't believe you! The rheumatologist told me that if everything comes back normal then i have fibromyalgia.

    Wish me Luck. I do want everything to come back normal because i want to be healthy. But then i want them to find somehting...because something is causing me this for the last 4 years and just getting worse! I am scared to age because i fear how i am going to feel in another 10 yrs! at this rate i fear to end up in a wheelchair. I am a wife an mommy who needs to take care of my two girls and husband and myself...and somedays i find it so hard to just get out of bed or crawl in a bathtub!

    I'm sorry for this long novel... i have never written on forums before, ever. I tend to be a silent sufferer. Also i do have to appologize for all my misspelings...i tend to type really fast and dont realize how incoherent my sentences sound sometimes.

    Best of luck to all of us! Fee free to write me back...especially if you do know what i might have or if you have gotten any diagnosis yourself!

    I have had the same pain and its horriable, I have had blood work done and went to PT also with no relief. I have foot inserts they thought it was that so they had me fitted for new ones and that did not work. Dr. has no clue what the pain is he says there is nothing there that should cause you pain. But it hurts so bad I want to cry. Nothing seems to help with the pain. The only thing that I have tried that help some was icing it but I don;t have enough packs for both legs and as soon as the ice pack warms back up the pain comes back also. I hate this so much, my legs hurt right now as I type. If anyone has any ideas or has found out what this is please let me know. I would like this to go away. I also like to know if anyone has a diagnois. I am going to copy this page and take it to my next Dr. appt so he knows that they are other people with the same problem and I am not making this up. I don;t know what else to do.

  13. #13
    loveyourbody is offline New Member
    Join Date
    Sep 2011
    Posts
    1

    Lightbulb Marc

    I felt so moved by some of the posts here, i thought i would reply.

    Also I just got a pain today in my knee, and my leg also felt a little numb, and the pain is constant, like a dull ache deep in my knee. The top of my leg feels a little numbe and my ankle too.

    I used to get all kinds of pains and I too was told by the drs and hospital that they couldn't find the source of the pains. Then I started using some stuff called gly co nutrients, and within about 3 years all of the pains went and i felt healthier than ever.

    So i took some extra tonight, but i've got a feeling it could be the way my laptop was on my knees for quite a long time.

    Marc

  14. #14
    jesireyes is offline New Member
    Join Date
    Dec 2011
    Posts
    2

    Default i get this too

    this sounds like me. i get these pains in my legs mostly, even in my arms a little sometimes too... i had had it ever since i was little. they happen randomly... but sometimes it seems as if they are triggered by pain. they do occur by themselves... but also occur if i get a headache or cramps or something. the pain will start out mild and then get increasingly worse if i dont take a tylenol or something to stop it all together.
    Last edited by ddcmod; 12-08-2011 at 06:28 PM.

  15. #15
    jesireyes is offline New Member
    Join Date
    Dec 2011
    Posts
    2

    Default

    this describes mine perfect... have you figured anything else out?
    Last edited by ddcmod; 12-08-2011 at 06:28 PM.

  16. #16
    chelseaglenn is offline New Member
    Join Date
    Jan 2012
    Posts
    1

    Exclamation Leg Pain Hell

    Thank god for Google!

    I have been yet another long time sufferer of the chronic leg pain.

    I thought I was going mad and that I was the only one, but thanks to all of you that have taken the time to post your issues I am no longer insane!

    I am 37 years old, live in England and have had these problems since around the age of 21.

    I have had separate issues with my back, including having to have lumbar fusions and therefore ALL the numerous doctors and specialists have always tried to link it to this, but I know it isn't linked.......I just know.

    The pain is constant, like a deep agonising ache that nothing seems to help. I have to constantly jiggle and move my legs around just to try and shake the pain. I even have my 3 and 6 year old kids punch my legs all the time to try and get some relief (which they think is great fun by the way).

    It doesn't seem like we are getting anywhere with solutions or even a name to this problem, but like one of the other contributors to this discussion, I will be printing this off to show them all I'm not crazy!

    I am writing this from my bed which I reside in constantly now, as the pain is so bad.

    Good luck to us all.

    Glenn
    Last edited by ddcmod; 01-31-2012 at 01:30 AM.

  17. #17
    creative_companion is offline New Member
    Join Date
    Feb 2012
    Posts
    1

    Default Child with same symptoms

    Hi, my 10 year old son has dealt with this most of his life. Right around the time he started walking, before he could even talk, he would hit and rub his legs and cry and get very clingy to me. We immediately had all the tests ran to no avail. All x-rays, MRIs, and blood tests were normal. We have gotten them done every couple of years since because the pain has persisted....still all tests were normal.
    The pain started just above his knees and was the worst in his knees for the first several years. Now his lower legs, ankles, and feet are in such pain at times I cannot touch them. He says they feel raw and even if a fly were to land on them it would be excruciatingly painful. The pain fluctuates. One moment it is a dull ache. The next moment a shooting pain that sends him through the roof crying, twisting, and agonizing in pain.
    We have tried a strict allergy diet, vitamins, glucosamine, fish oil, topical ointments, a year of strict exercises to strengthen his legs...you name it. Ice relieves the pain a little. Motrin used to help, but no longer does. One of the docs suggested Vicaden recently. I really don't want to drug my kid. I want to find out WHY this is happening so we can fix it...not just give him a pain killer.
    Good to know there are others out there. That we are not alone. Blessings to everyone who is on this journery. May you find help and healing.

  18. #18
    Lo1954 is offline New Member
    Join Date
    Feb 2012
    Posts
    1

    Default

    I also have always suffered from "random" leg aches since I was a little girl. At that time these were considered "growing pains" but I'm now 35 and still get them. Sometimes the ache (from my knee down the shin) can feel far more intense if exposed to cooler temperatures for any amount of time. The pain could show up in either leg, an now that I'm older I might feel that same pain in my arm bones. Usually it's just the legs, tho.. And if I don't take ibuprofen for it- it gets way intense and I may even feel it in my hip bones. I've never gotten any answers on the matter, never had bloodwork done for it. I'm fairly used to it coming on, and coupling that with regular headaches- I always have ibuprofen on hand. Just thought >> add my info into the pile. Ido hope one day to sort out the reason.
    Best I luck to us all-
    ~L.

  19. #19
    Robert_325 is offline Retired
    Join Date
    Jul 2007
    Location
    Texas
    Posts
    16,689

    Default

    Have you guys with leg pain, especially if it's worse with cold temperature, ever been checked out for autoimmune disorders like Raynaud's disorder or RA, even if it's a child?. It's hard to diagnose but you can have a fluctuating ESR (sedimentation rate) or Rheumatoid Factor on your bloodwork. It can be almost disabling even by itself, and it often ends up with additional autoimmune disorders when finally diagnosed.

    I moderated a forum on autoimmune disorders for years as I have four myself. I have lots of experience with autoimmune problems if I can help you. There is a dr named Dr Thomas Lehman who wrote a book called,"It's not just growing pains". He is a world reknowned child rheumatologist.

    You can find his website at goldscout.com. He works with drs as a consultant to people all over the world. If your child has problems especially you should check out his site. I can answer lots of questions in the meantime.

    These illness are most common for females but I obviously have them too. They often go undiagnosed for years while people suffer just taking pain medications and getting no real help. I know one little girl in Canada that I hooked up with Dr Lehman and Gracie was only about five years old when I spoke with her mom the first time. I hope you don't have these problems but you should check out this dr. He is a truly awesome guy and very caring, giving dr. Hope it help you, it's worth checking out if it sounds like you. God bless.
    Last edited by Robert_325; 02-09-2012 at 07:02 PM.
    I am not a dr. My statements are based on years of experience and related education. Consult with the professional of your choice regarding matters of concern.

  20. #20
    Hornet Girl is offline New Member
    Join Date
    Feb 2012
    Posts
    1

    Red face I'm shocked

    Wow...
    I have spent the last 20 years of my life thinking that it was just me, sitting there nearly in tears, with aching legs that i couldn't stop hurting.
    But now i have found these posts and feel so much better.

    I too started having these pains in my early teens and was told it was 'growing pains' also.
    I always remember feeling really helpless because nothing seemed to help - i would lie as still as a mummy on my back and try not to move, to try and convince my legs that they were asleep so that the pain would go away.

    Now in my 30's I am under investigation for MS (for reasons other than my legs), but my test results seem to fluctuate and therefore after 4 years i have still not had a full diagnosis.
    Could these be linked ???
    Could it be something else entirely ???

    Thanks to everyone for posting on here - its been a great help.

  21. #21
    crew926 is offline New Member
    Join Date
    Feb 2012
    Posts
    1

    Default

    Hi. Have you since found a diagnosis? I have had similar pain (from knees to ankles) for 4 years. Non-injury related. Burning, tightness, cramping. Also cramping and tightness in feet. I haven't found a diagnosis. Had surgery on one leg to see if a fasciotomy would help (like for compartment syndrome) but it didn't. Activity makes it worse, but I can have symptoms without any activity.

  22. #22
    Robert_325 is offline Retired
    Join Date
    Jul 2007
    Location
    Texas
    Posts
    16,689

    Default

    Quote Originally Posted by Hornet Girl View Post
    Wow...
    I have spent the last 20 years of my life thinking that it was just me, sitting there nearly in tears, with aching legs that i couldn't stop hurting.
    But now i have found these posts and feel so much better.

    I too started having these pains in my early teens and was told it was 'growing pains' also.
    I always remember feeling really helpless because nothing seemed to help - i would lie as still as a mummy on my back and try not to move, to try and convince my legs that they were asleep so that the pain would go away.

    Now in my 30's I am under investigation for MS (for reasons other than my legs), but my test results seem to fluctuate and therefore after 4 years i have still not had a full diagnosis.
    Could these be linked ???
    Could it be something else entirely ???

    Thanks to everyone for posting on here - its been a great help.



    When they do bloodwork checking for rheumatic disorders the bloodwork can fluctuate. You can show a positive one time and a negative the next. It's difficult for drs to properly diagnose autoimmune problems so lots of people suffer for years before ever getting help. It took twenty years for my diagnosis to start getting accurate. MS is another autoimmune disorder.

    There are no cures for autoimmune disorders, but there is available treatment once it's diagnosed properly. They can do bloodwork, specifically for the legs a Doppler Ultrsound can detect if you're having any lack of proper blood circulation to your extremities which is often accompanied by an elevated ESR (sedimentation rate) in your bloodwork, there are lots of ways to find and diagnose these problems. The ESR shows inflammation in your vascular system, that is why it's an indicator. The RF or Rheumatoid Factor is another good test. I would check with a Rheumatologist as this is their field of expertise.

    Hope that may help some. Keep us posted. God bless.
    I am not a dr. My statements are based on years of experience and related education. Consult with the professional of your choice regarding matters of concern.

  23. #23
    Aimee M is offline New Member
    Join Date
    Mar 2012
    Posts
    1

    Default leg pain

    Hi my name is Aimee and i also suffer from SEVERE CALF pain. I've been to many doctors to find nothing wrong except arthritis in my lower back, bulging disc in my upper neck. I take Oxycodone to relieve the pain that is the only thing that relieves it I've tried all non narcotic pain relievers nothing worked. Please let me know if there is anyting you can tell me about this problem. Thank you.

  24. #24
    Robert_325 is offline Retired
    Join Date
    Jul 2007
    Location
    Texas
    Posts
    16,689

    Default

    Quote Originally Posted by Aimee M View Post
    Hi my name is Aimee and i also suffer from SEVERE CALF pain. I've been to many doctors to find nothing wrong except arthritis in my lower back, bulging disc in my upper neck. I take Oxycodone to relieve the pain that is the only thing that relieves it I've tried all non narcotic pain relievers nothing worked. Please let me know if there is anyting you can tell me about this problem. Thank you.



    Aimee ...... Have you ever had a doppler ultrasound on your legs to check them for proper blood flow or restriction of blood flow? It's hard to say what is wrong based only on what you've said. I would check for circulation like I just said. Hope that helps. God bless.
    heidisthe1 likes this.
    I am not a dr. My statements are based on years of experience and related education. Consult with the professional of your choice regarding matters of concern.

  25. #25
    TeigeD is offline New Member
    Join Date
    Mar 2012
    Posts
    1

    Default Same pain

    Hey everyone
    So I have an undiagnosed pain in my leg too. I have seen pretty much every doctor possible for this kind of thing. Okay bare with me though this may sound a little crazy. I went and saw a massage therapist. I know they aren't really popular, but after I saw this woman, she told me that my fibula and tibia had but subluxed. And when she "put them back in place" I got up and was perfectly fine.
    Then of course after a couple of days of being pain free, they go back to where they were. I've gone as long as a month without any sort of pain at all, and then one little turn and I feel a pop, and my fibula is back out again. I don't know if this can help anyone.

    I know some people will say that they have had x-rays so this could not possibly be the same thing, but I have had x-rays too and the doctors all said they were perfectly fine. A lot of people do not think that this kind of thing is possible and then bones can't move except for breaking and dislocating.

    Thank you all for reading!

  26. #26
    jjaitken is offline New Member
    Join Date
    Apr 2009
    Posts
    2

    Default

    Hello all,
    I cannot believe this is my first time on here and I see so many people with the same problems I have. I have had two back surgeries that seemed to go very well and no pain after them. But in the last 5 years the pain has come to my hips, groin, legs, feet and everything swells up and gets numb. It is constant. Nothing triggers it because it never goes away. The first pain medication I ever started was 5 years ago and it was MS CONTIN. I never wanted to take any kind of pain meds because of my fear of becoming addicted. My Dr. explained to me that if you need pain meds and take them correctly you are not an addict. You are just someone that needs help living with pain and that I will always need it. My problem is not going to go away. The problem now is the MS CONTIN does not help. Never really did, but the Dr. said to give it a chance, I did, it never helped and now Doctor has moved and my other Dr. does not want to change to something else. I want to live my life. Right now I can barely walk, can no longer drive and because of the pain I am pretty much housebound. I do not know what to do. Any ideas from anyone? I have read all of your posts and have had so many tests, tried what you all did and just do not know what to do. I want so bad for the pain to stop so I can live a functioning life. I am 62 and believe it or not in good health except for the leg problems. But it is the thing keeping me from enjoying my life. I will take another kind of pain pill if anyone has any suggestions and I can get my Dr. to agree. I just do not know where to start. Thank you for reading this and good luck to all with the same and different problems. God Bless you all.

    http://www.drugs.com/answers/150984/reply/

  27. #27
    KoolKrafter is offline New Member
    Join Date
    Oct 2012
    Posts
    1

    Default A little advice for all postings from a long time chronic pain sufferer

    I logged on here because I am experiencing a Lupus flare up and was looking for advice. Now I see that I have some to give.
    Regarding severe pain from the knee down:
    If the pain is at all in the joints no amount of pain killers will help unless they are NSAIDs. I have taken everything including the best in my opinion - Kadian (controlled realease morphine) and it didn't do as good a job as Celebrex.
    Regarding ankle pain in adults and children:
    I've had problems with my ankles since I was a child. The only thing that helped was strengthening them by wearing supportive high-top style shoes. Every time I didn't wear them I would wind up being misdiagnosed with a sprained ankle because they would swell (not always at the same time) and hurt severely.
    Regarding shin splints:
    When I was 19 I developed shin splints. The only thing that helped was upgrading to expensive running shoes, taping my legs and using NSAIDs before I ran. There is no other pain like shin splints. Shin splints only effect the front of the leg, not the knee and not the ankle. They mainly burn.
    Regarding Lupus
    When I was 27 I developed Graves disease (in remission) and an incurred injury which damaged a facet joint in my neck. These both made the Lupus harder to detect. I've been told it's the only thing that fits with all of my symptoms after years of tests. There is a lot of pain associated with this, but if you're careful and wear supportive shoes protecting the ankles it will lessen the pain. Ladies, I know giving up heels is difficult, so if you only wear wedges with a max of 3" it will reduce the flare-ups as long as your ankles have been strengthened first. There are also heels out there with ankle support. It's boot season!

    Good luck to all. Hopefully my misery can be a learning tool to provide relief to someone else.

    url]http://www.drugs.com/answers/150984/reply/[/url][/QUOTE]

  28. #28
    NicB83 is offline New Member
    Join Date
    Apr 2013
    Posts
    2

    Default

    I see that this hasn't been posted on since 2012, but I came across this page by googling "undiagnosed leg pain" and ok, so I've been trembling and crying this whole time. Like so many others, I don't have a name for what is going on with me. Doctors, even friends and family have looked at me with a raised brow when I recite everything I've been tested for, and everything I've tried to no
    avail. I even had one retired nurse tell me it was likely in my head. I wanted to record just a few hours of my life and shove the damn tape in her face. The many hours of lost sleep, writhing in agony, hardly even able to think clearly because the pain is so intense. Before I get into my own history, I wanted to point out that the majority who have posted here seem to be in the same age range. Makes me wonder about vaccinations that were being used back then. Just a thought.
    So first off, at the age of six months I was diagnosed with Spinal Meningitis. My parents were of course hoping for the best case scenario, which was that I'd be in a wheel chair for the rest of my life. Although it took longer for me, I did start walking. My mom is convinced that everything I'm going through right now is because of the Spinal Meningitis, but I'm not convinced.
    My earliest memory is from when I was 5. It had been raining for several days and I was in bed sobbing. My legs hurt so badly it was hard for me to walk. (Not sure if this matters but we lived on GFAFB at the time.) My mom used icy hot on my legs and while it didn't completely relieve the pain, I was able to sleep. A doctor dubbed it "growing pains" and it never got that bad again until recently. Flash forward a few years and we were living in Wisconsin. Aside from the occasional bouts of pain, my knees started cracking and popping whenever I knelt down. Another doc, and another growing pains diagnosis. He told me that since the act of bending my knee wasn't causing pain, there was no cause for alarm. Flash forward another few years and I'm in my 20's. The cracking and popping still happens when I kneel and the bouts of pain occur maybe once a month.
    When I was 25 I ran over my foot with a lawnmower. Stupid huh? Shouldn't have ignored that little sticker that has a slash mark through the little stick guy pulling the lawnmower backwards. I was standing on a small hill that still had some dew on it. I pulled the lawnmower backwards, towards myself, slipped and ended up pulling the lawnmower further onto my foot as I fell. The surgeon was picking bone fragments out of my foot for half an hour, I had shattered several of the bones. So 2 metal plates and nine screws later, I consider myself rather lucky to have all ten toes, even if there is some serious nerve damage (touching the area around the scar tickles the bottom of my foot.) October 2 years later is when things started getting really bad. My knee would randomly give out, I would wake up feeling so stiff, I had to massage my legs.
    I've seen several doctors, two orthopedic surgeons, a physical therapist and a practitioner of homeopathic medicine. I've tried NSAIDS, steroid dose packs, cortisone shots, physical therapy, non narcotic pain killers, narcotic pain killers, chiropractic therapy, and acupuncture.
    I've had X-rays on my legs and back, blood tests, etc.
    I've heard that it's arthritis, lymes, fibromyalgia, and gout.
    I'm on narcotic pain killers as well as muscle relaxers for the muscle spasms. I hate slapping a band-aid on the problem, but without the meds I'm completely not functional. As it is I've stopped making plans, I never know what the day will bring and my heating blanket is my best friend.
    If any of the previous posters are still around, I'd like to hear from you. Even if you haven't posted and can relate, I'd like to hear from you as well.

  29. #29
    AnitaFB is offline New Member
    Join Date
    May 2013
    Posts
    1

    Default Left leg so very very sore

    Quote Originally Posted by NicB83 View Post
    I see that this hasn't been posted on since 2012, but I came across this page by googling "undiagnosed leg pain" and ok, so I've been trembling and crying this whole time. Like so many others, I don't have a name for what is going on with me. Doctors, even friends and family have looked at me with a raised brow when I recite everything I've been tested for, and everything I've tried to no
    avail. I even had one retired nurse tell me it was likely in my head. I wanted to record just a few hours of my life and shove the damn tape in her face. The many hours of lost sleep, writhing in agony, hardly even able to think clearly because the pain is so intense. Before I get into my own history, I wanted to point out that the majority who have posted here seem to be in the same age range. Makes me wonder about vaccinations that were being used back then. Just a thought.
    So first off, at the age of six months I was diagnosed with Spinal Meningitis. My parents were of course hoping for the best case scenario, which was that I'd be in a wheel chair for the rest of my life. Although it took longer for me, I did start walking. My mom is convinced that everything I'm going through right now is because of the Spinal Meningitis, but I'm not convinced.
    My earliest memory is from when I was 5. It had been raining for several days and I was in bed sobbing. My legs hurt so badly it was hard for me to walk. (Not sure if this matters but we lived on GFAFB at the time.) My mom used icy hot on my legs and while it didn't completely relieve the pain, I was able to sleep. A doctor dubbed it "growing pains" and it never got that bad again until recently. Flash forward a few years and we were living in Wisconsin. Aside from the occasional bouts of pain, my knees started cracking and popping whenever I knelt down. Another doc, and another growing pains diagnosis. He told me that since the act of bending my knee wasn't causing pain, there was no cause for alarm. Flash forward another few years and I'm in my 20's. The cracking and popping still happens when I kneel and the bouts of pain occur maybe once a month.
    When I was 25 I ran over my foot with a lawnmower. Stupid huh? Shouldn't have ignored that little sticker that has a slash mark through the little stick guy pulling the lawnmower backwards. I was standing on a small hill that still had some dew on it. I pulled the lawnmower backwards, towards myself, slipped and ended up pulling the lawnmower further onto my foot as I fell. The surgeon was picking bone fragments out of my foot for half an hour, I had shattered several of the bones. So 2 metal plates and nine screws later, I consider myself rather lucky to have all ten toes, even if there is some serious nerve damage (touching the area around the scar tickles the bottom of my foot.) October 2 years later is when things started getting really bad. My knee would randomly give out, I would wake up feeling so stiff, I had to massage my legs.
    I've seen several doctors, two orthopedic surgeons, a physical therapist and a practitioner of homeopathic medicine. I've tried NSAIDS, steroid dose packs, cortisone shots, physical therapy, non narcotic pain killers, narcotic pain killers, chiropractic therapy, and acupuncture.
    I've had X-rays on my legs and back, blood tests, etc.
    I've heard that it's arthritis, lymes, fibromyalgia, and gout.
    I'm on narcotic pain killers as well as muscle relaxers for the muscle spasms. I hate slapping a band-aid on the problem, but without the meds I'm completely not functional. As it is I've stopped making plans, I never know what the day will bring and my heating blanket is my best friend.
    If any of the previous posters are still around, I'd like to hear from you. Even if you haven't posted and can relate, I'd like to hear from you as well.
    Hi, I'm a 36 year old female and have been suffering with pains in my legs since I can remember. "Growing pains" as we've all been told! Whenever weather changes I had to drink some asprin and apply a hot rub, pray for the best and it will eventialy pass. One day, at the age of 34, while walking up stairs, I found myself not being able to put any pressure on my left knee because it had felt like someone stabbed an ice pick into my knee. Hopping on my right leg, the pain subsided after a few days and I found myself having a sore right leg. Probably because that was used as my hopping leg. Before I knew it the pain in my left leg was back but the pain was spreading down into my shin and the next day up my thigh. Constant-flesh-is-falling-of-the-bone kind of pain. Excrutiating!
    I went to the dr, had x rays done of my back. Back looked normal to GP but she refered me to a neurosurgeon who had an MRI done and he establised that I had a collapsed vertebrae at level L5/S1. I subsequintly had disk replacement surgery done and was told that because of nerve compression that I should expect "gost pains" for the next 12 months. The 12 months is now over and the legs pains are not! I am feeling so sure that the pain is coming from my left leg. My knee can't take pressure, it feels like it wobbles and it aches in my knee, down my leg, into my thigh. I have been going to a physio, I am doing the exercises to best of my ability. Although the squads, knee exercises make my knee pop and sqeek. Went to the GP again last week, I have been taking Lyrica 75mg day and night for months already. I take Arxocia's and now I've also been placed on a pain patch called Soveron 5mg. The pain feels better but I now just feel like my calf and thigh muscles are torn and my legs feels HEAVY, like it could fall a hole right through my matress at night. I forced the GP to sent me for knee xrays and the good news is my bones are fine. The even better news is the bloodwork for arthiritus and acidic level game back perfect. BUT something is seriously wrong. These leg aches are debilitating, I've got 2 small children and I feel like I am failing them. I have lost my identity and wish I could turn back the clock to when everything was still semi normal with my "growing pains" where do I go from now? Why can't anybody find a logical answer for these aches? I pray for everybody that sufferers from this

  30. #30
    NicB83 is offline New Member
    Join Date
    Apr 2013
    Posts
    2

    Default

    Greetings Anita,

    I'm so sorry you have cause to be here, but I'm glad you found this place, if that makes sense.
    I don't have children but I do suffer from overwhelming guilt that I'm letting others down. Thankfully I have an amazingly patient and sweet fianc?. I know it must be different with children so please don't think I'm comparing the two. I just mean that I have an idea of the guilt you feel.
    I'm kind of in a stalemate right now. I've seen another doctor since my last post and he thinks it's something bacterial. He gave me a referral to a naturalist who wants to do a Transdermal Electrical Screening. The thing is, after doing some research, I'm not convinced this is a legitimite practice. I don't want to bog this down with a bunch of useless information, but basically I believe that it's a way to prey on desperate people and they can fix the results to however they see fit. The test is five hundred dollars and expected at the time of the appointment. Even if I had insurance, they don't accept it, which is another factor that makes me wonder about them. Perhaps if I wasn't paying $530 a month in prescriptions, I might consider making an appointment. It's a vicious circle.

Page 1 of 2 12 LastLast

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22