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Detox from MS Contin - the devil has me by the tail! Help!
  1. #1
    NiniKitty is offline New Member
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    Default Detox from MS Contin - the devil has me by the tail! Help!

    Hi All, I've never joined an online group before, so please forgive any etiquette mistakes on my part. I have been on MS Contin 200 mg time release, 3x day, for FIVE YEARS + (no gasps please, lol). I'm a 42 year old woman, and obviously, I have pretty severe chronic pain issues, resulting from a virtual myriad of health conditions that include: every digestive disease you can imagine, specialist says I had the colon of a 90 year old woman (at only age 30 at the time), Chronic pancreatitis (started BEFORE opiate meds), TWO 6cm right frontal lobe brain tumors- at this time begnign but atypical so who knows w/o invasive biopsy, nerve induced traumatic injury chronic reactive pain syndrome (this one is NO fun at all), a severe & disabling skin condition that causes my hands and feet to blister, like walking on glass, and so many more to name but I'd sound like a raging hypochondriac, so isn't this enough for now? For anyone?

    All of my issues were in full force long before I turned to narcotic pain relief, and I did so with much trepidation. I was okay with the ms contin, as it had lower addictive issues, was supposedly easier to quit taking, and supposedly caused less internal problems. Haha. In my past, long before I became a devoted wife & mother, I was a bit of a hellion. I sampled all kinds of things, but never became "addicted" and was always able to stop taking the drug of choice at the time with absolutely no problem, have always had an iron will. I amazed my "user" friends with my ease and ability to go cold turkey! This "easy to get off" med is proving hard to stop.

    We need to see where my pain level is at, if there is new pain, and to assess my two lovely brain tumors pain levels. Yay. Once off, I don't intend to take ANYTHING. I'm turning to holistics in the hope that anything should be better than this! But HOW to get off MS to start with? I have tried 3 times with no luck. I get sick immediately after missing my first dose of the day. I have been able to taper down to ONE 200 mg per day! But that's it, I'm now stuck. I have found that the use of marijuana helps a LOT. But, it's not foolproof. Aside from the legalities of that, I am prone to think it's just replacing one drug with another!

    I have read the forums here and noticed that the instant release ms contin are easier to taper, and would like more info, and any suggestions are appreciated. If anyone has a simple "recipe" for tapering down MS Contin, I'd love to hear it. I was "removed" from my pain clinic because I refused to do any more spinal blocks. I had been doing them for THREE years, they provided NO relief, but my "pain dr." said he could not prescribe narcotics alone & IF I wanted them- I had to get a 9" needle stuck in my spine every month. After THREE years of complying I told him I couldn't do it anymore, it wasn't worth the pain, & relieved no pain. I literally got "kicked out" for refusing a treatment I gave a good ol college try for for many years! Talk about blackmail! Here, take this unnecessary, painful, invasive medical treatment or you don't get a script! Nuts. No thanks JERK.

    So all, any advice most welcome. I'm really scared. I don't want/need any more pain, but I can't live on this ???? for the rest of my life either. Please tell me, is there light at the end of the tunnel?? Thanks!

  2. #2
    iloerose is offline Platinum Member
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    Is it possible to get these pills in smaller doses or are you totally cut off? I really feel for you. 200 mg. of oxycontin is a huge amount to c/t from. Will a dr. help you get off of these? You really need medical advice for this problem. You seem to be able to taper really well. If you could get the equivalent of instant release, the taper plan usually goes at a .25% reduction every 4-5 days. Given your pain levels and health issues I'd definitely seek medical advice. Let us know what's what with your doctor situation. Did your pain dr. realize that you wanted to taper off the opiate to assess your pain levels? I know I'm asking many questions, but if you can do this medically with the help of a doctor that would be best. I'm sure that c/t would be absolutely no fun at the high dose you are taking. I feel for you and wish you the best.

    Peace,

    Iloerose

  3. #3
    NiniKitty is offline New Member
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    Quote Originally Posted by iloerose View Post
    Is it possible to get these pills in smaller doses or are you totally cut off? I really feel for you. 200 mg. of oxycontin is a huge amount to c/t from. Will a dr. help you get off of these? You really need medical advice for this problem. You seem to be able to taper really well. If you could get the equivalent of instant release, the taper plan usually goes at a .25% reduction every 4-5 days. Given your pain levels and health issues I'd definitely seek medical advice. Let us know what's what with your doctor situation. Did your pain dr. realize that you wanted to taper off the opiate to assess your pain levels? I know I'm asking many questions, but if you can do this medically with the help of a doctor that would be best. I'm sure that c/t would be absolutely no fun at the high dose you are taking. I feel for you and wish you the best.

    Peace,

    Iloerose

    Hello Iloerose! I have been trying to find this forum for some time now, lol. I remembered posting this, but couldn't remember where. Finally! Wasn't hard to find once I remembered the title. Duh. We can thank my brain tumors for that. Sometimes I miss whole days, it's awful. See? Told you I wasn't an expert at this forum stuff!! Ok, first of all, thank you so much for a kind, intelligent response. I realized another reason I'm trying to go off the MS Contin is the social stigma attached to it. I had what I knew to be a pancreatic attack, went to the ER as my doc instructed, and haha, once the "dr.'s" there learned how much morphine I take, they STOPPED running tests, shot me up with something, left me alone for hours in pain, then sent me home with Valium and muscle relaxers, stating my pain meds were likely making my stomach hurt. Arghhhhh! I went home and suffered there instead, with yes, the same pancreatitis upper right quadrant pain I've readily come to recognize as a chronic attack. But, the ER guys, once they heard I take these meds, were HANDS OFF, cold shoulder, and it's not the first time. I'm so sick of it, sick of getting less medical care than others because they think they know MY story, it's disgusting. Whatever happened to giving those in obvious pain the benefit of the doubt, and "do no harm"??? Even some members of my own family roll their eyes at me and treat my health issues like they're not as bad as I'm making them, even though many of my issues are obvious and self evident. I just don't get it!! These SAME people will then turn around and ask to "bum" a pill off me!!! Hellllooooo?! Even my own primary care doc, who has been with me from the beginning, LONG before I ever sought pain relief, now blames some 80% of my probs on the meds, even though he KNOWS these same problems were long in effect before I started taking any of this ????, at HIS suggestion. It's a freaking joke, all of it, and it makes me sick. So, yes, I'm still trying to do this on my own, I'd had a lot of extras left over to get me through, but those are now getting low, and I'm still only down to one half of a 200 mg extended release pill, which I understand we are not supposed to cut in half. I'm really scared, my doc won't help me, just suggests I go to yet another pain doc. No thanks on that. Those guys are crooks. He doesn't seem to understand or care that I don't trust them and have lost all faith in them. So, if not my primary care, and not a pain doc, then who? Who can help me taper down? My oldest son has helped a few friends detox at home, safely, and he is trying to help me from another state. He has many friends here who he said can help get me the correct dosages, but I'm terrified of doing anything illegal!!! I wish I could just take some sleeping pills and sleep through the whole thing!!! My mom has offered me to come stay with her, as I'm scared of scaring my younger children when mommy gets sick yet again. I can't expect any help from my husband, whom I discovered (after tapering, natch), has been having an affair(s) and leading a double life the last 16 years. I gotta get off this ????, and soon!! I have to have a clear as head as possible to figure out the rest of my life. I can't stay with this man, but I can't support myself right now either, a catch 22. He has already made several threats if I try to leave, what a guy. I'm such an idiot. These drugs have clouded my mind and allowed me to believe his lies and I'm just sick with myself for being so dumb, and sick at him for taking advantage of my addled, sick state for the last five years. I've been a good wife and mother everything aside, I keep my problems to myself and don't complain or bother anyone, do my best to make everyone happy, and now, now this. It's just all too much to take and I just don't know what to do about any of it. Any insight most appreciated. And, I've got this page book marked now, ha! I'm falling down the rabbit hole and I'm beyond terrified. Thanks, so very very much all for any assist here.

  4. #4
    saddad1 is offline Member
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    I commend your bravery. With the health issues you have to deal with it would be easy to just roll over and be complacent existing in an opiate-induced haze just to manage the physical and emotional pain you have been subject to for so long. Your willingness to even consider getting clean is a huge step in the right direction.

    I can relate to you in a way. As you read on my post, my wife has Lupus which has resulted in several trips to the ER, specialist doctors etc. When we were dating we had a running gag about 'date night' which was us in a hospital room. I always kept 2 bags packed in my car, 1 with some of her essentials and 1 with some of my stuff to help me cope while I tried to be 'the strong one'. We used to laugh about which hospital staff we liked better, who had the best rooms/food/TVs...anything. During those early years I saw many doctors just brush her off, put a band-aid on her symptoms, and then send us on our way with no explanation or advice on what to do next. It was exceptionally difficult for me to cope with, let alone for her to deal with. I can't tell you how many times I walked out of the room after a nurse or a doctor and, nicely I may say, chewed them out for down playing the severity of her issue due to her medical background and RX history.

    I can't imagine the blow that infidelity deals to a person. When I was in school I had girlfriends and I was cheated on a few times but I never had a long term relationship turn sour like that. I couldn't imagine. I pray that you can find the strength to handle each problem in turn. I wish I could give you advice on a taper but I really can't. I would consider looking into an Outpatient program and talk to one of their staff about your situation and the possibility of start a suboxone treatment? This is a monster of a situation you're in no doubt but don't let that get the better of you. You're already walking the right path. People here have LOTS of experience and will be able to help you with the 'nuts and bolts' of your detox plan. There are people here like me who don't have as much insight into the medical aspect of this addiction but can relate to you on a personal and emotional level. I find it just as helpful at first and MORE helpful once you're over the hump. The most important thing is state of mind and I think that you are very motivated.

    We'll be here to help as often as you need it (and plenty when you don't!). Take care.
    frank hartmann likes this.

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