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I am alpha1-antitrysin (A1AT) deficient and have a lung infection I can't get rid of. The doctor has tried Amoxycillin, Augmentin, Pyostacine and Tavanic. This last DOES work but doesn't cure it. As soon as I stop taking it, the extreme tiredness, shortness of breath and little cough - all return.
I'm living in S.France where there seem to be very few cases of A1AT and the doctors seem to have no experience of this.
The doc doesn't really know what to do - nice tho' he is.!!
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