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on fentanyl for 1 month quit cold turkey... please help
  1. #1
    jm1985 is offline New Member
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    Unhappy on fentanyl for 1 month quit cold turkey... please help

    I was recently diagnosed with lupus & sjogrens syndrom. I was in the hospital for over a week and then in the hospita every week for over a month because of very bad pain. I have battled fibro for 10 years... anyway as a last resort to keep me out of the hospital I was put on Fentanyl... first 75mg
    (June 1) then last week upped it to 100mg. But I just have terrible anxiety ont it like I am going to overdose so last night in a panic i ripped it off and decided that was it! now that was 11pm last night it is now 6:15pm the next day and I feel awful... very shakey, nervous, uncomfortable etc. Is that the withdrawl already? I am still going to take 2-3 percocets a day to help this not be so severe and help my pain. But how long am i going to feel like this? Does me being on it for barley a month make a diferece? I am very scared I have two small children and my husband travels a lot for work... part of me wants to go in there and just put one back on and suck it up but I have made it this far right? or is the worst yet to come????
    Last edited by jm1985; 06-27-2009 at 05:17 PM. Reason: made mistake

  2. #2
    Cats Meow is offline Diamond Member
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    You may have some mild w/d, but the Percocet will help, it will take you a couple of days to stabilize. Only being on it for a short time helps, but not really that much since fentanyl is so strong, there's not much you can do except bide your time, unless you can get your doctor to give you more Percocet to taper down correctly, but a little discomfort is expected.

  3. #3
    AzWickedCool is offline Junior Member
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    I can only offer this as my experience with my niece, she has lopus actually cause her kidneys to fail and she went blind after a month in a coma. She needed every last bit of strength to fight the lupus and 15 years later and a kideny transplant, she is doing great. Lives independantly and with a real good quality of life. If she were medicated especially as heavy as they do now with pain meds, she would have never fought to live. It would have been easier for her to just get comfortable, relax and die.

    Just look at your life and your useage, does the does keep on increasing? Are medications being prescribed at higher does and scarier meds. if not, stay what your on,and don't increase. You will need your stregth.

    The last thing you need is your doctors escalating your meds to pacify you and turn you into an addict before you know it. When that happens the dose will never be enough and the pain will always be too much.

    Good Luck

    And to answer your question, yes the worst is yet to come, but so is the better.

  4. #4
    melinda7.5 is offline Diamond Member
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    Quote Originally Posted by jm1985 View Post
    I was recently diagnosed with lupus & sjogrens syndrom. I was in the hospital for over a week and then in the hospita every week for over a month because of very bad pain. I have battled fibro for 10 years... anyway as a last resort to keep me out of the hospital I was put on Fentanyl... first 75mg
    (June 1) then last week upped it to 100mg. But I just have terrible anxiety ont it like I am going to overdose so last night in a panic i ripped it off and decided that was it! now that was 11pm last night it is now 6:15pm the next day and I feel awful... very shakey, nervous, uncomfortable etc. Is that the withdrawl already? I am still going to take 2-3 percocets a day to help this not be so severe and help my pain. But how long am i going to feel like this? Does me being on it for barley a month make a diferece? I am very scared I have two small children and my husband travels a lot for work... part of me wants to go in there and just put one back on and suck it up but I have made it this far right? or is the worst yet to come????
    Hi JM
    I have fibro also...It sucks I don't know how many perc's you have when I quit my oxycontin I got stable with them but I had to take a few more than your doing and then I tapered off of them...
    Let us know how you are doing...
    Talk to you soon, Melinda

  5. #5
    Robert_325 is offline Double Diamond Elite
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    Fentanyl is a terribly strong medication. I hate it. I think they should ONLY give it to people that are terminally ill and that's it. Every person that takes it goes through hell if they ever try to get off. If you're going to stop fentanyl at some point you should take something different. Hang in there. Cats is right, the percs will help but it will take several days. Hang in there. God bless.
    I am not a dr. My statements are based on years of experience and related education. Consult with the professional of your choice regarding matters of concern.

  6. #6
    jm1985 is offline New Member
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    I gave up that night... it was a bad time to start it so suddenly... that was not even a week ago and now I decided this is it... I am going to the doctor tomorrow morning to discuss my "plans" I took off the patch at 11:20am today & the rest of the day i will be with my mom... then my husband will be home Friday & Saturday and Sunday-Thursday he will be out of town but will be staying with my parents... I am very, very nervous to start this again and today (July 1st) marks 30 days being on this awful junk... again 3 weeks on 75mg and 1 week of 100mg. I'm so angry I ever started this ********... I just want to know things are going to be okay and better... I am going into this with more support from my husband and a more of a plan... I just hope the w/d isnt too bad for me... I am going to do my best with managing it with positive thinking (that I havent been on it that long and that a lot of w/d is in your head) and that I will have 10mg percocets if it gets really bad and phenergan for nausea/vomitting. Any other tips, advice anything? i'm at a loss... I feel excited but then again scared out of my mind... if I get really bad... like too much pain, suffering etc. can you go into the hospital and have them admit you and help manage your symptoms if it gets out of control esspecially with me having lupus, fibro and sjogrens syndrom...
    Last edited by jm1985; 07-01-2009 at 02:07 PM. Reason: replacing cuss words...

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    Cats Meow is offline Diamond Member
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    Yes, use Imodium and keep as active as possible, you probably won't want to for the first 3 days, but then make yourself get up and walk, the more activity the better.
    Good Luck

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    jm1985 is offline New Member
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    as of tonight at 11:20 which isnt far away it will be 36 hours... Went to my doctor and he reccomended using percocets every 4 hours with phenergan then in a week percocets every 6 hours then 8 hours etc. When I take a percocet and phenergan it makes me feel semi-human for about 2 hours... last night was rough... I passed out at 10pm then woke up at 2:30, 3:30 and then was up from 4:30 until this afternoon when i finally took almost an hour nap... since i took the nap i have been feeling tolerable... I am do for a percocet soon and am making sure i dont let time lapse just because i'm feeling semi-okay right now... i'm just praying and hoping since i wasnt on it long and even though this is so hard it wont get much worse... today it got really bad for a few hours and i thought i was going to rip my skin off!

  9. #9
    jm1985 is offline New Member
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    Unhappy

    well i took it off Weds @ 11:20am & it's now Friday evening... I am doing alright... I have been taking phenergan, klonopin & percocet to manage the symptoms and after 10 days everything will slowly be less and less. I can sleep at night for about 4-5 hours then i'm up the rest of the night basically every hour tossing and turning but too weak to get up and do anything... I just feel really foggy... like the world isnt real... and just very, very weak. nausea is getting better and I am eating more so that is good... I am hoping things are going to start getting better... what do you all think? I just want to feel normal again and dealing with withdrawal along with lupus, sjogrens and fibromyalgia is NOT FUN. I think a lot of me being weak and uncomfortable has to do with my illnesses and is aggagerating it. But I am so happy I am patch free... I will never EVER put that thing on AGAIN! EVER! Any tips to deal with the tossing and turning at night and feeling like i cant lay still? like my skin is crawling! that is the worst part and just this weird confusion feeling of how things arent real...

  10. #10
    melinda7.5 is offline Diamond Member
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    Hi jm
    I have fibro also YIKES it's no fun.I was taking oxycontin and others so when I stopped I was feeling like you also, Try to hang on for a few days it WILL GET BETTER...I promise...just do what ever you can do and put some time behind you...
    Keep posting and let us know how you are doing...

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