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Pain pump
  1. #1
    mountaineerfan is offline New Member
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    Default Pain pump



    Hello everyone,
    I am wanting to hear from those members or visitors that have or had or even those that plan to have (Like me) a pain pump surgicly inseted into your body.
    If anyone has is or was experiencing this please advise to me what if any kind of pain releif you get and the in's & out's of this miricle pump such as hazards, sickness, withdrawls, side effects, anything you can tell me will be "VERY VERY VERY" much appreciated, simply because it is a big decesion to make and may not be un-done once it is completed.
    Thank you so much for any info you can advise me of!
    Mountaineer

    Oh yea, a couple more thngs please.

    My hat is off to all the people that are trying to free themselves of any & all drugs, you know what life is about and deserve a chance to be free of these drugs no matter if your a high seeker or a pain relief seeker! )
    You are making it so that people that are in pain and must have these or other pain meds can still enjoy life without so much judgment, I am considered a junkie no matter who it is when I fill prescrips or whatever, I can tell by how people look at me once they see or hear I am on methadone or oxycottin, I was on 3 doses per day of 40mg oxy each dose w/vicodene in between each dose, well, once I took advantage of these meds and came up short a week I learned what hell must be like a little, because it was hell and I didn't know I was hooked on oxys, i didnt know jack **** about oxy's all i know is they worked for a short time and I wanted to be pain free as much as possabile, but the docyor can't give you that much oxy ;ega;;y, I asked to be switched to pain patch so I could control the meds better and not end up sick with withdrwls or robbed by a junkie that doesn't mind killing for a pill, but payches didnt work, they just wouldnt stay on my oily skin and dried up in a day or two, so I went to oxys again, until I CAme up short again,lol, sick again!, hell again! So I asked to be put on methadone because I was told it was not addictive, but now after reading a couple hours tonight I see I am screwed and will be dependant on methadone now ! Is it worse than Oxy as far as withdrals/deendency? Gotta go, my back is killing me already afeter sitting here for 10 minutes straight, I must get up and move around a bit then come back.
    Thanks for listening to my crying, I appreciate it.[:X]
    Mountaineer

    montani_semper_liberi

  2. #2
    leyaran is offline New Member
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    Default

    Hi mountaineer....can you tell me what happened to your back that you need a pain pump? (never heard of one) it must be quite severe? I'm on percocets due to a torn disc in my low back..when this first happened I was injected with lots of mophine at the hospital and it didnt do anything for me I had to ride it out untill the pain subsided, I was unrecognizeable at the hopital from the pain...now I am waiting for a surgeon's oppinion, and have been since Feb 2008 ..I really cant do much as for as daily life stuff...simple things like standing at the stove cooking and sweeping the floor really aggravates my back..so I would pop an extra pill here and there and now I.m hooked..I dont think they even help my pain much anymore but its the buzz I like,any ideas for me?

  3. #3
    painsucks is offline New Member
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    Default reply to leyaran

    Hi leyaran,

    First let me say that your symptoms sound similar to mine. I can only be on my feet for short periods of time - whether it be standing still or walking, makes no difference. The pain isn't immediate - it accumulates as the day goes on and the more time I have spent on my feet, the more pain I am in late in the day. I am still working full time at a desk job, but just barely as I must spend all my "free" time resting up from the pain by lying down as soon as I get home, then get up and have dinner, do a few things, then go to bed. It is not much of an existence, but I keep hanging in there!

    When this situation began almost 6 years ago due to... well it's a long story involving injuries and a L3-4 fusion in 1995... my pain specialist told me that I would probably have one of these at some point. I thought I was going to get one then, but instead I have spent the last 6 years evolving to and from oxycontin to P.T. to injections, to laser surgery, to nerve blocks, to spinal stimulator trial, etc. None of these has helped a whole lot. If I took enough OC to reduce my pain to a tolerable level I would most likely be in a coma!

    So FINALLY about a month ago, after seeing a couple more pain specialists I am back to the one I trust most, who originally told me I would be having one. I had the 10-day trial about 2 weeks ago, which involved placing an epidural catheter in my lumbar area, hooked to a 500ml bag of morphine solution that I carried in a little shoulder pack. I thought the trial would be an actual intrathecal unit but it was not. Hopefully this is not relevant because, let me tell you, it was sweet!

    It took a couple of hours or so and it came on so gradually that I almost didn't notice. I know that sounds weird but it was like, all of a sudden I realized... it doesn't hurt anymore! I thought I must be dreaming, which isn't all that unusual when opiates are involved, but I was really awake. I followed my doctor's instruction and weaned off the OC over the next 2 days. I was finally out of pain, at least 75% anyway, which is a conservative estimate!

    At the end of the trial the temporary unit was removed. About 3 hours later I became absolutely convinced that I had to have the permanent pump! I was in so much pain that I didn't get out of bed for 2 days, except for the obvious necessities, and despite going back on the OC, was having the worst withdrawal effects I have ever experienced. Well, I survived that but I am now scheduled for the implant surgery a week from tomorrow... I can't wait! I am so anxious to resume my life, the life that was taken from me six years ago when the disc(s) below my fusion collapsed one morning.

    Ok, I see I have written a short novel here. I look forward to your reply and hopefully you will be able to have a similar story to tell in the near future. To find out more about the pain pump click here. Best of luck to you!

    Quote Originally Posted by leyaran View Post
    Hi mountaineer....can you tell me what happened to your back that you need a pain pump? (never heard of one) it must be quite severe? I'm on percocets due to a torn disc in my low back..when this first happened I was injected with lots of mophine at the hospital and it didnt do anything for me I had to ride it out untill the pain subsided, I was unrecognizeable at the hopital from the pain...now I am waiting for a surgeon's oppinion, and have been since Feb 2008 ..I really cant do much as for as daily life stuff...simple things like standing at the stove cooking and sweeping the floor really aggravates my back..so I would pop an extra pill here and there and now I.m hooked..I dont think they even help my pain much anymore but its the buzz I like,any ideas for me?

  4. #4
    myrnahaschets is offline New Member
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    Smile

    Quote Originally Posted by mountaineerfan View Post

    Hello everyone,
    I am wanting to hear from those members or visitors that have or had or even those that plan to have (Like me) a pain pump surgicly inseted into your body.
    If anyone has is or was experiencing this please advise to me what if any kind of pain releif you get and the in's & out's of this miricle pump such as hazards, sickness, withdrawls, side effects, anything you can tell me will be "VERY VERY VERY" much appreciated, simply because it is a big decesion to make and may not be un-done once it is completed.
    Thank you so much for any info you can advise me of!
    Mountaineer

    Oh yea, a couple more thngs please.

    My hat is off to all the people that are trying to free themselves of any & all drugs, you know what life is about and deserve a chance to be free of these drugs no matter if your a high seeker or a pain relief seeker! )
    You are making it so that people that are in pain and must have these or other pain meds can still enjoy life without so much judgment, I am considered a junkie no matter who it is when I fill prescrips or whatever, I can tell by how people look at me once they see or hear I am on methadone or oxycottin, I was on 3 doses per day of 40mg oxy each dose w/vicodene in between each dose, well, once I took advantage of these meds and came up short a week I learned what hell must be like a little, because it was hell and I didn't know I was hooked on oxys, i didnt know jack **** about oxy's all i know is they worked for a short time and I wanted to be pain free as much as possabile, but the docyor can't give you that much oxy ;ega;;y, I asked to be switched to pain patch so I could control the meds better and not end up sick with withdrwls or robbed by a junkie that doesn't mind killing for a pill, but payches didnt work, they just wouldnt stay on my oily skin and dried up in a day or two, so I went to oxys again, until I CAme up short again,lol, sick again!, hell again! So I asked to be put on methadone because I was told it was not addictive, but now after reading a couple hours tonight I see I am screwed and will be dependant on methadone now ! Is it worse than Oxy as far as withdrals/deendency? Gotta go, my back is killing me already afeter sitting here for 10 minutes straight, I must get up and move around a bit then come back.
    Thanks for listening to my crying, I appreciate it.[:X]
    Mountaineer

    montani_semper_liberi
    I have had severe back pain (my entire spinal column) for 12 1/2 years. I was hit by a car (she ran the red light), and I spun up against her car (from my left side), and then I spun up against it again. Basically, it scrunched my entire spinal column together. I was allergic to almost all pain medications.
    5 1/2 years ago, I got the pain pump. Dialodid was the only medication I could tolerate. The pump is a huge comittment. For me, they put a catheter at the top of my spine to deliver the medication straight down my spinal column. It worked. I had pain relief for the first time. The surgery is not scary, and you don't have to ever worry about how much medicine your on. You keep going back for injections (like a blood test), and they increase it until you get the maximum relief. I hate needles and thought that would be a problem, but I was fine. And if you ask my 17 year old daughter, she would tell you I am a big baby. I know you would have to have your medications under control before they would consider you for the pain pump, but it sounds like the safest alternative in your case.
    Last edited by myrnahaschets; 02-10-2009 at 02:31 PM. Reason: spelling error

  5. #5
    wavedreamer1 is offline New Member
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    Default Prialt in pain pump - Is there anyone that is having major side effects?

    I can relate? I am on the drug Prialt in my implanted pain pump. THe doctor is going up slowly on this drug. The side effect can be major. Are you having the same problem. I would love to talk to someone that is having major back pain and can relate. Have stoped talking about it to the family. I know that they are tired of my situation. I know that I am. I am tired of saying I'm FINE. When I am not. I have had 4 major spine surgerys. I have a plate in my neck and a herringtong rod down the center of my spine and a plate at the lower back. I have had surgery 3 tomes for my pain pump. The first one got infected and they took it out. and I have had another one put in on the right side. I am on Prialt now. It is venom from a sea snail. The side effect are!!!!!!!!!! please let me know if you can relate. A women in constance pain and alone with this medical problem. Thanks. Sandra:

  6. #6
    wavedreamer1 is offline New Member
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    Default Didn't mean to scare you from the pump. It does have it ups and downs.

    Please let me know what you are going through. I had all the drugs you listed in my pump. No real help! I was in la-la land. I do not have the same kind of effects. WIth the drug prialt. Is it really different. Would love to talk. It seems that there is not enough people out there that is welling to share. Talking is a big help for me. wavedreamer1

  7. #7
    wavedreamer1 is offline New Member
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    Default Contact information

    Reply are supose to go right to my email. If not contact wavedreamer1@aol.com

  8. #8
    fmplefka is offline New Member
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    Default I have had a pain pump for over 3 yrs.

    Quote Originally Posted by mountaineerfan View Post

    Hello everyone,
    I am wanting to hear from those members or visitors that have or had or even those that plan to have (Like me) a pain pump surgicly inseted into your body.
    If anyone has is or was experiencing this please advise to me what if any kind of pain releif you get and the in's & out's of this miricle pump such as hazards, sickness, withdrawls, side effects, anything you can tell me will be "VERY VERY VERY" much appreciated, simply because it is a big decesion to make and may not be un-done once it is completed.
    Thank you so much for any info you can advise me of!
    Mountaineer

    Oh yea, a couple more thngs please.

    My hat is off to all the people that are trying to free themselves of any & all drugs, you know what life is about and deserve a chance to be free of these drugs no matter if your a high seeker or a pain relief seeker! )
    You are making it so that people that are in pain and must have these or other pain meds can still enjoy life without so much judgment, I am considered a junkie no matter who it is when I fill prescrips or whatever, I can tell by how people look at me once they see or hear I am on methadone or oxycottin, I was on 3 doses per day of 40mg oxy each dose w/vicodene in between each dose, well, once I took advantage of these meds and came up short a week I learned what hell must be like a little, because it was hell and I didn't know I was hooked on oxys, i didnt know jack **** about oxy's all i know is they worked for a short time and I wanted to be pain free as much as possabile, but the docyor can't give you that much oxy ;ega;;y, I asked to be switched to pain patch so I could control the meds better and not end up sick with withdrwls or robbed by a junkie that doesn't mind killing for a pill, but payches didnt work, they just wouldnt stay on my oily skin and dried up in a day or two, so I went to oxys again, until I CAme up short again,lol, sick again!, hell again! So I asked to be put on methadone because I was told it was not addictive, but now after reading a couple hours tonight I see I am screwed and will be dependant on methadone now ! Is it worse than Oxy as far as withdrals/deendency? Gotta go, my back is killing me already afeter sitting here for 10 minutes straight, I must get up and move around a bit then come back.
    Thanks for listening to my crying, I appreciate it.[:X]
    Mountaineer

    montani_semper_liberi

  9. #9
    fmplefka is offline New Member
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    Thumbs up Pump is not heaven

    Quote Originally Posted by fmplefka View Post
    I found the pump didnot do a good job. It will stop the pain in the back but pain will break out in othe places. I have pain in both feet ,my right leg and around the pump. I have no tolerance for oral opioads now that the pump is in. All I feel everyday is #8&9 pain. I don'tknow what to do. I will take the pump out as so as the droctor agrees with me that it is doing no goods. It is driping over 10 months before it gets fill when I started with it 3 months was the filling date. Nothing did any good with the pump.

  10. #10
    slimjim20874 is offline New Member
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    Default pain pump

    My husband broke his back 18 years ago when a 500 pound car lift fell on him. He also damaged his sciatic nerve. He has since had 4 back surgeries (once through the stomach). He is fused from the L1 to the S1. He got staph infection with the surgery through the stomach. He had this for 2.5 years and finally had to have very invasive surgery to clean it all out. The doctor gave him a 50/50 chance of surviving the surgery. He has had 7 operations for hernias caused by incorrect closure of muscle. His current hernia is about the size of half a baby's head. He has had many spinal injections, did not work because they really don't help with bone pain. He has been on as much a 540 mgs of morphine sulfate a day (he is currently down to 360 a day). He also takes percocet every 4-6 hours. He has a spinal cord stimulator which has taken away the pain in his sciatic nerve, but the back pain remains. He recently had facet nerve injections which unfortunately don't seem to be helping. We are now looking at a pain pump as we are running out of options. The meds recently caused his bowels to completely shut down for a day. We know the meds are shortening his life and wreaking havoc on his liver. When you are in pain 24 hours a day, 7 days a week, you are willing to try just about anything to take away the pain. He has tried to commit suicide twice, luckily he failed at that. He suffers from depression and bi polar disorder. I have learned to read posts on surgical procedures, but not to take them as the norm. If I had listened to all the posts I read about the spinal cord stimulator, he would still have pain in his sciatic. You have to read the good and the bad and decide for yourself. Sometimes it is worth the risk. No surgery is ever going to be perfect, everyone responds differently. I wish everyone the best, as my husband and I are still seriously contemplating the pump. I know this is his decision since he will have to go through the surgery, but I am there for him every step of the way!

  11. #11
    rebeccabesser is offline New Member
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    my husband got hurt at work and has had 9 failed surgeries servre pain all the time up to 780mg morphine a day and dilatid for break through. now they are talking of pain pump very scared he has had mersa for over 3 years and still sak in him...last year dr sent him home to have thanksgiving with our 4kids and me cause he was 90%gonna be dead at christmas time!explaining angels to our younger two boys than 10 and 6 was sooooooooHARD!!!he has come close to over dose a coulple times to stop the pain!now thank GOD he didnt. is it worth the risk to get a pump to try to stop the pain ? where infection could kill him?what do we do?
    Last edited by ddcmod; 07-02-2010 at 05:13 PM.

  12. #12
    slimjim20874 is offline New Member
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    2/11/11 The pump worked! My husbands pain level is down to a 1-2.

  13. #13
    slimjim20874 is offline New Member
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    Rebecca, sometimes you have to take a huge leap of faith. My husband had staph infection for 2 1/2 years after a surgery, luckily it's gone now. We decided that the risk was worth it to get him out of pain, so we went ahead with the trial implant for the pain pump. OMG the difference. His pain level is now down to a 1. Give the trial a chance and see if it is going to make a difference for him.

  14. #14
    marie martin is offline New Member
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    Default pain pump

    Quote Originally Posted by mountaineerfan View Post

    Hello everyone,
    I am wanting to hear from those members or visitors that have or had or even those that plan to have (Like me) a pain pump surgicly inseted into your body.
    If anyone has is or was experiencing this please advise to me what if any kind of pain releif you get and the in's & out's of this miricle pump such as hazards, sickness, withdrawls, side effects, anything you can tell me will be "VERY VERY VERY" much appreciated, simply because it is a big decesion to make and may not be un-done once it is completed.
    Thank you so much for any info you can advise me of!
    Mountaineer

    Oh yea, a couple more thngs please.

    My hat is off to all the people that are trying to free themselves of any & all drugs, you know what life is about and deserve a chance to be free of these drugs no matter if your a high seeker or a pain relief seeker! )
    You are making it so that people that are in pain and must have these or other pain meds can still enjoy life without so much judgment, I am considered a junkie no matter who it is when I fill prescrips or whatever, I can tell by how people look at me once they see or hear I am on methadone or oxycottin, I was on 3 doses per day of 40mg oxy each dose w/vicodene in between each dose, well, once I took advantage of these meds and came up short a week I learned what hell must be like a little, because it was hell and I didn't know I was hooked on oxys, i didnt know jack **** about oxy's all i know is they worked for a short time and I wanted to be pain free as much as possabile, but the docyor can't give you that much oxy ;ega;;y, I asked to be switched to pain patch so I could control the meds better and not end up sick with withdrwls or robbed by a junkie that doesn't mind killing for a pill, but payches didnt work, they just wouldnt stay on my oily skin and dried up in a day or two, so I went to oxys again, until I CAme up short again,lol, sick again!, hell again! So I asked to be put on methadone because I was told it was not addictive, but now after reading a couple hours tonight I see I am screwed and will be dependant on methadone now ! Is it worse than Oxy as far as withdrals/deendency? Gotta go, my back is killing me already afeter sitting here for 10 minutes straight, I must get up and move around a bit then come back.
    Thanks for listening to my crying, I appreciate it.[:X]
    Mountaineer

    montani_semper_liberi
    Hello I'm so sorry to hear about all the pain u r in I to suffer from several pain issues and finally was able to have a pain pump inserted in my back going straight to the spinal cord it has made things easier. But the dr and I are still working at get ting the right doseage at the best therapeutic level. If I can answer some more of your questions feel free to email me skibler67@gmail.com
    l5pine likes this.

  15. #15
    oxm
    oxm is offline New Member
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    Default Be careful with the pump

    I have heard that the pumps can work well, but my wife had a co=worker who had a pump and smething happended with the programming, or the pump mechanism and she received a massive overdose and was in a coma for weeks. this was the second time in a short time period I had heard a story about a pump going haywire and delivering too much medication.

  16. #16
    l5pine is offline Junior Member
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    Default

    Quote Originally Posted by marie martin View Post
    Hello I'm so sorry to hear about all the pain u r in I to suffer from several pain issues and finally was able to have a pain pump inserted in my back going straight to the spinal cord it has made things easier. But the dr and I are still working at get ting the right doseage at the best therapeutic level. If I can answer some more of your questions feel free to email me skibler67@gmail.com
    Hi Marie, could you give us an up-date on how the pain pump is working for you? I'm considering one because I'm sick of all the meds and their side effects after 12 years Not to mention the effect it has on aging and the rest of the bod.

    Thnaks so much!

    Best,
    Des
    ~~"I WANT TO THANK EVERYBODY THAT EVER SAID NO TO ME, BECAUSE OF THEM - 'I DID IT MYSELF!'"~~

  17. #17
    jaypee is offline New Member
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    Default

    See this is what im scarred of.too much going in @ 1 time.do u realize its there?what does it look like?i felt 1 in somebody along time ago.im sure they havve upgraded them.

  18. #18
    jaypee is offline New Member
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    Red face

    I am really getting tired of this bondage.i want to know does the pump have to just have morphineor is it different types of opiates?what does it feel like as well.what if i want to weare a sheek dress?

  19. #19
    l5pine is offline Junior Member
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    Default Pump-Jaypee

    Hi Jaypee, they try all kinds of different medications and dosages in your pum until they find the right combo for you. It's also a much, much smaller dose than you would have to take orally. There is no "set" med that they use.

    Best,
    Des
    ~~"I WANT TO THANK EVERYBODY THAT EVER SAID NO TO ME, BECAUSE OF THEM - 'I DID IT MYSELF!'"~~

  20. #20
    retromad1 is offline New Member
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    Marie,
    I have a pain pump for 3 years. they started with morephen then Fentanyl then SUFentayl and now Dilaudid (4.3mg) and none have worked .
    REMEMBER THIS AS IT IS TRUE once a pain management company or doctor implants it, youre stuck with that person for life!!!!
    If things dont work out for what ever reason you will NOT be able to seek hep elsewher. NO other painmanagement service or docttor will see you or take over your care.
    THINK VERY HARD ON WHAT YOU ARE ABOUT TO DO!!!
    Best Wishes To Tou,,
    retromad1
    Last edited by ddcmod; 05-05-2011 at 02:07 AM.

  21. #21
    l5pine is offline Junior Member
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    Default

    I've never heard "that" before, and I know more than one person with a pump. You're saying that no-one else will fill you pump? Is that right? Wow! Talk about sucky!! Where do you live?

    Best,
    Des
    ~~"I WANT TO THANK EVERYBODY THAT EVER SAID NO TO ME, BECAUSE OF THEM - 'I DID IT MYSELF!'"~~

  22. #22
    remy33 is offline New Member
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    Quote Originally Posted by painsucks View Post
    Hi leyaran,

    First let me say that your symptoms sound similar to mine. I can only be on my feet for short periods of time - whether it be standing still or walking, makes no difference. The pain isn't immediate - it accumulates as the day goes on and the more time I have spent on my feet, the more pain I am in late in the day. I am still working full time at a desk job, but just barely as I must spend all my "free" time resting up from the pain by lying down as soon as I get home, then get up and have dinner, do a few things, then go to bed. It is not much of an existence, but I keep hanging in there!

    When this situation began almost 6 years ago due to... well it's a long story involving injuries and a L3-4 fusion in 1995... my pain specialist told me that I would probably have one of these at some point. I thought I was going to get one then, but instead I have spent the last 6 years evolving to and from oxycontin to P.T. to injections, to laser surgery, to nerve blocks, to spinal stimulator trial, etc. None of these has helped a whole lot. If I took enough OC to reduce my pain to a tolerable level I would most likely be in a coma!

    So FINALLY about a month ago, after seeing a couple more pain specialists I am back to the one I trust most, who originally told me I would be having one. I had the 10-day trial about 2 weeks ago, which involved placing an epidural catheter in my lumbar area, hooked to a 500ml bag of morphine solution that I carried in a little shoulder pack. I thought the trial would be an actual intrathecal unit but it was not. Hopefully this is not relevant because, let me tell you, it was sweet!

    It took a couple of hours or so and it came on so gradually that I almost didn't notice. I know that sounds weird but it was like, all of a sudden I realized... it doesn't hurt anymore! I thought I must be dreaming, which isn't all that unusual when opiates are involved, but I was really awake. I followed my doctor's instruction and weaned off the OC over the next 2 days. I was finally out of pain, at least 75% anyway, which is a conservative estimate!

    At the end of the trial the temporary unit was removed. About 3 hours later I became absolutely convinced that I had to have the permanent pump! I was in so much pain that I didn't get out of bed for 2 days, except for the obvious necessities, and despite going back on the OC, was having the worst withdrawal effects I have ever experienced. Well, I survived that but I am now scheduled for the implant surgery a week from tomorrow... I can't wait! I am so anxious to resume my life, the life that was taken from me six years ago when the disc(s) below my fusion collapsed one morning.

    Ok, I see I have written a short novel here. I look forward to your reply and hopefully you will be able to have a similar story to tell in the near future. To find out more about the pain pump click here. Best of luck to you!
    Hi Painsucks. I totally liked your post. It has been years since you posted so I am hoping you have gained some knowledge by now. I am in a bad place. Most meds don't work and I am looking for an alternitive. Your post sounded promising for me. I would like to know after the passage of time if the pump worked to your satisfaction? Any info you could give me, good or bad would be most appreciated. Thanks for reading this.

    Ruth

  23. #23
    Anonymous Guest

    Default Pain Pump vs Visceral Pain


    If the "pain pump" becomes dislodged, the pain you will experience will far outweigh any pain you have ever experienced. If you haven't had the procedure yet, please proceed with a very high level of caution.

  24. #24
    tneckar is offline New Member
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    Default Looking for new meds

    I've had a pain pump for almost 2 years now and it has definitely helped. I had it implanted at Methodist Hospital in Houston. I live in Phoenix and after the implant, found a doctor here to manage the drug infusion cycles. I was taking Fentanyl, Bupivacaine and Clonadine. We've changed the proportions and infususion rates many times by working together.

    I've since changed pain management doctors as the doctor I had no longer takes my current insurance. My new doctor is just as good as the previous one I had and we too work together on managing my drugs. I've since gone off the Fentanyl and changed it to Dilauded. My pain level stays around 6 or 7 most of the time while standing. When lying down, it drops to a 0-1. Quite often, however, it breaks to a 10 for a couple minutes. This happens about 20 times a day.

    Overall I'm happy with my implant as I don't have any side effects. There was one side effect from the Bupivacaine. If the dose was too high, my right leg would lose control and I couldn't walk for a while. This would happen after sitting for a few minutes. We reduced the infusion rate of the Bupivacaine and I no longer have that problem.

    My pain was originally caused by a bout of shingles. Afterwards, the nerve pain got to be excruciating and I tried everything possible, including a spinal cord stimulator implant. I've had intrathecal infusions, nerve blocks, you name it. The only thing that helped was the pain pump.

    Does anyone know of any new drugs that can be used in the pump? I know that several are in testing. My doctor and I would be welcome to any suggestions.

    Terry

  25. #25
    buckeyefireman is offline New Member
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    Sep 2011
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    Default Pain pumps

    I am 41 years old and retired from the fire service due to herniating several discs in my back I have a fussion at l4 and l5 and l5 and s1. I have a spinal cord stimulator that worked great at the begining, but now the pain over rides the stimulator it still works to some extent. I go on October 5th for a consult about a pain pump. I have been on so many different drugs and for the most part they either dont help or they make me a zoombie just laying around not wanting to do anything, and they make me extremely depressed. After reading everyones comments sounds like it may be the way for me to go but I do know that everyone is different and they work different in everyone. Good luck to you all. Be safe and remember crawl under smoke!
    Last edited by ddcmod; 09-23-2011 at 07:16 AM.

  26. #26
    dtessaro is offline New Member
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    Feb 2011
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    Default Pain Pump - For Me?

    montani_semper_liberi

    Great Seal of the State of West Virginia; Reverse: Details; Armiger:
    State of West Virginia: Adopted: 1863: Motto:
    Montani Semper Liberi Libertas E Fidelitate

    Fascinating choice of >>'s ... I now know more than I did this morning ...always makes for a good day ...

    As to your making a choice vis-a-vis an implanted "pain pump" ... I was given both a brochure and and CD explaining all about the "Drug Delivery Therapy for Chronic Pain."

    Have you been given such information?

    First, (ugly enough), my insurance has to approve such a procedure;

    2nd, the brochure lists "side effects": Sleepiness; Nausea; Vomiting; Headache; Dizziness

    3rd, in my case, I've had bi-lateral hip replacement(s) ...the left providing an infection that took me back in the hospital for too long; also, I have a Laminectomy, that is major back surgery to put hardware on either side of my spine to keep me from leaning too far left or right as I get older ...TA DA ...infection!!

    4th, FOR ME ... that means I have to consider my vulnerability to infections with intrusion into my body parts!!

    5th, the most enticing aspect of this procedure is that it would use Morphine ...
    .....this med was the most effective pain medication I had, especially after my major back surgery ....

    6th, ENTER THE PARANOIA of pain docs ... prescribing pain meds .... met only by the paranoia of the FDA .... and the unfortunate abuses by those who do "doc shop" and "med shop" .... so ....WE PAY THE PRICE ... (as do the docs!!)

    I hope this helps ... in general!!

    Regards and good luck,

    Donna R. Tessaro
    Last edited by ddcmod; 11-13-2011 at 02:37 PM.

  27. #27
    TazMage is offline New Member
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    Default

    Quote Originally Posted by slimjim20874 View Post
    Rebecca, sometimes you have to take a huge leap of faith. My husband had staph infection for 2 1/2 years after a surgery, luckily it's gone now. We decided that the risk was worth it to get him out of pain, so we went ahead with the trial implant for the pain pump. OMG the difference. His pain level is now down to a 1. Give the trial a chance and see if it is going to make a difference for him.
    My wife had the trial done and her pain went to a 1-2 as well, but the drug they used for the trial was fentanyl. However, when they put the pump in, they used morphine. This did NOT help, and then they switched to dilaudid. This helped some but not as good as the drug they used for the trial. This was over a YEAR ago. She still is having severe pain in her back, and what I don't understand is why did they use one drug (fentanyl) in the trial, and then use other drugs after they put the pump in! Seems to me that they would have used what worked in the trial if they truly wanted to relieve as much of her pain as possible...instead of using other drugs that they didn't use in the trial....

    So now she has this pump in her that isn't working as well as the trial indicated it would because they aren't using the same drug as they did in the trial....
    Last edited by TazMage; 08-11-2012 at 08:17 PM.

  28. #28
    barnadvith is offline New Member
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    London
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    Default

    With the drug prialt.Is it really different.Would love to talk. It seems that there is not enough people out there that is welling to share.Talking is a big help for me.
    grammatv likes this.

  29. #29
    dinucristian is offline New Member
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    Bucharest
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    Default

    I want to believe this solution with pump is the best, but i supose this pump really make the difference. Good luck and i wish you long life.
    Last edited by ddcmod; 12-27-2013 at 05:29 AM.

  30. #30
    tassia123 is offline New Member
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    Default

    for the person trying methadone vs oxycontin..
    tne withdrawal is worse from methadone as it gets into your bones. i am contemplating a pain pump but they scare me because they can cause you to become paralyzed or needing more surgeries.
    i have had 3 back and 2shoulder surgeries all failed then fractured multiple verte rae which are all on nerve roots..anyone have good results from pumps??? tassia123

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