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Update!!
  1. #1
    dalejrfan71 is offline Member
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    Thumbs up Update!!

    I went to see my doctor today. I told him about the pain that starts in my hip and travels down my to my knee. He said that it sounds like that I have a pinched nerve in my lower back and the nerve goes down into my leg.

    He is sending me for a M.R.I. to see what is going on. If it shows major damage in my lower spinal column he is going to refer me to a surgeon to see about getting fusion surgery for my lower back.

    He also increased my dose of Hydromorph Contin to 18mg. He also prescribed me Lyrica 75mg for the nerve pain in my right leg. What side effects can I expect from this medication. Is this a good medication or should I throw it out? What are the pros and cons in taking this medication?

    What do they do if you are claustrophobic and you have to have a MRI done? How do they relax you so you don't freak out? I am very claustrophobic to the point I can't sleep under bed sheets.

    Any input regarding the topics in my post will be greatly appreciated.
    If you want to live life on your own terms,
    You got to be willing to crash and burn

  2. #2
    doc.rose is offline Advanced Member
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    There are open MRI machines. YOu could try and find one of the open MRI machines in your area.It is extremely claustrophobic. You need to tell your doc that you are claustrophobic so he can decide if you need a sedative. My doc gave me sedative when I had a MRI. I also had oxygen helping me breath. But talk to your doc now so he can order the sedative ahead of time. Good luck.

  3. #3
    Cats Meow is offline Diamond Member
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    Your claustrophobia sounds severe, usually they'll give you some Valium, if that doesn't work and in some cases they have to anesthetize you.

    You had better think hard about back surgery, be advised something like over 80% of them fail, most end up in worse pain. Its major invasive surgery, most people regret having it done. Remember, backs do get better over time, once you're cut they usually don't.

  4. #4
    godscase is offline New Member
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    Default Surgeries and Lyrica

    I had 2 back surgeries and now they want a third on my lumbar then start on my neck I don't recommend sugery unless it is a last resort. My pain mangement doctor put me on Lyrica and I could not take it as my vision was horribly messed up and my head was like it was in a barrel affecting my thinking and reasoning. Watch carefully for the side effects and if you start to see any call your doctor immediately. Hope this helps.

  5. #5
    dalejrfan71 is offline Member
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    My doctor had me do a quiz regarding MRI's and one of the questions was are you claustrophobic. I answered yes obviously. I'm just wondering if the nerve pain that I am having is from me being diabetic called diabetic neuropathy.

    This nerve pain came on suddenly, it really started getting bad around Christmas time. Is it worth the risk to have fusion surgery in my lower back? What other options do I have to relieve my back pain beside pain killers?

    I don't want to end up on such a high dose of my pain killers that I end up being either a zombie or an addict. I would give anything to not have this pain that I am going through right now. Two weeks ago I was in our bedroom for quite a while, my wife came to check on me and saw me crying from the pain.

    It takes a lot to make me cry, she felt so bad for me that she almost came to tears seeing her husband suffering. Thank god I have her in my life she helps me out so much whether it's helping me put my pants on when I can't lift my legs because of pain or just being moral support when I need it. I truly believe that if she wasn't in my life, I would have committed suicide from the pain and loneliness.

    When she needs help I help her as well. I cook her breakfast for her when she has to work. That way she can have a leisurely breakfast and doesn't have to wolf it down.
    I am a lucky SOB to have her as my wife and partner in crime
    If you want to live life on your own terms,
    You got to be willing to crash and burn

  6. #6
    Cats Meow is offline Diamond Member
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    Quote Originally Posted by dalejrfan71 View Post
    What other options do I have to relieve my back pain beside pain killers?
    PT helps for some, also a TENS unit helps. Like I've told you before, best ride it out on pain meds as long as possible, then detox and reassess pain levels, time has a way of helping backs get better.
    DON'T jump into surgery, it's the LAST option. With an 80+% failure rate, what do you think your odds are?

  7. #7
    dalejrfan71 is offline Member
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    I've talked to my wife about this and she's leery about me going through the surgery. Right now I am taking Lyrica 75mg once a day at night for 1 week, then I'll be taking twice a day. Then after a month I have to see my doctor again to see how the Lyrica is working. If it's working well I'll be on that for life possibly.

    Cats Meow whats your take on Lyrica? Is it a good medication should I not take it?
    The one thing I like about it is that it doesn't interact with the hydromorph contin that I am taking for my arthritis pain. My doctor increased the dose of my hydromorph contin to 18mg. My doctor is also referring me to a pain clinic for my arthritis pain.

    For the next 3 weeks I won't be driving until I am sure that any side effects of the Lyrica won't affect my ability to drive. What does PT mean?
    If you want to live life on your own terms,
    You got to be willing to crash and burn

  8. #8
    Cats Meow is offline Diamond Member
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    PT is physical therapy.

    Dalejrfan, I don't have an opinion on Lyrica or Neurontin, I have never taken either, some people it helps, others it messes up, and they have a high rate of adverse side effects. Like any drug, if you don't notice a benefit or the side effects are too great d/c it.
    Do read up on it.
    http://www.drugs.com/pro/lyrica.html

  9. #9
    rockermom51 is offline Junior Member
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    I take Neurontin 600mgs three times a day for nerve pain (fibromyalgia). It has been a great medication for me for the past two years...no side effects..

  10. #10
    dalejrfan71 is offline Member
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    I've been taking the Lyrica for about 4 days now with no side effects. The only pain I still have is when I sleep on my back I still get bad pain in my right hip & right knee. Could this be from a pinched nerve in my lower back? The longest I have slept so far is about 2 hours. It's been 2 years since I have had a good nights sleep.
    If you want to live life on your own terms,
    You got to be willing to crash and burn

  11. #11
    doc.rose is offline Advanced Member
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    Have you tried sticking a pillow under the hip that bothers you that way it takes the pressure off of it while you sleep on your back.

  12. #12
    dalejrfan71 is offline Member
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    I have tried sticking a pillow under my legs to relieve back pain. I'll try sticking a pillow under my right hip to see if that helps. I'd give anything to get rid of this pain
    If you want to live life on your own terms,
    You got to be willing to crash and burn

  13. #13
    outofanswers01 is offline New Member
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    Default dalejrfan71- LYRICA

    Hey, sorry you are in so much pain. It totally sucks to live in such pain and certainly lessens your quality of life. Just a quick 411 on me.... I was diagnosed with Crohn's disease after 4 years of hell basically. I had lived in severe pain from the ulcers courtesy of Crohn's- Currently I have 14 ulcers residing in my lower ride abdomen and when they flair, it hurts to even pass water through that area. I lost 90lbs 18 months ago when I was originally diagnosed because I couldn't keep anything down. Nausea/vomiting was my main issue with Crohn's on top of the other issues it causes- severe joint pain, skin problems, eye problems, etc etc.... So I have been on a ton of meds until we found something that worked.. At one point I was taking around 40 pills a day and had enough steroids in my body to kill a small herd of cows. Ridiculous.

    I was on pain killers for a loooooong time and upon my boyfriends testiment, he made it painfully clear to me that I had become addicted to this medicine. I had absolutely no idea to be honest- when I would run out of my meds I would get very sick but I would chalk it all up to having Crohn's and just being an unhealthy person. WRONG! We tried a couple of times to get off on my own but I would find myself in a bind each time. I had to find something that would manage the pain while keeping me safe from addiction.

    Through the many doctors I saw, one of them prescribed Lyrica to me.... Crohn's also causes bone problems and I have degenerative disc disease in my lower back that causes nerve pain down my legs. When I first started the Lyrica I couldn't tell any difference. When he bumped me a third time in dosage, about 30 mins after I took it I felt very spaced out and clutsy. I didn't feel "high" as so many people claim, I just felt really stupid. Having a intellectual conversation didn't happen- It's as if I were on delay and had to pause and really THINK about what I was going to say then THINK about how I would form my mouth to say each word. I felt really stupid. It is kind of funny now to think about it but I was incredibly frustrated then. On top of this, I had a really difficult time waking up in the morning and getting out of the "cloud" this medicine put me in. The dr. suggested I drink a couple of cups of coffee which I did- after about an hour I would feel better. I never noticed anything at all regarding the pain getting better. I felt like just a druggy just now a druggy in pain.

    After lots and lots of research, I decided to go off all of my medicine one day, not even wean off it. I was so sick of taking so many pills- they were like small meals when I would take them. Then, if I drank the water too fast i would vomit it all up anyway. With so much medication in my system, it was hard to tell what was a side effect & what was really true physical feelings.

    I know what I'm about to say will probably be frowned upon and I will be judged, but I decided to go on Methadone. It resolved two issues for me- the first one being the pain I was in. All the other narcotics I had been on helped take the edge off but I was still always in pain. Since I have been on methadone (now 6 months), I have only had 2 issues with any pain. HUGE difference. The 2nd issue it resolved was my obvious physical addiction to the opiates. I am on 100mgs/day of methadone and I cannot believe the remarkable improvement in my health. I finally feel normal, I no longer throw everything up, I have put some weight back on and I am nearly pain free. I am not so worried about withdraw from methadone because this is likely something i will have to be on the rest of my life because of the crohn's. I hate the stigma associated with Methadone. People assume because I am on it, I was shooting up >>>>>> and that was never the case. It doesn't matter though. What does matter is how incredible I feel and how I feel like I am living now and not barely getting by.

    Everyone has to do their own thing- but Methadone is a very potent drug and one that has resolved my pain issues completely- not just Crohn's but my arthritis as well. It's been a miracle for me.

    Good luck to you. I know all you really want in the end is to be pain free. I would really think about Lyrica before you start taking it- there are withdraw issues (like any drug) but I have heard that one is difficult to stop taking. I'd certainly do my research.

    God Bless!

  14. #14
    Cats Meow is offline Diamond Member
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    We're not going to judge you here for taking it, as long as you have a legitimate reason and know what you're getting into, it definitely has its place for CP patients, for very long term pain mgmt methadone cannot be beat. You have terrible condition to live with, I'm glad you found something that helps you.
    Cats
    Last edited by Cats Meow; 01-22-2010 at 12:03 AM.

  15. #15
    dalejrfan71 is offline Member
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    Default Shin pain

    Last night I was scratching my right knee and the shin just below the knee cap. When I touched the shin I noticed a stinging pain in my shin. What could be causing this? I tried sticking a pillow under my right hip as suggested by doc rose. It helps a bit but I still get the nerve pain in my hip and knee. I'm at my wits end at what could be causing this pain. All I know is that I am very tired from lack of sleep, I'm surprised that I haven't been hallucinating yet. Another thing that happened this morning is I was walking from the bathroom to the living room my right knee gave out on me and I just about collapsed. My wife was eating breakfast when she saw me almost fall down and she rushed to me and she caught me. Right now I hate my body for crapping out on me. I'm 38 but my body feels like it's 68 and I'm getting very frustrated at my body.
    If you want to live life on your own terms,
    You got to be willing to crash and burn

  16. #16
    dalejrfan71 is offline Member
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    I have an appointment tomorrow evening at 7:15pm for a MRI. The cool thing is that the hospital that is doing the MRI has goggles that go over your eyes and with the goggles you can watch TV or a movie. The other thing that is cool is that the MRI will take approximately 20 minutes.
    If you want to live life on your own terms,
    You got to be willing to crash and burn

  17. #17
    dalejrfan71 is offline Member
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    Default Mri

    I had the MRI done earlier tonight. It sucked rocks, I barely fit in the tube. After it was done my back and hips were killing me. I am never having another MRI done, EVER! I hope that this MRI shows what is going on with my back. Even while taking my medications Hydromporph Contin 18mg and Lyrica 75mg I'm still in pain in my back and hips. I'm not sure what else will help with the pain. My doctor is sending me to a pain management clinic. What do they do at a pain management clinic to help you with pain?
    If you want to live life on your own terms,
    You got to be willing to crash and burn

  18. #18
    doc.rose is offline Advanced Member
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    From what I understand, pain specialists deal with issues related to chronic pain, which it seems you might have. This could be a condition you have for a very long time unless they find something on the MRI that can be fixed.

  19. #19
    dalejrfan71 is offline Member
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    I went to see my doctor today. He had the results from my MRI. It shows that I have Lumbar Spinal Stenosis. It showed that the canal in my spinal column is narrowing and thats what is pinching the nerves in my back.
    If you want to live life on your own terms,
    You got to be willing to crash and burn

  20. #20
    newyorkgal is offline Platinum Member
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    I know my husband takes Lyrica or something very similar for neuropathy in his feet which is very severe at times. It works for him though I've heard some people have troubling side effects. Try it. Everyone's different. As far as claustrophobia, you can have an open MRI made specifically for people with that problem. Good luck.

  21. #21
    newyorkgal is offline Platinum Member
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    Oops... I see I posted my answer after you'd already had the MRI. At least you'll know for the next time to request the open one.

  22. #22
    dalejrfan71 is offline Member
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    I have been taking Lyrica for about a month now with no side effects so far (knock on wood). What are the treatment options for Lumbar Spinal Stenosis?
    If you want to live life on your own terms,
    You got to be willing to crash and burn

  23. #23
    dalejrfan71 is offline Member
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    My doctor has me on percocet 5mg/325mg for breakthrough pain. I take around 4 to 5 a day for breakthrough pain. I'm concerned that I'm killing my liver with the tylenol in them. Should I ask my doctor about Oxy IR which is straight oxycodone. Would that be a safer alternative to percocet?
    If you want to live life on your own terms,
    You got to be willing to crash and burn

  24. #24
    ARTIST658 is offline Platinum Member
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    Quote Originally Posted by dalejrfan71 View Post
    My doctor has me on percocet 5mg/325mg for breakthrough pain. I take around 4 to 5 a day for breakthrough pain. I'm concerned that I'm killing my liver with the tylenol in them. Should I ask my doctor about Oxy IR which is straight oxycodone. Would that be a safer alternative to percocet?

    The tylenol is no greater concern to your liver than the oxycodone itself. It sounds like you're at a fairly safe dosage of the percocet - and I can't imagine why the doctor would jump you to Oxy IR from that dosage. The amount of tylenol you are getting each day is only 1300 to 1625 - which is still within the safe limits. If the 4-5 percocet can control the pain, I suggest you stay put. To jump to the big guns at this point leaves you with fewer options if the pain increases. Considering you are thinking about the possibility of surgery, you may just NEED stronger medication then.

  25. #25
    dalejrfan71 is offline Member
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    My doctor doesn't want me to have surgery on my back as it is very risky. I have been reading on the condition that is affecting my back (Lower Spinal Stenosis) There isn't much that can be done as a treatment except medication.
    If you want to live life on your own terms,
    You got to be willing to crash and burn

  26. #26
    dalejrfan71 is offline Member
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    Does Lumbar Spinal Stenosis get better or worse as we age? My pain is getting so bad that I had to sleep in a chair last night. When ever I tried to sleep in the bed, within 20 minutes pain would be shooting through my right hip and knee.
    If you want to live life on your own terms,
    You got to be willing to crash and burn

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