[lucychristy]

Hello. I am Lucy and here is my story.

About ten years ago, my dad developed muscle weakness and started having episodes of paralysis after eating high carb meals. He was diagnosed with FPP based on genetic testing and was believed to have been triggered by a thyroid condition.

I have recently began having muscle weakness and stiffness also and will soon be tested for FPP. My dad and I are estranged from much of his family and do not know if other relatives have had this disorder. So we don't know or have contact with anyone else who has it and has lived with it.

I would love to be able to find a support group for this or be able to communicate with someone who has a similar family history because I have questions about daily life with it. I keep looking!

[grtyler]

There is a wonderful email support group at www.hkpp.org. There is also lots of information about periodic paralysis on that site. You have to apply to become a member of the support group but it is well worth the effort.
grtyler