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Chronic Pain! Oxycontin.......
  1. #1
    Jewelsf is offline New Member
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    Default Chronic Pain! Oxycontin.......


    This is my first time on this board and I'm not too sure how this all works yet. I have a question that I've been researching the answer to and haven't had much in the way of luck. I've had to live in severe chronic pain since 1999. I am no longer able to work and I have been on SSD for about 6 years now. I was injured in a fall and herniated my L-5/S-1 disk and have had 2 failed spine surgery's and one 8 hour reconstructive surgery that left me in critical condition for 4 days. Within 6 months of the lsat surgery I had developed severe scar tissue that impinges on the nerve root. As if all of that wasn't bad enough, I had another bad fall almost 2 years ago in my home and landed directly on my back where I had my surgery's. Since then I can feel and hear crunching in that area of my spine. And although I had already been in a great deal of pain, it has now increased significantly. I have also been diagnosed with Fibromyalgia, among many other things such as arthritis, etc.. After I had my 2nd surgery, I was put on Oxycontin to control the pain. This helped quite a bit and kept me on a level 5 on the pain scale. After the 3rd reconstructive surgery, my Oxycontin dosage was upped to 240mgs twice a day. It took me over a year to heal and recover from this surgery and left me in severe pain. At that point I had become very used to that dosage and I stayed between a level 6 to 7 on the pain scale. Since my fall 2 years ago I am now at a level 8 to 9 on the pain scale. Here is my question. Although my Pain Management Doctors feel that there is no problem with the particular dosage of Oxycontin that I am on at this time, I have other people in my life that are making me miserable by telling me that this dosage is unheard of and that I should never be any higher than 160mgs per day. My body has obviously become quite tolerant to this level of Oxycontin, and I personally have never been worried about this dosage. I don't mix it with any other medications except for a few that have been prescribed by the same doctors and I don't drink alcohol. Yet, I continue to be told that this is an abnormal dosage and that it will kill me. That it would kill anyone no matter what. Does anyone have any knowledge or experience on this type of dosage with Oxycontin? Is there anyone else who takes a similar dosage or even higher? Any information or advice would be greatly appreciated. I'm at my wits end here, my life is already stressful enough without always having to defend myself to others. Help!?
    Sincerely,
    Jewels

  2. #2
    Robert_325 is offline Retired
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    Default Jewelsf

    While taking two 80mg oxycontin per day is obviously a more common dose than is six pills, I would not tell you that your drs are wrong especially based only on what info you've provided in your post. You have had injuries, back surgeries and now are dealing with autoimmune diseases as well. Each of these problems can be very painful. It's impossible as an observer only to say exactly how much medication is right for you. That is why we have drs.

    There is one thing we can always do to make sure we are taking the correct amount of RX pain meds. Our minds play tricks on us when we become dependent to addictive medications like oxy. We often convince ourselves that we are in more pain than we really are. Don't misunderstand, the pain we are feeling is real. But addiction can be very painful in itself. If we go a certain amount of time without our meds we basically start going into withdrawals. This can cause lots of pain.

    I found that after I detoxed from my RX opiates (I was also on oxy) that I was not in near as much pain as I had been while taking the meds. And I was taking LOTS more oxy than you are taking. It can be painful going through this detox process but it's the only sure way to determine what our true pain is, or what the amount of pain being caused by our actual problems is. Then we can react accordingly. It may be that you can then make it with lots less or even a much less serious medication than oxy. It may be that you do need the oxy you are taking. But this is the way to find out for sure, without leaving anything to the imagination.

    It does kind of concern me that if you continue to keep adding more and more oxy to what you take each day that this could get totally out of control even though you are not acting out as an addict and are only following the dr's instructions. This is exactly how so many of us end up in trouble with our meds. Your story is all too common. Keep posting and I am confident you will receive more replies. Lots of us have been almost exactly where you find yourself today. Good luck and God bless.

  3. #3
    Jewelsf is offline New Member
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    Dear Robert,
    Thank you for the reply. I would like to add that I was actually on an even higher dosage about 4 years ago but had it lowered to the dose that I'm on now. I also don't "want" to have my dose increased, I would rather find other means in which to help control the pain, such as PT, RF, etc.. I'm currently looking for another Pain Management doctor who will take a more active approach to my health. My current PM has been rather negligent in this particular area. Since I have to go to a city to find such a doctor, it's not going to be easy. I can't drive for 3 to 4 hours one way without falling asleep at the wheel due to sleep deprivation. I haven't slept for more than 30 minutes to 2 hours in 7 years. My husband works out of town for months at the time and there is no one else to drive me, so it's a bit of a quandry. I hope that I figure out something soon. Again, thank you for your insight, it's very much appreciated!
    Sincerely,
    Jewels

  4. #4
    Robert_325 is offline Retired
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    Jewels,

    You can try to taper down your dose of oxy. It's obviously not easy but it will be better than continuing to increase the dose. The standard rule of thumb is to reduce by 10-15% of your entire dose at a time. Do that for maybe 10-14 days at a time. Don't push it and make yourself sick or you will blow this off. I know it would be best to try to get off the oxy and see how you really do then. By reducing or tapering like this it will take a while but you can do it if you can remain focused. We are here if we can help. Good luck and God bless.

  5. #5
    twiztidtubbz is offline New Member
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    Default Denied oxycotin because of age. Please help???



    Corey Carey
    night_shift_v2005@yahoo.com


    Well, let me start out by saying that i have had chronic back/neck pain since i was a young child. First i was born with a birth defect, and have a misshaped spine. Then when i was about 4 or 5. Thought i was the big kid on the block and decided that i was good enough to play hockey with older children. I had gotten my skate tripped and i flew up into the air and landed on my spine also injuring my mid to low back. Year had gone by and my mother thought i was just making up jokes and ways to get out of doing work. About the time i was just entering high school i started to see a chiropractor and he unfortunately told me that i had a back of a 45 old man... I was 13 at the time. It really had taken a toll on me and my body. I after high school i found the courage to do normal things like... ( Go to the store, the mall, bowling, etc.)
    It took alot away from me. Seeing tons of people out doing things, or having fun..
    I started to gain some weight, and have suffered many depression attacks, lost communication with friends and family. All because of this Pain.
    I am now 22 years old, i have no other family other than my mother. and she was given 2 years to live when i was 13 back in 1999. My mother is prescribed to lots of meds and once so often if i walk up the stairs and go the kitchen with a cane; She would give me one of her 60-mg oxycottin. The struggle of doing day to day stuff became easy again. Plus i also got back the power do go do the things that i wanted to do. (working out, hanging with friends, being able to sit threw a movie or even to get a good night rest. I see another chance to have my life back. so lose the weight in the ways of earning it. i am socially a wreck, and i have had cases of taking my anger of my pain on others..
    I go to the doctor and i have at least a dozen reasons i was there and told him that i really needed a doctor that knows what he's doing and to know when im in pain. He took x-rays and notice Huh? he does have a hell of a messed up back. what does he do? he gives me stuff for my depression and some bogus tyanol and with those did nothing so i tried taking them with other tyanol. Now i believe that i have a kidney infection. It's also adding to the pain that even a call from my sick mother to come upstairs and help her with something and i scream in my head and out. Life is unbearable.
    I AM NOT A DRUG ADDICT!!! Just because i am 22 years of age, and have had every piece of family ripped away from me. Doesn't mean im going to sell them, or abuse them. I know there are tons of people that get this thrown at them. Plus they play the cards that they have been dealt.
    I know remorse and caring is truly falling of the face of this earth. but i share my pain with you others as the way that you would share yours with mine. Thank you.

    Sincerely,
    Corey

  6. #6
    Cats Meow is offline Banned
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    I don't think you're presenting yourself right to the doctor, reading in between the lines I can see other things going on. First, if you're asking for Oxycontin that's a mistake, you have to work your way up to it. Your mothers medical problems have nothing to do with yours, I think bringing that up sends off a red flag. Understand, docs have a problem knowing your Ma gives you some of her pain pills, they know pain pills makes everyone feel better, with real pain or not, you're exhibiting drug seeking behavior, that's why they're reluctant to Rx for you. You may not be an addict, but you sound like you have the potential to become one, your age is factor going against you. Whatever problems you have, be them real or imaginary, it's not clear from your post which one it is, and you do seem to exaggerate, you need to show that, one, you have a genuine medical problem that's documented, two, that traditional non drug (opioid) therapy isn't helping, such as PT, and three, is there any abuse potential in your background. Crying to your doc about losing weight, not sleeping, depression, lack of communication isn't symptoms of pain, but an indication of something else that pain pills are not the solution for. Don't expect sympathy from a doctor, they're all emotionally detached, they have to be, that won't get you an Rx. Your problems are obviously in your head, so see a psych, work on your issues, and the rest of your body will follow. You need to quit feeling sorry for yourself, and quit taking your Mom's pills.
    I know this isn't what you wanted to hear, and it didn't help you any, but someone has to tell you this.
    Cats

  7. #7
    twiztidtubbz is offline New Member
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    Quote Originally Posted by Cats Meow View Post
    I don't think you're presenting yourself right to the doctor, reading in between the lines I can see other things going on. First, if you're asking for Oxycontin that's a mistake, you have to work your way up to it. Your mothers medical problems have nothing to do with yours, I think bringing that up sends off a red flag. Understand, docs have a problem knowing your Ma gives you some of her pain pills, they know pain pills makes everyone feel better, with real pain or not, you're exhibiting drug seeking behavior, that's why they're reluctant to Rx for you. You may not be an addict, but you sound like you have the potential to become one, your age is factor going against you. Whatever problems you have, be them real or imaginary, it's not clear from your post which one it is, and you do seem to exaggerate, you need to show that, one, you have a genuine medical problem that's documented, two, that traditional non drug (opioid) therapy isn't helping, such as PT, and three, is there any abuse potential in your background. Crying to your doc about losing weight, not sleeping, depression, lack of communication isn't symptoms of pain, but an indication of something else that pain pills are not the solution for. Don't expect sympathy from a doctor, they're all emotionally detached, they have to be, that won't get you an Rx. Your problems are obviously in your head, so see a psych, work on your issues, and the rest of your body will follow. You need to quit feeling sorry for yourself, and quit taking your Mom's pills.
    I know this isn't what you wanted to hear, and it didn't help you any, but someone has to tell you this.
    Cats
    Wow!!! I can't believe that you could possibly say something like that to someone you know nothing about... Im sorry that im coming across as for some reason that i was only in for medication. i was searching google about these problems and this is where i decide to tell my feelings and doubts. My weight, sleeping, depression, etc. thats results of pain from my deformed back... Also a childhood accident and 2 car crashes!!!! im glad that you thought it was a joke and that i was simply trying to get some kind of high. I just want the chance to work on those other problems by getting a push out of bed and put me into a normal working order.. I thank you for the little things that could help to my problems in my letter... But unless your my doctor ill leave all that other bs thought to yourself. Thank you.

  8. #8
    Cats Meow is offline Banned
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    I didn't take your post as a joke, and I believe you think you have a problem with your back, I read a thousand posts per month on medical and drug issues, and honestly yours throws up red flares. That sounds to me to be the reason you're not getting the medical attention you desire. I guess you don't see it, I can point them out to you if you like. I know, you don't want to hear anything more that mean Cats Meow has to say, but I'll leave you with this. Drugs aren't the magic solution to your problems.

  9. #9
    Robert_325 is offline Retired
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    Quote Originally Posted by twiztidtubbz View Post
    Wow!!! I can't believe that you could possibly say something like that to someone you know nothing about... Im sorry that im coming across as for some reason that i was only in for medication. i was searching google about these problems and this is where i decide to tell my feelings and doubts. My weight, sleeping, depression, etc. thats results of pain from my deformed back... Also a childhood accident and 2 car crashes!!!! im glad that you thought it was a joke and that i was simply trying to get some kind of high. I just want the chance to work on those other problems by getting a push out of bed and put me into a normal working order.. I thank you for the little things that could help to my problems in my letter... But unless your my doctor ill leave all that other bs thought to yourself. Thank you.



    I don't think Cats was making a joke out of your post. Instead she was pointing out some of the ways a dr would look at the situation. Try not to be defensive and look at this from the viewpoint of an observer. She was actually trying to help you see why you were getting the results you are getting.

    Granted weight, depression, back issue ( I assume scoliosis), even car wrecks, these are all problems which could make your pain worse. But is oxycontin the answer to fixing the problems? I doubt it too.

    I also was born with congenital scoliosis. It can be painful. And added weight adds to the pain as the depression can as well. But oxycontin is not the medication to fix the problems. It's nothing more than a bandaid to make the pain better rather than actually helping you. Then add telling the dr that you've been getting oxy from someone else even if it's your mother and now you want some too? No way that is going to impress the dr. Just telling it the way it is. You're admitting to seeking out oxycontin on your own and you like it. This forum is full of people who like oxy .. myself included.

    If you approached the dr with your needs to get rid of some weight, to do something to help your back like therapy, the dr would possibly see your sincerity better and would maybe RX some kind of pain med during the process. But not oxycontin. You have not described a single situation that I see where oxycontin would be warranted. You don't start out on oxycontin and that is all I believe that Cats was attempting to point out.

    Try to understand that this forum is for realistic advice. We don't just automatically agree with everyone who wants their dr to RX oxycontin even when they are in pain. That is not prudent action by you, us or a dr. Good luck and God bless.
    I am not a dr. My statements are based on years of experience and related education. Consult with the professional of your choice regarding matters of concern.

  10. #10
    dalejrfan71 is offline Member
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    The way I was prescribed oxycontin was that my gp referred me to an arthritis specialist. The specialist sent me for x-rays first, then he sent me to have a bone scan done. The bone scan showed the full effects of the damage done by my arthritis. He first put me on percs for 3 months, then I saw him again and when I did I told him how many I was taking a day (around 4-5 a day) he put me on oxycontin 10mg. I found that too strong as it made me feel like a zombie so he lowered it to 5mg and they work great and I can still function normally.
    If you want to live life on your own terms,
    You got to be willing to crash and burn

  11. #11
    chales is offline New Member
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    although im not on as much as you,its the name of the drug that gives me a bad name.i now have family members accusing me of being an addict just because the name oxicontin.
    im almost ready to file for devorse because my own wife doesnt even understand cronic pain and even though im only on 10mg(60mg a day)...and i take less than prescibed people still hear that word OXICONTIN and think im a >>>>>> user or something,im lost for answers,all i know is my doctor tried many medications before i found one that worked for me and i have been able to live a somewhat normal life now..not pain free..but somewhat normal.
    im not sure what to do?
    Last edited by chales; 10-06-2009 at 09:06 AM.

  12. #12
    sticky_designs is offline New Member
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    Quote Originally Posted by Jewelsf View Post

    This is my first time on this board and I'm not too sure how this all works yet. I have a question that I've been researching the answer to and haven't had much in the way of luck. I've had to live in severe chronic pain since 1999. I am no longer able to work and I have been on SSD for about 6 years now. I was injured in a fall and herniated my L-5/S-1 disk and have had 2 failed spine surgery's and one 8 hour reconstructive surgery that left me in critical condition for 4 days. Within 6 months of the lsat surgery I had developed severe scar tissue that impinges on the nerve root. As if all of that wasn't bad enough, I had another bad fall almost 2 years ago in my home and landed directly on my back where I had my surgery's. Since then I can feel and hear crunching in that area of my spine. And although I had already been in a great deal of pain, it has now increased significantly. I have also been diagnosed with Fibromyalgia, among many other things such as arthritis, etc.. After I had my 2nd surgery, I was put on Oxycontin to control the pain. This helped quite a bit and kept me on a level 5 on the pain scale. After the 3rd reconstructive surgery, my Oxycontin dosage was upped to 240mgs twice a day. It took me over a year to heal and recover from this surgery and left me in severe pain. At that point I had become very used to that dosage and I stayed between a level 6 to 7 on the pain scale. Since my fall 2 years ago I am now at a level 8 to 9 on the pain scale. Here is my question. Although my Pain Management Doctors feel that there is no problem with the particular dosage of Oxycontin that I am on at this time, I have other people in my life that are making me miserable by telling me that this dosage is unheard of and that I should never be any higher than 160mgs per day. My body has obviously become quite tolerant to this level of Oxycontin, and I personally have never been worried about this dosage. I don't mix it with any other medications except for a few that have been prescribed by the same doctors and I don't drink alcohol. Yet, I continue to be told that this is an abnormal dosage and that it will kill me. That it would kill anyone no matter what. Does anyone have any knowledge or experience on this type of dosage with Oxycontin? Is there anyone else who takes a similar dosage or even higher? Any information or advice would be greatly appreciated. I'm at my wits end here, my life is already stressful enough without always having to defend myself to others. Help!?
    Sincerely,
    Jewels
    Not sure when you had your surguries but for a ruptured disc the best operation is a synthetic disc replacement and I see that most are real succussful.

  13. #13
    sticky_designs is offline New Member
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    Quote Originally Posted by twiztidtubbz View Post
    Wow!!! I can't believe that you could possibly say something like that to someone you know nothing about... Im sorry that im coming across as for some reason that i was only in for medication. i was searching google about these problems and this is where i decide to tell my feelings and doubts. My weight, sleeping, depression, etc. thats results of pain from my deformed back... Also a childhood accident and 2 car crashes!!!! im glad that you thought it was a joke and that i was simply trying to get some kind of high. I just want the chance to work on those other problems by getting a push out of bed and put me into a normal working order.. I thank you for the little things that could help to my problems in my letter... But unless your my doctor ill leave all that other bs thought to yourself. Thank you.
    Just saw this post sorry you had to hear it I am in need of pain meds myself and yes I have a medical reason for it I also know that unless you have a medical reason that shows the pharmacy board you have something that causes pain your doctor will not prescibe pain meds to you so surely you do have a pain problem or they would not give them to you. I also know that even people that need them when they get hurt etc cannot most of the time not get them because some doctors think everyone is a junky. Sorry but it is to bad it is this way medical reasons are medical reasons this is why PM doctors help.

  14. #14
    GaryT1956 is offline New Member
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    I would use Methadone Maint for the pain before I fooled with that kind of High Dose. Listen, man your on a ship called the Titanic. Get off that ridiculous dose before your family is preparing a funeral. Serious my friend. There's just no need for that and the tolerance is crazy with Oxycontin. Look into a Pain Management with Methadone, it works just as well and is much safer.

  15. #15
    Cats Meow is offline Banned
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    I would never make a blanket statement like that, I'm not even sure who you're addressing. Methadone should always be the last option in pain mgmt, after everything else fails, and then only after considerable research, careful consideration, and lifelong commitment.
    Good luck ever getting off it Gary.

  16. #16
    Jillsmith03 is offline New Member
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    Default Drug Denied

    In 2006, I had a fall at work. Two months later I sought medical help for the injury. Two years later I had knee surgery and have been deteriorating ever since. The knee surgery was performed in 2008...two weeks later I had surgery to remove a tumor from my right abdomen that was dormant for 5 years also removing the tumor along with the right ovary and my right fallopian tube. The pain was so severe from the surgery that I was put on disability...without work came depression. during a follow up with the orthopedic , I was diagnosed with sciatic and a lumbar herniated disc L5 nerve impingement. as well as chronic pain. My doctor prescribed me oxycodone for the last two years until last month when he changed it to oxycodone APAP. The reason for the change in medicine is because the medicine did not relieve the pain on a long term basis. I found myself popping another pill after 4 hours. I had taken Oxycontin during a surgery in 2005, but after the fall at work. I was put on percocet. About a month ago, I spoke with my doctor about the nauseous from the APAP in the percocet. I told him I did online research and was convinced Oxycontin would work better for me. I was tired of taking 4 pills every four hours for relief when I could take the 12 hour relief and move longer with less pain. He said he wasn't comfortable prescribing Oxycontin for the pain because of the depression and chronic pain. He had been my doctor for only a month and even had me as the previous doctor sign a prescription contract. During the follow up visit when I explained that Oxycontin would give me better relief. He said he wasn't comfortable prescribing it and he wished me well in finding someone who would assist me with my condition.

    I have tried every prescription drug possible and only found relief during my tubal surgery in 2005. I am 51 years old and my entire right side is weak and deteriorating. I have to start over to find a doctor who will listen to me and not dismiss me as the previous doctors who ignored the tumor that remained attached to my right organs for 5 years. The more I cried in pain the more my plea went unheard. One doctor even told me I looked fine. I am not a drug addict. I took medicine only prescribed by my doctor and even signed their contract. I will take charge of my health and seek the medicine that I know works for me.

    No longer will I let a doctor give me pills with more side effects than one drug that will give me longer pain relief and less risk to my organs.

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