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Migraine
  1. #1
    medik8 is offline Member
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    Default Migraine

    Migraine

    Do you suffer from migraine headaches?
    We want to hear your story.
    Symptoms, causes, trigger factors and treatments. What worked for you. What didn't work. Please feel free to share your experiences.


  2. #2
    Big Mowma is offline New Member
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    I used to get 2-3 migraines a month. I had a couple of them as a youngster but they came on full force when I was an adult. I had auras, vomiting, phonophobia, photophobia, etc. They would come on in about 15 minutes. I had normal headaches also during the 10 or so years of migraines, and both types of headaches began differently. I had to go to the ER every time for Demerol shots. Taking anything orally would just come back up. I learned an exercise program that involves relaxation techniques and strengthening and toning. There are some very gentle neck exercises that taught me how to relax (mine were all tension migraines) and they also taught me how to not tense those muscles. We are all abusing our necks in various ways by holding phones with our shoulder and ear, etc., but we have to learn to treat our necks with respect. This was all 20 yrs ago. I haven't had a true migraine since and did it without drugs. I did have an illness this past year and ended up going to the ER, one of the symptoms being a bad headache. The treatment was an IV with Toradol 30 mg and Reglan ?mg. It knocked the pain back enough so that I could go to sleep and the headache was gone when I woke up.

  3. #3
    ladybear is offline New Member
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    I've had to deal with migraines since I was a teenager. Back then, I wasn't treated, just had to live with them, not knowing what they were. As an adult, I have been treated with a variety of meds. I've tried ergots (not a good reaction for me), Verapamil to keep my BP stable because I would drop then get a migraine, let's see.... Imitrex, with rebound migraines, and pharbitol for the pain... which was horrible to get off of when I had to stop.

    Now I use Midrin when I get a migraine in addition to phenergan to stop the nausea. If this doesn't work, and usually this combo does within about two hours, I might end up in the ER. Toredol and Phenergan IM have ALWAYS stopped the darn things in a short amount of time. The only problem is, they are very sedating in this form> I have to be able to function... 24/7 because I have kids who have medical problems in addition to my nursing classes.

    Oh, I have also found out that peanut and MSG are major triggers. Once I stopped all intake of these two substances, I have had about a third of the number and duration of migraines I had before I realized these were triggers for me.

    God Bless.
    Lorri

  4. #4
    bdkitty is offline New Member
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    I started having migraines when I was 11. Never knew what they were. They have gotten progressively worse, and much more so since I was diagnosed with lupus. Have tried everything! The original Imitrex shots, then the other same-type oral meds. They worked for a while, then I got some bad reactions to them (heart racing, increase of nausea, etc.) So now take Fiornial as my first line of defense when I feel that tell-tale bulging in the back of my head. Sometimes if I get to it fast enough, it''ll go away. Endocet is my second line of defense, with compazine because by this time I am sick to my stomach. (obviously I am out of commission which isn't good for the checkbook.) But if after 3 days I still am in pain, I go to the ER. The Toradol doesn't work. Demerol only does. But it puts me out which I don't like. Sometimes the headaches only last one day, and the most I can do is lie in bed with all lights out and cry. I have tried meditation, biofeedback, everything. I live in fear of them, truly. Especially since I travel a lot with my job and sometimes the ER docs will not give me anything substantial and I am in so much pain I want to jump out a window. I know they have to watch for "drug seeking behavior." If they only knew that my best high is a day where I feel good and don't even need an aspirin!

  5. #5
    amigo is offline New Member
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    I have been dealing with migraines for 13 years. I could make it through the stress of the week but by the weekends I was in bed for all of it. Everything was my trigger. They were ruining my life. After trying many drugs to try to stop the headaches once they began (which was unsuccessful)I was finally referred to a nuerologist, who also suffered from the same. We began trying different medications for me to take daily to prevent the onset of these horrid things. I would have to give each drug at least 8 weeks for a fair shot. If I could handle the side effects and it helped stop the head aches, I would stay on it. I would go for months, return to the doctor when the headaches began creeping back. It has been five years and I am now on four daily medications. I am headache free most of the time. When I feel one coming on I take 500mg of the ingredient in Alieve. That usually does the trick. But now I am on so many chemicals I cannot think straight sometimes. I take 225mg Effexor and 100 mg Topamax and 100mg Desipramine each morning. I also take 100 mg Topamax and 400 mg Nefazodone each night (this will soon be taken off the market). I am scared now of all these drugs but am also afraid of going off and getting the headaches back. I cannot afford to not go to work and be out of commission. I want to be myself again. My doctor says I may have these all my life or they may just dissappear one fine day. Has anyone else used antidepressants like this?

  6. #6
    Nikita is offline New Member
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    quote:Originally posted by ladybear

    Oh, I have also found out that peanut and MSG are major triggers. Once I stopped all intake of these two substances, I have had about a third of the number and duration of migraines I had before I realized these were triggers for me.
    Have you checked your shampoo bottle for MSG? Mine had it!

    I also had some nice hair mousse from the salon and checked the label just the other day. Well, Guess What?! You guessed it! I had to chuck that too!

    ____________________
    "Men occasionally stumble over the truth, but many of them pick themselves up and hurry off as if nothing had happened."

  7. #7
    LamourDeNoemi is offline New Member
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    I have suffered from Migraines since I was in my early teens. I dont really remember how old I was when I got my first one but It was soo bad...It felt like someone stuck a dagger through my head. My vision was lost, it was like someone turned out the lights and then suddenly I was blind...i just saw black...and my hearing was cloudy like everyone was off in a distance. It seemed to last forever but I think it was less than a minute really...then my vision and hearing came back but my head was pounding and I had to lie down in the dark. Anyway...since then I get them at least once a week. But I am not really on medication cause well I have no insurance and Im a lil uneducated on any insurance for people who are unemployed. I usually TRY to dismiss them or take over the counter stuff...But about 4 years ago I went back to the doctor and they put me on Pamelor for depression and migraines...they thought at first I might have tumors in my head but everything came out fine...though I still get migraines and if not those then just reg. headaches...I have one everyday...I literally dunno what its like to NOT have a headache. My depression has been like a rollercoaster...and I feel this doesnt help with my migraines....its a dirrty cycle..I stay in cause my head hurts then I get depressed...cause I stay in...BLAH>...
    Im fearful of going to the doctor...I havent gone in 4 yrs...nor am I on any medication...I just feel that the doctors dont really listen they just hear symptoms and right off diagnose u with something...give u the meds and send u off...and Im afraid Imma end up taking pills I dont REALLY need and might get addicted or immune to them...and then the sideeffects may be worse...etc...HOW can I be sure that the dr. is not fooling me???

    <center>Friends are like Rainbows, They Brighten your life when you've been through a storm...</center>

  8. #8
    jurplesman is offline New Member
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    For a nutrional approach to the treatment of migraines, please have a look at

    Dr Joachim Fluhrer's article at

    http://www.hypoglycemia.asn.au/news/hyponl2000_03.pdf

    go to Page 3

    Jurriaan Plesman
    Free web site at:
    http://www.hypoglycemia.asn.au

  9. #9
    docmia is offline New Member
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    quote:Originally posted by bdkitty

    I started having migraines when I was 11. Never knew what they were. They have gotten progressively worse, and much more so since I was diagnosed with lupus. Have tried everything! The original Imitrex shots, then the other same-type oral meds. They worked for a while, then I got some bad reactions to them (heart racing, increase of nausea, etc.) So now take Fiornial as my first line of defense when I feel that tell-tale bulging in the back of my head. Sometimes if I get to it fast enough, it''ll go away. Endocet is my second line of defense, with compazine because by this time I am sick to my stomach. (obviously I am out of commission which isn't good for the checkbook.) But if after 3 days I still am in pain, I go to the ER. The Toradol doesn't work. Demerol only does. But it puts me out which I don't like. Sometimes the headaches only last one day, and the most I can do is lie in bed with all lights out and cry. I have tried meditation, biofeedback, everything. I live in fear of them, truly. Especially since I travel a lot with my job and sometimes the ER docs will not give me anything substantial and I am in so much pain I want to jump out a window. I know they have to watch for "drug seeking behavior." If they only knew that my best high is a day where I feel good and don't even need an aspirin!
    I have been suffering from migraine headaches for over 25 years and have used every medication in the book. I also had the good fortune to work in the medical profession so I was also up to date on all the new and up coming drugs on the market. Unfortunately, you can use a drug for just so long, then your system becomes used to it and it no longer works well, if at all. Doctors don't like to hear this, or just won't listen. Worst of all, after a while, all you hear is, "Oh she has another headache". It makes you want to wish that this person could just have one of your "small" migraines to show them what it's really like to have "just a headache. I finally found through some medical research, which is part of my pathology background, that the Mayo and Cleveland Clinic's were both doing research on using TOPOMAX, an antiseizure medication, for migraine patients. They found that many people who suffer seizures also have migraines and the drug worked on both. I talked to my Neurologist about this drug (pill form taken daily) and she agreed to start me on it. We started out on small doses, 25 mg. twice per day for two weeks then went to 50 mg, then to 100 mg. building the drug into my system slowly for a two month period of time. For two years now I am now taking 100mg in the am. 100 at noon and 100 mg at night, every day. I have been migraine _FREE for over a year . I can eat and drink anything that used to trigger my headaches. The only thing that triggers a SLIGHT migraine now is a drastic weather barometric change. Before I would get three to six migraines per month, some lasting from 24 hours to 8 to 10 days. For me TOPOMAX is worth its weight is gold, and the best part is that it's made from natural enzymes so your system can't get used to it. You can take it forever. The only side effect that I know of is you loose weight. WOW !!!!

    MIA

  10. #10
    sholder is offline New Member
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    I have been suffering from migraines since age 14. I'm 26 now. When I was a teenager my headaches were treated at an urgent care with demerol and phenergran plus a prescription of fioricet for the hangover headache from the demerol. It was miserable. I would miss school for 3-4 days at a time, plus work. That continued until I was about 21 then I found a neurologist who helped me identify my triggers and put me on some preventative meds. Things have been getting better and better until recently. I moved to WV from SC. My Dr. in SC gave me Topomax (a huge help), Imitrex (for acute attack), and fioricet (for a last resort). I rarely had a migraine bad enough that I needed anything stronger after the Topomax but when I did, he would just ask me if I needed him to call in some Lortab or if I'd rather go to the urgent care for an injection. Which, I never wanted to do b/c I have two little girls who need their mother to be awake and not knocked out for two days from a demerol injection.
    Well I told my WV Dr. about my regimen from SC and how it has enabled me to get my life back, since I'm no longer spending it in the ER or urgent care. But he refuses to prescribe fioricet. I'm really confused by this b/c I've never had a problem with it. I am considering switiching doctors but I don't know if this is some strange WV doctor problem or if it's just with this one doctor.
    I'm so upset b/c he just kind of ruined a regimen that was working great for me for so long. It's very demoralizing to go from the caring and attentive Dr. I had in SC to this one I have here. Does anyone have any advice on this. I don't want to have to run to the ER just b/c the Imitrex doesn't help. I'd be there 2 or 3 times a month, maybe more!

  11. #11
    ladybear is offline New Member
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    Find an new doctor. Explain that you want to work with a doctor who will work with you, not just treat the symptoms as they occur. This will mean that you need to do some research, asking other people in the community who they trust, who they don't etc... then actually talk to the office staff at the office you are interested in. If the office staff are friendly and helpful, the doctor usually is too. If they get >>>>> faced or the "drug seeker" look, go elsewhere.
    In addition, I would suggest talking to a "pain control" specialist rather than a general physician. They are usually more willing to work with the effective therapy than the "routines" taught in school.

    Good luck and God Bless.

    BTW&lt; I've been migraine free for almost three months until last week. Looking back, I can see that it was a medication/stress/dietary trigger triggered one. It took ALL three!
    I had been off my Zoloft for 36 hours, under massive stress from my teen age daughter's stupidity, and then I had a snack bar which I didn't know had peanut oil in it until I looked it up afterwards.
    Two Midrin, a phenergan and bed for the rest of the day. Woke up feeling wiped, but not in pain.
    I pray I go many more months without. Now that I know that the dietary is SO significant, I tend to be even more vigilant than ever.

    Lorri B&gt;

  12. #12
    ryansdad is offline New Member
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    I have a chiropractic practice and I deal with migraine sufferers pretty consistently. Meds may work for migraines as they happen, but they ususually keep coming back. This approach will never fix the "why" but only deal with the "what". If you can eliminate the reason why the migraines happen, you wont suffer anymore. I dont mean foods, allergens, stress, etc. I mean correct why your body responds with a migraine to certain things. If you can improve the way your body responds to things, you can eliminate lots of problems, including migraines. By getting consistent chiropractic care, you will increase your body's ability to function. By increasing your function, you enable your own body to figure out why the migraines occur, and you dont consciously have to. I can explain physiologically how correcting the spine can help eliminate migraines, but the best thing to realize is that getting adjusted regularly will make you healthier. Health is directly related to how well your body functions. Function is directly related to how well your nervous system is functioning. Your nervous system is protected by, other than your skull, your spine. If your spine is out of alignment, it can cause all kinds of health problems by interfering with your nervous system, including migraines. My advice is to see a chiropractor who specializes specifically on correcting these spinal misalignments, called subluxations. I hope this info has helped. good luck and God Bless.

  13. #13
    DVAJR is offline New Member
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    Hello, No two persons are the same, and with that in mind, I have found that Darocet N 100 will stop my migraine and nothing else can! Even morphine, oxycontin, and vicodin. Hope this helps someone too!

  14. #14
    IhateAddiction is offline New Member
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    Hi

    I have been a migraine sufferer for over 20 years. Roughly 5 years ago I was put on Imitrex and it did work well at first, but then it stopped working for me altogether. About 3 to 4 years ago my Dr. at that time prescribed me Fioricet on a regular basis. I didn't know that this drug was addictive since I was told at that time it wasnt.
    about 8 months after taking it on a daily basis, I became severly depressed and was put in a hospital for depression. I saw a neurologist while I was there and when he heard the word fioricet and how much I had been taking, he immediately put me on 1000mg of Depakote and he started a taper plan which I did at home. I followed his plan by the book and was off that drug in 6 weeks.And to be honest I had no Mental cravings at all. I was kept on the 1000mg of depakote even after I was off, well I was feeling so good after a few months I weened myself off the depakote.BIG MISTAKE. The headaches returned within a week and all I could think about was the Fioricet. My insurance had changed so I had to change primnary Dr's.
    The new Dr. is very cautious with the fioricet, only dispensing 60 a month and that worked fine for the first few months, but then I would take them for every reason in the book and I still do.At my highest I was taking 20 Fioricet a day, knowing I had become addicted to them again, I tried my own taper plan but could never get below 6 a day, next thing I know I am back up to 10 to 12 a day, and I think some stressful days more than that. Online pharmacies is where I got my supply until my prescription with the Dr. was 30 days since last refill and I could get another refill. It has turned into a vicious cycle. It no longer helps Migraines or tension headaches, it causes them and I know they are rebound headaches. I finally fessed up to my Dr. about my addiction to fioricet and asked if she could do a medical detox for me. She didn't want to do it and has prescribed me to a Pysciatrist who I will see on Monday. She says they have a lot more experience at that. I know the dangers of coming off Fioricet as I have researched it and have a good friend who recently went through Medical detox and is doing wonderfully. I hit Rock bottom about 5 months ago but at the same time I am scared to death of seizures and other unpleasant side effects while coming off the horrible Medicine. I have to do it as an outpatient as my insurance doesn't cover detox of any kind. I did it as an outpatient last time, I am sure I can do it again. Has anyone had experience with Fioricet addiction and has come off it with a Pysciatrist's help or any other Dr.? Another reason I have to do it as an outpatient is I am now a single Mom and have a 10 year old and 8 year old son to take care of, I don't have anyone else to do it. Like I said before my biggest fear is seizure's, although I have never had one before, I would like to keep it that way. I will deal with the rebound headache's although they are the worst headaches I have ever felt, I do know they pass. Please if anyone has been through anything like this, I would like to know how your experience was. Thank you!!

  15. #15
    gbata is offline New Member
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    I am a life time migraine sufferer. I have been through it all. The only good medication for me has been the sumatriptans (Imitrex) If it weren't for this medication, I would not be able to work or have a life.

  16. #16
    jim van dyk is offline New Member
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    hi everyone

    i have had 1 [one] migraine for 14 years. i just want to tell everyone, please stay away from nuerologists. they do not know enough about headaches to realy help anyone. i wenty to 6 of them in the first few years. all they did was give me stronger & stronger meds till i didn't know who i was. i read , serched, & talked to anyone who knew anything about headaches.i found a website American Headache foundation, its based in Chicago. i sent them a e-mail & they sent me a list of doctores in my state. i got 24 doctores that only deal with people like us, & not one of them was a nuerologist. i was with a wonderfull doc for 5 years. she helped me a lot, but we ran out of drugs to try. i called the Diamond Headache center in chicago & checked in. i was so bad Dr.Diamond himself is my doc.he is the best headache doc in the U.S.A. now i can lead a semi pain free life.i was hospitalised for 12 days & not 1 doc in the clinic was a nuerologist [tells you something ].they are very down on narcotics. they use difernt typs of anti-depersents bio-feedbaek [ it does help]. i do have some bad days but i can call & they will call back in 1 hr. or less.
    please people ,read anything you ,can tell your friends to look for anything about headaches, serch the internet for clues. the only person to help you is yourself, & please stay from nuerologists
    i hope i helped someone

  17. #17
    BEENTHERE is offline New Member
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    HI-I AM SO GLAD I DISCOVERED THIS FORUM! I HAVE SUFFERED FROM MIGRAINES MY ENTIRE LIFE-
    I HAVE ONLY IN THE LAST YR. STARTED GOING TO THE ER-I AM TIRED OF WASTING SO MUCH OF MY LIFE EITHER LAYING IN A DARK ROOM, FEELING
    HELPLESS AND CRYING FROM EXCRUCIATING PAIN, OR IN THE BATHROOM WITH
    MY HEAD HANGING OVER THE TOILET, VOMITING-SOMETIMES FOR DAYS AT A
    TIME!! I HAVE HAD INJECTIONS OF DEMOROL (PAIN), TORIDOL (PAIN), VIS-
    -TARIL (NAUSEA & VOMITING)-DOESN'T TAKE THE MIGRAINES COMPLETELY AWAY,
    BUT ATLEAST TAKES THE WORST AWAY & I'M THANKFUL FOR THAT! I AM GIVEN
    10 MG. PROZAC, BUT THAT DOESN'T HELP THE MIGRAINES-ANTIDEPRESSENTS DO
    HELP SOME PEOPLE WITH THEM, THO. I THINK MOST PEOPLE GET DEPRESSED
    BECAUSE THEY GET THE DAMN THINGS, AND THEY INTERRUPT YOUR LIVES!!! I
    TAKE ESGIC PLUS (SAME AS FIORICET, BUT NON-NARCOTIC) FOR TENSION HEAD-
    -ACHES-IT HELPS A LOT, BUT THEN YOU DO DEAL WITH REBOUND HEADACHES, TOO. A "REGULAR THROBBING HEADACHE" I CAN LIVE WITH-I WISH SOME OF
    THESE DOCTORS IN THE ER WHO SEEM TO THINK YOU ARE THERE FOR SOMETHING
    VERY MINOR, COULD WALK IN MY SHOES FOR JUST ONE DAY WITH JUST ONE
    EXCRUCIATING MIGRAINE!!! I THINK THEIR ATTITUDES WOULD CHANGE!! I HAVE
    HAD SOME VERY GOOD CARE, THO, TOO. TO THE PERSON WHO GOES TO THE CHIRO., YES, I BELIEVE IN THAT, TOO-I STARTED GOING A FEW MONTHS AGO-
    I ACTUALLY FELT SO MUCH RELAXED AFTER TREATMENT. MY NECK & SHOULDERS
    ARE SO TENSE-I NEED TO GO BACK, BUT HAVE BEEN TOO BUSY!! I THINK I
    HAVE BEEN GIVEN JUST ABOUT EVERYTHING IN THE PAST-I ALSO HAVE IMITREX
    AND ZOMIG NASAL SPRAY-THE SPRAY HELPS MUCH MORE FOR ME THAN THE IMITREX. I AM ON THE 2ND WK. OF TOPOMAX-I HAVE READ HORRIFYING THINGS
    ABOUT THIS MED.-WAS SCARED TO TRY IT, BUT FINALLY DID. THE NEURO. STARTED ME OUT ON TOO MUCH-I HAD HORRIBLE SIDE EFFECTS. I WAITED A
    WEEK, DECIDED TO GIVE IT ANOTHER TRY, BUT CUT IT DOWN TO A 3RD-25MG.
    THE 75MG. HE PRESCRIBED CAUSED SO MUCH ANXIETY, I WAS ALMOST PANICKING
    -I AM ON 50MG. NOW-AM GOING TO TRY IT FOR 1 MO.-IF I CAN'T STAND IT,
    IT GOES DOWN THE TOILET! ALSO, TO, "IHATEADDICTION", PLEASE LET ME KNOW HOW YOU ARE! READING YOUR STORY WAS LIKE READING MINE-I, TOO, WAS
    ADDICTED TO THE SAME MED. SOME YRS. AGO & WENT THRU SEVERE DEPRESSION
    AS A RESULT, BUT YOU WILL MAKE IT.IT'S A LONG STORY-LIKE GOING TO HELL
    AND BACK-BUT YOU CAN, AND WILL, MAKE IT! ALSO, IF ANY OF YOU WHO ARE ON TOPOMAX HAVE SIDE EFFECTS, COULD YOU LET ME KNOW WHAT THEY ARE?
    ALSO, ARE YOU HAVING ANY POSITIVE RESULTS WITH THIS MEDICATION? IT'S
    NICE TO KNOW THAT I'M NOT ALONE WITH THIS KIND OF PROBLEM!!! (EVEN
    THO I HATE TO SEE ANYONE ELSE IN PAIN!) THANKS FOR LISTENING.

  18. #18
    livid is offline Member
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    something I think alot of people don't realize about headaches is that painkillers will actually make the pain return on many occasions after it wears off. My neurologist informed me of this when I asked for something stronger for the pain, looking to possibly get an opiate based med.
    He put me on depakote, which was actually a blessing because this is how they finally figured out that I have bi-polar disorder... ssri's never did a thing for my depression. My manic episodes have never really been totally obvious, they come, but are not really pronounced. However the depression cycle hits hard and can last for months at a time. Since being put on the depakote, headaches are gone, depression is hugely reduced, and I rarely burst out laughing for absolutely no reason anymore. LOL.

  19. #19
    kittokat is offline New Member
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    I have suffered from cluster headaches since 1998. My first neurologist didn't do much for me: the standard fiorcet, imitrex, lortabs. She finally sent me another neurologist who specialized in headaches and this is what I am on:

    For Prevention: Topamax 200mg twice a day
    Lithium 300mg twice a day
    Compazine (as needed)

    When a cluster starts, I go on Prednisone Treatment Protocol, 56 5mg pills / 7 day protocal. That aborts a headache like nothing I've ever had before. I should wait about 3 months before I do another one, but my clusters appear Mar-May and Oct-Dec so it's not a problem.

    The clusters themselves also aren't as bad with this new regime. The big thing was the addition of the Lithium because I had already been on Topamax and Compazine. I was considered hard to treat because nothing was working and I had headaches just all the time, but this has finally worked. I felt stress tended to bring them on but that wasn't always the case, sometimes they would just appear. But I would say the biggest factor may well be stress, too much going on at once. Still have the stress but they don't go into a bad headache all of the time. But mine still do cluster in spring and fall and no, it does not seem to related to allergens. They may contribute, but it's not the cause.

  20. #20
    livid is offline Member
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    yep, they are more and more realizing that lithium and depakote are big advantages in treating migraines. The downside of course is the hepatoxicity. Liver damage, pancreatitis, and possible kidney damage.
    I rarely even get headaches of any kind now. I'll most likely be on the dep for the rest of my life due to the bi-polar, so will prob never know if the migraines themselves stopped or not. Mine were "caused" by a serious head injury in an auto accident by the way.

  21. #21
    ladybear is offline New Member
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    Just a quick update. I've had two migraines in the last month, mainly stress induced, physical as well as emotional. I've had a long long month....
    Anyways, I was able to stop one using the Midrin and Compazine orally. The second one was worse, and I knew as soon as I started getting it, it was going to be a doozy. I'd been working in the garden all afternoon, sunlight and all...which for me is a no no.
    At 5:30 it started, by 6 it was full bore, by 7 I was unable to do anything except beg my SO to take me to the hospital. They gave me Toradol and Phenergan IM, and within half an hour it was down to irritation with light an noise, but no longer the gremlin working it's way out with an icepick.

    Oh, I almost forgot. I wanted to comment on another poster's comment about fiorinal. I was using it back in 1991-92. At that time, I was told to take it every four hours. I was dealing with migraines for three to five days in a row, and the various medications I was on were only touching the edges of them. I would lay there wishing I would just not be alive anymore. NOT actively suicidal, just no desire to live like that.
    Anyways, I ended up PHYSICALLY addicted to the damn ****. I began to need them every three hours during an attack because four hours was too much agony.
    When I found out I was pregnant, I was off of all the medications I had been on within a week. That included heart meds, pain meds, and TCA's. Talk about a week of worry and jitters.
    I would walk down to the local fire dept to get my blood pressure measured because it would drop too low. Once in a while they would laugh when they saw me coming, asking me why I hadn't just called them to the house.. because they knew I had passed out again. I kept telling them that "if I were up and awake again, walking should help raise it up a bit shouldn't it?" They would just chuckle and remeasure it. 80/60 was common back then...
    Agh... sorry for the ramble. I just wanted to let those that know Farbitol is addicting, despite being told otherwise, that yes it is possible to stop the junk, just make sure that your new doctor knows your problems with this medication and see if there are other alternatives. Sometimes there are. If not, a prescription for a few at a time is in order.. to be refilled if and when needed, not to have on hand.


    Lorri B.

  22. #22
    kroth is offline New Member
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    I used to get daily headaches, as well as frequent full blown migraines. I have been on topamax, 150 mg. nightly for about 2 yrs.
    The headaches have improved greatly. I rarely have a true migraine and my daily headaches are much less freqent. I do have a history of pancreatitis and had a major flare up last Jan., after having no real problems for many years. I have heard that pancreatitis is a possible, yet uncommon, adverse side effect of topamax. I have also lost 20+ lbs. I know that weight loss is a side effect of topamax, but you are supposed to plateau at some point and I just keep slowly losing. I can't blame the weight loss on the pancreatitis, because it is not a continuous problem. I was very happy with the weight loss at first, but I am now down to 107 lbs. and starting to look too thin. ( I know......I used to wish for this problem and secretly hated those who boo-hooed about their skinny little bodies!)Anybody else had an episode of pancreatitis or too much weight loss while on topamax? Is there another preventative med similar to topamax (anti-seizure) that has worked for you? I've been taking migraine meds for close to 20 yrs. and have tried just about everything (anti-depressants, muscle relaxers, painkillers, anti-anxiety,etc.) I hate to stop taking the topamax because it has worked great for my headaches. I rarely take any pain meds or Imitrex, Amerge, etc. for headaches because I rarely have one bad enough to medicate. I am, however, concerned about the ongoing weight loss and also curious about the relationship between topamax and pancreatitis.

  23. #23
    dejeneration is offline Junior Member
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    I have had migraines for as long as I can remember. I am 30 now and have had them all my life. I used to have 2-3 a week and never went away, then I found out I had very high blood pressure and once that got under control I have 1 a month or so. I take Maxalt and it is a miracle worker. I have tried them all zomig, imitrex (works ok) but Maxalt kicks it without the weird side effects. I used to go to Hospital 1 a week 2 x a month to get a shot for headache until I built up a tolerance and wanted to find something that would work. I also used to get a horrible one around time of menstrual cycle that wouldn't go away with anything - i would wake up screaming!!!! I haven't had one like that in a while (thank God) - I feel your pain, guys, and this is a pain noone can ever imagine. Good Luck!!! Get your blood pressure checked out - i didn't think i would be on blood pressure meds at 30 but it sure helped out with the headaches.

  24. #24
    billallyn is offline New Member
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    I have had migraines for the last 15 years or so. I have no insurance or money, so I haven't been able to see a doctor or try some of the medications that many of you have suggested. That's probably a good thing, since most synthesized medications affect me very adversely.

    I've tried cannabis, since it's natural, extremely safe (DEA Administrative Judge Francis Young called it "the safest therapeutically active substance known to man"), and readily available without a prescription, and it works VERY well for regular headaches and moderate migraines, but unfortunately does not do nearly as well against a full-blown aura migraine.

    There are no adverse side effects for me, but if you live in a state without medical marijuana laws, then it can have the nasty side effect of getting your *ss thrown in jail. But in countries and states where it's legal, I would call it a first line of defense for mild to moderate migraines. For severe migraines, it sometimes seems that there simply is nothing that works (short of knock-out drugs and/or time), and that is indeed a bitter pill to swallow.


  25. #25
    EasyMeds is offline Banned
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    I've had migraines and cluster headaches since I was in my late teens. Of course every test was run, and every drug tried. I couldn't take Imitrex because of the side effects. Tried BP meds eventhough blood pressure was normal (made me too tired), tried anti-seizure meds.....those were a nightmare. Finallhy tried Maxalt and that has been the greatest! If I take it as I notice it coming on, then usually that will head it off and that is all I have to take. Sometimes if I wait too late I'll have to take a Lortab too. But of all the things I have tried those have been the best for migraines.

    For cluster headaches I try to deal with them Tramadol. Although sometimes that doesn't do it and I take a Loratab.

    Hope this helps those who suffer headaches.


  26. #26
    hensleyhill is offline Junior Member
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    I would like to first say I feel for ANY who has even had one migraine. Now,I only have a minimum of 2 a week. I am gratefull that I have got them knocked down to only two. I was having anywhere from 4 to 6 a week. I have had them as far back as I can remember. I am 39 years old. I can recall when I was about 7 years old trying to get in the freezer in the middle of the night because the cold felt good on my head. My parents were asleep and did not know I had another headache.
    I still to this day open the freezer on the fridge to feel the cold for a few minutes when I have a migraine. I have sat here and read these posts and it brings tears to my eyes because I know how each and every one of you feel who suffer from migraines. Noone knows unless they have felt the pounding,frustration,fear and insomnia until you endure it. Your feet feel your heart beat when you walk,it hurts to brush your hair, drive a car, see, hear, think, brush your teeth, listen to the radio, have the lights on, have the blinds open, carry on a conversation, turn your head, bend over, etc. It's almost like torture.
    I too have taken the Verapamil. Doc was afraid of me having a stroke. Been to the ER too. Do not reccomend the NOTADOL(SP) made me sleep for 3 days even after migraine was gone. Imitrex nasal spray or injections works GREAT. and I take topomax 100mg at bedtime. Down to 2 migraines per week. Someone said topomax coming off market. I am curious about that? Where can I get info about that?
    I reccommend anyone who has migraines to get a good medical doctor one who listens to you. Not one that does not have the time for you. In this day and age you do have do research yourself. Read about symptoms and medications. Don't take anything until you read it's side effects. Invest in a current pill book. $7.00 Wal-Mart.
    Remember you are not alone. I would be glad to talk to anyone about the topic of Migraines. I am not a DOCTOR But, I am Migraine sufferer of a minimum of 30 years.

    God bless each and every one you.


  27. #27
    cherrybomb2600 is offline New Member
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    I had excruciating migrains for many years, until I started taking Inderal 20mg. It prevents migraines. I hope it works for you as it does for me- *no more headaches*

    I used to use Imitrex & relpax, which is good, but Inderal prevents. I take two twice a day.

    *feed your head*

  28. #28
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    wow no posts for a long time! i get really bad migraines. i have been over on the opiate addiction forum because, of course, that is a side effect of having migraines, i am addicted to percocet because i have been on it so long for my migraines. anyway, just wondering if anyone was still out there?

  29. #29
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    Default Many migraine causes can be found and eliminated

    DISCLAIMER

    The purpose of this article is to educate. This article does not constitute medical advice, diagnosis or treatment and is not a substitute for examination, testing, diagnosis and treatment, by a qualified, licensed health care professional
    .

    Migraine headaches are caused by hidden food and chemical allergies, systemic fungal infections, Lymes Disease, Babesiosis, abnormal blood platelet clotting, hormonal imbalances, excess histamine, glutamate or phenylethylamine neurotransmitters, nutritional deficiencies, hypoglycemia and temporo mandibular (TMJ) joint pain. Murray and Pizzorno provide an excellent explanation of migraine causes and treatment in The Encyclopedia of Natural Medicine, Rev., 2nd ed. Jacob Teitelbaum, MD also wrote an excellent discussion of migraine treatment, in Pain Free, 1-2-3. Dr. Teitelbaum also has some excellent information, about migraines at www.endfatigue.com Life Extension magazine published an informative article discussing effective hormonal, nutritional and herbal treatment of migraines at http://www.lef.org/magazine/mag2004/sep2004_report_migraine_03.htm

    Hidden allergies exist in up to 85 percent of migraine sufferers. Usually multiple allergies are present, making elimination diets and tests confusing. Recently, serum immunoglobin Elisa/Act or RAST allergy testing has simplified detection of hidden allergies to foods, food additives, preservatives, pesticides, fungi, petroleum products, clothing materials,etc. One blood sample can be simultaneously tested for many different immediate and delayed allergic reactions. Most allergies are delayed, with symptoms occuring 3 to 4 days after exposure to the allergen. Elisa/Act testing can detect these delayed Immunoglobin G and M allergic responses. Older skin tests only detected the immediate Immunoglobin E anaphylactic reactions, which are only a small fraction of allergies.

    Systemic fungal overgrowth can also cause migraines. When extended or frequent courses of antibiotics are used for surgery, infections, acne or other reasons, beneficial acidophilus and bifidus bacteria in the intestines are frequently killed, unless cultured foods such as yogurt or miso are used. Probiotic supplements, from heath food stores may also be used to repopulate beneficial bacteria. These beneficial bacteria manufacture B vitamins and Vitamin K, in our intestines, in addition to increasing intestinal acidity. If these bacteria are killed, yeast which they compete against, begin reaching excessive levels, in the intestines. These microscopopic yeast can send tiny stalks called hyphae, between cells lining the intestine. The intestinal lining cells usually have almost no gap between them. If hyphae stalks split these cells farther apart, abnormal leakage of undigested protein into the blood stream can occur. Increased intestinal permeability or "leaky gut syndrome" can be detected with intestinal permeability urine samples. Undigested proteins leaking from the intestine, into the bloodstream are recognized as pathogens or invaders, by our white blood cells. Antigen-antibody complexes form, in our blood, when these undigested proteins leak excessively from our intestines. Inflammation also occurs when these antigen-antibody complexes form. Since this inflammation is occuring, in our blood, it can travel to any part of our body, including the brain, where it can cause migraine headaches.

    If the fungal overgrowth can be killed and increased intestinal permeability repaired, migraine, sinusitis and joint pain can frequently be eliminated. Herbal and prescription anti-fungal treatments are both effective. Prescription and herbal antifungal treatment reduced migraine frequency from 15 disabling, excruciating headaches monthly to one headache monthly, in one of our patients.

    Excess histamine levels cause vasodilation of brain arteries, increasing pressures, in the cranium. Red wines are especially high in histamines and must be avoided by many migraine sufferers. Excess histamine levels can be measured in neurotransmitter panels. Vitamin C, Vitamin B6 and S Adenosyl Methionine (SAMe) are all needed to break down histamines. One of our patients rapidly eliminated a headache, with 200 milligrams of SAMe. Studies reveal that Vitamin C, 1000 mg twice daily, can reduce histamine levels 38 percent. Sodium cromolyn stabilizes mast cells, reduces histamine release, and seldom causes side effects. One of our migraine patients reports sodium cromolyn eyedrops work better for her than the metered dose inhaler.

    Abnormal blood platelet clumping is more common in migraine patients with heart murmurs or mitral valve prolapse. The neurotransmitter, Serotonin, regulates platelet clumping. Studies reveal migraine decreases of approximately 50 %, using 5 Hydroxy-Tryptophan (5 HTP), at 200 to 300 mg/day. Imitrex, Zomig,Maxalt and other triptans usually help control abnormal platelet clotting, although the side effects are frequently temporarilly disabloing. The herbals, feverfew and butterbur have also reduced abnormal platelet clumping, approximately 50 %.

    Anticonvulsant medications including Topamax and Depakote can reduce pain signaling caused by calcium overfiring of neurons. Anticonvulsants are especially effective, where there has been previous head trauma or a genetically transmitted anemia, for example, Thallesemia.

    Menstrual migraines often occur when estrogen and progesterone levels both decrease, during menustration. We have reduced migraine frequency and intensity using oral micronized bioidentical progesterone. Progesterone is anticarcinogenic and increases bone density, while it reduces anxiety. It is well tolerated by patients with severe allergies. Some practitioners report impressive results, using bioidentical estradiol, during the menstrual week, when both estradiol and progesterone levels are at their lowest levels.

    Hypoglycemia or low blood sugar can also trigger migraine headaches. Frequently Chromium Picolinate and Zinc Picolinate supplementation can reduce the severity of hypoglycemia.

    Neurotoxins produced by molds, fungi, Lymes spirochetes, Bartonella, Babesia, and other biologic parasites can also cause migraines. This is an often overlooked migraine cause. Frequently, the inexpensive Visual Contrast Sensitivity Test, (VCST), available on the internet, at www.chronicneurotoxins.com, for about $15.00, can detect neurotoxicity. If neurotoxicity is detected, with the VCST, neurotoxins can be bound and eliminated with prescription cholestyramine.

    Florida Detox has successfully used cholestyramine to eliminate a migraine headache, which had already occured, in a patient, who had failed the VCST test. The neurotoxic female migraine patient has remained migraine free, except for menstrual migraines. We are waiting for additional test results measuring clotting factors, Lymes Disease, etc, and genetic testing of her ability to clear mold and Lymes neurotoxins. Her alpha MSH and VIP hormones were low, consistent with neurotoxins.

    One of our tranquilizer detox patients has reduced her migraine pain, at least 98 percent, with our guidance and testing. Many of our patients with migraine or headache pain have been able to reduce their pain, by treating causes, instead of symptoms.

    Opiates, including Percocet, Vicodin, Demerol and Darvon carry a considerable addiction risk. Fioricet and Fiorinal barbiturates tend to cause rebound headaches, in addition to addiction.

    The clinic has frequently eliminated 100 percent of migraine pain for one to four days using the is3 electroauriculotherapy device, although many of the migraines eliminated tend to reoccur, if underlying causes are not discovered and eliminated.
    Last edited by ddcmod; 05-08-2009 at 06:24 PM.

  30. #30
    davidwarn is offline New Member
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    Default fioricet a wonderful pain reducer

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    Last edited by ddcmod; 11-21-2013 at 12:28 PM.

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