I recently (9/13/05) had major surgery for lumbar fusion at the L4 and L5 (S1) locations due to a fracture that was causing my wait to shift onto the discs, thus causing me major pain. I developed CRPS back in May of 2004 after surgery where I had an implant put in the joint behind my left foot's big toe. I have been through many doctors since then and still suffer with pain regarding this disorder. Well since the recent surgery, my pain has gotten worse and I can tell the disorder has spread. I have tried to express this to my doctors, but at present the main concern is my recuperation from the current surgery. I am not able to take anti-inflammatory for another month because it may interfere with my recovery. I was taking
vicoprofen before the surgery, because it has
advil in it instead of
tylenol (vicodine). It helped with the burning, but not completely. My pain at times has been unreal. I read that Paul Abdul was diagnosed with RSD (CRPS) and she was taking
Enbrel. I just found out that Enbrel is a shot to be given, not pills. I can't begin to say how terrifying that is. But I would be willing to endure that if it helps. Does anyone with RSD know if this helps? Are ther serious side affects? Paula says that she is not in pain anymore. How often do you have to get or give yourself the shots? I also would love to find any kind of support group, even if it just online. Please help with any information anyone can provide!!!!
Thanks,
Tina