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  #1 (permalink)  
Old 09-25-2005, 02:14 AM
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Default Be Aware = METHADONE NO

Hi everybody, i'm new in writing here, but not new on reading all of you.

The first thing i would like to mention is that my mother tongue is not english, so i apologyze if i do too many spelling mistakes, and what is the most important thing is that sometimes i do not use the correct word to express myself, and i have learned that this is a problem, because i can hurt somebody's feeling, that's why i mention this hoping i don't hurt anybody's feelings, and if there is something you don't understand, pls feel free to ask.

As a new member writing here, i just want to say hello ! and then all of you will share my story, which i still thing it's a movie or a bad tv show ! but NO, it's exactly what i went and what i'm going thru.[V]

Krisy

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  #2 (permalink)  
Old 09-25-2005, 03:24 AM
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Ok here it goes []

I suffer of a chronical pain on my right side, it is up untill now 'an unknow diagnosis', and i could handle it pretty much with 2 Vicodin per day and had a normal life, worked, run errans and a long etcera .... and always trying to find what the pain could be ....

I went from one doctor to another, i had all the imaginable tests, mri, mra, ultrasounds, x-rays and so on and so far .... and more or less every two or three months this pain went up to level 10+ so i needed to do walk in to the ER, where i was treated with morphine, demerol, dilaudid and another long etcera .... it came to the point that Vicodin stopped working, and so did morphine, demerol ..... and one night in one ER i was treated the worst, the doctor that was on shift, told me "you are abusing of the ER system to kill your withdrawls of 'street drugs' ....." i looked at him and couldn't beleive what i was hearing .... and finally he literally put me out of the ER of Security Guards ... When I was in the parking lot, i called my best friend, he came over picked me up and try to talk to the doctor, but the doctor stood in his position repeating one more time "that i was abusing of the ER system, bla bla bla ...".

The next step was; i asked for an appointment with the Risk Manager of the Hospital, and my friend and myself went to the meeting and mentioned our complains, she offered us to have a follow up meeting with the Head Master Doctor of the ER, so we did. (Bad idea) and this doctor offered me to be referred to a Pain Specialist Doctor, on the Hospital's charge, with no charge for me .... now i do realize he was scared that i would go with a lawsuit, so he offered me 'paying for the pain doctor and also for a 'letter offering me the apologies ....' which i never received and i'm convinced i will never get.

Making the long story short, i went to the Pain Specialist (my second mistake trust) the Doctor looked at me, asked me two or three questions, did not look my body, did not read which medications i was on, and oh !!!! put me in Methadone, the first week i felt wonderfull, the pain was gone, the second week it worked not as good as the first one, so i called the doctor and told him i was having bad side effects, he saw me for the second time and mentioned "you have to give it time ...." so i did ! (my third mistake ) when i went into the third week i was feeling terrible, so i went to the doctor again and he again said "give it time" and the story goes ..... up untill i came into a month and a half were i just couldn't get up of bed, the pain was high in the sky, i couldn't go the bathroom without somebody's help, so my friend took me again to the private practice of the Pain Doctor, and he gave me Fentanyl, and for one reason or another i did not want to try them, so i went to the ER and the morphine did not worked, nothing worked, and here i was stuck, with pain level +10, not eating, having seizures, trembling, and with my blood pressure going up and up.

Finally my friend made a decition and took me to his primary doctor, and we explain the situation, and the first thing this doctor asked me "if i was a person on Carbamazepine (Tegretol)" and i answered "yes" and he said "they can kill you with Methadone, because Methadone does a very bad interaction with Carbamazepine" so he started to bring me out of the Methadone .... and the end of the story was that after that i had to do walk in to ER almost every day, the last one i arrived with a blood pressure of 213, yes 213

Finally i got out of Methadone, but it caused a severe damage on my 'brain pain sensors' instead of blocking them from pain, it did the opposite, open them up, and now any little pain feels like a level 10+, and the doctor doesn't know if this is gonna be for ever or not, the only thing they can do now, is trying to get the level of Tegretol back to normal so i don't get any more seizures, and in the future they are going to try with Neurontin, but right now the doctor doesn't want to do any more changes in my chemical inbalance, he is trying to bring back to my normal.

After six months i could go back to work five days ago, finally my blood pressure has been taken care, not completly, but at least out of 'life threating', the seizures are still there and may be they will never go away.

Now i know what is hell, and i pray to go back to my old good chronical pain, which i could handle it with 2 Vicodin a day and have a normal life, i promised myself and asked my friend to promise me "not to take me to a ER unless i'm bleeding or have a bronken bone ..." and if a doctor comes up with the story that 'i'm abusing of the system..." i will keep my mouth shut, and if anybody wants me to go to a Pain Specialist i will run 150 miles per hour away ! what they did to me was changing a person from a working wooman, with a unknown diagnosis and a chronical pain, into a person that became addicted to morphine, demerol, dilaudid, and that's why now nothing works.

Thanks to God i'm out of it now, but my level of pain increased and i have to deal with my seizures.

This is a true story, and as i mentioned before, i still think is a bad tv show.

I'll be arround and wish all of you the best.

Please say NO TO METHADONE, AND IF ANYBODY HERE IS IN TEGRETOL, PLEASE BE AWARE ! and do research as my friend did for me.

Krisy
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  #3 (permalink)  
Old 09-25-2005, 09:58 AM
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Join Date: Jan 2005
Location: USA.
Posts: 933
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Kristy,

Have you ever been checked for lyme disease. Your symptoms especially being of unknown orgin sound like they could be this. Here are some of the symptoms. If they sound familiar let me know which area you are in.
Tics that bite a person tranfer the Bb bacteria and cause many symptoms that cannot be explained.Check symptoms that you have or may have had in the past few month. The doctor will be looking for apattern that cannot be explained.

Lyme Disease is epidemic in the United States. Many doctors do not test for it. Lyme can cause a circular rash after being bitten that is raised and warm to the touch.

Symptoms can occur months to years after the tic bite.


MUSCILOSKELETAL SYSTEM

Joint Pain or swelling
Joint stiffness
Muscle pain or cramps
Cracking of Joiints
Burning in palms or soles of feet
Bone sensitivity, especially the spine
Foot or ankle pain
Gait disturbance
Pain and swekking moves to different joints or body locations
Hand stiffness


Neuroligic System

Headache persistant
Headache- intermittent
Headache- migraine like
Bells Palsey
Burning or Stabbing pain that shifts from place to place
Tremors or unexplained shaking
Pinprick sensations
Twitching of muscles
Poor balance/dizziness
Fainting
Constant low body temperature (below 98.6F) *******
Seizures
Odor, Visual or auditory hallucinations
Restles legs

Menta Capabilities

Memory loss (long or short term)
Confudion
Trouble finding the right word
Becoming lost in familiar places

Psycholigical well being

Mood swings, irritability
Easily frustated
unusual deoresion
Overemotional, crying easily
Agression/ Road Rage
Too much sleep
Insomnia
Obsessive compulsive behavior
sucidal thoughts
paranoia

Head Knek and Face

Stiff knek
Twitching of facial muscles
Painful teth or gums
difficulty swallowing
Sore throat
Unexplained hair loss
scalp rash

Eyes/Vision

Floaters
Blurry Vision
Sensitivity to Light
Flashing lights
detached retina unexplained

Heariing

Decreased hearing
Ringing in ears
Pain in ears with no know reason
sensitivity to sound

Respiratory
Shortness of breath
Night sweats
Unexplained chills

Reproduction

Loss of sex drive
Unexplained menstrual pain

General well being

Persistant fatigue
symptoms come and go
pIn moves to different parts of body
Unexplained weight gain or loss
exaggerated response to alcohol

Sugar craving

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  #4 (permalink)  
Old 09-29-2005, 01:29 AM
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Join Date: Sep 2005
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Auntybiotic
Thanks for your idea, i do have some of the symptoms you mention, but most likely are the few, but it's not a bad idea to ask my doctor to test it, up untill now they have tested me for so many things that one more wont hurt

For example today i had to end in the ER one more time, for the famous pain, and guess what, today i could proove that my primary physian was still doing a mistake with me, cuz he has me on Xanax, thinking on possible Panic Attacks, and i kept telling him that Xanax was causing me the opposite effect, and BINGO , today at the ER they put me a shot of Lorazepan, and I feel wonderfull, pain went down to level 2, and i am completly clear mind. Now if you look it up, even thou Xanax and Lorazepam are from the same family, but they have some ingredients that are different and Lorazepan (Ativan) helps with seizures and Xanax helps with panic attacks, and Lorazepan has no interaction with Carbamazepine, and Xanax has.

Thanks for your idea, and has i said before, one more test will not hurt me, but one thing is that i'm trying to help people out there to be aware when they are in Tegretol, because any tegretol medicine can't go together with Methadone, and when did this huge mistake with me, is when all my chemical inbalance changes.

See ya [:I]

Kristy
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