I fully understand your concerns Robert. But, to be honest, I just want a quality of life. My doctor and I have discussed that he wants me to live a happy, comfortable life while I can. I wasn't sussposed to live past 12... that was my deadline. But, I have made it this far, and they do not expect me to live very long... we are sort of doing palliative care type treatment at the moment.
Even though it does say, "Opioid Dependent" on my record, I really honestly do not care.. because I have a quality of life.
Actually my doctor wanted to up me to the
Duragesic patch, straight from
Hydrocodone. And I refused, because I have such weak respiratory muscles, and I didn't want to just.. stop breathing. And especially be sedated all the time, which alot of people report with
Fentanyl...
But I totally understand your concerns, Robert.

What made me mad, was when a palliative care nurse came to MY house, and assessed me, and really the first word she said was, "You.. don't look like your there yet. I don't think you need this yet. You did abuse a substance, didn't you?"
I got upset, I didn't talk to her anymore really. I don't care if I WAS addicted, It is the state I'm in now that counts, my LEGITIMATE pain from scoliosis and Muscular Dystrophy.