I have been suffering from chronic daily headaches for over 10 years now myself. My neurologist has had me on everything from Midrin to
Methadone and
oxycodone...all the usuals (for head pain) along with a large arsenal of narcotics. Nothing worked, but the narcotics definitely helped.
My neurologist, being out of ideas, did some research and sent me to a particular specialty head & neck pain clinic where I was admitted into their inpatient program at a nearby hospital. I had 8 pain-free days in a row, which was the longest I'd been pain-free in over 18 months.
While I was there, I had an MRI on my head
& neck (after 5 MRIs on just my head) and found some cervical spine & nerve damage. At that point I was scheduled for a temporary facet nerve block at 8 points: C1-C5 on both sides. It was just a basic lidocaine injection directly into the nerves at those points, but it worked
very well for a few days. Based on the fact that that procedure worked, they're now scheduling me for an RF (radiofrequency) facet nerve block on the same nerves. It's basically the same as the temporary block, but will microwave the nerves via the needle. It'll take a week or so for the nerves to die, but once they do I shouldn't feel pain in those nerves until they regenerate (4 to 18 months, depending on whom you ask). Even if I still have
some pain, it should be very minor and manageable with "normal" pain medication...no narcotics. And once the RF facet block wears off it can be repeated.
Also, I visited my doctor at the specialized clinic this past Monday and he did an occipital nerve block (I think that was it, anyway) on either side of the base of my skull. Each side got 9cc of lidocaine and 1cc of a steroid. It took a few days to kick in, but then gave me a few days of relief. It was a simple procedure that took less than two minutes to do in his office, however the occipital block is only meant to last a few days and was intended to "get me over the hump." I plan on having that repeated next week again, and hopefully I'll be scheduled for the RF by that point.
As of right now, I'm on a slew of non-narcotic meds:
lyrica, methergine, DHE, vistiril,
klonopin,
mobic and even lidocaine nasal spray. None of it seems to work. But then again, neither has the
Keppra, Midrin,
verapamil, toradol, decadron,
trileptal, indocin,
skelaxin,
baclofen, migranol,
imitrex, or any of the other headache medications I've tried over the last several years. So as of right now, I'm putting all my eggs in one final basket: the RF Facet Nerve Block, hopefully to be scheduled soon.
It might be something for you to check into. Sounds to me like you'd be a prime candidate for that kind of procedure.
Good luck. I feel your pain.