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issues with my pain medication and drs
  1. #1
    pengy13 is offline New Member
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    Default issues with my pain medication and drs

    I have been currently taken off my pain medication. I was prescribed 3 vicodin 10mg a day since august 2011, by my Rhemo. I have been going up to cleveland clinic for the past year to find out what was wrong with me. I have several things wrong with me physically and mentally and still have yet to find out other things. So far they have diagnosed me with fibromyalgia, bursitis in my sacrilitius joint, as well as my wrists and ankles. I was told I probably had sejogens syndrome as well. I have severe pain all throughout my body. its a burning, stabbing, aching, ripping and constantly happening. I can never get a break from it. I have knee problems and something is wrong with my spine causing even more pain in those areas.The drs have yet to try to figure those problems out. I also have the most pain in my upper back, shoulders, and neck. So basically every inch of my body is constantly is in pain. The vicodin was helping extremly well. It didn't completly take away my pain but it helped take the edge off and was able to allow me to function as normally as I could.
    I am unable to take NSAIDS because of my stomach problems. (it is up in the air about me having crohns disease) I also can not take certain other medications because I am several mental health medications. So my options are limited.
    My rhemo sent me to 2 different pain specialists and they both, after examination, told me I needed to attend a rehablitation program. For my mental and phsyical health and to get onto medication that is not habit forming. I am all for this program and look forward to being able to do it, but one thing is standing in my way is money. I live 4 hours away from the clinic and this program is an outpatient program. Its a month long and 7am-5pm. So i'd have to stay up in cleveland the whole month. Trying to find money for a months stay, along with my 13 prescriptions, whatever they give me new, food, gas and various necesities.. its almost next to impossible unless I win the lottery. My doctors DO NOT seem to understand this or really even seem to care. Just keep saying I have to do it.
    So they have been weening me off my vicodin. Which has been complete utter hell. I can not even get up out of bed in the morning without taking 2. I have problems getting to the bathroom in time because my body does not move. I have been doing excersizes for months but it hasn't helped enough. I cry and im in constant agony every second of the day. the only time I have relief is on the medication. I have been down to 1 vicodin 10mg a day and I can not even live my life. My doctors are so completly and totally against opiates and act like it is horrible that I even want to stay on. but THIS IS WHAT WORKS FOR ME!!
    How exactly do I go about getting what works for me when people are so against it? I dont know what to do. I have severe mental problems and the pain makes them so much worse. I have to battle suicide daily and feel like I contribute nothing and there is no reason to even be around. the doctors do not seem to care. I need to get my mental taken care of before I can do much of anything. its a slow road but has potential.
    It is so hard to get ahold of my doctors and I wrote my rhemo a letter since I can't get her to call me back. Asking her if she can keep me on the vicodin 3 times a day 10mg until I can afford mentally and finacially to get into this program. Telling her that this is what works for me and to please considerate it. Ive done research online and taking vicodin seems to help a lot of people that have similar issues. Why does it have to be labled as a big bad drug? I do not take more than I have too, I do not abuse it in any way. I just want to live my life so badly. I am only 27 and I want to finish school and be normal.
    I need any kind of advice as to how to go about all of this? I am waiting for my rhemo to call and I have an appointment with her next week. But like I said I can barley even move or get out of bed, i dont know how i'm going to make a 4 hour drive up there. I am at my wits end and just do not know what to do anymore. What is the point?
    advice? help? please. thank you.

  2. #2
    pengy13 is offline New Member
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    Wow over 1,000 views and no response ?

  3. #3
    Robert_325 is offline Retired
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    Quote Originally Posted by pengy13 View Post
    Wow over 1,000 views and no response ?



    pengy ..... posting in all bold print is almost impossible to read. I posted to you about this before. I know you want your pain meds. For what it's worth I ran a website for people with auto immune disorders for years. I think that I told you I have four auto immune disorders myself including some of the problems you have and some others. There are no cures, but they can be treated without narcotics.

    You've been going to one of the premier medical facilities in the nation at the Cleveland Clinic. The rheumies there are top of the line. They are trying to help you get well, not just turn you into a junkie! You don't realize what a blessing these people are trying to be to you. They are not script drs that just throw pain meds around, they try to help people.

    I understand that you hurt. Before I received the proper care I eventually was taking almost 1000mg each day of Roxicodone IR plus all kinds of soma, xanax, klonopin, steroids, five knee operations, three blood clots, the list goes on. My rheumy finally got me on the meds that helped my problem and I don't even take ibuprofen today. You're not giving these guys a chance to help you.

    You won't find people here to agree that you should have your pain meds because you want them. You've been receiving some of the best care available. Some people would cut off fingers to get into the Cleveland Clinic. It doesn't matter if you get 10,000 views, the correct reply won't change. You have medical conditions that require proper treatment, not more narcotics. That is what is in your best interest. If you want pain meds there are script drs all over the country but they won't fix anything and will make you into a junkie. I pray you don't choose that route. God bless.
    shrimpboat 1942 and Stivensky like this.
    I am not a dr. My statements are based on years of experience and related education. Consult with the professional of your choice regarding matters of concern.

  4. #4
    pengy13 is offline New Member
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    thank you for the advice and i am tryin to find different routes, its just the cost is so great and i hope to find a way to be better. i know there is other alternatives, i talked to my rhemo friday and since the pain dr gave me no other alternative than the treatment program which as soon as i get ssi and do more yardsales i might be able to do. me and her discussed getting me into another pain clinic to help, she wants somebody that is able to evaluate my pain more consistan than her. to be honest the cleveland clinic is really not that diffucult to get into, they try to work with everybody. I do believe that some people that take narcotics can be junkies and others it does help, that is where i differ in opinion with you. I usee to do them with friends back in high school because i was dumb. the reason they were taken now was for medical reasons and the rhemotoligist is leaving me on the vicodin till i can get into another pain clinic. she is very understanding and i do believe narcotics have been given a bad name due to the abuse. I mean i went to school for juvenile corrections and human services and was going to school for social work and have worked at juvenile rehab center and other places and it gives you a complete different view on what is what and how people are destroying people not the drugs they turn to. people are very messed up in society and with our goverment, sorry i could rant but will not. i have seen it from so many different areas that it is hard for me not to see all of them and have empathy for all the situations. i thank you and hope to be as well as you one day narcotics or not. I did not mean to put it in bold either it was accident

  5. #5
    pengy13 is offline New Member
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    oh i forgot to add i have a lot of other issues that are not autoimmune related too. and once again thank you for taking the time to respond

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    charlotte_58 is offline New Member
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    I replied yesterday, Please please take care of yourself....people who are not in pain can never understand those of us who are. But we have eachother, use your pain meds if they help you. Your not taking them for fun, your in pain thats different. God made the poppy flower for opium, enough said.
    Ellie

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    Lildog is offline Junior Member
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    Let me start off by saying Each individual has the right to make their decision to take the pain pill or not take the pain pill. I realize each person is different on the amount of Pain they can tolerate in their body. I respect that too.

    I was introduced to Chronic pain in 2006 after a 50MPH head on collision. Herniated Disk C5 overlapping C6 Bulging disk in T8 putting pressure on sciatic nerve. Nerve damage in both knees and a lovely ball the size of a marble of damaged nerves on right wrist. That's just naming the highlights. Dr's said permanent and i would need painkillers the rest of my life.

    For ME that was not going to happen.

    I had seen first hand what the pills did to the people who took them. They constantly had to keep going up their dosage to as the body grew immune to it. They would keep chasing that dosage that made them feel out of Pain. So when I was given the Script from the Dr of 60 Pills they lasted me a year. I used and still use a lot of hot baths and the heating pad became and remains my best friend.

    I just spent the last 8 1/2 months doubled over in yet a New pain on top of my old Pain where my Bladder had scar tissue grown over it and grown Into my stomach wall. I am now 2 months out of Surgery. I stopped the Pain Pills 3 weeks after surgery so my body could adjust to this new pain. I do understand Pain 24/7 without ever catching a break.

    I do not think living on a pill that over time is only going to add another different saga to my pain as my body becomes dependent or addicted whatever the correct word is the answer for me.

    However for me personally after the wreck my body learned to adjust to the pain without masking it with a Pill. Lucky for me I have developed a high tolerance to pain after living with it for so long. I personally don't or won't live on a pain Pill my body will adjust to the pain over time.

    This is simply my opinion as a chronic pain person It is no way intended to judge encourage or discourage anyone else. As far as God made the flower true and he never gives us more than we can handle either.

    To each their own. Be kind to your body.
    Hugs
    Lildog

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