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concerns with pain management doctor. oxy question
  1. #1
    billybb is offline Junior Member
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    Default concerns with pain management doctor. oxy question

    hello,
    i have been going to a pain management specialist for a couple months now, and he has me taking time release oxycontin, and oxyIR 5mg (instant release). and last month he didnt give me enough of the20s. so he gave me a small scrip for 8 of them to last me the couple days until i saw him next. anyway.. after i saw him last time,, my pain flair ups got unbearable, and i was taking my max dose (the dosage the doctor and i disscussed, but only counted max dose for about half the week, other days only 3 or 4 doses)
    anyway, so for about a week i was taking 3 every 4hr.. 15 in a day max.
    so, after counting my remaining pills, i was a little worrid that i may run out when on vacation this next week, if i am still taking 5 doses a day. So, i called my doctor to tell him ive been taking my max dose over the past week, and going out of town, so i asked for some of the 5oxy IRs just in case i was taking that many a day.
    he did give me a scrip to last me through the next time i see him, but i just really hope he knows im not doing anything stupid with my medicine, and i was a little worried just about the whole situation.
    if anyone has any similar situations let me know. the first time I called for a small refill, it was hardly even mentioned after that, this is just alot more than 8 he gave me for a refill. and the pharmacy had to call the doc for "early refill" or something like that. do i have to worry about my relationship with the doctor for things like this that come up with my medicine?? im not lying or anything. im just a worry person.
    please let me know
    thanks alot- any info would be good to read

  2. #2
    mpvt is offline Platinum Member
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    It's not uncommon when starting out on pain management to go up in your dose.Remember your seeing a pain doctor so he is used to people asking for help.Just be truthfull with him and be careful oxycontin is the most abused narcotic in the world.Use it right.....Dave

    Finally my pain is under control!!!!!!!

  3. #3
    billybb is offline Junior Member
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    thanks!
    i definetly feel better hearing that, and i am going in monday morning to see my pain doctor again. With Oxycontin being so addictive, is there something that works as well (the time release is good with me) as oxycontin? Iknow of Methadone, but i get sick when taking that. The doctor did give me the option of the Patch, but i just thought the Oxycontin was working well.
    any ideas on what would work as well?


    William

  4. #4
    mpvt is offline Platinum Member
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    There is a patch called duragesic.It's narcotic is fentanyl, it's very powerful and is being used more and more......Dave

    Finally my pain is under control!!!!!!!

  5. #5
    paindoc_1 is offline New Member
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    Quote Originally Posted by billybb View Post
    thanks!
    i definetly feel better hearing that, and i am going in monday morning to see my pain doctor again. With Oxycontin being so addictive, is there something that works as well (the time release is good with me) as oxycontin? Iknow of Methadone, but i get sick when taking that. The doctor did give me the option of the Patch, but i just thought the Oxycontin was working well.
    any ideas on what would work as well?


    William
    I am a pain management physician. there certainly are alternatives to oxycontin, but not many.

    there are basically only 4 long acting (or time released) pain medications (not including ultram ER). they are all scheduled II medications.

    1. Duragesic (generic name Fentanyl). this is a patch form that can be used every 48 or 72 hours. there are two or three problems i have found with this medication. 1. the patches fall off 2. you cant go into the sun too long, because you can get all the medication at once. 3. people complain that there pain is controlled, but overall they feel lowsy.

    2. Morphine: there are several forms of time released morphine including MSContin, Oramorph, Avinza, and Kadian. kadian is my favorite of this group. it has a more consistent pain relief throughout the dosing cycle. avinza at high doses contains fumeric acid which may be toxic.

    3. Opana ER. (generic oxymorphone). my favorite of the long acting pain medications. consistent pain relief throughout the dosing cycle, very little drug to drug interactions. very low street value.

    4. Oxycontin (generic oxycodone). by far, my least favorite medication. there is one huge problem with oxycontin. for example, if you are getting 80 mg every eight hours, you would expect to get approximately 10 mg per hour. and in fact, the newer pain medications like kadian and opana ER would do that. unfortunately with oxycontin you get 40% of the medication in the very first hour and then only 60% over the next 7 hours. so in this example, you would get 32 mg in the first hour and then only approximately 7 mg every hour after that. this is the reason people that use oxycontin recreationally love the drug because it causes a euphoric feeling right away. it is also why people that are really using it for pain management have a problem switching from oxycontin to another medication. they equate taking the oxycontin with feeling better right away because of the 40% bolus. that shouldnt be the case with long acting pain medications. long acting pain meds are supposed to provide more consistent relief throughout the entire dosing cycle.

    hope this helps

  6. #6
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    Hi paindoc
    I dont think billy is around any more that post is from 2005...LOL
    your just a little late...you know you doctors...
    Melinda

  7. #7
    Magdalena12 is offline Member
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    Quote Originally Posted by paindoc_1 View Post
    I am a pain management physician. there certainly are alternatives to oxycontin, but not many.

    there are basically only 4 long acting (or time released) pain medications (not including ultram ER). they are all scheduled II medications.

    1. Duragesic (generic name Fentanyl). this is a patch form that can be used every 48 or 72 hours. there are two or three problems i have found with this medication. 1. the patches fall off 2. you cant go into the sun too long, because you can get all the medication at once. 3. people complain that there pain is controlled, but overall they feel lowsy.

    2. Morphine: there are several forms of time released morphine including MSContin, Oramorph, Avinza, and Kadian. kadian is my favorite of this group. it has a more consistent pain relief throughout the dosing cycle. avinza at high doses contains fumeric acid which may be toxic.

    3. Opana ER. (generic oxymorphone). my favorite of the long acting pain medications. consistent pain relief throughout the dosing cycle, very little drug to drug interactions. very low street value.

    4. Oxycontin (generic oxycodone). by far, my least favorite medication. there is one huge problem with oxycontin. for example, if you are getting 80 mg every eight hours, you would expect to get approximately 10 mg per hour. and in fact, the newer pain medications like kadian and opana ER would do that. unfortunately with oxycontin you get 40% of the medication in the very first hour and then only 60% over the next 7 hours. so in this example, you would get 32 mg in the first hour and then only approximately 7 mg every hour after that. this is the reason people that use oxycontin recreationally love the drug because it causes a euphoric feeling right away. it is also why people that are really using it for pain management have a problem switching from oxycontin to another medication. they equate taking the oxycontin with feeling better right away because of the 40% bolus. that shouldnt be the case with long acting pain medications. long acting pain meds are supposed to provide more consistent relief throughout the entire dosing cycle.

    hope this helps
    Dear Pain Doctor:

    You posted a reply to an old thread, BUT the information you provided will help others I am sure. Nevertheless, I appreicate you taking the time to educate.

    If you EVER get a moment...hehehehe...stop by to comment or educate. Most of us are really good people trying like h*ll to do the right thing.

    Thanks for taking the time to write.

    mags

  8. #8
    paindoc_1 is offline New Member
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    i know it was an old post, but i figured the information might be helpful to others. i have been searching around on the internet alot lately and getting very discouraged. there are countless forums out there with people discussing how to beat urine drug screens, how to con doctors into giving them extra pain meds they dont need, etc.... it was starting to drive me crazy. i found this post and it genuinely sounded like someone that wanted help. i knew it was old, but figured it could help the original poster or others as well.....

  9. #9
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    Hi paindoc
    If you read most of the posts around it's about people trying to get off of the drugs there doctors put them on,so yes I was a little put out when I read your post.my doctor had me on so many pain pills I should be dead right now.

    pain pills can be devastating to people lives.

    I'm just glad I found a way out of pain pill addiction.
    i have been on this forum for about a year now and I talk to people all day long about getting off of the drugs you are talking about.

    So I just don't take it lightley...
    Thanks for trying to help.
    Melinda

  10. #10
    Robert_325 is offline Retired
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    You can rest assured that if there is one thing the people on this forum already know about it's pain medication. This isn't a forum where people talk about beating their drs in mind games or any of that nonsense. That kind of behavior wouldn't be tolerated here.

    The relaxed attitude of pain management drs is the biggest concern on this forum. My pain dr had me on 750 30mg roxicodone per month and was throwing on 8mg per day of klonopin and 6mg of xanax per day and 180 soma per month. It went on for years. That should be against the law. It took me years to recover from that trash. So I am not really enthusiastic about hearing which RX pain meds are ANYONE'S favorites ... medical professionals or not. God bless.
    Last edited by Robert_325; 05-05-2009 at 09:05 PM.
    I am not a dr. My statements are based on years of experience and related education. Consult with the professional of your choice regarding matters of concern.

  11. #11
    Magdalena12 is offline Member
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    Quote Originally Posted by melinda7.5 View Post
    Hi paindoc
    If you read most of the posts around it's about people trying to get off of the drugs there doctors put them on,so yes I was a little put out when I read your post.my doctor had me on so many pain pills I should be dead right now.

    pain pills can be devastating to people lives.

    I'm just glad I found a way out of pain pill addiction.
    i have been on this forum for about a year now and I talk to people all day long about getting off of the drugs you are talking about.

    So I just don't take it lightley...
    Thanks for trying to help.
    Melinda
    I didn't think this guy was advocating anything......I think he thought he was trying to help educate, but maybe I was wrong 0

    mags

  12. #12
    CPer is offline New Member
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    Just like anywhere there are good docs and bad ones. I for one appreciate paindocs information because I learned somethings that I did not know before. I have been a pain patient for over 7 years and because of pain meds, I have some quality of life back.

    Everybody is different, some people do not do well on pain management and have gone down a road that wasn't the best path for them. Others are given a new lease on life. Unfortunately pain management is very complicated and information is one of the best tools for all of us so we are informed and educated about the decisions we make.

    Cper

  13. #13
    Donna618 is offline New Member
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    Quote Originally Posted by paindoc_1 View Post
    i know it was an old post, but i figured the information might be helpful to others. i have been searching around on the internet alot lately and getting very discouraged. there are countless forums out there with people discussing how to beat urine drug screens, how to con doctors into giving them extra pain meds they dont need, etc.... it was starting to drive me crazy. i found this post and it genuinely sounded like someone that wanted help. i knew it was old, but figured it could help the original poster or others as well.....
    I'm glad you posted to this old thread because I did find the information useful. I hope you go around pulling up more old threads and adding information to them to help others, it's not like these problems go away, there are other patients who have needed to know, now need to know, and will need to know in the future. So thanks!

  14. #14
    inneedofadviceFAST is offline New Member
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    Exclamation oxycotin vs ultram pls let the dr. be here to answer this one

    hi ~ I am very new to this thread/forum whatever.
    I am 30 and have been diagnosed with RSD and CRPS

    I have been in pain mangement for some time now and
    all the sudden they changed docs. on me
    he lowered my somas from 4 a day to 2 a day
    lowered my norco from 7 to 5
    but kept the oxycotin the same 1.5 per day 15 mg

    last month he told me that i could come in every 3 months
    instead of 1 time per month if I changed my oxy to tramadol ( ultram) because he couldnt write a script refill for that only the others.

    ? is there any other med that will help as well as the oxy
    that I can get a refill on.

    Also I think I just read that oxycodon and oxycotin where the same they aren't are they?

    Is this doc just afraid of the DEA
    like other new doctors ( says the owner of the center I go to)
    I just dont want to be in constant pain, and although I do have a major tolerance I am not a addict!

    Insurance, copays and gas are the reason to not go monthly I am disabled and I am BARELY scraping by!

    PLEASE any ADVICE WELCOME

  15. #15
    Robert_325 is offline Retired
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    inneedofadviceFAST ..... Oxycontin is just oxycodone but in a time-released form. Plain oxycodone is an instant release medication. Oxycodone is a schedule II narcotic and drs have to physically write a prescription for it hence the denial for writing it with refills. He can't legally do it. Tramadol/ultram is not in the same class of drug at all that oxycodone is in.

    Cutting the soma quantity in half, reducing the norco for breakthrough pain by a third and going from oxycontin to ultram is not going to have the same pain relief benefits. But it's surely lessening the liklihood of you becoming physically addicted to your meds.

    I don't know that you really need all the medication you were taking. That is between you and the dr. But sounds like this dr is trying to get you off the amount of narcotic medication that you've been taking. You need to work this out with the dr. If you want the oxy you will just have to go to the dr monthly like everyone else does. God bless.
    I am not a dr. My statements are based on years of experience and related education. Consult with the professional of your choice regarding matters of concern.

  16. #16
    inneedofadviceFAST is offline New Member
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    Default Dimond ***************inneedofadvicefast!

    Thanks for your reply I do appreciate it.
    I have RSD/CRPD PTSD and panic attacks
    Also believe it or not wwith the meds I am taking
    ( this blows my huspands mind)
    I have trouble sleeping.
    Because of past situations. nightmares flashbacks etc.

    I just want help with the pain so I can function and have a quality of life!

    The new dr. ( the one who cut my meds)
    isnt very nice or sympathetic to my situation.
    The dr. I was seeing was.
    The are in the same practice , although he has dissapeared idk.

    Anyway just wanted to update you on WHY I need medication, and see if you knew HOW I could talk to this Dr.
    (I have a previous TBI and I dont commuinicate in person very well.)

    He doesn't understand me, and I do not understand him.

    Thank you, God Bless and please reply as soon as you can!

  17. #17
    Robert_325 is offline Retired
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    I don't know your dr. personally. But you are the patient which makes you the customer. You have a right to know why they want to do what they are doing. Ask them why.

    But as I understand your post all the new dr said is that if you want to continue on the oxycontin you'll have to come in monthly. That is the law and there is nothing unfair that he has any control over.

    As far as cutting back on the soma and norco you were taking a lot in addition to taking oxycontin. I don't think the dr is being that unreasonable from what you say. It really sounds like they are trying to keep you from becoming an addict.

    You're thirty years old and have a long life ahead of you. It would be a shame to spend it all as an addict. Talk to the dr but give him a chance to explain without pre-judging him negatively. That is my best advice. God bless.
    I am not a dr. My statements are based on years of experience and related education. Consult with the professional of your choice regarding matters of concern.

  18. #18
    inneedofadviceFAST is offline New Member
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    Exclamation



    I JUST WROTE ALONG REPLY
    SO MAYBE U COULD UNDERSTAND MY SITUATION A LITTLE BETTER

    BUT IDK WHAT HAPPENED IT GOT ERASED!

    BASICALLY
    HEAT, ICE, TIGERBALM, OXY HEAT, ASPERCREME, LIDODERM PATCHES, WELLPATCHES AND TENS UNIT

    ( NOT ALL THE SAME TIME)

    WITH MY MEDS+ MODALITIES .
    I STILL HURT SCALE 1-10 I'D SAY A FOUR

    I AM TAKING 1.5 15 MG. OXYCODONE PER DAY
    I DONT THINK THIS IS ENOUGH

    B/C I AM STILL IN PAIN.
    I KNOW i HAVE A LONG LIFE AHEAD OF ME
    BUT I CAN NOT MOW GRASS , GARDEN, CLEAN, DO LAUNDRY ETC.

    SOMETIMES IT JUST HARD TO STAY COMFORTABLE BEING STILL

    I DONT GET ON THE COMPUTER ANY LONGER EXCEPT TO FIND OTHERS LIKE ME
    TO FIND OTHER REMEDIES THAT WORK
    AND TO CHECK BANKING ETC.
    BECAUSE i HAVE GREAT PAIN WHILE DOING SO!

    I CANT TALK ON THE PHONE BECAUSE I FEAR OF THE PAIN ITS GOING TO CAUSE ME WHILE, AND IN THE FUTURE. ( LIKE 30 MIN OR SO AFTER i GET OFF)

    I JUST WANT OT BE ABLE TO EXCERCISE AGAIN!
    LOOSE WEIGHT BE BACK TO THE SIZE I WAS BEFORE THIS ALL STARTED. I HAVE GAINED ABOUT 70 LBS OR SO.

    I CANT BLOW DRY MY HAIR WITHOUT PAIN, I CANT DO MUCH ANYLONGER WHICH IS SOOO FRUSTRADING.

    I HAVE NO QUALITY OF LIFE I WANT TO HAVE A QUALITY OF LIFE MORE THAN ANYTHING.

    I WANT TO WORK, PLAY, CAMP, BIKE HIKE GARDEN LIVE LIFE, SOCIALIZE WITH FAMILY, FRIENDS, AND NEIGHBORS! WEAR A BRA ETC.

    I AM SURE U UNDERSTAND!

    IT EVEN HURT TO DRIVE TO THERAPY. OR OTHER DR.S
    WHICH IS PRETTY MUCH THE ONLY PLACE I GO.

    I DONT MIND ANYMORE GOING TO SEE HIM 1 x PER MONTH BUT I DO MIND IF HES GOING TO KEEP ME ON THE EDGE OF GOING TO THE HOSPITAL EVERY FEW DAYS.

    I THINK HE NEEDS TO UP MY DOSAGE OF THE OXY BUT IDK WHAT DO YOU HTINK?

    BE IN PAIN AND TRY NOT TO LIVE/ OR BE IN PAIN AND HAVE RELIEF?

    IT VERY WARM OUTSIDE TODAY AND i HAVE ON SWEATPANT, TSHIRT, SWEAT********, AND SOCK WITH SLIPPERS JUST TO STAY WARM ENOUGH WERE i ACHE LEAST BADLY ( IF THATS EVEN A WORD)

    I TAKE BATHS DAILY WITH EPSON SALT AND BATHERAPY
    USUALLY IN THE MORNINGS SOMETIME MORNING AND NIGHT
    I DO GUIDED IMAGRY FOR PTSD AND PAIN DAILY

    WHAT MORE CAN I DO I NEED A MEDICAL INTERVENTION

    I NEED MORE STRONGER OR BETTER PAIN MEDS.

    I DONT WANT O BE A ADDICT I JUST WANT O BE IN LESS OR NO PAIN AT ALL!
    I WANT TO LIVE LIFE!
    OCT. 5TH I AM HAVING A CERVICAL EPIDURAL.

    HAVE U HAD ONE OF THESE?
    ME NERVE BLOCKS BUT THEY WERE PRETTY UNSUSESSFUL SO I HOPE THIS IS WHAT I NEED
    TRIGGER POINT INJECTIONS OVER THE COURSE OF A YEAR WORKED BETTER I THOUGHT

    BUT I AM NOT A DR. SO WHAT DO I KNOW?

    OKAY MORE TO SAY BUT I HAVE TO GO I AM HURTING

    HOW DO I TELL HIM BAOUT MED INCREASE WITHOUT HIM THINKING I AM A ADDICT OR SEEKER?

    AND IF YOU KNOW WHAT DOES YOUR BLOOD PRESSURE HAVE TO DO WITH HOW MUCH PAIN YOU ARE IN? OR NOT IN?


    GOD BLESS AND HAPPY SUNDAY, THANK YOU FOR TAKING OUT TIME FOR ME!

    SIN. INNEEDOFHELPFAST

  19. #19
    Robert_325 is offline Retired
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    The oxy dose is not that high if that was all you were taking but you're taking a lot of norco on top of it. I certainly understand that it becomes a quality of life issue at some point .... you may not want all the meds but you're in pain so what do you do? I get it, I've been there trust me. Won't even go into all my past I would rather stay on you right now. If the epidural helps that would be a blessing.

    Sometimes we've just got to sit with the dr and talk straight. If he won't listen find another dr although that isn't always the easiest thing to do in your situation as you have to start totally over again. You're better off working with this guy I think if you can work it out with him.

    Perhaps you may need pain meds for life. I'm not a dr but I do understand you wanting your life back. If you're going to take pain medication for life and the dr doesn't want to increase your dosages my best suggestion would be to possibly consider something like methadone with the oxycodone for breakthrough pain in small doses like the 15mg you were talking about. Has methadone been discussed? I think you should ask him about it as it's a great pain med, it's safer for you than all those other pills combined plus considering you're wanting to add more, and it's just better for you if this is a permanent situation.

    This puts me in a really tough spot. I can only give you so much advice as I'm not a dr. But I would ask about the methadone option rather than increasing the narcotics you're taking if this is a permanent situation. Hope that helps and keep us posted.

    You're in my prayers. God bless.

    When you have w/d it does make your blood pressure go up. That is why drs have used clonidine for years for patients in opiate detox.
    I am not a dr. My statements are based on years of experience and related education. Consult with the professional of your choice regarding matters of concern.

  20. #20
    inneedofadviceFAST is offline New Member
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    Exclamation



    i do not mean to put you in a tuff spot! at all!!!!
    I know you aren't a doc and the only reason I even thought about going this route ie: a forum/ thread whatever is to find ppl like I who have more info than I.

    I soooo appreciate you taking time out of your schedule
    to reply all these times.

    Ive never even thought about methadone b/c I thought of it as a hard core pain killer
    my mother is a RN and she is totally against any pain meds esp: methadone.
    Shes mentioned that before. and mentioned that I am going to be a drug addicted looser with nothing!

    I was thinking about just asking him to decrease the norco and increase the oxy but now I am thinking in a totally diffrent direction.

    Have you or anyone youve known ever had to take methadone?

    Is it a horrible withdrawl?

    I do not nor does any one in my life want me to be on these drugs forever.

    Once I was on the fentanyl patch and loritabs for breakthrough pain
    I was on a very low dose 25mcg. and 4 tabs for breakthrough pain and I had the least amount of pain ever EVER

    However, I then got switched to a diffrent doc ( not the one I am seeing now) and he increased it to 50 and that was way to much for me. I was throwing up etc...

    As soon as I brought the patches back to the dr.
    he put me back in the same situation I am in now.

    Then after three other dr.'s with the same meds
    I'm now stuck with this doc. or non-sympathetic doc should I say!

    I am very weary to go back to the fentanyl patch B/C of the paraylisis and tremors ppl are sueing over now.

    I do have slight tremors already ( even before the patch)

    I will try to research the methadone tommorow I suppose.
    It is so hard to bring these things up to him its like hes a brick wall. someone who doesnt want to relief pain someone who want to leave you on the edge of it!
    I really believe the only reason alot of the patients are still there is in hope to see the one doctor whos name is on the door. ( the doc. when I went in for a evaluation only
    who hugged me and said he would pray for me etc.)

    I dont want to switch clinics though I would not mind having a new doctor.

    I pray the epidural works as well......... I really really do there would be nothing like having my old life back
    like you said I am still very young.

    I wish that I could open up and speak to this doctor like I am to you right now but I am not comfortable doing that.
    BRICK WALL

    The reason I asked about the blood pressure thing is b/c
    every time they take it and when they took mine the last time it was almost normal per the nurse.
    Then she said...... your blood pressures great esp.
    for someone who says there in so much pain!
    That mad me very angry, and confused at the same time.

    Another time it was like 102 over 86 and they said nothing about that.

    Can you tell how much pain someone is in accordding to the pressure?

    Also one more ? for you why would nurses ( who dont have to keep private info private) sit in the room with you
    and write out the scripts and let him sign.

    Lets say I have a 830 eastern time app. I have to wait in the waiting room for hours
    no exagerating I dont leave till 12 or 1 at times
    my pain increasing and I am fumming the whole time to all to get pain script and 15 min or less with the dr.

    Is this usual?????

    Well I really need to go I only got on here to see if you responded, and thank you again!

    Okay that was more than 1 more ? but thanks for taking the time...... GOD knows nobody else does!

  21. #21
    inneedofadviceFAST is offline New Member
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    one more thing on several meds in the past I have had urinary retention.....I jsut read that methadone may cause that as a side effect so I guess the doc. will NOT prescribe that to me

    What is the diffrence between that and oxymorophome

    if u know from past or present situations?


    God bless you and thank you so much!
    I do hope you are pain free and all these experience are from the past not the present.
    you are like a angel!

    I will pray for you Robert!

  22. #22
    Robert_325 is offline Retired
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    STOP ON THE METHADONE!!! I will retract my suggestion as when you said you wanted to get off the pain meds and this was not permanent that would make me tell you to NOT go the methadone route. I thought this was a permanent situation. It's a last resort medication and should only be used for pain if you're going to be on meds permanently. So forget that suggestion.

    I'm just trying to help and trying to think of something that would be better for you. Blow off the methadone .... it is a HORRIBLE w/d. I hate the fentanyl patch as well. I think they should only use it for terminal patients. It sucks the life out of people.

    It honestly sounds like you need to sit down and have a serious talk with your dr. I'm not putting you off but you obviously need to make some changes and I have limited knowledge about you. The dr is the person you should really be honest with about your concerns and feelings. Tell him the truth. He's supposed to help you not judge you!

    I hate to see you keep switching drs. You need to find a dr you can talk to and have a good relationship with. You need some help and you need it from a dr you can trust. I wish that I could help you more but you absolutely should clear up some of these issues with your dr. That is who is prescribing your meds and ultimately it doesn't matter what we decide. The dr has to go for it. I would ask them what you're supposed to do.

    Let us know how things work out. God bless.
    I am not a dr. My statements are based on years of experience and related education. Consult with the professional of your choice regarding matters of concern.

  23. #23
    inneedofadviceFAST is offline New Member
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    sorry and thanks

  24. #24
    inneedofadviceFAST is offline New Member
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    i pray its not a perament situation!
    I would love to live life again!

  25. #25
    Anonymous Guest

    Default

    hang around here for awhile and you will be able to live your life again...there are to many good people around here wanting to help
    Melinda

  26. #26
    inneedofadviceFAST is offline New Member
    Join Date
    Sep 2009
    Posts
    9

    Exclamation I hurt so badly

    I WILL HANG AROUND HERE FOR AWHILE
    I WILL CHECK PERIODICALLY TO SEE IF ANYONE HAS ADVICE FOR ME

    I HAVE BEEN TOLD RSD AND IT IS A PERMANENT SITUATION

    BUT THEN AGAIN I DO NOT WANT THAT TO BE TRUE AND I DO NOT EVEN WANT TO BELIEVE I HAVE IT

    AFTER SEVERAL NUEROSURGEONS, ORTHOPEDICS, PAIN SPECIALIST, AND DOCTORS TOLD ME THIS IS WHAT I HAVE I HAVE STARTED TO GO ON A MISSION TO FIND A WAY TO DEAL WITH MY PAIN.

    I FIND ( AT TIMES) MYSELF SITTING ON MY FRONT PORCH STARING UP AT THE SKY CRYING ASKING GOD TO HELP ME DEAL WITH MY PAIN.

    TO HELP ME FIND THE RIGHT PPL, WITH THE RIGHT ANSWERS TO HELP ME SAY THE RIGHT THINGS TO THE DOCTORS SO THEY MIGHT HELP ME!

    (if that makes sense)

    I PRAY FOR MY DOCTORS, WHO ARE SUPPOSE TO BE HELPING ME ( ALMOST) EVERY DAY

    I HAVE A TBI /BRAIN INJURY, BULDGING DISC, ARTHRITIS

    AND A NERVE DISORDER THEY CALL RSD
    ALSO I HAVE TREMORS, AND WALLERIAN DEGENERATION OF THE CEREBELLUM

    I CANT FIGURE OUT IF THE PERSON WHOM DROVE MY CAR INTO A PHONE POLE

    6 YEARS LATER AFTER THAT FIRST ATTEMPT OF MURDER

    OR THE PERSON WHO REAR ENDEND ME AFTER THAT
    WAS THE CAUSE LIKE THE DOCTORS SAY

    OR IF IT WAS THE HOSPITAL (I WAS IN UNCONSCIENCE FOR MONTHS AFTER THE FIRST ACCIDENT)
    WHO PLACED A iv IN MY ARM AND MISSED THE VEIN
    AND PUMPED THE MEDICINE IN MY LEFT ARM UNTILL IT WAS ABOUT TO BE AMPUTATED ( THEY REFUSED TO REMOVE IT)- WITHOUT DR'S ORDERS I WENT OVER 24 HRS. WITH THIS IN

    oR A COMBINATION OF ALL THREE?

    I JUST DONT KNOW ANYMORE
    I AM TIRED OF SITTING, TAKING BATHS, AND AVOIDING THINGS SITUATION, AND CERTAIN FOODS
    JUST NOT TO MAKE MY PAIN WORSE.

    ITS PRETTY WARM THIS AFTERNOON ( ALITTLE WINDY )
    AND I HAVE TO SIT WITH A JACKET ON OVER A LONGSLEEVE ******** WITH SWEATPANT SOCKS AND SLIPPERS TRYING TO KEEP MY BONES WARM

    EVEN THOUGH I SUPPOSIBLY TAKE REALLY GREAT ARTHRITIS MEDS ------ WHATEVER. MOBIC

    ANYWAY IF YOUVE READ ANY OF MY PRIOR POST YOU WILL SEE ALL THE EXTRA STUFF I DO ON TOP OF THE MEDICATION

    I AM NOT LOOKING TO GET HIGH, BUT LEARN HOW TO APPROACH MY DR AND GET ON THE RIGHT MEDICATIONS

    THERE IS NO NEED FOR ME TO BE TAKING MY MEDS CORRECTLY, USING THE TIGERBALM, ICY HOT, ASPERCREME, HEAT , ICE AND A TENS UNIT ALONG WITH BATHERAPY AND EPSON SALT AND STILL BE IN PAIN

    IT IS FREAKING UNREAL!

  27. #27
    Robert_325 is offline Retired
    Join Date
    Jul 2007
    Location
    Texas
    Posts
    16,689

    Default

    I totally understand you wanting to get your life back, not wanting to abuse meds but rather just get relief and there are lots of people in the same frustrating situation. Pain is a very tough thing to handle and even worse to treat effectively.

    I repeat that I would seriously discuss with the dr if this is going to be a lifelong situation for you. That is the determining factor on the route of treatment I would suggest. It's all contingent on the length of time, or if permanent, that this situation is most likely to go on.

    I wish you the best of luck and keep me posted after you talk with the dr. Be honest and tell him you need this information for your sanity if nothing else. Let us know. God bless.
    I am not a dr. My statements are based on years of experience and related education. Consult with the professional of your choice regarding matters of concern.

  28. #28
    inneedofadviceFAST is offline New Member
    Join Date
    Sep 2009
    Posts
    9

    Exclamation

    i will~ thanks

    Please wish me luck and if you are religous please pray for me to have strenght and for the doctor to have guidance in helping me!
    Last edited by inneedofadviceFAST; 09-29-2009 at 09:34 AM. Reason: additional comment

  29. #29
    sister39 is offline Junior Member
    Join Date
    Feb 2007
    Posts
    21

    Default

    Hi,
    I see you haven't posted in a while and was wondering if you were still around. I also have CRPS, and you can't find many people, let alone Dr,;s who know much about this. I have had three cervical sympathectomies and a rib resection, but the CRPS has spread through my joints and organs. My doc says it has an autoimmune origin that was triggered. I don't claim to have any answers, but I'm looking to talk to others that have this syndrome

    I hope and pray you have found the relief you were looking for. If you are still around here, write me. I would love to talk

  30. #30
    DzooBaby is offline New Member
    Join Date
    Jan 2009
    Posts
    8

    Default

    Where do you get that nurses don't have to keep private info private? Nurses are probably under more pressure about privacy rules than Drs. At the very least they are under tha SAME privacy rules as Drs are. Nurses can be sued for breach of privacy just as easily as Drs are!!

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