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Advice on Oxycontin,Tramadol&Lupus SLE
  1. #1
    tofast4me is offline New Member
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    Default Advice on Oxycontin,Tramadol&Lupus SLE

    [B)]I just registered at this site and been really looking for someone to talk to about a few drug issues I have. I'm going cut out alot of my story and get to the main point, I've had Lupus SLE since 96 and it's put me in the hospital many, many times since then, and because of all the pain it can bring on I take many different pills and steriods. Taking the steriods has made my bones very weak and I've already had three operations on my left hip where they replaced it, it came loss and it was replace and once again it had to be reglued and now at the end of this month I have to go back in another week and have it worked on again because the cup came loss from the bone and it slides around and squeaks and hurts so bad it can make a person cry at times. I also have had a massive heart attack last year in which I was told was caused by a blood clot that blocked my main artery 100% and had to be operated on and a stent had to be inserted. They said the blood clot must of had something to do with my Lupus cause I am on Warfrin and two other blood thinners at the time of the attack. And now just a few weeks back I was hospitalized for a week because I was having real bad heart pains and was told I had congestive heart failure and was treated at that time for that and then put on several more pills. At hand I'm now on more than 20 different meds, two are Tramadol(Ultram)50mg and Oxycontin 20mg. I am told to take one 20mg Oxycontin ever 12 hours for pain max is two per day, and my Tramadol is to be taken two 50mg tablets every 4 hours, max a day is 400mg per 24 hour period. Now here's my question, I been on these pain tablets for several years now and somehow I got my refills all screwed up and now I'm taking doubles on my Oxycontin for a two week period till I'm able to get a refill for my Tramadol then I'm out of Oxycontin and I end up taking way to many Tramadol a day, sometimes more than other days, but around at least 16 or more 50mg tablets per day. I'm kind of getting scared at times because at times I will take more than ten 20mg tablets of Oxycontin to get through the day mostly because over the years the pills got to be much weaker to me than before, I was at one time able to take the two tablets a day and it would help me out fine and also with my Tramadol, I used to be fine with them, then they became way to weak for me and I found many times I was taking them like M&M's. I realized how strong the Tramadol really was when I gave just one 50mg tablet to my wife to help with her pain from a surgery she got on her hand for Carpal Tunnel, it was to late to pick up her refill of Darvocet so I thought there would be no big problem taking one Tramadol,well it knocked her out till late morning the next day and she woke up still feeling very funny she said. So here's what I'd like to know, if I was to take 200mg or more of the Oxycontin with my other meds I take like Plavix and Warfrin and Vioxx and steriods plus others I don't know off hand, and I've been doing this for some time now, could I just be used to the pill and it couldn't do anything to me or could it even kill me if it don't feel like it. I guess the same goes for the Tramadol. At times I take a dose and forget I just took one a short time ago and then I get scared that I overdosed. I have tried to get down on these pills but found it's not as easy as it was getting used to taking them. They do help me with pain but when I either run out and have to wait till I can get a refill or try and slow down I get to sweating, I feel very strange like I can't sit down even for a minute. I can't go to sleep or relax at all, the only thing I do is wish for it to be time for my refill. I have no idea how I got to this spot, I ask my doctors nurse for a refill a few days early and get yelled at that it's not time for a refill and it'll kill me if I take to much. I feel just like some kind of drug addict waiting for my fix. I always told my Dr. I never wanted any pain relever because I was always scared of getting hooked on the stuff and not being able to get off and here I am right where I never wanted to be. And I don't want anyone to know I have a problem, they just know I take lots of pills for my Lupus and that sometimes I take alot of pain killers but they don't say anything about it because of all the stuff I have and the pills I already take. At times I sit back and see how good I felt way back when I was a kid, right I never told you my age 39, and I really wish I could go back to then and feel what it's like to really be pain free without any damn pain pills. Another thing is every year that passes by me I'm given more pills to take because of something else being wrong, I feel that at the age of 39, if I'm really to live another 10 years I'll be taking more than 30 different pills a day just to be able to live, and alot of the pills I take now are not just 1 at a time, theres several of them that I take 5 or 6 of them apiece, so it looks like I swallow close to 35-40 pills a day. Also, if anyone out there has Lupus SLE and has had really bad times with it please reply to me, I am really wanting to understand why my Lupus is the way it is and I'd love to talk to someone who really has it like me. Sorry this is so long but I didn't know how to make it shorter and say what I wanted at the same time. I could really use someone to e-mail back and forth that knows what I'm talking about and could tell me how a person could learn how to cut way back on Oxycontins and other pain pills. One thing that really makes me mad is a Dr. will give you pain pills to help you with the pain but if you end up taking more than you're suppose to then you're treated like you're a addict and I read in some of these collums where some Dr. just cut the person off totally, that should really be against the law.I'm not at this point with my pain pills because I wanted to feel high, no, I have two boys, 9 and 11 and I like spending time with them and doing things with them so I ended up taking more pills at times than was suppose to be taken just so I could get up and do things with them without all the pain with every step. I'd just like to know if there are any other people out there that share my same sort of life, not just someone who is taking their pain pill way to much to get high or stuff like that. I'm not telling any one of you people out there that are useing your pain pills to get high that you're wrong, just telling you that isn't how I got where I am, but to speak in all fairness, we're both in the same spot and I have no idea what to do from here. One more finally question and I'm finished, one thing I don't understand is, if I was to of taken to many Oxycontins or other pill and I didn't feel my heart racing like crazy or just felt a few strange heart beats every once in awhile, can a person really die? Why I'm asking this is because I had several times where I took 40mg of Oxycontin and then a short time later took another 40mg because I forgot I already took some and then remembered and I was scared and felt funny for several hours but I tried to keep an eye on my heart beat and it was never raised so I wondered how a person could really die from it if their heart was beating right. I really hope a few of you people out there read this and take me seriously and reply back with any kind of advice or with an e-mail address where I can write to for more answers or just about anything. I don't really know if I ever put it down somewhere when I registered to this site but I'm a guy and I'm 39 years old. Thanks for reading this and hope all goes good for you.[?][8]

    Maybe it get's better tomorrow, just maybe...

  2. #2
    Phospheros is offline Junior Member
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    I question the wisdom of using Tramadol on top of Oxycontin. I think you may be a good candidate for the Duragesic patch. You put it on and it delivers 72 hours of a fairly consistent dose of Fentanyl to you. No fumbling with pills. This is probably a better method for you than taking Oxycontin as you seem to have trouble keeping track of it.


    If your pain isn't stable at fairly consistent level every day, you may also need some breakthrough meds. The only thing you can really do is talk to your doctor about it. I do understand how pain is, but using 5 times your dose of Oxycontin is a problem, the kind of problem where you should have called your doctor in a bad pain spell and told him what is going on. You need to just come clean with your doctor and tell him it isn't working well enough for you. Perhaps they could give you your medicine on a weekly basis, or set you up with an infusion pump and take it out of your control if that is the issue. Taking doses higher than 400mg of Tramadol grealy increases the risks of seizures, this is a *really bad* idea. Doubling up on your Oxycontin is a bad idea. If you wont come clean with your doctor, he isn't going to be able to help you, but if you keep doing what you are doing that help will not come in the form you want it to. Do you trust your doctor or not? That is what the guy is there for. Quit playing doctor yourself and level with him, you are doing some dangerous things with your drugs.

    Perhaps you just need a powerful breakthrough med like Roxanol till you can get your hip worked on. You need to go see and talk to your doctor.





    Are you numb yet? No. AARRGGGGGHH! I told you I wasn't numb! Sorry, I didn't believe you.

  3. #3
    Kevin Borg is offline New Member
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    Hi
    my name is Kevin and i know exactly what you are going thru and the same type of meds you are on except i am on more.
    If you want to email me back i will spend some time with you and hopefully shed some light on your problem for you.

    Look forward to hearing from you, i had typed alot more however there was an error and I lost the lot when i went to correct it.

    Cheers Kev
    kbm@bigpond.net.au

    PS Good advice from Phopheros, i have been on the fentanyl patches 100um however the side effects i didnt like and plus the cost here nearly killed me let alone the meds. Plus i had to speak with my doctor as well and i can tell you from experience it might feel like a nitemare but you will be relieved after wards.
    Talk to you soon

  4. #4
    drugquestion is offline New Member
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    Try a different doctor! I know that it may be difficult to change doctors this far into your problems but it isn't too late. Your doctor sounds like that they are not doing a good job treating you as their patient. A pain management doctor / pain management clinic can work with your main doctor(s) as far as treating you for your pain. I would try to do something soon because it sounds like that you could easily kill yourself with all of the meds that you are taking. Think about your family and best of wishes to you and your family!!!

  5. #5
    stars is offline New Member
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    I hope everything works out for the better, I was diagnosed with Lupus when I was 6, though I'm doing fine now, I'm still in severe pain but without meds. Take Care!

    If you're passionate about something, go after it! Shed your ego make a fool of yourself and go at it full force!

  6. #6
    LADYRET is offline New Member
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    I am a retired nurse and first of all you do need to go see a pain management specialist! Also, the symptoms you described about when you tried to go off the drugs or cut down tells me you are addicted! See another doctor and the patch sounds like a good idea for you. You definitely have some issues with how much of these meds your taking. With the condition of your heart, I,m surprised you haven,t done some damage already. You mention you have children. Do it for them if not for yourself. You have to be honest with your physician and tell him when a pain med. isn,t doing the job. It sounds like you got into this mess in the first place because you weren,t getting your pain managed correctly, so you had to take more and more to do the job. This is how people get addicted to prescription drugs. Please get help soon!! Good luck to you and God bless you.

    Donna

  7. #7
    Caregiver is offline New Member
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    So glad to have found this site.
    Have much experience as a caregiver to my terminally ill husband.
    Decadron is a nasty drug, isn't, isn't it?
    The Duragesic patch has been a wonderful tool for pain relief but so expensive.
    Have not heard of tramadol. Could someone please explain?
    Can the oxycontin also cause seizures if taken in excess?
    I agree that one has to be honest with pain management doctor or nurse.


    l.o.

  8. #8
    Gracey is offline New Member
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    Tramadol had been the only medication that has lessoned my pain so far--but at times it doesn't work. I have Spondylolisthesis with a lateral spinal stenosis, bilateral sciatic radiculitis and a trochanteric bursitis in both hips. Major surgery on my spine to fix all those things and also to remove a cyst on the vertibrae, put in 2 discs that are completely gone (now they have a new disc on the market). The pain gets to be like being torchured by your worst enemy!!! By evening I have taken 15-20 Tramadol, and I'm scard because it doen't take out the pain like it use to. My chest has some ache in it once in a great while, but pulse is fine and bp is fine. My spinal specialist will not see me again untill I stop smoking, I just began 2 days ago with the smokers patch and gum-I want to live without worring if I can buy my medication or pay a bill, live without hiding how much meds I take and mostly live without pain!!!!! I'm 43 female and love to be very active and work hard in my garden etc activity (even just to go up stairs without tripping). And for the gal who ask if it is a anti-depressent-nope but it can give you a feeling of ahh what a nice world it is, at first.

  9. #9
    mpvt is offline Platinum Member
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    I would subjest to your doctor to stop the ultram and oxycontin (you are severly underdosed) and try ms contin for sustained pain and statex for break through.Morphine is the best pain killer and when taken prperly is quite safe although any narcotic can be addictive but it sounds like your a chronic case so the addiction is acceptable.At least that's what they told me when I went on narcotics 22years ago......Good luck..Dave

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