User Reviews for Zonisamide

Also known as: Zonegran

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Zonisamide.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Migraine Prevention 9 reviews 32 medications
   
8.0
Seizures 23 reviews 40 medications
   
7.6
Benign Essential Tremor 0 reviews 3 medications Not rated - Be the first
Parkinsonian Tremor 0 reviews 8 medications Not rated - Be the first
Summary of Zonisamide reviews 32 reviews 7.7

Reviews for Zonisamide

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Review by Seizuregrlll (taken for 6 months to 1 year):

User Rating:  
   
9.0

Zonegran (zonisamide) for Seizures: Zonegran unlike Keppra and other seizure medicines give you a natural feeling closer to a normal feeling. Some seizures still slip by for me but only when it's closer to my menstrual cycle or ovulation time, my seizures seem to be directly linked to fluctionations in my womanly cycles other than that this medicine has been the best one for me and has been a great relief to me.

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April 17, 2014 1:15 PM

Review by Childfree91 (taken for 10 years or more):

User Rating:  
   
10

Zonegran (zonisamide) for Seizures: Been on this medicine for a long time. 10 years. It decreased my seizures a lot and my headaches. Also decreased my appetite and I've lost weight which I have no problem with. Out of all seizure medicines I've been on I highly suggest this one!

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January 16, 2014 11:10 AM

Review by What memory:

User Rating:  
   
7.0

Zonegran (zonisamide) for Migraine Prevention: I took Topamax for a while and it worked wonders but the side effects were insane. However, the zonesamide works very well for preventing my migraines. I take 400 mg a day. Word finding and memory, I don't even know what those are anymore. However, I was living in constant pain. Nothing was working for me. This is the only thing that has done anything for me in years.

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January 12, 2014 1:29 AM

Review by goldilocks46:

User Rating:  
   
8.0

Zonegran (zonisamide) for Seizures: I have been taking Topirimate for complex partial seizures following my second sub arachnoid bleed in 2005 but started to lose my hair so I am now taking Zonegran and since changing over I feel very well, and the hair loss seems to be much improved and I am feeling great !

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November 25, 2013 4:37 AM

Review by Anonymous (taken for 1 to 6 months):

Zonegran (zonisamide) for Seizures: Our daughter is 5 years old and is on Zonegran for epilepsy along with other AED'S she has problems since about a week after starting Zonegran lack of memory and information processing. She is very slow now and has a hard time finding the correct words. She is also very sleepy. at this point we have actually seen a increase in seizure activity.

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October 29, 2013 1:13 PM

Review by ringa (taken for 2 to 5 years):

User Rating:  
   
7.0

Zonegran (zonisamide) for Seizures: Seizures decreased in frequecy. Partial seizures. But there was one day of uncontrollable,uncomfortable side effects or a seizure of a different type. I had trouble organizing thoughts,couldn't come up with certain words,and felt extremely hostile at times. Never want to have those feelings again. They were very strong and uncontronablle.

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October 21, 2013 1:32 AM

Review by Emily G.:

User Rating:  
   
10

Zonegran (zonisamide) for Seizures: I have been taking Zonegran, 300mg/daily for 8 years. I have complex partial seizures that generalize about 90% of the time. I have tried just about every other medication out there and this is the only one that has kept my epilepsy under control. I do have side effects: some depression, anorexia (defined as loss of appetite). I started this medication weighing around 125lbs and now after three children weigh 105lbs and can't remember the last time I was hungry, and I have noticed that it is harder for me to retain information and I sometimes have to read things twice to understand them where before Zonegran I easily understood and retained information. Despite these side effects, I won't ever try a different medication. Totally worth it.

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October 9, 2013 12:25 PM

Review by Migrainemandy (taken for 1 to 2 years):

User Rating:  
   
10

For Migraine Prevention: I started having migraines suddenly two years after the birth of my first and only child. Sought help from a Neurologist eventually when anti-depressants prescribed by my family practice Dr didn't work. My Neuro doctor started me out on Topamax first, which I had terrible side effects from: word recall was awful and I felt paranoid and edgy all the time. Zonisamide has been a game changer. So far limited side effects: some dizziness - not bad, rash on my upper arm - not a big deal. I'll take this in exchange for the life altering migraines that pretty much shut me down any day!

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August 29, 2013 10:55 AM

Review by bobbi28 (taken for less than 1 month):

For Migraine Prevention: I did experience some appetite loss at 1st, which was OK because I wanted to loss about 5 pounds-but I started gaining weight, face was puffy, while eating very little and no decrease in exercise. The worst, however, was the onset of depression and feeling of hopelessness. I was up to 100 mg a day, on it for 2-3 weeks, and stopped cold turkey. Taking Topamax, years ago, did help with headaches and I lost weight (actually too much in beginning but body adjusted) but I also lost word facility. Not good trade off so I had to go off Topamax. Help!

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April 20, 2013 2:50 PM

Review by Ridiculousness:

User Rating:  
   
2.0

Zonegran (zonisamide) for Seizures: I was on this medicine at first 200mg a day then 400mg. I turned into a completely different person. I'm normally a happy, positive & outgoing young woman. On Zonisamide I became extremely irritable & depressed. I flipped out over the littlest thing. I also lost a lot of weight because my appetite essentially disappeared. I weighed about 135lbs when I started and dropped to 113lbs. I finally had enough when the depression kicked in. I would have suicidal thoughts multiple times a day. It was scary and debilitating! I cried a lot, for no good reason. My performance at work and my relationships were suffering so I called my Dr. and switched to Lamictal.

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April 13, 2013 10:40 PM

Review by DGIII (taken for less than 1 month):

User Rating:  
   
10

Zonegran (zonisamide) for Seizures: Diagnosed- generalized juvenile myoclonic epilepsy. Completely stopped my sons seizures, he is only 14 years old.

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March 23, 2013 9:33 PM

Review by Anonymous (taken for 2 to 5 years):

User Rating:  
   
9.0

Zonegran (zonisamide) for Migraine Prevention: I don't notice any side effects compared to some of the other anti-seizure medicines.

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October 25, 2012 5:57 PM

Review by Clayzone (taken for 2 to 5 years):

User Rating:  
   
8.0

For Seizures: A little weight loss. Very good seizure control. No other side effects for me.

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June 17, 2012 4:21 AM

Review by Anonymous:

User Rating:  
   
8.0

For Migraine Prevention: I have chronic headaches (>15 per month) and tried many treatments that did not help: Botox, Topamax, and others. With zonisamide my headaches are mostly limited to just the week before my period.

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April 12, 2012 5:55 PM

Review by Still Looking:

User Rating:  
   
9.0

Zonegran (zonisamide) for Migraine Prevention: I've been taking Zonegran for a few years now at 300mg per day. It had really gotten my headaches under control to where I would only have a headache periodically. Weight loss has been a side effect that I haven't minded. The problem is I've had significant memory and focus issues. I hardly felt competent most of the time. I have slowly weened myself down to 100mgs per day (I notified my neurologist of this because its an anti-seizure medicine so you shouldn't stop it cold turkey or it could cause a seizure). My memory has improved significantly, but the headaches have returned with a vengeance. I'm back to taking narcotics to address each debilitating headache. I used to take Topamax. It too worked beautifully, but also wiped out the memory.

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January 4, 2012 5:36 PM

Review by Candler:

User Rating:  
   
8.0

Zonegran (zonisamide) for Seizures: Been using this a short while and it apparently works for me.

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December 10, 2011 8:20 AM

Review by Anonymous:

User Rating:  
   
7.0

Zonegran (zonisamide) for Migraine Prevention: On 50 mg and have seen a huge improvement in my migraines. Down to 5 per month.

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November 28, 2011 1:23 PM

Review by Sulleninspire:

User Rating:  
   
8.0

Zonegran (zonisamide) for Seizures: On maximum dose with Keppra, and still having some break through seizures. Still less then I was having before. No side effects. Had a full term pregnancy while on medication. Baby is very healthy.

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July 26, 2011 8:26 PM

Review by steph1010:

User Rating:  
   
8.0

Zonegran (zonisamide) for Seizures: I have recently been on Topamax and Keppra..both maxed out. My headaches were worst and my seizures were still happening. My doctor finally switched me to Zonagran 3 months ago. I am seizure free, headaches have been much better and I feel a lot more normal. I do have a low appetite but not to where I can't eat. I love it!

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July 4, 2011 10:03 PM

Review by Zonegran User:

User Rating:  
   
6.0

Zonegran (zonisamide) for Migraine Prevention: I have used Zonegran for headaches only. It is the only thing that seems to have lessened them somewhat, but I still have headaches and they affect me cognitively. I'm mentally slower, have word-finding problems, my memory is bad, and my attention is terrible. I've tried to go off it on occasion, but my headaches get absolutely awful, so I stay on it.

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March 30, 2011 3:42 PM

Review by Anonymous:

Zonegran (zonisamide) for Migraine Prevention: I just got put on this medication for migraines. I took Topamax in the past but side effects were way too much for me.

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March 19, 2011 8:07 PM

Review by Heather0701:

User Rating:  
   
7.0

Zonegran (zonisamide) for : My Dr. put me on Zonegran for my migraines and I was just wondering if anyone else is on this for just that? I have only been on this for 5 weeks so that is why I was curious.

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March 6, 2011 11:19 PM

Review by Anonymous:

Zonegran (zonisamide) for : Zonegran is my choice. I've been taking it since 2001. I've had no seizures since I started taking it.

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January 5, 2011 11:29 PM

Review by Anonymous:

User Rating:  
   
1.0

Zonegran (zonisamide) for Seizures: The medication wasn't helpful in controlling my seizures. It's been about five months and I have had painful migraines just about every day! One day we'll find one that works!

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July 12, 2010 10:52 PM

Review by Anonymous:

User Rating:  
   
9.0

Zonegran (zonisamide) for Seizures: No seizures while taking but have had bad bruising and constipation going on 2 years now. But I'll take no seizures over the side effects!

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July 7, 2010 7:52 PM

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