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Zonegran (zonisamide) for Seizures: I have been taking Topirimate for complex partial seizures following my second sub arachnoid bleed in 2005 but started to lose my hair so I am now taking Zonegran and since changing over I feel very well, and the hair loss seems to be much improved and I am feeling great !
Zonegran (zonisamide) for Seizures: Our daughter is 5 years old and is on Zonegran for epilepsy along with other AED'S she has problems since about a week after starting Zonegran lack of memory and information processing. She is very slow now and has a hard time finding the correct words. She is also very sleepy. at this point we have actually seen a increase in seizure activity.
Zonegran (zonisamide) for Seizures: Seizures decreased in frequecy. Partial seizures. But there was one day of uncontrollable,uncomfortable side effects or a seizure of a different type. I had trouble organizing thoughts,couldn't come up with certain words,and felt extremely hostile at times. Never want to have those feelings again. They were very strong and uncontronablle.
Zonegran (zonisamide) for Seizures: I have been taking Zonegran, 300mg/daily for 8 years. I have complex partial seizures that generalize about 90% of the time. I have tried just about every other medication out there and this is the only one that has kept my epilepsy under control. I do have side effects: some depression, anorexia (defined as loss of appetite). I started this medication weighing around 125lbs and now after three children weigh 105lbs and can't remember the last time I was hungry, and I have noticed that it is harder for me to retain information and I sometimes have to read things twice to understand them where before Zonegran I easily understood and retained information. Despite these side effects, I won't ever try a different medication. Totally worth it.
zonisamide for Migraine Prevention: I started having migraines suddenly two years after the birth of my first and only child. Sought help from a Neurologist eventually when anti-depressants prescribed by my family practice Dr didn't work. My Neuro doctor started me out on Topamax first, which I had terrible side effects from: word recall was awful and I felt paranoid and edgy all the time. Zonisamide has been a game changer. So far limited side effects: some dizziness - not bad, rash on my upper arm - not a big deal. I'll take this in exchange for the life altering migraines that pretty much shut me down any day!
zonisamide for Migraine Prevention: I did experience some appetite loss at 1st, which was OK because I wanted to loss about 5 pounds-but I started gaining weight, face was puffy, while eating very little and no decrease in exercise. The worst, however, was the onset of depression and feeling of hopelessness. I was up to 100 mg a day, on it for 2-3 weeks, and stopped cold turkey.
Taking Topamax, years ago, did help with headaches and I lost weight (actually too much in beginning but body adjusted) but I also lost word facility. Not good trade off so I had to go off Topamax.
Zonegran (zonisamide) for Seizures: I was on this medicine at first 200mg a day then 400mg. I turned into a completely different person. I'm normally a happy, positive & outgoing young woman. On Zonisamide I became extremely irritable & depressed. I flipped out over the littlest thing. I also lost a lot of weight because my appetite essentially disappeared. I weighed about 135lbs when I started and dropped to 113lbs. I finally had enough when the depression kicked in. I would have suicidal thoughts multiple times a day. It was scary and debilitating! I cried a lot, for no good reason. My performance at work and my relationships were suffering so I called my Dr. and switched to Lamictal.
17 users found this comment helpful.
zonisamide for Migraine Prevention: I have chronic headaches (>15 per month) and tried many treatments that did not help: Botox, Topamax, and others. With zonisamide my headaches are mostly limited to just the week before my period.
13 users found this comment helpful.
Zonegran (zonisamide) for Migraine Prevention: I've been taking Zonegran for a few years now at 300mg per day. It had really gotten my headaches under control to where I would only have a headache periodically. Weight loss has been a side effect that I haven't minded. The problem is I've had significant memory and focus issues. I hardly felt competent most of the time. I have slowly weened myself down to 100mgs per day (I notified my neurologist of this because its an anti-seizure medicine so you shouldn't stop it cold turkey or it could cause a seizure). My memory has improved significantly, but the headaches have returned with a vengeance. I'm back to taking narcotics to address each debilitating headache. I used to take Topamax. It too worked beautifully, but also wiped out the memory.
33 users found this comment helpful.
Zonegran (zonisamide) for Seizures: On maximum dose with Keppra, and still having some break through seizures. Still less then I was having before. No side effects. Had a full term pregnancy while on medication. Baby is very healthy.
13 users found this comment helpful.
Zonegran (zonisamide) for Seizures: I have recently been on Topamax and Keppra..both maxed out. My headaches were worst and my seizures were still happening. My doctor finally switched me to Zonagran 3 months ago. I am seizure free, headaches have been much better and I feel a lot more normal. I do have a low appetite but not to where I can't eat. I love it!
18 users found this comment helpful.
Zonegran (zonisamide) for Migraine Prevention: I have used Zonegran for headaches only. It is the only thing that seems to have lessened them somewhat, but I still have headaches and they affect me cognitively. I'm mentally slower, have word-finding problems, my memory is bad, and my attention is terrible. I've tried to go off it on occasion, but my headaches get absolutely awful, so I stay on it.
38 users found this comment helpful.
Zonegran (zonisamide) for Seizures: The medication wasn't helpful in controlling my seizures. It's been about five months and I have had painful migraines just about every day! One day we'll find one that works!
10 users found this comment helpful.
zonisamide for Seizures: Been on Zonisamide for maybe 3 years, probably more, can't remember exactly; no grand mal seizures what so ever. Try not to take it late at night though. Take 3 pills all at once, any time during morning hours, or even early afternoon. But this is the best for me, anyhow.
zonisamide for Seizures: I take Zonisamide with Tegretol and it works great in controlling my seizures. I do have loss of memory, stuttering, and itchy skin. All of these have occurred in the last year and I've been taking it for 2.5 years.
Zonegran (zonisamide) for Seizures: So far this is my choice of seizure medicines (complex partial and absence). Dilantin makes me sleepy, Tegretol and Topamax both gave me migraines. No seizures AND no headaches, yay! Zonegran does leave me a bit fatigued, and seems to lessen the appetite (but that's not really a bad thing).
20 users found this comment helpful.
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