User Reviews for Topiramate
Also known as: Qudexy XR, Topamax, Topamax Sprinkle, Topiragen, Trokendi XR
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Learn more about Topiramate.
Reviews for Topiramate to treat Fibromyalgia
Topamax (topiramate): "Topamax was a miracle drug for me! It helped with my Fibromyalgia pain & headaches. I would definitely recommend this drug. I have to stop taking it now due to the development of kidney stones. I wish I could stay on it as it improved my life by 90%. I'm a 59 year old female. I have had fibromyalgia for 23 plus years."
Burps (taken for 10 years or more) June 24, 2015
|1 users found this comment helpful. Did you? Yes No||Report as inappropriate|
"I've been on it all! Cymbalta, toparite, Lyrica and Nexium. Also, Inderal. Still am for that matter! Fibro kicks butt and I don't know which one works and which one doesn't at this point. I do know I am losing my hair and my nails are peeling off! If anyone has any suggestion as to which drug might be doing this please help! I can't find this as a reaction to any of them."
tryingitall (taken for 2 to 5 years) May 2, 2015
|0 users found this comment helpful. Did you? Yes No||Report as inappropriate|
"I do not tolerate Neurontin or steroids well. They blow me up like a balloon. Topamax, along with Cymbalta has given me excellent relief with little side effectcs. Yeah to no more invasive injections and cankles!"
lisaa s March 27, 2015
|8 users found this comment helpful. Did you? Yes No||Report as inappropriate|
"I have been on Topiramate for 6 months, I feel I have given it a good try...but the side effects are not going away. I have so many and I know it is not doing much for my pain so today I am going to have to go on yet another different med, have been on so many. The one good thing , I lost 60 lbs. but I sure suffered so bad for it. I have to go to a Pathtologist for the blisters on my tongue that the doctors figure are not caused by the medicine and yet it is listed twice as a side effect. Thanks for listening to me."
Anonymous (taken for 6 months to 1 year) March 19, 2015
|5 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Topamax (topiramate): "This medication in combination with other medicines gave me my life back. I had unsuccessful or allergic reactions to other meds that I had tried. I thank my doctor and this medicine every day for giving me my life back."
Anonymous (taken for 2 to 5 years) August 26, 2014
|32 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Topamax Sprinkle (topiramate): "Not a good fit for me. Did not alleviate my symptoms and increased thoughts of death and feeling of hopelessness. Also experienced chronic urinary tract infections."
D1954 (taken for 1 to 6 months) July 20, 2014
|10 users found this comment helpful. Did you? Yes No||Report as inappropriate|
"I have tried a lot of different medications for fibromyalgia. Some work but cause significant weight gain. This one works significantly well. I actually stopped taking it for 3 months because my I didn't have insurance, and my body felt HORRIBLE. It became WORSE AND WORSE. I started taking it again and I felt SO much better. For those of you that truly experience the extreme fatigue and pain from fibromyalgia, I strongly recommend trying Topiramate."
DogLover425312 (taken for 2 to 5 years) June 22, 2014
|29 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Topamax (topiramate): "I was on Topamax for almost a month, but I had to stop because of the painfully tingly feet. It didn't do much for my pain overall either. I was also taking it to curb my appetite and for PMDD, but my appetite was the same or worse and it did nothing for the PMDD (might have actually made it worse!). We tried this because Geodon worked well for my PMDD but suddenly stopped working after 4 years (and gave me tardive dyskinesia)."
angziety (taken for less than 1 month) September 12, 2013
|13 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Topamax (topiramate): "I was put on Topamax 2 months ago after a serious car accident that left me in a flare up of my fibromyalgia. I have not reacted well to medications in the past and have had serious reactions which lead to serious consequences to the other meds I was on. Topamax has been the only medication that I have been able to tolerate well. It does take a while for it to start working though and I have had a few side effects but none that I'm not willing to put up with and 2 of them have gone away since I have started the Topamax."
tinkerbell420 (taken for 1 to 6 months) April 27, 2013
|60 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Topamax (topiramate): "I didn't like Topamax. I became very paranoid, anxious and since I have been off of it I still have mild side effects from it. Not a good experience. Glad it works for some."
gallardond August 10, 2011
|28 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Topamax (topiramate): "This has been a wonder drug for me when combined with Cymbalta. I have suffered for years and had been on narcotic pain killers. The pain had finally gotten so bad that even those weren't working. I work in Pre-K and didn't want to give up my job to become a disabled person living at home on pain killers. I found an awesome Doctor who understood that I didn't want to live on those types of medications. After only two visits she tapered me off of the medicines I was on and started me on Topamax along with Cymbalta. That is all I take. No more pain! Life is wonderful again."
ponygal1963 April 28, 2010
|115 users found this comment helpful. Did you? Yes No||Report as inappropriate|
"I used Lyrica for six months and gained ten pounds a month. I have been off of the Lyrica since April and have only lost 15 pounds. Recently started 100 mg of Topamax at bedtime and this is the answer! It actually will encourage the body to shed weight and have lost six pounds. Pain has gone from an intolerable 7 or 8 on the pain scale to about a 3. This is what I have been praying for."
W.Wikoff November 23, 2009
|36 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Learn more about Fibromyalgia
Micromedex® Care Notes:
Related encyclopedia articles:
Symptoms and treatment for:
Mayo Clinic Reference:
More about topiramate
- Topiramate extended-release capsules
- Topiramate sprinkle capsules
- Topiramate (Advanced Reading)