Also known as: Topamax, Topamax Sprinkle, Topiragen, Trokendi XR
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Topamax (topiramate) for Seizure Prevention: This medicine was great in taking care of seizures but I honestly felt like I was crazy most of the time. I lost weight which I was happy with but when it comes to the final review, I was a crazy, small person. I couldn't even call an order in on the phone because I couldn't think fast enough, I went back to my doctor and ask him to take me off this.
Topamax (topiramate) for Bulimia: I've tried Prozac and Effexor. I'm back on Topamax because it seems to be the only medicine that works for me. I never thought my bulimia would get this far, I'm 22 and I've been bulimic since I was 14. I'm done university, and it's been the hardest thing I've had to go through. I've had trouble finding a job and leading my life in the right direction...I wish this medication was sought out more for bulimia.
topiramate for Bipolar Disorder: I have been on this since June of 2012. I love the balance. No side effects for Bipolar Disorder. No up and down. No weight gain. No tossing and turning. Helps with sleeping all night. .
topiramate for Migraine Prevention: So far am on 125mg x 2 a day and have found topiramate to be rather effective. Experience a little grogginess, tingling in fingers and toes, and have lost just over 2 stone from 12 st 6 to 10 st 3lb ish. Can up my dose one more time to 150mg x 2 per day if start having recurring migraines again and then going to have to look for alternative treatment..at the moment suffering from around 4-5 migraines per month from 3-4 per week.
Topamax (topiramate) for Bipolar Disorder: I only took this drug for 3 days before ending up in the psych unit from a psychotic episode. I had never had one before, mind you. My Dr. warned me, also, when he gave me the Rx, to watch for symptoms of such an episode. He did not go on to tell me specifically what those symptoms would be like and I had no idea what this could entail. He said the drug had/has been known to cause these episodes. Just telling me to watch for symptoms though...by the time I starting having the symptoms, I was too paranoid to be able to do anything about it or even realize what was happening since I had never had such an episode. It was the scariest thing I've ever experienced in my life and I still have nightmares and anxiety about the things experienced in my head and thoughts during the time of the episode that lasted for 2 weeks, even while in the hospital. I would love to sue the pants off the makers and that doctor, who, by the way, when my mother called my doctor for help, he stated "Since she won't talk to me, I am not her doctor anymore as of this moment." I wouldn't get on the phone because I was in the middle of a psychotic episode and thought everyone was trying to kill me. Great doctor, huh?!
DO NOT TAKE THIS DRUG!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Topamax (topiramate) for Migraine Prevention: I have taken Topamax for about 5 years I take 100 mg in the morning 100 in the afternoon and 200 more mg at night I almost never have a migraine.I used to have one 4 out of 7 days a week. I don't have any side effects not even drowsiness.
topiramate for Migraine Prevention: I got Topamax about 4 months ago and it has been amazing completely changed my life! I hate reading these blogs and tags that's say do not try this it is horrible the side affects are horrible it'll ruin your life! Side effects are different for everyone you don't know how it'll react with your body, these blogs and stuff stopped me for a long time from taking Topamax and it completely saved my life I haven't gotten a migraine in 4 months! And I used to get migraines 5 days Of the week! It truly works amazing for me! Yes soda tastes horrible but I think it's a good thing all I drink is water now I have a healthier life style! I have lost some weight! I do get tingly feet and hands but it's nothing you can't deal with it goes away pretty fast
Topamax (topiramate) for Migraine Prevention: I have been on Topamax now for 2 years. I reached a breaking point where I almost lost my job because I was calling out of work so much with 3-4 (sometimes 5) migraines a week. I was initially annoyed because I wanted it to work immediately, but I still had migraines. You have to titrate the dose up 25 mg a week. I initially went up to the recommended 100 mg, but I hated the "loss of words" feeling I had, and found that I had about 1-2 migraines a month. So I decided to go back to 75 mg and see what happened. I had less loss of words and finger tingling, and yet my amount of migraines stayed at 1-2/month. This has been a lifesaver for me. I don't know what I would do without it.
11 users found this comment helpful.
Topiragen (topiramate) for Seizure Prevention: I have been on Topiragen since about 2004/2005. It is now 2013. I have been on 100mg and just recently been increased to 150mg. I have been epileptic most my life. Topiragen is fantastic. As long as I take care of myself and take it properly I hardly have any issues. It was increased but only because I am overly stressed so I am having more issues with my myclonics. Also, and very important...I took this while I was pregnant. I did slack off on taking it since it was a new drug at the time. My son does have Aspergers (not medically diagnosed..he was diagnosed by the state of Iowa -AEA) I did try to breast feed but after 2 wks my breasts stopped producing milk. Idk if it is connected.
Topamax (topiramate) for Migraine Prevention: I was prescribed Topamax as a preventative migraine med. It was effective in significantly reducing migraine. However it gave me insanely severe sinus/hayfever symptoms. I couldn't leave the house because my nose was running like a tap. I was sneezing all the time and totally stuffed up. I got all the other usual digestive upset side effects, but I could live with those as they seemed to reduce as time went on whereas the sinus problems intensified.
topiramate for Migraine Prevention: I've been taking 150mg 2x a day for approximately 3 years and it's now time to call it a day. I just can't deal with the permanent exhaustion, lack of words when I'm speaking, memory loss and I still get migraines! I've dropped the 25mg tablet from my original 75mg dose (now on 50mg morning and 75mg evening) and I cannot believe how much the "fog" has lifted. I am just so happy, I could cry. I already feel like some of the confusion has started to clear and for the first time in ages, I can see and think clearly. My aim is come off this medicine completely and find another way to tackle the migraines. Here's hoping! Best wishes to you all.
Topamax (topiramate) for Migraine Prevention: I began taking Topamax about a year ago after suffering from weekly migraines since age 15. I increased the dose to 200mg a day before it seemed to be a therapeutic dose for me. My migraines reduced a lot for a long time but I also do not drink alcohol, caffeine, or eat chocolate, cheese. The last few weeks my migraines are back with great intensity. One lasted 4 days. So I will be going back to my doctor. Topamax did not affect my appetite at all. I get occasional tingling.
Topamax (topiramate) for Migraine Prevention: Your experiences helped me a lot. This is my 3rd day on Topamax at 25mg at bedtime and the only side effect I'm experiencing is nausea. I'm also looking forward to the weight loss! Would love to lose 15 pounds.
Review by comon' MOM ! Remember? (taken for 2 to 5 years):
Topamax (topiramate) for Migraine Prevention: The side effects outweighed the Wonderful absence of migraines. I did not remember most things I was told. I couldn't remember words, was in a constant fog, hardly smiled or laughed anymore. After I get over these odd "withdrawal" symptoms all will be back to normal.
Topamax (topiramate) for Migraine Prevention: I'm on day 4 of 50 mg of Topamax, and am supposed to up it to 100mg on the 7th day. I've not had a migraine but the side effects are draining me. I have headaches almost everyday and they usually turn into a migraine. But so far in the 4 days on Topamax I've only had to take one triptan and it worked ASAP. I hope I can hang in there. I'd like to lose some weight too!
Topamax (topiramate) for Fibromyalgia: I was on Topamax for almost a month, but I had to stop because of the painfully tingly feet. It didn't do much for my pain overall either. I was also taking it to curb my appetite and for PMDD, but my appetite was the same or worse and it did nothing for the PMDD (might have actually made it worse!). We tried this because Geodon worked well for my PMDD but suddenly stopped working after 4 years (and gave me tardive dyskinesia).
topiramate for Migraine Prevention: Just started Topiramate August 2 2013. I've had migraines for 33 years. Imitrex works unless, like now, I'm a stress-monkey. I was having 2-3 migraines per week. Doc started me on 50 mg. Slowly working up to maximum dose over 30 days. I didn't like the 1st 3 days. Feel disoriented, dingy, irritable. I've lost 8 lbs in 3 weeks which is fine since my weight contributes to my hypertension which contributes to my migraines. My doc & I plan to take me off Topiramate as I lose weight & get healthier. Right now I can tolerate the negatives.
Topamax (topiramate) for Migraine Prevention: My migraines are primarily abdominal, but I get daily 'tension" type headaches as well. But my nausea "attacks" are totally debilitating and the headaches get more so every day. I took Topamax starting at 25 mgs then increased. I noticed it really helping my symptoms, way less nausea, headaches stopped and I could sleep well. Unfortunately, I am one of the people who react with a rare side effect of an acute onset closed angle glaucoma attack and my vision got very blurry and got so bad I could not see anything but blobs if it was more that 12 inches from my face. If you get blurred vision go to the ER and show them the letter from the Topamax website, because ER had never heard of that reaction. I gave it a 5 because it worked until then.
12 users found this comment helpful.
topiramate for Migraine Prevention: Head injury, migraines with neuralgia. Topiramate was very key in my pain recovery. Amazing results, curious about anxiety attacks, or panic rapid uncomfortable feeling occasionally after taking, lasts about 20 minutes. Then just goes away.
Topamax (topiramate) for Migraine Prevention: At first this medication impaired my ability to drive a lot. My depth perception was way off making it very dangerous for me to be on the road, over time I did notice my migraines were less often and sometimes I would get all the symptoms of a migraine (light sensitivity, nausea) but no pain, kind of like a ghost migraine, which was weird and inconvenient. For the most part I think this medication is worth a try. I am currently on 25mg.
15 users found this comment helpful.
Topamax (topiramate) for Migraine Prevention: I have been on Topamax for 13 years now and cannot live without it. Before the doctor prescribed it for me I was in the hospital at least 4 times a year for 2 to 3 days. I have not even been to the emergency room for a shot since I have stared taking it. I take 50 mg morning & 50 mg at night. I did not lose many pounds and the side effects did not bother me at all. I would suggest anyone with severe migraines to give Topamax a few months before giving up on it.
23 users found this comment helpful.
topiramate for Migraine Prevention: This medication has been a life saver for me. After the initial side effects of tingling hands and feet, funny tasting carbonated drinks, loss of words, which lasted only a couple of weeks and a massive weight loss of 30kg (60lb approximately) everything settled down nicely.
I have been taking Topamax for over two years now with no problems whatsoever and in those two years have only had one migraine that was not nearly as bad as what I used to experience.
For me, this is the best medicine I've ever been prescribed.
Topamax (topiramate) for Seizure Prevention: This is for the Newbies out there. I started this medication when I was 15. Had my first seizure few days before before my 15th birthday. The first side effect you will experience is sleepiness, don't fight it. Let your body get a nap between 1-3, which I found to be the best time. I sleep for 1 hour and still can fall asleep at night. I am 21 now. Some advice to you, whenever you don't feel like eating I found that sweet tea gets me hungry, find that X factor in you. The weight loss is insane. I lost 40 pounds in 6 months just by breathing. Now, sleep patterns are important. If an average person needs 8 hours you and I need 9-10 MINIMUM also try to take the dose at the same time every day, you will fall asleep faster. Hang out to see sunrise.
15 users found this comment helpful.
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