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User Reviews for Topiramate

Also known as: Qudexy XR, Topamax, Topamax Sprinkle, Topiragen, Trokendi XR

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Topiramate.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Diabetic Peripheral Neuropathy 6 reviews 41 medications
   
8.2
Bipolar Disorder 56 reviews 46 medications
   
7.5
Tourette's Syndrome 2 reviews 12 medications
   
7.5
Seizure Prevention 37 reviews 32 medications
   
7.2
Obesity 34 reviews 54 medications
   
7.2
Trigeminal Neuralgia 7 reviews 9 medications
   
7.1
Bulimia 7 reviews 7 medications
   
6.8
Migraine Prevention 260 reviews 32 medications
   
6.7
Fibromyalgia 18 reviews 20 medications
   
6.4
Vulvodynia 2 reviews 9 medications
   
6.0
Crohn's Disease 0 reviews 65 medications Not rated - Be the first
Smoking Cessation 1 reviews 19 medications Not rated - Be the first
Summary of Topiramate reviews 430 reviews 7.1

Reviews for Topiramate

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Topamax (topiramate) for Bipolar Disorder: "I had extreme vision changes, loss of memory, extreme depression with long crying spells, anger, and suicidal thoughts. I have tried it at 3 different points in my life and have had the same experience each time...NOT GOOD. I tried the medication 3 times because the doctor and I thought that perhaps the side effects were from a mix of other medications I took with the pill. I did have weight loss but it was not worth it at all. I could barely drive and soft drinks (although not really important) tasted amazingly disgusting. I had no warning about all of the things I might experience and it was horrible trying to teach middle school, raise two young children, do daily tasks, and drive. I've had friends get divorced due to side effects."

   
1.0

Been there and done that (taken for 1 to 6 months) August 3, 2015

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For Diabetic Peripheral Neuropathy: "I've heard so much about topamax and was given it for nerve pain I have heard that its infamous nickname is "dope-amax" which I find hilarious but have fortunately not experienced yet thank God! I have however, coined another nickname for it: "skinnymax" as I have been taking it one week and am wasting away on it! I have to make myself eat. My pain management doc put me on it because Lyrica and Depakote caused weight gain. I wasn't fat to begin with. Just didn't want to go down that road. I'm currently on 25mgs bid. The only other side effect besides loss of appetite is mild drowsiness. I am 5'2 and last I weighed in at 115. I haven't weighed but if I go below 105 I will have to stop. Still it is a great drug!"

   
7.0

stit60 July 29, 2015

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For Obesity: "I just started this medication today but my mom has been on it for about 6 months and has lost 60 pound and have had no side effects so hope I get the same results"

   
10

Mrs. Ray (taken for less than 1 month) July 29, 2015

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Topamax (topiramate) for Migraine Prevention: "I've had migraines since kindergarten. They have become increasingly debilitating in adulthood and sometimes I would average 15 headaches per month! My life revolved around my migraines. I tried everything to stop them. When my doctor talked to me about Topomax, I was thrilled. It took me two years to get to a dosage that managed the headaches and auras but now the only time I get a migraine, it's weather related. I use Relpax to relieve it. Topomax has been a God send for me!"

   
10

PattiPLante July 25, 2015

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For Migraine Prevention: "I have suffered from debilitating migraines for years and have tried to take different medicines and avoid triggers and nothing worked until I used topamax... so it seemed. I've been on a 100mg dose for about 6 months and am currently weening off it because I would rather die of migraine pain than live with the side effects of this terrible drug!(yes i know thats a big statement) However because of this drug at the young age of 18 I have been dissolved into an 80 year old woman. I cant remember anything, I went from an A to a D in math, I will completely forget life events and how I got places even when I was the one who drove, I am constantly dehydrated, yet always have a strong urge to urinated causing me to wet the bed..."

   
2.0

evsarah July 25, 2015

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Topamax (topiramate) for Migraine Prevention: "I started taking Topamax 12 years ago after one of my migraines sent me out of my classroom & into the ER. After the initial few weeks of disorientation, halo vision, & tingling/numbness, my body adjusted to the meds & I had almost 10 years of maybe two headaches per year. A miracle! When menopause hit, my migraines came roaring back with a vengeance. But I stayed on Topamax & my neurologist added other meds to supplement. Things are better now; Topamax has been a lifesaver for me. But it takes some time to let the side effects settle out & for your doctor to tweak the dosages."

   
10

Palmyra July 23, 2015

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Topamax (topiramate) for Migraine Prevention: "I have suffered from severe migraines since I was 15 and the older I got the more severe they got I have been on numerous medications over the years but 5 years ago I found a neurologist that gave me Topamax and my life has changed completely 50g in the morning and 50g at night and I don't get any anymore I had a few at the start but haven't had a headache now for a few years thank God for Topamax"

   
10

Gerardene July 22, 2015

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For Migraine Prevention: "I got migraines nearly everyday for around 6 months, I tried lots of different drugs, monitoring blood sugars and cutting out certain foods. One day I was prescribed this to take twice a day. I read lots of reviews about side effects the only ones i got were tingly hands/feet and for diarrhea. But I could cope with that and have not had a Migraine ever since best thing I was prescribed and would recommend."

   
10

ShanHan (taken for 1 to 2 years) July 20, 2015

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For Migraine Prevention: "I started taking 25 mg about a year and a half ago I got up 200 mg once a day I found in the beginning my hands would tingle I had bitter a taste in my mouth but overtime that went away it did help with weight loss I lost about 10 pounds. I didn't experience any hair loss in the beginning I had trouble remembering things but it eventually fades away and you're back to normal at least for me . I believe this drug does work specially if you have migraines."

   
8.0

Nikave (taken for 1 to 2 years) July 19, 2015

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For Seizure Prevention: "I've been on 50mg twice a day for two weeks. Started on 50mg once a day. My seizures are only once a year, but my last one was so severe, my neurologist said it was time to treat. I also suffer from chronic migraines, so this medicine is serving a dual purpose for me. I was reluctant to start this medicine, as I've read about all the terrible side effects. For ME, the side effects have been minimal. The biggest side effect I have experienced is fatigue, but it is nothing I can't manage. From time to time, I feel a pins and needles sensation in my feet/toes, but it's nothing more than annoying. Sometimes, I feel a little "brain fog," but that seemed to diminish after the first two to three weeks."

   
10

LARE999-410 (taken for less than 1 month) July 18, 2015

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For Migraine Prevention: "This medicine has changed my life I've been suffering with chronic migraines since I was 2 years old all the females in my family suffer with them over tired every Medication But finally my nuro finally put me on this I have been on 50 mg now for 3 weeks and it's the first time in 23 years I have gone this long without one migraine !! I do have some weight loss a plus for me and some tingerling in my feet but if you eat at least 2 bananas a fm day this really helps and make multi vitermins"

   
10

Metoyou777 July 16, 2015

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Topamax (topiramate) for Migraine Prevention: "At first it seemed to make the migraines not so unbearable. The weight loss was nice too! It did make me drowsy at first. I also couldn't think straight and find the right words. I saw light trails esp at night. But I struggled through for a few years thinking I would get over the side effects. Ultimately I didn't think the benefits were worth the side effects. Everyone is different."

   
5.0

Romababy July 15, 2015

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Topamax (topiramate) for Migraine Prevention: "It help with less migraines but I lost a ton of weight I usually was at 130-135 but Topamax I was at 112-115. I never had an appetite"

   
5.0

Anonymous (taken for 6 months to 1 year) July 14, 2015

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For Obesity: "I started on this medication on July 7th 25mg at night for weight loss, the 1st night wasn't to bad, now when I take it at night I can't sleep. I just started today on twice a day some of these reviews scare me to the point that I'm not sure if I want to continue taking this. I don't have memory loss and don't want it and surely don't want my hair to fall out."

   
6.0

maw-maw July 13, 2015

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Topamax (topiramate) for Migraine Prevention: "While on Topamax, I lost my ability to think straight. I couldn't process things the same way. I couldn't even finish my sentences. I would start talking and would forget the words that came next. My friends and family would have to help me finish my sentences. After getting off the medicine, I could finally finish my thoughts again. However, I feel like I still cannot learn as easily as I did before I got on the medicine. I think it changed my brain processing capability. I have talked to a friend who had the exact same problem on this medicine. I would not recommend it unless you actually cannot live without it."

   
1.0

Caseyyyyy July 11, 2015

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Trokendi XR (topiramate) for Seizure Prevention: "A little over 2 years ago I was involved in a MVA, and sustained a traumatic brain injury. My neurologist put me on Trokendi XR for 2 reasons - to prevent seizures and migraines. Prior to the accident, I had always been a fairly healthy 5'7 160 pounds and worked out almost daily, and generally are very healthy. After the accident I became almost sedentary, depressed and suicidal. I had gained over 35 pounds but I honestly didn't much care. The Trikendi XR and the Adderall (prescribed to assist with the severe ADD caused by the brain injury) has helped me lose weight along with proper diet and minimum exercise. My seizures have gone from major, grandmal to pseudo-seizures to seldom, and my migraines have gone from daily to about 4 per week."

   
10

Shakennotstirred (taken for 2 to 5 years) July 8, 2015

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Topamax (topiramate) for Seizure Prevention: "I've been on Topiramate now for 3 yrs after switching from Lamotrogine, on which I had a full-on epileptic seizure. My experience on Topiramate however has been fine. I lost weight like others seem to have, but have since put it back on. I surrendered my driving license for a year after the seizure but have since got that back. I carry out my job with ease as well so really can't complain there. The only issues I've had are the side effects of tingly hands and feet, sudden dizziness, becoming very, very tired all of a sudden - and more recently - losing my train of thought, getting confused easily and being unable to focus. I've noticed this mainly happens though when I'm bored and have nothing to do. When I'm busy, all works well."

   
9.0

Rebecca13 (taken for 2 to 5 years) July 6, 2015

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For Obesity: "I have been on 50mg of Topirimate for just over a month now and have had no weight loss. I am very disappointed. I suddenly gained 12 kilos last year due to medication and now weigh 55kg which is heavy for me. I want to lose 7kg to get back to my normal weight. I don't know whether to up my dose? Everyone seems to lose weight instantly?"

   
5.0

Sugarskullsweet66 July 4, 2015

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Topamax (topiramate) for Migraine Prevention: "I've had cronic migraines since I was 14 and I was put on topamax at 16 at 50mg I've been on it for 4 years now and its worked great for me until recently when I delt with the loss of my father and started experiencing light head aches so my doctor upped me to 100mg, 50mg in the morning and 50mg at night and I haven't gotten a migraine since. Its also helped me as a mood stabilizer too, I would recommend this medication if over the counter drugs aren't working for your migraines it really does wonders"

   
9.0

Ashh July 1, 2015

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For Seizure Prevention: "I'm happy with this drug. I've tried many epileptic drugs over an 18 month period which did not work for me. My doctor prescribed me Toprimate for my seizures. I've been taking 25mg per day for 2 weeks then increased to twice per day for 2 weeks and now I'm on 50mg, twice a day. I've not had a seizure in over a month which I'm very happy about! The negative side effects I get are blurred vision, clumsiness, headaches and tingling in my hands and feet. I was hoping to lose some weight as I read some reviews on the Internet on how Toprimate helps with weight loss- but I haven't experienced any Weightloss yet. Maybe it's because I'm on a very low dosage. I'll have to wait and see."

   
8.0

AshRose June 27, 2015

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Topamax (topiramate) for Migraine Prevention: "I have awful headaches on the daily and was so happy when my doctor prescribed me something that could lessen them. I was very optimistic and wanted it to help. This medication did not get rid of the headaches but I experienced some of the worst headaches ever while on this drug. I felt alright during the day, but once evening time rolled around I was so grouchy, so moody, tired, and my head was throbbing. I kept taking the medication because I just thought it needed time to "make its way into my body." Finally, I said enough is enough and asked my doctor if I could stop taking it. I have not taken a pill in two days and am still experiencing the awful migraines. I am so miserable and have not felt like myself for a week and a half."

   
1.0

tpickk (taken for less than 1 month) June 27, 2015

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For Obesity: "I was taking 400mg daily for chronic migraines, depression, and weight loss. It's very important to build up slowly otherwise the side effects can be extreme. I lost around maybe 50lbs while on it. When I got up to 300 - 400mg I started to have memory problems and sleep issues. After a while I felt like it had stopped working and dropped it, but that could have been from me forgetting to take it (memory issues remember). It takes a few weeks to a few months for the side effects to fully wear off. I started at 235 or 245, and went down to 185. I'm now back up to 200. I haven't exercised in years, and I didn't change my diet (I probably don't eat as healthy as I should)."

   
8.0

TwixMix (taken for 6 months to 1 year) June 26, 2015

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Topamax (topiramate) for Fibromyalgia: "Topamax was a miracle drug for me! It helped with my Fibromyalgia pain & headaches. I would definitely recommend this drug. I have to stop taking it now due to the development of kidney stones. I wish I could stay on it as it improved my life by 90%. I'm a 59 year old female. I have had fibromyalgia for 23 plus years."

   
10

Burps (taken for 10 years or more) June 24, 2015

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For Migraine Prevention: "I've been taking Topamax since 1/2015 for Migraines suggested from my Doctor. She said it was a little pricey. If you don't have insurance I would recommend websites where you print out coupons and take them to the pharmacy they saved me $188.00 for Topamax ! No kidding. Anyways. Topamax works good. I did loss 7 lbs my 1st week, I ended up losing a total of 20 lbs in 3 mos. been steady since. I'm still taking Topamax 6mos later. I'm looking into other options as I can not take the Side effects, loss of hair, tingling of my Feet, hands, legs,, face, odd places on my body, mood swings, I'm very irritable, I don't recognize myself. I need a change."

   
8.0

Cynthia623 June 24, 2015

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Topamax (topiramate) for Bipolar Disorder: "I was diagnosed with bipolar depression about a year ago. I have been on topamax for that as well as migraine headaches for 8 to 9ish months now. The migraines went away, and I have lost about 40 pounds since taking Topamax! The only downfall is hair loss. I highly warn anybody taking this drug not to miss a dose or try weaning yourself off, because I have done both and ended up with very bad mood swings and will be crying on the floor one minute, then raging and angry, then it will be as if nothing happened."

   
7.0

Karley (taken for 6 months to 1 year) June 23, 2015

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