Skip to Content

User Reviews for Topiramate

Also known as: Qudexy XR, Topamax, Topamax Sprinkle, Topiragen, Trokendi XR

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Topiramate.

Filter by:
Condition DownUp Reviews Compare Avg. Ratings DownUp
Diabetic Peripheral Neuropathy 6 reviews 40 medications
   
8.2
Tourette's Syndrome 3 reviews 12 medications
   
8.0
Obesity 81 reviews 60 medications
   
7.7
Bipolar Disorder 69 reviews 33 medications
   
7.5
Bulimia 8 reviews 7 medications
   
7.0
Seizure Prevention 43 reviews 32 medications
   
7.0
Trigeminal Neuralgia 9 reviews 9 medications
   
7.0
Migraine Prevention 329 reviews 32 medications
   
6.4
Fibromyalgia 22 reviews 20 medications
   
6.4
Vulvodynia 2 reviews 9 medications
   
6.0
Smoking Cessation 2 reviews 19 medications
   
2.0
Summary of Topiramate reviews 574 reviews 6.6

Reviews for Topiramate

Sort by:

For Obesity: "I was prescribed topiramate for daily post-concussive headaches, and I also needed to lose weight. The first three weeks were really rough, and I was unsure if I could take this medicine long-term. I started off with 25mg the first week, 50mg the second, 75mg the third, then 100mg as my permanent dose. I took it before bedtime as instructed, but I had next day drowsiness so bad that for three weeks I felt like I was going to face plant at any moment. Also, the nausea was so bad that I barely ate. Thankfully, both of these side effects stopped after about 3 weeks as did most of my headaches. I've also lost 22 lbs in 2 months. The best part is that it has given me control back in that I eat smart and don't have unhealthy cravings."

   
10

LoveThisMed (taken for 1 to 6 months) April 30, 2016

1 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "I was on this medication for five months with initial astounding results. My dosage was 125 grams. My daily headaches ceased as did my migraines. However, at around the four month mark, both came back to haunt me with a vengeance, seemingly doubling pain and severity. I also began experiencing tingling in my hands and numbness in my face, a totally unpleasant and unforeseen side effect that I only discovered by exploring online forums reviewing the medication. Additionally, this medication severely affected my anxiety and also led me to have extreme suicidal ideation, so much so that I had to stop altogether. I lost 15% of my total body weight whilst on this medication. If possible, avoid if you have a history of anxiety or depression."

   
1.0

trapqueen shawty (taken for 1 to 6 months) April 29, 2016

2 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "if you have anxiety or depression DO NOT i repeat Do NOT take this medication i was only on it a couple weeks but for two weeks it made me so anxious and so depressed i wanted to kill myself. this drug made me suicidal luckily there was no self harm but i would strongly advise against it!"

   
1.0

GodsGirl4595 April 27, 2016

2 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "Besides the tingling in the feet and hands or weight loss, I can't think of any other side effects I've had. This was an absolute miracle drug for me for the first two months I was on it before a string of horrible tension headaches started to ruin its effectiveness. My neurologist just increased my dosage. I was taking 100mg once a day. I'm now at 150mg. I'm in a size of jeans I haven't thought about for almost 20yrs. I did find that drinking more water cuts down on the tingling, too."

   
7.0

tsj (taken for 1 to 6 months) April 26, 2016

1 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "Was given this for headaches and spent first three days sitting in the back of my closest crying. I couldn't stand noise, more than normal, couldn't stand, light, couldn't stand anything touching me. Felt like my fingers and toes were on fire. Would've rather had the headaches. I drank so much water trying desperately to flush this from my system and refuse to take the fourth dose. Not the medicine for me."

   
2.0

Cdgcarlson (taken for less than 1 month) April 24, 2016

1 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Obesity: "In 2 days I've lost 4 more pounds on this drug! I couldn't be happier."

   
10

Camb (taken for less than 1 month) April 22, 2016

8 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "I have been taking Topimax off and on for 10 years. After having cancer and eventually neck surgery I had severe head aches. I was finally prescribed Topimax. I started at a low dose. My neurologist kept upping my amount until we found the right amount I needed to work for me. It is a miracle drug for me, I tried everything! Nothing else worked for my head aches. The weight loss is a great bonus! The side affects do go away, I say trry it, you can always stop taking it if needed. I am currently at 300 mlg daily. I just started again wish me luck!"

   
6.0

Anonymous April 20, 2016

1 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "I only used this drug once because I had such a negative experience. I was prescribed this to prevent migraines and headaches, I took my dose at night. It immediately made me drowsy which I didn't mind because I also have severe insomnia, but when I woke up I was still drowsy and continued to be throughout the day. I was also the hungriest I have ever been in my life and I had a headache. It took 2-3 weeks to fix my appetite after taking this drug only once."

   
1.0

ihavemigraines (taken for less than 1 month) April 20, 2016

2 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "I had been Honorably discharged from active duty, and from the time I got out I had experienced Migraines on almost a daily basis's. I went to a neurologist after trying home remidies and using Exedrin Migraine, and he put me on Topiramate 50mg twice daily, but my body metabolized it to fast, causing my head to be very painful. Also the first day I took it, I had a pain in my head that woke me from REM sleep, my wife said I was screaming in pain while sleeping. He recommended Trokendi XR 100mg Extended Release. Since I have been on Trokendi, my head hurts daily a little with a slight tingling pain which my neurologist says is normal. I have migraines on a rare occassion."

   
7.0

Anthony0001 April 19, 2016

2 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Topamax (topiramate) for Migraine Prevention: "I didn't use it long enough to see if it would prevent my monthly migraine but I wanted to share the side effects I experienced. I started with 25 milligrams twice a day for 7 days and felt ok but did experience some tingling in my feet and fingers. Then I increased to 50 milligrams twice a day per doctor's order and things really changed. I started having the craziest dreams every night. Tingling was very pronounced every day in feet and hands. I couldn't get out of bed easily. I felt very lethargic and really like a zombie. I kind of had a flat affect and felt very robotic at times. Other times I was very depressed and irritable or even angry. I stopped taking it. Also was hungry all the time. That was not normal for me at all."

   
5.0

DDIndiana (taken for less than 1 month) April 13, 2016

7 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "I was put on Topiramate 50mg to control almost daily migraines. It didn't work at that dosage so my doc increased to 75mg after 2.5 weeks which stopped full-blown migraines but I was still getting threats (migraines started and lasted 1/2 an hour then went away on their own). No weight loss except for what I was already losing (2 Lbs/week from my normal daily exercises). When I first started on Topiramate I couldn't think straight and couldn't remember some words so I immediately started taking it at night only instead (with my dr's approval) and that got rid of all of those problems. I was EXTREMELY hyper on 50mg per day. I'm talking EXTREMELY!!! But as soon as I switched to 75mg the hyperactivity stopped. Moving to 100mg tonight."

   
9.0

Kris_ty (taken for 1 to 6 months) April 12, 2016

1 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "I believe a lot of the negative side effects can be attributed to lack of food and water. Once I started to eat and drink (even though I didn't feel like it) the foggy brain, dry eyes and other side effects went away (I am still loosing weight though :) ) and still no migraines. I also split my dosage 50 mg morning and night and this has also help minimized side effects."

   
10

NLJ (taken for 1 to 6 months) April 12, 2016

2 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "I believe alot of the negative side effects are caused from not eating or drinking. Once I started to eat and drink water foggy brain and unpleasant side effects went away (I am still loosing weight though :) ) and still no migraines. I also split my dosage 50 mg morning 50 mg at night, this has helped minimize side effects."

   
10

NLJ April 12, 2016

2 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "Medicine from hell. It will wreck your life. Dont do it."

   
1.0

lyfesaquarium (taken for less than 1 month) April 9, 2016

2 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "I was put on 25mg twice daily of topiramate. I had horrendous side effects, I managed to take this drug for 2 weeks however after the first week I had to decrease my dose to 25mg as day as I hadn't slept properly for nearly 4 days. I completely lost my appetite. I had terrible mood swings and irritability. I found it extremely difficult to concentrate and struggled remembering things. My doctors told me to persevere with this drug as I wasn't getting migraines with the 50mg dose but couldn't tolerate the side effects. After being on 25mg for a few days I woke up one morning and near enough collapsed and felt very unsteady on my feet, went to see my doctor and they took me straight off it due to a bad reaction."

   
1.0

Joymariexxx (taken for less than 1 month) April 6, 2016

1 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For : "I tried the 25mg dosage for atypical facial pain after being unable to tolerate several other anticonvulsants. No side effects and it calmed the pain - but the relief only lasted 6 hours at the most per day then the pain returned with increased intensity until the next dose the following day. One week of that was enough. The Extended Release (XR) did not work for me but changing to topiramate twice a day has, thus far, been a significant improvement!"

   
2.0

LBBrowne April 5, 2016

0 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Topamax (topiramate) for Migraine Prevention: "I am taking 25mg in morning. Working up to 100mg over few weeks going up 25mg every 2weeks, iv only been taking it 4days and tbh only thing I've noticed was first day felt rough but since I've felt the odd nausea no other side effects, maybe because I've been so busy haven't noticed them, I'm actually lookin forward to upping dosage, I want to prevent migraines I dunno why I didn't go get help sooner I've suffered for years, but to me being overweight I'm also hoping itl help with the weightloss I've been struggling to lose for over 4yrs I'm fit and healthy and regular exercise and healthy eater yet can't shift so hoping this helps"

   
4.0

clog April 2, 2016

5 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Topamax (topiramate) for Migraine Prevention: "I take 25mg in the morning and 50 at night. Within the first two weeks of taking it, I tried to commit suicide, I was fighting major depression at the time too. By week four the feeling went away. Took 2-3 months for the fingers and toes to stop tingling but I had that in the toes any ways from nerve damage in the back. They increased my evening dose and within two weeks again I tried to commit suicide again. This time twice in one week and within a month I stabilized again. My doctor will not raise it anymore even though I just begged her to, it's only day 7-21 that I need to be watched and the last time, I called my sister to take me to the hospital the second attempt.I didn't lose weight on it."

   
8.0

lunarminx (taken for 1 to 2 years) March 31, 2016

3 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "Horrible drug. It did not prevent my migraines at all, and I had aweful side effects. Nausea, fuzzy thinking, tingly hands, and feeling overall sick the whole 4 weeks easing on and two weeks easing off. Not worth it. I'm back to Amitriptyline ."

   
1.0

Bethvs March 29, 2016

3 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "Extremely effective. I had been non-functioning for a while and this drug was a dream. The complete turn around made me tolerate things I shouldn't have and turn a blind eye to some important side effects. I ended up staying on it for about 2 years before my weight was stuck between 125 lbs and 128 lbs (I am a 6ft tall woman!), my morning 5-8 mile run had completely disappeared and I would have liked nothing more than to curl up and die. This is a truly horrible drug. It does exactly what it says and SO much more. I am so happy to be off of it."

   
10

BekahB March 28, 2016

5 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Obesity: "I've struggled with the weight roller coaster since pre teen. I was prescribed topamax 3 months ago but quit within 3 days because I didn't feel different and my appetite was unchanged. Last week I ran into a friend who has was significantly over weight and suffered from depression. She has lost 50 lbs in past year while taking topomax. So, needless to say I've started taking 25 mg in morning and 25 mg at night. Tomorrow I'll increase to 50 mg at night. It's only been a week but I haven't had any side effects."

Rita63 (taken for less than 1 month) March 22, 2016

19 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "I had a horrible experience with Topamax...I went 72 hours without getting any sleep when I started taking it. I got the tingly feeling, I couldn't sweat or cry, I was having hallucinationa at night time, I had the foggy feeling constantly and couldn't concentrate. I was a horrible mess. I was only on it for a couple of months before I stopped. It has been about 5 months since I stopped taking and I still constantly feel foggy, dizzy, off balance like I'm drunk. I do not feel like myself at all and I'm nervous that this medication has caused permanent damage."

   
1.0

Never_Again!!! (taken for 1 to 6 months) March 14, 2016

7 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Bulimia: "I been on this medication for almost a year and a half. I'm twenty years old turning twenty one and struggled with bulimia roughly for ten years now. I was in a treatment center when I was younger for a while, nothing really helped my bulimia. Therapy, nutritionists etc. All the work, DBT everything..honestly it wasn't until I started slowly on this medication. Now on 100mg and taking it with Wellbutrin XL 150mg (I also suffer from other issues) I find myself doing ALOT better..I'm seeing a nutritionist too along with therapy but really my medication has helped. Its great."

   
9.0

KaylaMarie (taken for 6 months to 1 year) March 12, 2016

4 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Topamax (topiramate) for Migraine Prevention: "This is the worst drug I've ever taken. It gave me horrible tremors, anxiety, & a guilt complex."

   
1.0

464168281 March 11, 2016

11 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "I went on topiramate January 2012 for migraines with positive results. By the end of 2012 I had lost 85lbs, and 7 dress sizes. I had started out at 235lbs and ended up at 150lbs. My dose started out 25mg twice a day, then went up to 50 mg twice a day in two weeks, then was increased to 100mg, twice a day in 3months. At the end of my treatment, my dose was 300mg daily. I had also lost the ability to form sentences, because I couldn't find words, and was constantly in a fog. That is not good if you're a nurse. Also my short term memory was non existent, also not good for an acute care medical nurse. By the time the side effects became so debilitating, I had to take a short leave of absence to sort out my situation because it affected my job performance. In the end, the medication was discontinued by my doctor and I gained 23lbs of the weight back. I'm not upset because now I have my short term memory back, plus I've returned to work and I'm migraine free. I'm still better off because I'm still thinner than before I started with topiramate."

   
9.0

Marlowe65 (taken for 1 to 2 years) March 10, 2016

4 users found this comment helpful. Did you?   Yes   No Report as inappropriate
Page 1 2 3 4 5 6 7 8 9 ...Next
Hide