Phenytoin for Peripheral Neuropathy User Reviews
Brand names: Dilantin, Phenytoin Sodium, Phenytek, Phenytoin Sodium, Extended Release, Di-Phen
- Jello
- Taken for 10 years or more
- January 20, 2020
"First prescribe phenytoin for sleeping disorder 40+ years ago. Helped regulate sleep. 10 yrs later got extreme Graves disease no sleep for 2+ years. Took phenytoin 200mg to regulate sleep between isotopes, but noticed helped with muscle and joint pain. Then got connective tissue disease: debilitating with many splints. Asked for phenytoin. Along with idomethacin, totally cured. Amazing, terrible side effects every time tried to stop drug. Then aortic/bifemoral artery bypass. Now have neuropathy in partially numb legs cuz so many nerves cut during multiple repairs. I shouldn't need phenytoin, but whenever tried to wean off, my body felt like being poisoned and ever inch grates on me, so looks like I'll be taking 200mg forever with no side effects as long as continue. I'm a little thin person 74 with no arthritis or other health issues. I'll never know how else phenytoin influenced, but I think it helps with nerve pain and sleep regulation."
- srr
- Taken for 10 years or more
- November 16, 2023
"Took Dilantin for 20+ years for sleeping issues. Quit working when Pfizer started to make it. Ended up with neuropathy in my feet, and phenytoin is on the list that can cause neuropathy. Old and outdated drug, also known as the ugly drug because it's known to cause abnormal bone growth in your face and elsewhere."
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Dilantin, Phenytoin Sodium, Phenytek
Dilantin (phenytoin) "I was diagnosed with epilepsy at the age of 8 years old, I was put on Dilantin. When I was 65, my neurologist changed my meds 3 or 4 times and I am now on Keppra twice a day with phenobarbatol at night. I haven't had a problem in 6 years, but I developed neuropathy which is a real pain. It makes me have balance problems."