The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Dilantin (phenytoin) for Seizures: I've been on Dilantin a short while. First month was fine. 5th week I started getting low grade fevers, nausea, pinprick rashes, slightly swollen gums. 6th week my gums were very swollen, so much that it hurts to eat and talk. No sex drive for who knows how long, acne like I've never had before, vasodilation to the point of my entire body being red and feeling extremely hot - 98 degrees temperature, compared to a normal 80 - 85. I haven't had any seizures, but I'm miserable, so I'm titrating down and will try something else.
Dilantin (phenytoin) for Seizures: I was on Dilantin (300 mg per day) over 20 years of my Air Force career with no side effects and no seizures. I was unknowingly switched to a generic brand and immediately began having seizures. Attempts to use compensate with Trileptal, Keppra, Vimpat, etc. did not completely remove my seizures like Dilantin. My neurologist is transiting me back to brand name Dilantin so my insurance will cover the cost.
Dilantin (phenytoin) for Peripheral Neuropathy: I was diagnosed with epilepsy at the age of 8 years old, I was put on Dilantin. When I was 65, my neurologist changed my meds 3 or 4 times and I am now on Keppra twice a day with phenobarbatol at night. I haven't had a problem in 6 years, but I developed neuropathy which is a real pain. It makes me have balance problems.
Dilantin (phenytoin) for Epilepsy: I have been on dilantion and phenobarbitone both taken at night. I haven't had any gramdmals in two years. I've notice some type of rash on my side that doesn't seem to ever go away and feel a lot more stress and some weight gain but with the two mixed together it works great. I sleep well and have a lot of energy.
Dilantin (phenytoin) for Seizures: I am on 300 mgs of Dilantin one day and 400 mg the next day. Unfortunately, the day I take 400 mg I do not get the full sound sleep at night. What are the experiences of others?
11 users found this comment helpful.
Dilantin (phenytoin) for Epilepsy: I have been taking Dilantin since late 1991. Started off at 300mg nightly and was increased over time to 400mg when fits became more severe anf frequent. While pregnant with my 3rd child in 2007, dose was increased to 500mg nightly. This dose was never dropped back after pregnancy ended. In June 2011, I underwent brain surgery to have the scarring causing my fits removed. So far, it has been successful. At 22, I had 2 lumps removed from my left breast, which thankfully turned out to be non-cancerous. But after finding a very noticeable lump in my left breast this year, I had a mammogram. The nurse found 22 lumps in total in both breasts! My GP is not concerned and tells me they are just little oil sacks, but lump is not shrinking.
Dilantin (phenytoin) for Peripheral Neuropathy: I am a 26 year old female who has neuropathy throughout her entire body (happened following surgery likely due to anesthesia, awful!). I have bad reactions to seizure medicines, this one being the worst- along with Trileptal. This made me a complete lunatic. I was anti social, scared to be around anyone but my mother, had a migraine for 3 days while taking, was angry- an absolute monster. If you are a female and younger in age, I would suggest trying this medication with a good support system (mother or significant other) who can be with you at all times just in case you react like I did.
Dilantin (phenytoin) for Seizures: After about 8 days of being on Dilantin, I had a horrible allergic reaction. I woke up at like 4:30 with unbearably itchy hives that literally covered my whole body....face, shoulders, chest, stomach, back, buttocks & legs....even on the backs of my hands and feet, with a few spots on the palm of my hand. It sucked, needless to say. It also made me really tired all day, even though I'd take it at night. I'm now starting on KEPPRA. Hope it works.
Dilantin (phenytoin) for Epilepsy: I have had grand mal seizures since I was 9 years old and was involved in a car accident. I have taken Dilantin for over 50 years, with good results. It has controlled my seizures pretty well until recently. I was diagnosed with COPD 2 years ago, and in that time, I have been having seizures every 3-6 months. My doctor switched me to Keppra 6 months ago, and in that time, I have had at least 1 seizure a month. I think it's time to switch back to what works.
12 users found this comment helpful.
Dilantin (phenytoin) for Trigeminal Neuralgia: I have been on this medication for years. I do not take it on a daily basis. When pain pills do not work so good I take a Dilantin to help stop the pain. I have found if you take any of the medications for this disorder your body gets used to it and have to up the dose. I also take Ativan at night if I am not able to sleep because of pain and do not take it every night because my body will get used to it. This is the worst thing I think a person can get and have to live with because it is like getting beat in the face everyday all day long. Oh and do not have your tooth pulled thinking it will get better ... because I have pulled all mine and still have the same pain.
14 users found this comment helpful.
Dilantin (phenytoin) for Seizures: I am a 47 year old male with seizure disorder/Epilepsy. I had my first Grand Mal seizure at 28. Since then I have been taking Dilantin 100mg 3 times a day. At first (the first 3 months I experienced unbearable side effects lightheadedness, etc.) so my doctor changed me to Keppra. The cost of Keppra was way to expensive so I went back on Dilantin. After several more months my body got used to it and I started having zero side effects . After taking it now for 19 years I NEVER have seizures whatsoever but I never miss a dose. 100 mg 3 times a day. I think it is a wonderful medicine and is very inexpensive.
26 users found this comment helpful.
Dilantin (phenytoin) for Epilepsy: I was put on Dilantin a month ago after having a 30 minute Grand-mal seizure. I haven't had another seizure yet but can't stand the side effects. I'm so dizzy and light headed. I have a hard time walking and keeping my balance. I also am having a hard time concentrating and remembering things.
11 users found this comment helpful.
Dilantin (phenytoin) for Seizures: Works fast and was effective for me, but the side effects left me in never-never land. Could not think straight, had no short-term memory, was dizzy, and had no sense of time. Good Luck and keep trying till you find one that works for you.
13 users found this comment helpful.
Dilantin (phenytoin) for Trigeminal Neuralgia: Very effective for Trigeminal Neuralgia for past 2 years at 500mg daily. Not so great now, so I must have built tolerance to it, as I'm having daily bouts of pain again.
10 users found this comment helpful.
Dilantin (phenytoin) for Epilepsy: I have had good but not great response with Dilantin. The medicine helps to reduce my seizures significantly but the side effects are not fun. I experience shaking hands, anxiety, and being very klutzy and forgetful. I have been on the medication for just over nine years and the seizures have slowed, but even on the treatment I'll still experience grand mals that are significant; but not as bad as they used to be. I was just wondering what the real long term effects are, and what to look out for.
Dilantin (phenytoin) for Anxiety: My doctor prescribed Dilantin for anxiety and depression. It seems to work just about 60 to 70% of the time for both conditions. Other times I can't really tell the difference. I use 1 or 2 - 100 mg Capsule(s) a day or only as needed. I like that it is not habit forming and tolerance is not built up. Side effects need to be looked at, although I don't experience any serious adverse effects. Extra Vitamin B-12 and Folic Acid needs to be taken while taking Dilantin because it may cause a deficiency with these nutrients.
27 users found this comment helpful.
Dilantin (phenytoin) for Seizures: I have been taking Dilantin for a few months now for both Petit-mal and Grand-mal seizures. I have experience all of the side effects from the medication. My lymph nodes are swollen and very painful. It is making it difficult to talk. my whole face and neck are swollen as well. I have had painful headaches since two weeks after I started taking the medication. I have also had a fever for the past month around 99 degrees to 100 degrees. This medication works for other members of my family, but it does not work for me.
Dilantin (phenytoin) for Seizures: My 6 year old son suffered seizures for over a year until Doctor gave him Dilantin in the hospital. No more seizures after the first dose. It's been 2 years now. Dilantin was a life changing medicine for us.
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