User Reviews for Dilantin

I took dilantin to control grand mal seizures for close to forty years. It worked fairly well for me but is caused peripheral neuropathy in my feet and I had to change to Neurontin which has worked just as well. This adverse reaction was not mentioned to me until it was too late and the nerve damage is irreversible.

I have been on Dilantin for over a decade and doing really well until recently. If you are experiencing troubles with the new Dilantin you may want to look at what others are saying on the Epilepsy Foundation's forum.

I have been taking Dilantin to control grand mal seizures for about 16 years now. It works very well for me. However, I recently learned that prolonged use can result in a higher risk of osteoporosis. Since women in my family three generations back have all had this condition, I'm now concerned about my bones and the continuation of this medication.

I have been taking dilantin for 3 weeks now and I have experienced most of the side effects including the more serious ones such as fever, hives, loss of balance and swollen, very tender gums. I went to emergency 2 nights ago with skin rashes, painful gums and painful eyes. The doctor checked my blood and dilantin levels and said it was completely normal. She told me to take benadryl as it was an allergy to something else. I still believe it might be an allergy to dilantin.

I have ben taking this various doses of Dilantin for over 40 years. Although not perfect, it controls my seizures well. However, since menopause I have noticed a gradual increase of phenotin levels in my blood and therefore need to have regular checks. It is difficult to know whether I am under-dosed or over-dosed as my symptoms are similar for both.

I have been using dilantin since I was 15 years old and have had no side affects. I am 42 years old now. I thank god because I have grown out of most of my seizures.

I am 31 years old and have been taking dilantin since I was 14 years old. It works very well for me and the only time I ever had any complications is when I have gone more than 1 day without taking it. I suggest a days of the week pill holder to anybody that has a problem remembering to take their meds.

I'm 52 years old and had a Grand Mal 4 years ago and have been taking Dilantin since without incidence. No side effects. The medicine is effective and relatively affordable.

I have tried several anti-convulsant medicines, even, had combinations before. Dilantin provides better result for me among all. There were few false side effects like rashes, constipations, nausea and dizziness but it really depends on what you have eaten. Just make sure that you get a regular dilantin assay for your safety. I think, it really depends on what kind of seizure and how your body reacts to medicines.

I have been on dilantin since I was about 17. It has been working a lot better than the depekene I was taking before. When I was pregnant and started to gain a lot of weight, My doctor had to increase the dose. I am 31 now and my seizures are very well controled while on dilantin.

I think I might be allergic to this medicine as I had the hives in the evening from my scalp down.

I experienced Stevens Johnson Syndrome when I first started taking this drug. It took 3 months of high doses of prednisone to recover.

Works fast and was effective for me, but the side effects left me in never-never land. Could not think straight, had no short-term memory, was dizzy, and had no sense of time. Good Luck and keep trying till you find one that works for you.

I am a 47 year old male with seizure disorder/Epilepsy. I had my first Grand Mal seizure at 28. Since then I have been taking Dilantin 100mg 3 times a day. At first (the first 3 months I experienced unbearable side effects lightheadedness, etc.) so my doctor changed me to Keppra. The cost of Keppra was way to expensive so I went back on Dilantin. After several more months my body got used to it and I started having zero side effects . After taking it now for 19 years I NEVER have seizures whatsoever but I never miss a dose. 100 mg 3 times a day. I think it is a wonderful medicine and is very inexpensive.

I saw one of your members mention that since she had been taking dilantin she has tenderness or soreness in her breasts, this was very interesting to me because my husband is now on dilantin (after brain surgery for a precaution) and he too has very sore nipples. This is the only different drug he is taking. He is a disabled Vietnam vet and takes 23 medications and it has only been since they added the dilantin did his breasts become sore.

I have been taking Dilantin for a few months now for both Petit-mal and Grand-mal seizures. I have experience all of the side effects from the medication. My lymph nodes are swollen and very painful. It is making it difficult to talk. my whole face and neck are swollen as well. I have had painful headaches since two weeks after I started taking the medication. I have also had a fever for the past month around 99 degrees to 100 degrees. This medication works for other members of my family, but it does not work for me.

Been taking Dilantin for 36 yrs. Had a gran mal seizure. As long as I take medicine things are good. Side effects are eyes sensitive to bright sunshine, gums swell, get tired quicker. Has improved quality of life.

This medication was prescribed to me as a 37 year old cancer patient due to having suffered 3 seizures over the summer all of them grand mal seizures. Presently taking this medication without side effects (aside from being a bit slow in action).

My 6 year old son suffered seizures for over a year until Doctor gave him Dilantin in the hospital. No more seizures after the first dose. It's been 2 years now. Dilantin was a life changing medicine for us.

After about 8 days of being on Dilantin, I had a horrible allergic reaction. I woke up at like 4:30 with unbearably itchy hives that literally covered my whole body....face, shoulders, chest, stomach, back, buttocks & legs....even on the backs of my hands and feet, with a few spots on the palm of my hand. It sucked, needless to say. It also made me really tired all day, even though I'd take it at night. I'm now starting on KEPPRA. Hope it works.