User Reviews for Dilantin

I have had seizures for 40 years. I started on Dilantin and phenobarbital. I had breakthroughs with petit mal seizures, but my grand mals were controlled. When I became pregnant they stopped the phenobarbitol and started me on tegretol. I had more seizures, petit mal and partial complex. Finally a new doctor started me on phenobarbital again with the Dilantin and Tegretol and I rarely have any seizures. When I do they are only petit mal and last only a minute or so.

It is a miracle drug and it works fantastically.

I've been on Dilantin since 1979 and have not had any issues or seizures.

It was okay, I took it for 15 years then they changed it 2 years ago and I cannot take it anymore.

I have been using dilantin for my epilesy for about 38 years now, it has been an excellent drug that has been used other than the swelling of the gums. I have also had 3 children, which our doctors in our town freaked out about while being on medicine. I think they were very happy when the pregnancy ended. But my babies were all healthy babies and I did breast feed.

I've been on Dilantin for about 20 years and it works for me.

I have had good but not great response with Dilantin. The medicine helps to reduce my seizures significantly but the side effects are not fun. I experience shaking hands, anxiety, and being very klutzy and forgetful. I have been on the medication for just over nine years and the seizures have slowed, but even on the treatment I'll still experience grand mals that are significant; but not as bad as they used to be. I was just wondering what the real long term effects are, and what to look out for.

Now I'm almost seizure free.

I was put on Dilantin a month ago after having a 30 minute Grand-mal seizure. I haven't had another seizure yet but can't stand the side effects. I'm so dizzy and light headed. I have a hard time walking and keeping my balance. I also am having a hard time concentrating and remembering things.

I have had grand mal seizures since I was 9 years old and was involved in a car accident. I have taken Dilantin for over 50 years, with good results. It has controlled my seizures pretty well until recently. I was diagnosed with COPD 2 years ago, and in that time, I have been having seizures every 3-6 months. My doctor switched me to Keppra 6 months ago, and in that time, I have had at least 1 seizure a month. I think it's time to switch back to what works.

I have been taking Dilantin since late 1991. Started off at 300mg nightly and was increased over time to 400mg when fits became more severe anf frequent. While pregnant with my 3rd child in 2007, dose was increased to 500mg nightly. This dose was never dropped back after pregnancy ended. In June 2011, I underwent brain surgery to have the scarring causing my fits removed. So far, it has been successful. At 22, I had 2 lumps removed from my left breast, which thankfully turned out to be non-cancerous. But after finding a very noticeable lump in my left breast this year, I had a mammogram. The nurse found 22 lumps in total in both breasts! My GP is not concerned and tells me they are just little oil sacks, but lump is not shrinking.