User Reviews for Savella
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Learn more about Savella.
|Fibromyalgia||260 reviews||19 medications|
|Summary of Savella reviews||260 reviews||6.9|
Reviews for Savella
For Fibromyalgia "Today is my 4th day on the 4-week titration. I'm starting the 25mg today. The first 2-days I felt a burning in the back of my throat. By the third day it was considerably less. On the the second day (12.5mg) I already began to feel the benefits of the medications. The pain had subsided and my energy was back! The extreme burning sensation in my upper back was gone. I'm hopeful that this medication will help me return to work. I still have the pain in my hands. The only con is the excessive sweating primarily in the evening. I'm hoping this will subside. On day two my head was drenched but I had energy and my pain level went from an 8 to a 4. I wil continue to update my progress."
lillypurpleberry November 1, 2015
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For Fibromyalgia "After years of pain, I was diagnosed with fibro about two years ago. I thought I could change my diet and lifestyle to make the pain go away. Using vitamins, going gluten free, light supportive yoga etc. After suffering for about 5 years I finally broke down and went back to my doctor to ask for medication. She gave me savella. I have just completed the graduated starter pack, and let me tell you....work thru the nausea, insomina, dizziness and headaches. I have never felt this good in my life. I still don't have much of an appetite, and get a headache here and there, and from my clothes hanging off of me, I know I have lost weight. (I refuse to own a scale, they are evil!) I start my second month tomorrow, and pray that this continues."
littleabner October 28, 2015
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For Fibromyalgia "Savella has changed my life. I can't believe that I do not have anymore pain after 15 years. My legs, and arms would ache me so bad. I would cry day after day. The only thing I hate is the out of pocket money I have to pay, because of insurance not wanting to pay. They wanted me to try the other drugs first. Was not on their list I guess UnitedHealthCare. They approved, but I still have to pay a lot."
Lucada September 9, 2015
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For Fibromyalgia "I have taken Savella now, 100 mg 2 times a day for 5 years now, with Fantastic results. I have tried so many including cymbolta, which worked well also, but I had many side effects. I recently saw a neurologist and he had never seen anyone take 100 mg twice a day, but it was the only way it worked for me. I was able to stop Taking Gabapentin, which I took 3 times a day. My pain on Savella has gone from 10 to zero."
CherylannHutch May 6, 2015
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For Fibromyalgia "I've been on Savella since 2010 (5 years). I had tried Cymbalta and Lyrica prior to Savella--both of those made me gain so much weight I became depressed. Savella was amazing after the two weeks of hellish side effects to get on it. I had brain zaps, manic phases, irritability, sweating, and sleeplessness--then no symptoms for 4 years. In the last year, I've developed tachycardia--which I blame on Savella. Interestingly, I've also developed idiopathic anaphylactic allergies in the last year. All in all, I think Savella did it's job and pulled me out of the cycle of pain. It practically cured my vulvadynia. But I would have had another child if the pregnancy side effects were known."
Chippette March 26, 2015
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For Fibromyalgia "I was given a 4 week titration pack to try Savella for my Fibromyalgia. I started noticing night sweats & hot flashes. Then on day 19 I was working at a show & had flushing, increased BP, Pulse & sweats so bad that my clothing was wet. I felt like my heart was going to explode. I must have some "lost moments" where I didn't know what I was doing. It was pretty scary so I stopped taking them & told my doctor on my followup visit."
gourdguru (taken for less than 1 month) March 22, 2015
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For Fibromyalgia "Really wanted this to work had allergic reaction to Cymbalta but it was helping fibro so tried Savella. Have been doing titration pack. Never got higher than 50 mg in 3 weeks but my neck has been stiff, headache, stomach pain, bloating, anxiety increased achy feeling like the flu. So I plan to stop it and see if things improve . Diagnosed with fibromyalgia 20 years ago and haven't felt this bad in a long time. So disappointed."
jaisa January 20, 2015
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For Fibromyalgia "I have taken Savella just under 2 years and it has helped my pain and anxiety levels much better than expected. It has cause some weight gain, hot flashes and swelling but is far better than the alternative."
blueagent November 11, 2014
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For Fibromyalgia "I believe Savella has been the most effective out of everything I've tried. I've had no side effects and it works quickly. My only complaint is after a year and a half my body built up a tolerance and I had to stop taking it for a while. I'm happy to say that I'm back on it and I'm pain free."
Cakemaker (taken for 2 to 5 years) July 7, 2014
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For Fibromyalgia "I have been on Savella more than ten years. I take 100 mg. twice a day. When I first started, it did help me. Now, I've been having a terrible time sleeping, dry mouth, constipation and ALL of the "other" side effects listed. I never would have believed that this was WHY I was having so many negative side effects...especially since this is NOT the only medication I take. At first it was just the sweating....now ALL the side effects are bothersome. I am definitely going to talk to Rheumatologist about titrating off....also having a sleep study to see if this is indeed the problem. Sleep Study Doctor has said that this medication after so long, WILL interfere with sleep and other problems."
5babies June 29, 2014
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For Fibromyalgia "I was diagnosed with fibromyalgia after suffering from pains in various parts of my body, exhaustion, and overall lack of interest in most everything. I've now been on Savella 50 me 2 X day for about two months. My results are astounding. Significant reduction in pain, no more feeling exhausted, more active, and weight loss which I needed anyway. I do have episodes of mania though. There are times it seems like I can't stop talking. I have experienced no negative side effects and truly feel like after about 8 years I've finally gained my life back. I know this is just my story, but I hope others can get the same positive results from this medicine."
JDC0103 (taken for 1 to 6 months) June 24, 2014
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For Fibromyalgia "I have been on 100 mg daily for 12 years and have had fairly controlled symptoms compared to others I know with Fibromyalgia. I am increasing my dose to 200 mg daily to help control my anxiety and insomnia. Savella has been a life saver for me!"
Triciajo8 April 28, 2014
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For Fibromyalgia "I first started taking Savella in May of 2009, it had not been on the market long. I used the starter pack from my doctor and noticed positive results right away. Savella interacts with a lot of other medications, so I have to be very careful, especially with serotonin syndrome which I did have symptoms of after taking Savella and Tramadol together. I do get the night sweats and remember more dreams and even have lucid dreams now, both otherwise no other negative side effects. Savella does cause somewhat rapid weight loss for me (1-2lbs a week, but I have it to spare). Decreased appetite as well. It really helps control my fibromyalgia symptoms, Savella is my miracle."
Amanda T. (taken for 2 to 5 years) February 25, 2014
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For Fibromyalgia "I have taken most everything on the market and we started to think I had been misdiagnosed. My doctor was at a point where she was beginning to think the same thing. Savella was my last hope. I began taking the titration pack with no marked change so she increased the dosage and so far I feel better than I have in a long time. The only drawback (other than decreased sexual appitite) is the cost. My co-pay is $45. It may not seem much to some but when I am taking 9 RXs a month it is costly but worth it."
Jalisa (taken for 1 to 6 months) October 22, 2013
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For Fibromyalgia "I was put on Savella shortly after it came out and was on it for 3 months and my blood pressure rose. My doctor took me off of it and added blood pressure medication and I was put on Neurontin. Neurotin did not do anything for my fibromyalgia, I was constantly in pain. Six months ago, I went to my doctor and stated I wanted to try it again, because it had worked before and we had added a blood pressure med. I was depressed and hurting. I told her I did not want to be on narcotics all the time to control the pain. I have been on it now for about six months, we are watching my blood pressure closely and all has been good. It has helped with my IBS, I have lost almost 40 pounds because I feel good and can move and do simple things again."
lwojo October 21, 2013
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For Fibromyalgia "I'd been treated for fibromyalgia for close to a decade before being prescribed Savella. I wanted to try Lyrica but my Dr said it wasn't a good option for me, not wanting to risk my liver & other side effects of swelling. Savella worked very well for muscle pain. I actually went from Cymbalta to Savella with less side effects. However, after 2 years I could no longer stand the side effect of severe sweating. "
Victim of Pain (taken for 2 to 5 years) October 7, 2013
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For Reflex Sympathetic Dystrophy Syndrome "Have been taking Savella for 3.5 months - started because of chemo induced neuropathy. The only side effect that I did not know was a side effect until I read this board, was sweating in head area. I was having severe pain in both hands and arms and it is virtually gone. Also, I have lost 13 lbs. and could not figure out what why - guess this could be the miracle for weight loss. Very pleased with Savella, wish I had known about it two years ago."
zieMc September 27, 2013
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For Fibromyalgia "I found Savella helpful for my fibromyalgia. I was on 50 mg x day. I was probably on it two years when I began to get high blood pressure, palpitations, drenching sweats and a general feeling of unrest. I stopped taking it and all side effects began to leave. I could not tolerate taking it anymore. I did not think it was really doing much until I stopped taking it and as it left my system I began feeling flare ups of fibromyalgia symptoms. I find I am sensitive to Neurontin, Lyrica, prednisone, many medications."
Tried it September 3, 2013
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For Fibromyalgia "I have been taking Savella for about 4 weeks, 2 weeks at 50mg morning and night and have been having lots of side effects, almost flu like symptoms. Weakness, shakes, lightheadedness, cold, then hot. I have been reading lots of reviews, because I didn't think it could be this medicine, but I guess it can be. I work graveyards and I think I might try 50 mg in the morning and 25 mg at night and go from there. I was on Lyrica for 9 yrs and it was so expensive and the Savella is half the copay Lyrica was. I'm not ready to give up on it yet, but I am so hot all the time, but the weight gain from Lyrica was the reason I decided to try Savella since my insurance will cover now. I'm hoping for the best. Good Luck."
Lori N. August 27, 2013
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