User Reviews for Savella
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Learn more about Savella.
|Fibromyalgia||251 reviews||22 medications|
|Summary of Savella reviews||251 reviews||6.8|
Reviews for Savella
Review by gourdguru (taken for less than 1 month):
For Fibromyalgia: I was given a 4 week titration pack to try Savella for my Fibromyalgia. I started noticing night sweats & hot flashes. Then on day 19 I was working at a show & had flushing, increased BP, Pulse & sweats so bad that my clothing was wet. I felt like my heart was going to explode. I must have some "lost moments" where I didn't know what I was doing. It was pretty scary so I stopped taking them & told my doctor on my followup visit.
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March 22, 2015 8:11 AM
Review by jaisa:
For Fibromyalgia: Really wanted this to work had allergic reaction to Cymbalta but it was helping fibro so tried Savella. Have been doing titration pack. Never got higher than 50 mg in 3 weeks but my neck has been stiff, headache, stomach pain, bloating, anxiety increased achy feeling like the flu. So I plan to stop it and see if things improve . Diagnosed with fibromyalgia 20 years ago and haven't felt this bad in a long time. So disappointed.
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January 20, 2015 2:35 PM
Review by Danvic (taken for 1 to 2 years):
For Fibromyalgia: Works great, don't miss a dose! Helps a lot with pain.
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November 24, 2014 9:33 PM
Review by blueagent:
For Fibromyalgia: I have taken Savella just under 2 years and it has helped my pain and anxiety levels much better than expected. It has cause some weight gain, hot flashes and swelling but is far better than the alternative.
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November 11, 2014 1:27 AM
Review by Cakemaker (taken for 2 to 5 years):
For Fibromyalgia: I believe Savella has been the most effective out of everything I've tried. I've had no side effects and it works quickly. My only complaint is after a year and a half my body built up a tolerance and I had to stop taking it for a while. I'm happy to say that I'm back on it and I'm pain free.
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July 7, 2014 11:02 PM
Review by 5babies:
For Fibromyalgia: I have been on Savella more than ten years. I take 100 mg. twice a day. When I first started, it did help me. Now, I've been having a terrible time sleeping, dry mouth, constipation and ALL of the "other" side effects listed. I never would have believed that this was WHY I was having so many negative side effects...especially since this is NOT the only medication I take. At first it was just the sweating....now ALL the side effects are bothersome. I am definitely going to talk to Rheumatologist about titrating off....also having a sleep study to see if this is indeed the problem. Sleep Study Doctor has said that this medication after so long, WILL interfere with sleep and other problems.
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June 29, 2014 4:19 PM
Review by JDC0103 (taken for 1 to 6 months):
For Fibromyalgia: I was diagnosed with fibromyalgia after suffering from pains in various parts of my body, exhaustion, and overall lack of interest in most everything. I've now been on Savella 50 me 2 X day for about two months. My results are astounding. Significant reduction in pain, no more feeling exhausted, more active, and weight loss which I needed anyway. I do have episodes of mania though. There are times it seems like I can't stop talking. I have experienced no negative side effects and truly feel like after about 8 years I've finally gained my life back. I know this is just my story, but I hope others can get the same positive results from this medicine.
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June 24, 2014 10:03 PM
Review by Triciajo8:
For Fibromyalgia: I have been on 100 mg daily for 12 years and have had fairly controlled symptoms compared to others I know with Fibromyalgia. I am increasing my dose to 200 mg daily to help control my anxiety and insomnia. Savella has been a life saver for me!
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April 28, 2014 9:04 PM
Review by Amanda T. (taken for 2 to 5 years):
For Fibromyalgia: I first started taking Savella in May of 2009, it had not been on the market long. I used the starter pack from my doctor and noticed positive results right away. Savella interacts with a lot of other medications, so I have to be very careful, especially with serotonin syndrome which I did have symptoms of after taking Savella and Tramadol together. I do get the night sweats and remember more dreams and even have lucid dreams now, both otherwise no other negative side effects. Savella does cause somewhat rapid weight loss for me (1-2lbs a week, but I have it to spare). Decreased appetite as well. It really helps control my fibromyalgia symptoms, Savella is my miracle.
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February 25, 2014 5:19 AM
Review by Jalisa (taken for 1 to 6 months):
For Fibromyalgia: I have taken most everything on the market and we started to think I had been misdiagnosed. My doctor was at a point where she was beginning to think the same thing. Savella was my last hope. I began taking the titration pack with no marked change so she increased the dosage and so far I feel better than I have in a long time. The only drawback (other than decreased sexual appitite) is the cost. My co-pay is $45. It may not seem much to some but when I am taking 9 RXs a month it is costly but worth it.
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October 22, 2013 4:03 PM
Review by lwojo:
For Fibromyalgia: I was put on Savella shortly after it came out and was on it for 3 months and my blood pressure rose. My doctor took me off of it and added blood pressure medication and I was put on Neurontin. Neurotin did not do anything for my fibromyalgia, I was constantly in pain. Six months ago, I went to my doctor and stated I wanted to try it again, because it had worked before and we had added a blood pressure med. I was depressed and hurting. I told her I did not want to be on narcotics all the time to control the pain. I have been on it now for about six months, we are watching my blood pressure closely and all has been good. It has helped with my IBS, I have lost almost 40 pounds because I feel good and can move and do simple things again.
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October 21, 2013 12:09 AM
Review by Victim of Pain (taken for 2 to 5 years):
For Fibromyalgia: I'd been treated for fibromyalgia for close to a decade before being prescribed Savella. I wanted to try Lyrica but my Dr said it wasn't a good option for me, not wanting to risk my liver & other side effects of swelling. Savella worked very well for muscle pain. I actually went from Cymbalta to Savella with less side effects. However, after 2 years I could no longer stand the side effect of severe sweating.
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October 7, 2013 9:38 AM
Review by zieMc:
For Reflex Sympathetic Dystrophy Syndrome: Have been taking Savella for 3.5 months - started because of chemo induced neuropathy. The only side effect that I did not know was a side effect until I read this board, was sweating in head area. I was having severe pain in both hands and arms and it is virtually gone. Also, I have lost 13 lbs. and could not figure out what why - guess this could be the miracle for weight loss. Very pleased with Savella, wish I had known about it two years ago.
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September 27, 2013 2:11 PM
Review by Tried it:
For Fibromyalgia: I found Savella helpful for my fibromyalgia. I was on 50 mg x day. I was probably on it two years when I began to get high blood pressure, palpitations, drenching sweats and a general feeling of unrest. I stopped taking it and all side effects began to leave. I could not tolerate taking it anymore. I did not think it was really doing much until I stopped taking it and as it left my system I began feeling flare ups of fibromyalgia symptoms. I find I am sensitive to Neurontin, Lyrica, prednisone, many medications.
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September 3, 2013 9:05 AM
Review by wwjdntx1 (taken for 1 to 2 years):
For Fibromyalgia: Caused suicidal thoughts.
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August 31, 2013 2:38 AM
Review by Lori N.:
For Fibromyalgia: I have been taking Savella for about 4 weeks, 2 weeks at 50mg morning and night and have been having lots of side effects, almost flu like symptoms. Weakness, shakes, lightheadedness, cold, then hot. I have been reading lots of reviews, because I didn't think it could be this medicine, but I guess it can be. I work graveyards and I think I might try 50 mg in the morning and 25 mg at night and go from there. I was on Lyrica for 9 yrs and it was so expensive and the Savella is half the copay Lyrica was. I'm not ready to give up on it yet, but I am so hot all the time, but the weight gain from Lyrica was the reason I decided to try Savella since my insurance will cover now. I'm hoping for the best. Good Luck.
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August 27, 2013 2:37 PM
Review by Riversunday:
For Fibromyalgia: I visited a rheumatologist the first time about 3 or 4 months ago because my osteoarthritis appeared to have worsened over many months. I had gone to my family doctor but he couldn't understand the reason for my pain becoming so severe with my osteoarthritis. I was frustrated as a nurse because I walk a lot at the hospital. The pain was more than I could stand, starting at my lower back, down my right hip, and on down to my right leg above my knee. I cried numerous times with this discomfort. I could tolerate the pain with my swollen knuckles, loss of cartilage in the knees or any other pain, but NOT the back pain. I have been taking Savella & the back pain is significantly reduced! I do have heavy sweats and I remember my dreams.
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August 4, 2013 7:44 AM
Review by pickme (taken for 1 to 6 months):
For Fibromyalgia: On Savella for about 3 months now, works great for me. So far no side effects.
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July 29, 2013 11:22 AM
Review by suzpainfree:
For Fibromyalgia: I've been suffering with overall pain for approximately 10 years now. I went to the doctor 9 years ago who said he thought I had fibromyalgia, and I would have this pain for the rest of my life because there is no know medication that would help. Then a month ago the pain was getting so bad I couldn't sleep. I decided to go to a specialist who told me I do have fibromyalgia. I was given a sample of Savella, and it worked right away. I've been taking it for almost a month now and I have not felt this good for years! After reading all the side effects everyone is having has scared me. I don't want to stop taking Savella and get all that terrible pain back. I guess I better count my blessing and enjoy for now.
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July 16, 2013 11:02 AM
Review by 1brokenbone:
For Reflex Sympathetic Dystrophy Syndrome: I have had a severe case RSD/CRPS1 since 2007, as it began with an injury to my spinal cord in 2006 after a fracture. I have been on, and am still on, many medications to treat different aspects of it. I have been taking Savella since 2009 to help with the severe burning in both my feet, as well as my legs and pelvis. I also experience something that feels like a red hot fire poker sticking in the bottom of my foot. Savella has been the only medicine that has helped reduce these symptoms- and I have tried every single medicine out there for nerve pain/burning- either with horrible side effects or no results. Savella has worked the best. The only issue is I do notice headaches as I titrated up on the medicine.
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June 29, 2013 2:43 PM
Review by Bob McWilliams:
For Fibromyalgia: This is a tough one. I've been taking Savella for not quite a year. I have no known side effects, taking twice daily x 50mgs other than slight drying but I take other meds that also could be suspect. Here's my report. It mainly helped take the stiffness, pins and needles out of my knuckles in my hands for months BUT know that is coming back. I think my body is getting used to it and its not working any longer, at least not as well. My Doc and I talked about going to 100 mgs but have not. I still have to take Vicoprofen for my Fibromyalgia. Nothing else takes the overall tiredness and pain away like that. Even though its not my miracle drug I like it enough to pay my $45 monthly script for it.
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May 30, 2013 1:56 AM
Review by Nana (taken for 2 to 5 years):
For Fibromyalgia: I have been taking Savella for 2 years now. I was giving this medication for my migraines and it has worked on both my migraines and fibromyalgia. I don't like paying so much for it but it is worth.
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May 6, 2013 10:06 AM
Review by Lilylelani (taken for 1 to 6 months):
For Fibromyalgia: I started Savella 2 months ago for Fibromyalgia, I also have DDD, a C-spine fusion from 2-6, chronic spondylosis, sciatica, and migraine. I used 2 titration packages, using the same dosage for day one out of each package before moving to the next day, etc. That way it prolonged the rising of levels. I had been on Neurontin for many years and even though it helped tremendously for a long while, I started having pins and needle feelings in my legs, abdomen, etc. that an increase in dose didn't help. I still have nausea and a tired feeling, but believe some of it might be due to decreasing Gabapentin as I went up on Savella. Having said all of this, I am not having nearly as much pain as before!
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May 5, 2013 2:41 PM
Review by Seref (taken for 1 to 6 months):
For Fibromyalgia: I started Savella a little over a month ago and had not experienced any side effects until the last two weeks. Palpitations/ elevated resting heart rate and right sided headaches, which I did not realize were due to this medication because I didn't experience any initial side effects. Overall muscle pain has been greatly reduced, energy increased. Bummed out that I may have to stop due to the new side effects.
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April 20, 2013 6:21 PM
Review by CS Drenk (taken for 6 months to 1 year):
For Fibromyalgia: I have had a daily chronic migraine on top of the fibromyalgia since November 1999 along with several other problems. I have been on a LOT of different meds over the years. I started taking Savella in October of 2012 and after I had my dose upped to 100 mg 2x daily I realized one day that I was having a bad migraine. I then realized that I had been having many more good days than bad days and very few days spent laying in a dark room praying for overwhelming sleep. I actually have had migraine free days! My mood has been a little better, overall pain is somewhat better and I have had no side effects. So overall I consider it a success. I also still take Cymbalta, Neurontin, Topamax, Oxycodone and a couple of others. Good luck!
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April 20, 2013 4:58 AM
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