User Reviews for Pentasa

My Crohn's disease diagnosis followed a routine colonoscopy at age 54. I had unexplained bouts with diarrhea but never thought much of it. Pentasa reduced the frequency from about every three weeks to about every six-eight weeks, and appears to have reduced the inflammation. No obvious side effects, seems to be helping.

I have never had any significant side effects from Pentasa, and it has kept me feeling great.

Have controlled my flare ups with Crohn's, however have experienced more migraines.

My husband has only been taking Pentasa for a few days, but he has had terrible side effects since day one. His Crohn's had become progressively worse over the years so his GI doctor prescribed Pentasa. He has chest pains, headaches, severe nausea and vomiting as well as loss of appetite. I saw that one person had to lower his dose after 3 weeks, and I wonder if that was due to his experience of these effects also. I know Pentasa has great potential, but how long will these effects last?

I was diagnosed w/Crohn's in 2005 after having years of severe diarrhea, stomach pain/cramping & nausea. After a few weeks of taking the Pentasa (4 grams daily) I felt unbelievably better. Within the last year I have had lots of break through flares & have had to add other meds (6-MP & Humira shots). I have had an active flare since mid-December w/no relief. I have reduced my Pentasa to 2 grams a day because I had noticed that my nausea & other symptoms were more severe on the 4 grams. Even though I feel better my symptoms have not improved enough & I have to now add Remicade infussion therapy to my long list of meds. I think that these meds are helpful as long as they are adjusted depending on your symptoms.

I have had Crohns disease for many years and have used many medications. I started using Pentasa in November and did very well until the last month, when I started having chest pains, heart palpitations. I am now off all medications, but continue to feel tired and weak. The past two years I have had reactions to all of the medications we have tried.

The pain I have after eating is relieved if i take my medicine on time. Before this, I was unable to eat any foods without having loose stools and severe pain.

Pentasa is the only drug I take and it works great! Never have had any side affects. I was in horrible pain from the cramping until I started taking it over a year ago. I am very pleased with this medicine.

I tried several generic drugs but they did not work nearly as well as Pentasa.

I have been taking Pentasa for about two months and my condition has improved. I had to lower the dosage after the first three weeks, but am doing well now.

My child was diagnosed 05/06. Since that time the only major flare he has had was precipitated by the stomach flu. He is otherwise basically controlled with Pentasa.

I have been on Pentasa since 2002. 500mg anywhere from 2 a day to 6 a day and it has helped.

I'm a 25 year old female. I was diagnosed with Crohn's in August 2011. I had a bowel resection at the end of September due to the severity of my illness. I've been taking Pentasa for about 3 months now and feel good, but my hair has been falling out like crazy. I read a normal person loses 50-100 strands a day, I'm losing probably triple that. It's really depressing, I'm switching to another medicine to see if that helps with the hair loss. Other than that I haven't had any side affects. Good luck!

I am a 25 year old female who was diagnosed with Crohn's almost 2 months ago. Pentasa has helped to relieve the very severe stomach cramping I was experiencing before my diagnosis. This is the first treatment my doctor has given me but after a month of taking 4-250mg capsules 4 times a day (in combination with Budesonide 9m) I finally feel comfortable after eating. I'm not noticing any side effects yet. Maybe I'm lucky though after reading some of these other reviews. I wish I didn't have to take 16 of them each day, but to be able to stand up after a meal is wonderful for someone who used to keel over screaming and crying with a rock hard stomach after eating!

I was diagnosed in 1990 and for most of the time since, I have been on Pentasa. The only side effects I have had are: 1) slight increase in hair loss - I added extra Folic Acid to my vitamins and the hair loss greatly reduced. 2) I do not have confirmation, but I believe I react to the salicylates -I get a rush of burning red face after I take the medicines and after certain foods. All in all, these are pretty innocuous side effects compared to other options I was given. Thankfully I can stay well maintained on the Pentasa. Just wish it helped with fistulas too!