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User Reviews for Pentasa

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User Ratings

10
   
30%(9)
9
   
17%(5)
8
   
34%(10)
7
   
4%(1)
6
   
10%(3)
5
   
4%(1)
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0%(0)
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4%(1)

Pentasa Rating Summary

8.2/10 Average Rating

30 Ratings with 29 User Reviews

What next?Compare all 31 medications used in the treatment of Crohn's Disease, Maintenance.

Reviews for Pentasa to treat Crohn's Disease, Maintenance

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"This drug PENTASA is the worst drug that I have ever taken, I had sever vomiting at least over 20 times in the space of 3 to4 hrs and sever diarrheoa which was even worse this occurred every 20 minutes or less sometimes but NO bloody that I was aware of.....So people be warned this drug is CRAP IT really is ..."

   
1.0

Gazza Gazza May 4, 2016

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"I was recently diagnosed with crohns, having painful cramps, bloody stool, and diarrhea. My 2nd day being on Pentasa I ate Taco Bell (which most people with crohns will tell you, almost kills you haha!) I had absolutely no cramps or diarrhea!!! I'm on week 2 taking 500mg 4 times a day and I'm still feeling great! No cramps what so ever! The only symptoms I've noticed was slight chest tightness the first couple of days, slight weight loss, increased appetite, and a little bit of my hair falling out. I started taking folic acid to help with the hair loss."

   
10

colten970 (taken for less than 1 month) April 14, 2016

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"This medicine is the best thing that ever could happened for me .I'm able to eat without it running back out the next 10 min. I have gained weight now I'm worry about gaining to much weight from all the eating I do. I should have started taking it last year but I was worried about the side effects. But no side effects."

   
10

MissT2016 December 2, 2015

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"I've been on pentasa for 3 years. I've had very bad acne and losing a lot of hair."

Raniya November 13, 2015

4 users found this comment helpful. Did you?   Yes   No Report as inappropriate

"I have started the Pentasa. It has given me the diarrhea and some stomach cramps when taking it. I have to see if after taking it for a week how it will do with the Crohn's or see about getting off of it. I am also getting cramps in the stomach area when taking this medication."

walkingtall84 October 27, 2015

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"works great"

   
10

Susieq44094 June 28, 2015

4 users found this comment helpful. Did you?   Yes   No Report as inappropriate

"My main symptoms were diarrhea and bloody mucous stools. Once on pentasa 4g a day the symptoms had stopped. Until a month ago where they began along with a lot of wind. Was using suppositories as well initially 1 then 2 per day. I've stopped taking all medication till I see my specialist so far symptoms are on worse- better if anything no longer running to toilet all day. I've had collitis for less then a year I'm 35"

   
8.0

belly18 March 31, 2015

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"I am 67 years old and was diagnosed with Crohns at age 50. I have taken Pentasa for 16 years. I took 4x250mg three times daily and experienced chest pains. I cut it to 3x250x3times daily and that took care of the chest pains. I am a fairly petite woman so that could be a factor. I have had flare-ups but generally have done great. I tired cutting back myself and each time had severe pain, vomiting etc. I now know not to cut back. I hope to continue on Pentasa."

   
10

mareyj January 20, 2015

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"I was diagnosed in 2013 with Crohns. Pentasa has relieved my symptoms greatly. I take 500 mg 4 times a day. I find it works better for me when I take it with food. My only side effect is night quivers. Other than this, Pentasa works wonders. It's well worth my $55 copayment each month."

   
10

Hotmomma1 January 28, 2014

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"Was diagnosed about 1 year after an emergency surgery for a mass in my colon due to a build up of scar tissue from inflammation. After a couple months of 500mg 3X a day frequency of flare ups were greatly reduced. Only had 2 noticeable symptoms, one of weight gain and an an elevated liver function test. My dosage was reduced to 2X a day and liver function is normal but weight gain is still issue. Diet and STRESS level seems to be the most important factor in controlling flare ups"

   
8.0

J. Mccartney June 19, 2013

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"I take 1000 mg 2x day along with Humira every two weeks. The combination works very well for me and I'm healthier than I've been in years. The only significant side-effect for me has been anxiety. I am told it is not a side effect but I've been off and on Pentasa over the years and the 3 years stretch where I was off completely, my anxiety went away entirely. It wasn't until I went back on Pentasa that I made the connection."

   
8.0

Fionafire71 (taken for 5 to 10 years) March 12, 2013

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"I've just started pentasa and so far so good I think! I was diagnosed when I was 19 and now I'm 32 was on Asacol for most of that time but my doctor felt it was no longer working the way it needed to! I ended up in the hospital for 2 days due to severe dehydration 2 weeks ago! I had also lost 30lbs in the last 2 months. I have actually been able to eat the last couple of days and I'm not feeling the pain from eating!"

   
6.0

TikiTorch February 1, 2013

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"I have been on Pentasa 2 capsules 2x day first week feel amazing to not have all day tummy pain or cramping. Hope I have found something that will continue to work for me."

   
10

mn crohnie (taken for less than 1 month) December 23, 2012

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"Totally awesome. I was diagnosed over 25 yrs ago with Crohns. I take 1000mg 3 times a day of Pentasa and 50mgs of mercaptopurine once a day and I have only had 2 flare ups. With proper diet exercise and medications taken as directed daily on a regular schedule remission and normal life is possible."

   
9.0

happycamper110362 (taken for 10 years or more) December 5, 2012

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"I was diagnosed in 1990 and for most of the time since, I have been on Pentasa. The only side effects I have had are: 1) slight increase in hair loss - I added extra Folic Acid to my vitamins and the hair loss greatly reduced. 2) I do not have confirmation, but I believe I react to the salicylates -I get a rush of burning red face after I take the medicines and after certain foods. All in all, these are pretty innocuous side effects compared to other options I was given. Thankfully I can stay well maintained on the Pentasa. Just wish it helped with fistulas too!"

   
9.0

Anonymous January 30, 2012

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"I'm a 25 year old female. I was diagnosed with Crohn's in August 2011. I had a bowel resection at the end of September due to the severity of my illness. I've been taking Pentasa for about 3 months now and feel good, but my hair has been falling out like crazy. I read a normal person loses 50-100 strands a day, I'm losing probably triple that. It's really depressing, I'm switching to another medicine to see if that helps with the hair loss. Other than that I haven't had any side affects. Good luck!"

   
7.0

Anonymous December 26, 2011

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"I am a 25 year old female who was diagnosed with Crohn's almost 2 months ago. Pentasa has helped to relieve the very severe stomach cramping I was experiencing before my diagnosis. This is the first treatment my doctor has given me but after a month of taking 4-250mg capsules 4 times a day (in combination with Budesonide 9m) I finally feel comfortable after eating. I'm not noticing any side effects yet. Maybe I'm lucky though after reading some of these other reviews. I wish I didn't have to take 16 of them each day, but to be able to stand up after a meal is wonderful for someone who used to keel over screaming and crying with a rock hard stomach after eating!"

   
8.0

Anonymous November 2, 2011

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"I have had Crohns disease for many years and have used many medications. I started using Pentasa in November and did very well until the last month, when I started having chest pains, heart palpitations. I am now off all medications, but continue to feel tired and weak. The past two years I have had reactions to all of the medications we have tried."

   
6.0

Anonymous March 19, 2011

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"I have been on Pentasa since 2002. 500mg anywhere from 2 a day to 6 a day and it has helped."

   
8.0

mehastings March 17, 2011

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"Pentasa is the only drug I take and it works great! Never have had any side affects. I was in horrible pain from the cramping until I started taking it over a year ago. I am very pleased with this medicine."

   
10

Anonymous November 28, 2010

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"I was diagnosed w/Crohn's in 2005 after having years of severe diarrhea, stomach pain/cramping & nausea. After a few weeks of taking the Pentasa (4 grams daily) I felt unbelievably better. Within the last year I have had lots of break through flares & have had to add other meds (6-MP & Humira shots). I have had an active flare since mid-December w/no relief. I have reduced my Pentasa to 2 grams a day because I had noticed that my nausea & other symptoms were more severe on the 4 grams. Even though I feel better my symptoms have not improved enough & I have to now add Remicade infussion therapy to my long list of meds. I think that these meds are helpful as long as they are adjusted depending on your symptoms."

   
8.0

Gigi2195 February 25, 2010

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"My husband has only been taking Pentasa for a few days, but he has had terrible side effects since day one. His Crohn's had become progressively worse over the years so his GI doctor prescribed Pentasa. He has chest pains, headaches, severe nausea and vomiting as well as loss of appetite. I saw that one person had to lower his dose after 3 weeks, and I wonder if that was due to his experience of these effects also. I know Pentasa has great potential, but how long will these effects last?"

   
5.0

reds_mrs December 26, 2009

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"The pain I have after eating is relieved if i take my medicine on time. Before this, I was unable to eat any foods without having loose stools and severe pain."

   
8.0

purplepenny28 December 10, 2009

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"My child was diagnosed 05/06. Since that time the only major flare he has had was precipitated by the stomach flu. He is otherwise basically controlled with Pentasa."

   
9.0

Anonymous October 19, 2009

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"Have controlled my flare ups with Crohn's, however have experienced more migraines."

   
8.0

Anonymous October 16, 2009

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