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Reviews for Remicade to treat Crohn's Disease, Maintenance
tsowensjmi (unregistered) said:
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I've had Crohn's for 12 years and I'm 44 now. I believe my Crohn's was triggered or worsened by a doctor misdiagnosing my lower back/hip joint pain from Crohn's and prescribing heavy Ibuprofen. I tried Asacol, Imuran, and Pentasa, but always ended up taking prednisone to calm the symptoms. Every February I ended up with flare-ups. Doctor put me on Remicade 4 years ago and other than some swelling up in the hands initially and getting perma-colds occasionally, it has worked very well. Now my insurance is trying to force me to go to Humira. Doctor is fighting it, but we'll see how it goes. Hope this helps.
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I have had Crohn's Disease for 18 years. I was extremely ill for the first 8 years. My doctor put me on Methotrexate, and I got better, but not "well". Then, Remicade came out. I have been getting infusions every 8 weeks for over 7 years, and it has saved my life. I will say, though, that at one time they hoped to wean me off of the Methotrexate, but I started having flare-ups and the time between infusions was increased. Since I am back on the Methotrexate and Remicade, I have had no problems at all. Yes, I know my immune system is very weak, but I avoid anyone who is sick, and try to get enough rest when I can. This combination of drugs has worked for me and I hope I have helped someone out there! You may need something else with Remicade.
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I'M 32 AND I'VE HAD CROHNS NOW FOR 14 YEARS. REMICADE WAS A GOD SEND BUT ONLY FOR A LIMITED TIME. I STARTED OFF LIKE EVERYONE ELSE WITH I.V EVERY 8 WEEKS. THEN AFTER A COUPLE OF YEARS IT WAS WEARING OFF FASTER SO THEN EVERY 6 WEEKS. THEN EVERY 4 WEEKS THEN IT WAS BACK ON THE STEROIDS ALONG WITH THE 4 WEEK TREATMENT. WELL AFTER 6-7 YEARS ON REMICADE IT WASN'T WORKING ANYMORE. I DO RECOMMEND IT BECAUSE I WOULD GIVE ANYTHING RIGHT NOW TO GET THOSE 6 YEARS BACK BECAUSE EVEN THOUGH I WAS BECAME IMMUNE TO IT I FELT 20 TIMES BETTER THEN COMPARED TO NOW. SINCE THE REMICADE NOTHING HAS WORKED FOR ME SINCE.
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I am a 28 year old male and was diagnosed with Crohn's 6 years ago. I had a flare up with an abdominal aneurysm and lost approx 90 lbs. I was put on Remicade and it has saved my life. I have been on it every 8 weeks for about 4 years and have regained a healthy weight and my symptoms are at an all time low. My only complaints are that getting the treatment is time consuming and the cost is obscene if you don't have good insurance. However, despite all that, it truly has saved my life and I couldn't be happier with the actual results of the medication.
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I am 24 and I was diagnosed with Crohn's disease a year and a half ago now. I've been receiving this infusion for the past 12 months. The relief was brilliant bar constantly catching coughs, colds and flu's but it was worth it as I could lead a normal life again. My infusions were every 8 weeks and could take anything up to 4 hours but my remission time between infusions began to steadily decrease. I have now had my 9th infusion and receive them every 5 weeks. My body has grown an immunity to the drug and my doctor is changing me onto Humira as a last resort to avoid surgery. Hope this helps somebody.
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I was diagnosed with Crohn's disease ten years ago. I had a flare-up six months ago. I had a small bowel resection two months ago. So far I have had five transfusions. At first I felt a little faint and scared. Now it feels fine.
I feel great and am in remission. I supplement my Remicade transfusions with 50 mg Imuran and B-12 shot monthly.
I am very happy. I hope the good times last.
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I am 23 years old and have had Crohn's since I was 19. I started Remicade about 6 months ago, and it's the only treatment that's worked so far. It is a bit time consuming, but it's better than taking 10 pills a day (or more) and more effective. I would recommend trying this after everything else fails. It feels good to be normal again.
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I am 22 years old and have had Crohn's disease since age 17. I can't take steriods of any type - makes me go crazy. Remicade is the best drug I've been on for my disease. It works great but has some bothering side effects for me but they are not bad enough to quit gettting this medication every 8 weeks at the hospital through I.V. It takes about 2 or 3 hours for the treatment to be over.
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PENWESTERN said: 
