The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Reviews for Plaquenil to treat Systemic Lupus Erythematosus
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10
This drug gave me back my life. I suffered with chronic cyclical arthritis that felt like it was in every joint. The fatigue was devastating. Even if I slept for hours I still woke up feeling no better. I was scared to take this drug but eventually I had to do something. Thankfully, I have no side effects. I only have very occasional arthritis and am no longer tired. It has given me back my life. I do have my eyes checked 2x/yr.
86 users found this comment helpful.
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I have been on this medication since February 2008. I have more energy and less fatigue. I still have my days, but this medication is a God send. Initially, my hair began to thin, but with supplements and proper hydration for my hair, it has levelled and is beginning to thicken again. If you are taking this medicine and have some of the side effects, please give it some time. I am glad I did.
58 users found this comment helpful.
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I have had lupus 6 years and have been taking plaquenil since then and I have had no side effects. This medication has really helped me to have a normal life again.
50 users found this comment helpful.
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Been taking for one week. Too soon to tell if it will work but long enough to learn that taking it with fatty food such as peanut butter or cream cheese lessens the stomach discomfort - for me anyway.
26 users found this comment helpful.
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The only reason I gave Plaquenil a 9 instead of a 10 is because I still need Imuran as well. Plaquenil is a great medicine but it's important to have your eyes examined every 6-12 months to check for a RARE side effect of eye damage.
For mild cases of lupus (meaning no organ involvement) I would say this works perfectly fine. Reduces fatigue and joint pain from a 10 to about a 2 depending on weather conditions. If you are active and maintain a healthy diet I would say fatigue and pain are at a nil while taking Plaquenil. It takes maybe a few months to get the dosages correct with your level of pain and fatigue.
I was diagnosed with Discoid lupus in 2009 and I began using Plaquenil once I stopped breastfeeding. Initially, the only difference I noticed was my hair stopped falling out. After taking Plaquenil for a less than a year my face and neck started turning black. My dermatologist is convinced that Plaquenil is the culprit and just recently confirmed it. Between my rheumatologist and dermatologist they're trying to find the right medicine that will work. I've been using bleaching creams for about 9 months and they haven't worked well. I tried to come off Plaquenil but I experience bad headaches and hair loss.
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